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Title: Hi from Hell... Post by corgimom on Mar 29th, 2004, 5:56pm They're back....... I have been PF for almost a year now. The last time I was here it was very briefly. My CH's have been back almost 2 weeks now. I was hoping they would just go away the same way they came. No luck yet. I get 2-3 a day. The one I hate the most is the one right after I fall asleep. I'd like to take my thumb and jam it in my eye socket so my eyeball pops out. Nice huh? My insurance is changing this week so I have to wait a few days before I can see a neurologists. I got one this morning that lasted about 3 hours. Not fun. Nothing helped. When I get one in the middle of the night I use a scalding hot wash cloth on my face, usually after reheating twice I fall back asleep. Any idea what meds my doc will recommend? When I had CH's last year they stopped before I had to go to the doc or take any meds. Should I ask for oxygen? Just wanted to introduce myself and say thanks for all the great information!! :) Mary Beth Thompson |
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Title: Re: Hi from Hell... Post by thomas on Mar 29th, 2004, 5:59pm Ask for O2, yes. If you are getting hit at night, I would suggest talking to your doc about melatonin. Read the melatonin thread on the meds board. But talk to your doc first. ;;D |
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Title: Re: Hi from Hell... Post by Belle on Mar 29th, 2004, 7:06pm Hello there Mary Beth and welcome back to the group. Sorry they have returned, I think that when those of us who go into remission think that maybe this will be the last time. Unfortunately we will be haunted most of our lives. Check out the meds button on the left and definitley try the O2, although it does not work for me I know from reading that it helps the majority of those here. Take care and keep reading, hope your pf soon. Belle ::) |
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Title: Re: Hi from Hell... Post by Giovanni on Mar 29th, 2004, 7:13pm Ditto on Thomas's melatonin. Dirt cheap, available over-the-counter. Give it a try. Good luck, John |
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Title: Re: Hi from Hell... Post by Superpain on Mar 29th, 2004, 7:35pm Yes! O2 and melatonin!!! Welders O2 is cheap and effective. I just saw the neuro today and he told me to just stick with the welders O2... He said the mask was irrelevant. Just as long as you get alot of O2 quick... Big deep breaths for up to 10 mins. It normally knocks mine out in 2-5 mins. And I had a full nights sleep last night for the first time in months due to 18 mg of melatonin! It's cheap and you can get it at any grocery or drug store. Go get it now, and rest easy tonight! Sorry to see you had to come back... :( |
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Title: Re: Hi from Hell... Post by djsdds on Mar 29th, 2004, 10:49pm Hi Mary Beth, I'm new to this site but not to clusters. I had my Dr prescribe oxygen years ago and I keep a tank in my room at all times. Even when I'm not in a cluster, it is there because I never know when I will wake up in hell one night. I'm in a cluster now and some nights I have to sleep with the mask on my face, turned down really low. My throat is raspy from breathing the stuff all night, but it's better than the HA. Good Luck, Julie (Nice to hear I'm not the only woman!) |
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Title: Re: Hi from Hell... Post by corgimom on Mar 30th, 2004, 6:01pm Hey everybody! Thanks for the welcome and the advice. About melatonin....Could I get some now? Or should I wait until I see the doc next week? I am currently taking Buspar for anxiety. Would that interfere with anything? Could the Buspar be a trigger for the cycle I'm in now? Hmmm...questions I guess I should ask my doctor. If anyone has any advice, it would be greatly appreciated! Got a CH this morning as my wake up call. Very tame, but I knew if I tried to go back to sleep it would be a monster within about 10 minutes. Hope everyone is having a PF day today. Luckily I don't get them during the daytime hours except first thing in the am. I don't work until 2p....I know..Lucky me! I'm going to go knock on wood now.. Later! Mary Beth |
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Title: Re: Hi from Hell... Post by Superpain on Mar 30th, 2004, 9:40pm [smiley=hurl.gif] *buspar* blechy... Melatonin can be found at any grocery or drug store. I personally would urge you to go buy some right now. When I went to the neuro yesterday, I told him I was taking magnesium, multivitamin, melatonin and welders O2, and he said "Good job, keep that up." It will help you sleep, and hopefully reduce the severity of the night attacks. It has for me at least... Good luck. |
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Title: Re: Hi from Hell... Post by corgimom on Apr 8th, 2004, 5:01pm Well I think my cycle is done! I have not had a CH since we started Daylight savings time. Weird huh? Sunday morning after we set the clocks ahead and no headache to wake me up. What's strange is I completly forgot I didn't have a HA. My mom asked me later that day if I had a HA when I woke up and I couldn't believe it! No CH! Yeah! Haven't had one since. I have woken up to a slight allergy/sinus HA but nothing unbearable. I started taking melatonin last week too. I wonder if it's the melatonin or the time/daylight change thing? Who cares right? ::) Wishing all of you PF days ahead! I will keep checking in from time to time. Thanks to everyone! :) Mary Beth |
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Title: Re: Hi from Hell... Post by HypnoticFreddy on Apr 8th, 2004, 11:30pm All good ideas about the oxygen, if you continue to get hit. Also see if the neuro will give you some free sample Imitrex injections when you see him/her next. For me, it is the most amazing abortive. Though it appears that as an abortive, oxygen is the thumbs up winner for most CH sufferrers. Hope yer cycle is gone. For me, I started Topamax two weeks ago, and it appears that my cycle is over too. Remember for either now or the future if the beast returns you must find preventatives and abortives. Two entirely different treatments. -Freddy |
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Title: Re: Hi from Hell... Post by Luke63 on Apr 9th, 2004, 9:41am O2 and also Melatonin... |
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Title: Re: Hi from Hell... Post by Charlie on Apr 9th, 2004, 11:19pm Welcome aboard and I'm sorry you got another visit from this horror. This link is to a technique that worked very well for me: http://www.netsync.net/~charlies/ Good luck and let us know how you're doing. Charlie |
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