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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> recommended Docs?
        
(Message started by: Rmatt on Feb 11^th, 2004, 1:16pm)

Title: recommended Docs?
Post by Rmatt on Feb 11^th, 2004, 1:16pm

How should I go about locating a good one in the Charleston, SC area?

Matt

Title: Re: recommended Docs?
Post by 9erfan on Feb 11^th, 2004, 3:22pm

Click on the "ouch website" button on the left. Once there look under "cluster help" for a list of recommended Dr's.

Title: Re: recommended Docs?
Post by Bob_Johnson on Feb 11^th, 2004, 4:35pm

PHYSICIANS--LOCATING HEADACHE SPECIALISTS

The National Headache Foundation, 1/888-643-5552, will send a list of doctors, by state, who have self-identified themselves as being interested and experienced in treating headache.
I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

www.HEADACHECARE.COM. See physician finder; limited listings.

WWW.ACHENET.ORG American Council for Headache Education.

Title: Re: recommended Docs?
Post by t_h_b on Feb 11^th, 2004, 8:15pm

on 02/11/04 at 16:35:57, Bob_Johnson wrote:

the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient;

Forty percent must be an extreme underestimate. If that were true, then sixty percent of US MDs would have GOOD training in treating headache, and the odds would be better than 50-50 of getting a good one with one try. With all of the people posting about seeing multiple MDs prior to even getting diagnosed properly, it is VERY hard to believe that statement.

Title: Re: recommended Docs?
Post by Cerberus on Feb 11^th, 2004, 9:12pm

Finding a "Good" one is a crapshoot, at least it has been in my experience, however, the others have gotten you off to a great start.

Ramon

Title: Re: recommended Docs?
Post by ClusterChuck on Feb 11^th, 2004, 11:34pm

Matt, I am calling one of our sisters who lives in Columbia, and see if she knows a clusterhead down in Charleston who can help you.

Hopefully she can help you.

Chuck

Title: Re: recommended Docs?
Post by t_h_b on Feb 12^th, 2004, 8:12pm

I did an educational module today about..........migraines. (Aren't any for clusters as far as I know.) It said that one large study found that only 48% of migraneurs were properly diagnosed with the most common misdiagnoses being sinus headache (sound familiar?) and tension headache.

If migraneurs with their well-known affliction only get diagnosed properly 48% of the time, then that really leaves us ClusterHeads sh*t out of luck trying to get diagnosed. (There are about 5 million of them in the US compared to less than 300,000 of us.)

There was no mention of how many physicians the migraneurs saw to reach an overall 48% level of proper diagnosis.