Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> similar out their
        
(Message started by: drap on Feb 12^th, 2004, 7:44am)

Title: similar out their
Post by drap on Feb 12^th, 2004, 7:44am

>:(i think i might be at the end i mean i pray i'm at the end of my episodes i've been completely wrong before but the break would be nice.to get some sleep you guys are right about rem sleep wake up clusters they are the worst. l use topamax 3x aday 150mg total it was working up until 3 weeks ago then the beast hit .the doc put me on prednisone not working as good as last year i guess it's the nature of the beast. my clusters started with a root canel , plane ride out west for my son's wedding , my very first cluster 6 years ago , mri 3 different nero doc's and here i am . i going back to my doc today and say help or good bye and move on to someone else i'm 61 years old life is to short i need to get some relief and my life back. if anybody needs to talk or anything i'm here 24/7 . drap---steve GO WINGS

Title: Re: similar out their
Post by BobG on Feb 12^th, 2004, 9:37am

Hello Steve
To help with the REM sleep wake-ups you might try Dramimine before bed. It helps by not letting you get into the REM mode.
Also sleeping in the La-Z-Boy or at least with your head elevated seems to help many people. Won't stop the attack but may help lessen it.

Title: Re: similar out their
Post by TxBasslady on Feb 12^th, 2004, 10:11am

Steve,

My hits also came in the middle of the night.

I totally agree with BobG.....about the sleeping in a reclined position. I propped pillows on the sofa and slept like that for almost 4 weeks. It helps alot. I had a real fear of lying flat in the bed. Not sure why it helps....but could be because I didn't sleep as sound (REM???) when I was basically vertical.

Hope you find yourself a good doc and get some relief.

PF vibes,

Jean

Title: Re: similar out their
Post by Little Deb on Feb 12^th, 2004, 7:37pm

Welcome to heaven in the midst of hell!

Big Hugs....Little Deb

Title: Re: similar out their
Post by caatfish on Feb 12^th, 2004, 8:18pm

Hello, new memeber and WINGS FAN. I dont know where to start....I became ill Dec. 2003 and never having a head ache before i was like ok this will pass.
Things got worst. I was in the bathroom every other morning for hours ralphing, because the pain behind my left eye was causing nausia. Went to emergentcy room dec. 24, 2003 to get a cat scan....thought for sure i had tumor or something.....nothing. Went back to work Jan 5th...10am that day my left arm was going numb, i felt my whole left side slowly start to numb...they called ambulance...rushed to hospital. All the test showed nothing....good heart, mri, blood test....nothing. Now after 30 hours of observing me , female Indian doctor says ...middle aged man possible cluster headaches...now i am here. I never heard of them!
I sure suffered for 5 weeks off and on. I need to learn to live with them if thats what i really got? I guess from what i know.....i am in remission? thanks Glenn May

Title: Re: similar out their
Post by pubgirl on Feb 12^th, 2004, 8:32pm

Glenn

It may well be worth doing some research yourself into different types of headaches before accepting the CH diagnosis as the numbness and nausea you are experiencing is more usual with other types of headaches than CH (though a few people here do get some tingling/numbness amd nausea)
an example is BAM (Basilar arterial migraine) and there are others such as hemiplegic migraine.
The main reason for my suggestion, is that not only is CH harder to treat than many of the other headache syndromes, but even more importantly, if it is BAM, you must not take Triptans as they could be very dangerous.

Have a good read around the site and the links on the left and ask away again if you aren't sure about anything

Wendy

Title: Re: similar out their
Post by Elaine on Feb 12^th, 2004, 9:23pm

Steve I pray its the end. I got my fingers crossed for ya.

Title: Re: similar out their
Post by drap on Feb 13^th, 2004, 6:28am

thanks Elaine for your prays back to you also. went to the doc's thursday she put back on prednisone and some new stuff that i'll find out about tonight . i'm still having 3 bouts the same every day 3pm 1230 am , 230 am just like clock work . anybody else have this happen to them? GO RED WINGS DRAP ----STEVE

Title: Re: similar out their
Post by miCHel on Feb 13^th, 2004, 4:39pm

Hi Drap,

I hope it's the end of the cycle for you and that the next break is extremely long! As for getting hit at precise time during the day, I know a lot of us have experienced it often. There were cycles where I didn't need a watch anymore!

As for the Red Wings, you guys might be in trouble with those goalie injuries... Best of luck with that!

Hopefully, the Habs will get to see you guys in the playoffs (Hey, It's all right to dream...)

miCHel