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Title: Diagnosed with CH, but seems more like PH? Post by jchansen on May 18th, 2004, 10:48am Hi fellow sufferers...I didn't realize how many other people suffered from this condition. I have never heard of Cluster Headaches before! Mine started just last week. I was watching TV with my family and I felt this weird pain in my neck...felt like my lymph node was going to explode. The pain radiated to my jaw and face on my left side up to my temple. It was excruciating. That night I was woken up by this pain every two hours. I had to get out of bed and pace around until it stopped. Of course, I had a lousy sleep. The next morning I decided to go to a walk-in clinic to see what could be wrong with my face. I explained my symptoms to the doc and he thought it was tooth decay. I do have a sensitive lower molar so it was a plausible theory. He prescribed a heavy dose of Penicillin and told me to get my tooth checked. Fortunately, my girlfriend is a dental assistant and got me in that day. I've always had good teeth so I wasn't expecting to find decay. X-rays showed no decay anywhere or any cavities. The dentist thought that I might have severe bruxism which might be causing the pain in my jaw. I had my splint adjusted and tried to wear it that night, but it was too uncomfortable. I actually had 4 hours of sleep without an attack. It was now the weekend and my mysterious pain had changed. It was no longer in the front of my neck and jaw. It had moved to the base of my skull and now it felt like an icepick was being rammed up through my esophagus. It was less painful than the first pain, but still agonizing. I got more sleep over the weekend, but by Sunday night, the pain changed back to my face...only with more intensity. This time it attacked me every hour and lasted about 10-15 minutes at full intensity, then tapered off to a mild throbbing for another 10-15, after which I'd try to sleep again. These attacks nearly had me in tears. I like to think I can handle pain, but whatever this was had me crawling on the floor begging for mercy. I can see why they call this the 'suicide disease'. I finally got in to see my GP. I told him the symptoms and he told me right away that I was suffering from cluster headaches. He prescribed me prednisone and these $14 pills called Maxalt to help with severe attacks. The prednisone kept my up all night and the attacks were still pretty regular, but were lighter in intensity. It's now Tuesday morning and I've had one painful attack. I can't take the Maxalt for another 12 hours or so or I'll be exceeding the maximum dosage. After reading some of the discussions, I'm wondering if I'm suffering from Paroxysmal Hemicrania (sp?) due to the frequency and shorter duration of the attacks. Episodes rarely last more than 20 minutes, but I usually can't go more than an hour or two without having one. I guess I'll see how the prednisone works. If it doesn't help, then I'll call my GP and see if I should try the endomethacin. I'd appreciate anyone's input and suggestions. Thanks for listening. Cheers, Jason |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Giovanni on May 18th, 2004, 12:02pm Hi Jason, I certainly hope it is Paroxysmal Hemicrania rather than clusters because usually it can be treated with indomethacin with a high rate of success. Why not have your doctor try this drug and see what happens. I believe it has about a 95% success rate with Paroxysmal Hemicrania. Good luck, John See this link: http://www.ninds.nih.gov/health_and_medical/disorders/paroxysmal_hemicrania.htm |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on May 18th, 2004, 12:40pm Thanks for the reply Giovanni. I checked out that site and my condition does seem more like PH rather than clusters because my attacks are very brief. I have never had an attack last more than 30 minutes and I have the dull pain/aching in between occurrences. I'll see if I can get another appt with my GP to get a Rx for indomethacin. Oww...just got hammered with another attack. Can coffee trigger these things?? I feel like my teeth are on fire. |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Superpain on May 18th, 2004, 6:10pm Hopefully it is ph and indo will help. But during my cycles I get hit up to 20 times a day with headaches that last sometimes a little as 5 min's. I have cluster's and no ph... I'm in the minority from what I can tell, but just fyi, it is possible for clusters to behave like this. |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Giovanni on May 18th, 2004, 7:55pm Hi Jason, Many people with clusters will use coffee particially as an abortive. It constricts the blood vessels and helps relieve the headache to many. John |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on May 19th, 2004, 1:44am I went back to my GP this afternoon hoping to get some other options for relief. I was hit with another crushing attack on my way to the doctor and on the way home. I suggested that I might have Paroxysmal Hemicrania, but he had ruled that out in the first visit because I didn't respond to 600mg Advil at all. Indomethicin is just a more powerful anti-inflammatory, so if I had PH, then the Advil would have at least taken the edge off. He's certain I have a form of cluster headaches that have a frequency and duration more typical of PH sufferers. My attacks are short and number in the 12-15 a day. I guess nobody is really the same when it comes to this kind of thing. Thanks for the coffee tip, Giovanni. I know coffee helps migraine sufferers. My girlfriend gets migraines often due to a neck injury and will sometimes have a coffee to relieve the pounding in her head. The caffeine keeps her up though, so it's only if it gets unbearable. I've never had a migraine so I don't know how it compares to a cluster headache. My GP gave me a syringe of lidocaine, which is used to freeze your gums at the dentist. He talked to his friend who is a neurologist and he suggested this alternate therapy to help with severe attacks. I basically squirt a few drops into my left nostril and it numbs the nerve that runs along that side of my face. It actually has been working quite well. Except the first time I did it, I squeezed too hard and fired several mls past my nostril and into my throat. Never had my esophagus go numb before...quite the odd feeling. I had a good workout tonight with seemed to help with the attacks. I haven't had a bad one in several hours. I'm hoping to get a good night's sleep, but I'm not holding my breath. Thanks again for the feedback. I'm learning a lot about CHs. |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Superpain on May 19th, 2004, 2:15am You need to go see a neuro that specializes in headaches. Motrin isn't going to do shit against cph or ch no matter what relation it has to indomethacin. Like I said before it is possible to have ch that behave like this but you should have it ruled out by a good neuro just in case. And although lidocain is used in the treatment of ch, it is far from being the most successful or most prescribed abortive. Have you tried oxygen? It is by far the most widely used, successful and loved abortive that we know of. I guess it doesn't work for everyone, but if you use it right I'd say about %95 of us get great relief from it. Imitrex injections are wonderful for big bad headaches. And there's a whole host of drugs that have alot of success as preventatives. In this wonderful world of ch, $14 for a pill is not relatively expensive at all... But pills don't work very well. Especially if your getting hit quickly. Imitrex shots are the way to go. ;) What is the schedule for your prednisone? |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Giovanni on May 19th, 2004, 6:26am Imitrex injections will abort an attack (with me) in less than 5 minutes. O2 is a great abortive usually used at a high flow rate in a non-rebreather mask. I still would try indomethacin to rule out Paroxysmal Hemicrania. This drug is cheap and a non steriod anti inflammatory. You really do need a neurologist who specializes in "headaches". For cluster headaches, I personally used the following treatment to completely avoid the cycle I should be in now: www.clusterbusters.com Also, look up the old links here to melatonin. best of luck, John |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on May 19th, 2004, 10:05am I actually slept about 6 hours straight without an attack, so I might be making some progress. I didn't even need to take a Maxalt wafer. I did drop some lidocaine into my nostril (properly this time) which worked really well! I went about 9 hours without an attack. First one since then happened at 8am this morning. Chris, my GP prescribed me the following: - 75mg prednisone for next three days, then cut back to 50mg until Monday. Then taper off one pill every other day, skipping days between until the pills are gone. - for heavy attacks, Maxalt wafers which dissolve instantly and act within 5-10 minutes. - 2% Lidocaine solution I'm to go see him later this week to see how things are going. He said we could try the Indomethacin if the prednisone doesn't work. Thanks again guys...hope you have a pain free day. |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Margi on May 19th, 2004, 11:29am Hi Jason, welcome. Fellow Calgarian here - my husband is a clusterhead. Tonight's the NIGHT, right? Go Flames!! :D So, who's your doc? Have you been able to visit the Foothills Headache Clinic, Dr. Becker's team - they really do know their stuff there. worth a shot to try to get your GP to refer you there. Just so you know, we also have a Canadian cluster site - link is at the bottom. So far, I'm the only Calgarian there - so please feel free to join us. The Flames have made $50 for OUCH Canada, because we do also have some Vancouverites there. ;) C'mon over! No way, Jose!! |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on May 19th, 2004, 11:44am Hey Margi! Nice to see another Flames Fever victim! I'm so pumped about tonight. I think they'll get out of their home game losing streak and finish of the Sharks just like Detroit. It's going to be mayhem in the city tonight! Thanks for the link for the Canadian site. I'll check it out. Also, if this treatment isn't working, then I'll have my GP refer me to Dr. Becker's team. How is your husband doing with his CH? Has he found something that works? |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Margi on May 19th, 2004, 12:35pm Hi Jason, yes Mike is a classic clusterhead and he goes to battle every two years. The weapons he uses are oxygen, imitrex inhalers and verapamil. His last cycle just ended in March after 5 months. Mike goes to Dr. Eloff at the Headache Clinic and she's wonderful. She actually took him in without a referral - they're one of the few places that realize that clusterheads are urgent care cases. And, yes - I hope (with every fibre of my being) that our city goes nuts tonight. We don't live far from 17th Avenue - the red mile - (we're in Glendale Meadows, S.W.)so I hope we are kept awake again tonight by horns honking. :) It was about 3 a.m. the other night when they finally stopped. You wont' see me complaining though!! Lotsa bleary-eyed Calgarians these days with big, stupid smiles on our faces!! Should be interesting to see how Harvey retaliates to the Sharks' mascot's "fish got your tongue" shot on Monday. :) I wonder if Cherry will wear his Commodore wig again. GO FLAMES GO!! (this has become a common ending to conversations here these days - kind of like "Amen".) |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on May 20th, 2004, 1:06am GO FLAMES GO!! The Calgary Flames down the San Jose Sharks in 6 games with a 3-1 win tonight at the dome. What a game! First Stanley Cup Final appearance in 15 years. Calgary has a reason to celebrate tonight! Too bad I'm having bloody CH attacks tonight. I think I might have found a trigger....dairy products. We went to Dairy Queen tonight and I had a Blizzard. About 10 minutes later, I got hit with probably a 9 or 10 on the Kip Scale. I was literally crying and wanting to smash my own head in with a hammer. It lasted a good 30 minutes, then went down to a dull ache. Really wished I had some oxygen handy. I also had my protein shake before bed and was hit immediately with another attack, but less severe. Seems that some foods can bring on an attack. Does anyone find some foods trigger attacks? I was looking forward to a good rest tonight, but I might be in for some walks with the beast tonight. At least the Flames won...the beast can't wipe that smile off my face! |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on May 20th, 2004, 9:59am Margi, I think I'm going to ask for a referral to Dr. Becker or Dr. Eloff at the Headache Clinic. I had a really bad night. Got 4 hours of sleep, then woke up in pain...not excruciating, but enough to prevent me from going back to sleep. There sure is crap on for TV at 4 am! I squirted lidocaine into my nostril, but it doesn't help much and seems to be losing it's effect. I got ready for work at 6am and had another attack driving my daughter to daycare. I took my Maxalt wafer because it was getting intolerable...this was about 15 minutes ago and I've gotten no relief. It's getting worse to a point that I'm almost on my knees. I'm trying Dr Becker's office right now hoping they'll see me today. I don't know how people cope with this for extended periods of time. It's impossible for me to work during an attack. It's a good thing I have awesome bosses that let me come and go as necessary. Oh man...this really sucks... |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Margi on May 20th, 2004, 10:36am hang in there, Jason - I'm sorry to hear that you've had a rough night. I pray that you can get into the Headache Clinic and that they will let you try indomethacin. It sounds like PH to me, too. Irene is the nurse for Drs. Becker and Eloff. Don't take no for an answer if they try to put you on a waiting list. At the VERY least, push hard on your GP to let you try indo - he/she can prescribe it too. Let me know how it goes, ok? Go Flames Go. Go Canada Go!! |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on May 20th, 2004, 9:40pm Thanks, Margi... Today was the worst yet. My attack lasted from about 7 until 1pm peaking at about 8:30. I got into a neurologist office for Dr Wilson. He seemed nice, but couldn't quite pinpoint what my problem was. He thinks it's one of three things: PH, CH, or TN. I have meds for all three and I'm trying the indomethacin first. I'm still on prednisone as well. He did load me up with Imitrex inhalers and Maxalt wafers, so that was good. I also got an Rx for Tegretol in case I have TN. I'm to follow up with him on Tuesday or Saturday if things haven't improved. The Imitrex inhaler worked ok...but I've had this dull painful throb in my lower jaw centered right on my rear molar. It almost feels like I need a root canal, but my dentist couldn't detect any decay or cavities...really weird. I'm hoping to get some rest tonight because I'm absolutely exhausted. Thanks so much for your support. The thought of having to deal with this for the rest of my life is extremely daunting. I guess you deal with whatever comes along as best you can. At least it's not terminal. |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Margi on May 21st, 2004, 11:12am Wow, Jason - that's quite a med mix! It's a really bad idea to mix triptans (imitrex and maxalt) so be very careful there. We have one lady here who actually had a heart attack from mixing triptans! I did some checking for you and you're playing with fire if you take all of those meds at the same time. Check it out: http://www.drugstore.com/pharmacy/drugchecker/interactions.asp?drugs=Imitrex+Nasal%7C112175%3BPrednisone%7C103216%3BTegretol%7C100516%3BIndomethacin%7C101997%3BMaxalt-Mlt%7C113588&patientdrugs=&x=95&y=8 You can, however, safely take gravol (with any of those drugs) (generic Travel Tabs, available from Shoppers Drug Mart, Safeway, Coop, London Drugs) without prescription. Gravol can get you through the night without getting wakened by pain. It doesn't let you get into REM sleep which is when clusters hit - I'm not sure if that's the same for PH. You shouldn't take it for more than a few days in a row because you DO need REM sleep, but it might give you a couple of nights' sleep. Are you going to start a taper off the prednisone soon? That's nasty stuff. :( Were you in a high level of pain from 7 a.m. to 8:30 p.m.? That's not typical of cluster at all. Migraine can last that long and you can certainly have jaw pain with migraine. Did the doctor even consider giving you oxygen? Oxygen can help both migraine and cluster and I'm not sure about PH or TN. But it's one of the safest abortives out there for head pain. I've even had it help sinus headache! |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on May 21st, 2004, 12:48pm Hi Margi, Thanks for the link...quite useful to know what to avoid. I went to my neurologist and he did ask me when I took the Maxalt, which was about 6 hours prior. He thought it was safe enough to take the nasal Imitrex that once. I'm actually feeling like a million bucks right now! I started the Indomethacin last night, but I'm still on the prednisone..I'm going to start tapering the dosage tonight. I think I'm responding best to the Indocid! I slept a full 7 hours last night and woke up with only a dull ache in my face. I took another Indocid when I woke up and now I have no pain or sensitivity in my jaw or teeth at all! I'm going on 24 hours without a major attack, so I'm quite a happy guy right now. Let's just hope this keeps up. I'm not going to take the Imitrex with the Maxalt anymore after reading what it can do to you! I felt completely fine after taking those only 6 hours apart. It seems like I may have PH instead of CH, but the pain in my teeth and jaw is mysterious...almost like a nerve problem like TN. We'll see what happens. Have a great long weekend! |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Superpain on May 22nd, 2004, 4:14pm It may be a little late, but it would've been best to take the indocin before or after the prednisone. Pred stopped my headaches the first day I started it. So now you're not really gonna be sure wether it's the pred or the indo... |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on May 25th, 2004, 2:24pm I actually stopped taking prednisone on Friday. I probably should've continued with it, but I had been taking 75mg a day for four days without relief. Now I've gone almost 5 days without an attack and I feel great. I still have the odd dull throb in my jaw, but that could be from the stupid nightguard I'm wearing. I think it's pretty safe to assume that it is PH that I have and not CH (knock on wood!). I feel bad for those who cannot find complete relief like I have. Hopefully everyone has ruled out the possibility of PH by trying Indomethacin. We'll see what happens in the next few weeks. I hope I never experience this pain again! Thanks for everyone's support and I'll keep in touch. GO FLAMES GO!! |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Margi on May 25th, 2004, 3:40pm so glad to hear you've found your answer, Jason!! It's nice to hear our theories proved out here - that indocin CAN rule out cluster and diagnose PH. Thanks for letting us know. Go Flames Go! :D |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on Jun 7th, 2004, 9:39am My worst fear has come true. My attacks came back on Saturday night after having a few beers. I'd been drinking over a 4 or 5 hour time frame and didn't have anything happen until I got home after the hockey game. Now it's worse than ever. I've gone 15 hours straight on a roller coaster of pain and dull throbbing. I haven't slept a wink and none of my meds are helping. I took a Maxalt, on Saturday night, and an Imitrex inhaler yesterday afternoon. My indomethacin does jack now. I gotta get back into the neurologist today because I need this to stop. I'm a single dad and can't function this way and take care of my daughter. I pray to God there is an answer for this....maybe it's not PH anymore. Maybe Trigeminal Neuralgia? AAAARRRGHHHHHHH |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Margi on Jun 7th, 2004, 1:15pm so sorry to hear this, Jason. Please do call your doc today and get in to see a neuro! GFG - tonight's the night!! |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by UN_SOLVED on Jun 7th, 2004, 2:25pm Once you start taking Prednisone you should NOT abruptly stop taking this medicine or it could lead to some serious problems. Prednisone lowers your immune system and you need the 'tapering' time to rebuild it. IMHO ... 1 'cycle' is NOT clusterheadaches. (if it goes away and comes back in a few months/years ... then maybe CH). Also...12-15 attacks a day is unusual for a clusterhead. Hope you don't have CH Goodluck Unsolved |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by broomhilda on Jun 7th, 2004, 5:58pm on 06/07/04 at 14:25:19, UN_SOLVED wrote:
I beg to differ my friend, but that is your opinion right? * edit.... Jason as Margi said please call your doctor, hope you ger relief soon! |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by gwen on Jun 7th, 2004, 6:18pm Hi Jason I couldn't help in reading your post. I am from the uk i start suffering this head pain back in April 2003 , I went to the dentist thinking it could be to do with my wisdom teeth but it wasn't to be, so i started having all my amalgams removed thinking it was mercury poisoning. Time went on and I myself was given prednisolone Steriods little purple ones but soon as i started to taper off them my headaches were coming back thanks to someone call Alison on the ouch uk chatroom, she told me to try indomethacin, so i did within a few days the headaches started to decrease until they were no more. Word of advise if it is paroxysmal hemicrania don't drink coffee or any type of lager, it makes it worse even if your on indo, or and don't take antibiotics they seem to stop the indo working for some reason. I was in cycle for a year until April 2004 when i came off my tablets i was in remisssion for about 6 weeks, but then they started to niggle at the back of my head and neck, so i have gone back on my indo tablets again. For how long for i don't know. When you first take the indomethacin you might feel a little giddy, but it should wear off. All the best Gwen xx |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by UN_SOLVED on Jun 7th, 2004, 8:47pm on 06/07/04 at 17:58:00, broomhilda wrote:
Yes...it is my opinion: BUT...by definition stated on THIS site : "The attacks of pain are clustered in cycles that usually last 4 to 8 weeks, and are followed by a pain-free remission in 90 percent of patients (http://www.clusterheadaches.com/about.html#Characteristics%20of%20the%20Bouts)." I'm not saying that he does NOT have clusterheadaches...I just think it may be too early to tell. Most CH patients aren't diagnosed for quite some time. Unsolved |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by broomhilda on Jun 7th, 2004, 10:38pm Un_ Solved, I am just over reacting my apologies... Jason I hope you find some answers and some help, sorry you are hurting.... PFDAN to all! Hugs Andrea * edited/ modified a bit ;) |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on Jun 9th, 2004, 12:21pm Hey folks, Worst few days of my life. I got into my neuro on Monday and after describing my symptoms he thought it was more than likely to be Trigeminal Neuralgia. Especially since I wasn't responding to the Indocid anymore. He put me on Tegretol (nasty stuff) and my pain was gone within 12 hours. However, I woke up like I was completely hammered on alchohol. I couldn't drive so I had to stay home with my daughter. I noticed that there was still pain in my neck, but it was different. Now my neck on the left side has puffed out. I have a hard time eating because it hurts to swallow. I went to my GP to see what was going on and he said that I now have an infection in my salivary glands and my lymph nodes were swollen. So now I have antibiotics for that. I'm still pretty loopy, but I was able to get myself to work. That Tegretol is brutal...fevers, nausea, disorientation...but it did get rid of the pain. Funny that I now have an infection in the left side of my face. I'm scheduled for an MRI as well, which will confirm that I have TN. We'll see what happens. |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on Jun 9th, 2004, 12:27pm Thanks for your input guys, I didn't really have any pain in my head...no ocular sensitivity at all. All the pain was in my neck and jaw..I could feel my pulse in my teeth through the pain, which seems to suggest that this is a nerve problem and not CH. The pain did radiate up to my temple, but it was always centered around my neck and jaw. I don't have medical insurance, but thankfully in Canada we have Medicare for everyone. I'm anxious to see if an MRI will find anything. I'll let you all know once I have it done. Cheers, BTW, sad about the Flames, but we're proud of our boys nonetheless. |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on Jun 24th, 2004, 7:11pm Hi Folks...sorry I've been away, but one of the worst things that could've happened did. I was in the middle of what I thought was some kind of attack, whether it be TN or PH and ended up going to emergency because my face was swelling up. They did a CT Scan on me and found bacteria growing in my neck and starting to block my airway. I went into emergency surgery to drain my neck and intubate me to prevent my airway from complete obstruction. I vaguely remember even going to the hospital nearly two weeks ago and I have no recollection of about 8 or 9 days that I was in ICU at Peter Lougheed. I was diagnosed with Ludwig's Angina...a potentially fatal condition if immediate medical attention isn't available. Luckily my mom flew out that day and made me go to emergency because I looked so bad. Good thing that I did because another day or so and it coulda been game over. I spent 9 days in ICU and just got released from the hospital yesterday. I spent two days in the nursing unit because I had spent 9 days under heavy sedation in ICU and couldn't even lift my own body out of bed. I had to get physio to learn to walk again. Luckily, I'm still pretty young at 31 and was in good shape when I went in. Unfortunately, I lost nearly 40 lbs and I'm still very weak. I can walk for a short distance, but that's about it. So word of caution about these headaches. The meds you take can be nasty and mask a more dangerous problem. I was so stoned on carbamazepine that I didn't notice the bulge growing in my neck. I've missed two weeks of my life and basically had a 9 day long nightmare. But, I'm getting better and have a new appreciation for life. Thank the Lord for the great health care system we have, the great professionals, and for friends and family that are there for you. Without medicare, the past two weeks would have left me with a bill for over $250,000....so we need to make sure we save medicare! Still going to see an ENT to make sure this doesn't come back or the headaches don't come back. Cheers |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Superpain on Jun 24th, 2004, 7:20pm Holy shit, dude... Glad you got some help in time! And on the bright side... YOU DON'T HAVE CLUSTERS!!!! You are verrrrry lucky in both cases! |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Jason@ITSportsNet on Jun 24th, 2004, 7:41pm I agree that I'm pretty sure that I don't have clusters, but the headaches I used to feel were so bad that they had to be something. I really hope this ENT specialist can help me figure out what caused the pain in my neck and jaw way back when before I got Ludwig's Angina. I still had enough pain at times to bring me to my knees, pull out my hair and cry like a baby. They would come and go with greater frequency than CH so must be something else. I have good teeth too, which is weird that I got Ludwig's Angina...usually occurs because of tooth abcess or decay. I have a mystery on my hands to figure out. As long as I don't get LA again...I don't know if I'd have the strength to make it through that again. |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by alleyoop49 on Jun 25th, 2004, 12:34am Hi Jason, I just read your thread and to echo Superpain, "Holy shit,dude!" :o What a ride! I'll just bet you do have a new outlook on life! Hopefully, from here on out, you'll have no where to go but up. You're in my prayers. Alley |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Superpain on Jun 25th, 2004, 3:21am on 06/24/04 at 19:41:22, Jason@ITSportsNet wrote:
Well.... Anything that serious, I'm sure we can grant you an honorary clusterhead pass if you're willing but don't get upset if you get them then! :-/ |
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Title: Re: Diagnosed with CH, but seems more like PH? Post by Dorothy on Jul 5th, 2004, 3:01pm Hi, I'm Dorothy and I'd be glad to hear how you are now - you've had a rough ride and I'm hoping to hear that you are being successfully treated.... |
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