|
||
|
Title: Debut Post by Tayoskey on Feb 10th, 2004, 1:27am Hi Guys, i am just joining this website after realising there is quite a lot i can learn from other Cluster Headache suferers, i am a 32 year old guy with 15 years of agonizing cluster experience, i will be delighted if i can have some of your comments on how you are coping with the monster. regards 'Tayo |
||
|
Title: Re: Debut Post by Charlie on Feb 10th, 2004, 2:46am Welcome aboard and you should find lots of good ideas here for dealing with this horror. Here is a link to something that worked for me: http://www.netsync.net/users/charlies/ Good luck and let us know how you're doing. Charlie |
||
|
Title: Re: Debut Post by Linda_Howell on Feb 10th, 2004, 2:58am Welcome to our world Tayo. There is a ton of info here, and if you want to know how we all cope, just keep on reading all the posts and you'll get the whole picture, what meds work, what don't, etc. Click on the OUCH website link to the left and read about what we're trying to do. Join OUCH! Hang in there Tayo. LindaH |
||
|
Title: Re: Debut Post by BarbaraD on Feb 10th, 2004, 5:28am Welcome to Clusterville Tayo REad, read, read. If it's been done or tried, someone here has done it or tried it. We're a great bunch of supporters and KNOW how you feel. A lot of us have been here since before Clusterville ever got it's first red light. It's a damn shame that so many of us have to be here, but with CH it's the only place to be. Let us know about you and what you're taking. Give support - take what you need and welcome.... Hugs BD |
||
|
Title: Re: Debut Post by Giovanni on Feb 10th, 2004, 5:51am Welcome to the board Tayo. I can't tell you how much this site has helped me. Read on............. Regards, John |
||
|
Title: Re: Debut Post by don on Feb 10th, 2004, 7:56am Another guy wandering around in the bottom of the boat wondring where everybody went. We are up here on deck! Grab an oar! Start rowing! (Or bailing) |
||
|
Title: Re: Debut Post by Woobie on Feb 10th, 2004, 8:01am Hi Tayo - welcome!! Check your messages - k? who's that a picture of?? someone famous?? why are you snifflin at him? ;;D Stick around a while, you'll like it here - Tina |
||
|
Title: Re: Debut Post by bobkip on Feb 10th, 2004, 8:20am Welcome aboard Tayo, Loads of good stuff here and at the OUCH site. I do oxygen and get fantastic relief from it. best of luck, Kip |
||
|
Title: Re: Debut Post by CJohnson on Feb 10th, 2004, 8:27am 1. Find a neurologist you can rely on. 2. Formulate and employ a preventive strategy. 3. Formulate and employ an abortive strategy. 4. Use what you have learned to help others. PFDANs -Curtis |
||
|
Title: Re: Debut Post by Little Deb on Feb 10th, 2004, 8:59am Welcome aboard Mate! Here we swim together, and keep each other afloat. No sinking allowed.....and no peeing in the water!!!! Little Deb NC |
||
|
Title: Re: Debut Post by JDH on Feb 10th, 2004, 9:21am Welcome aboard Tayo. There's a lot of good people and valuable info here...stick around. Jim |
||
|
Title: Re: Debut Post by TxBasslady on Feb 10th, 2004, 10:50am Hi Tayo, Welcome to the board. Sorry that you are a sufferer.....but really happy to have you on board. Lots of good information here, and the best damn group of supporters in the world. I see you are from Bryan, Texas! We are having a TEXAS Meet & Greet in Dallas on Feb 28th. There are several of us sufferers here in Texas. Maybe you can make it to the Dallas get together. Let us know how you are doing. Sending you lots of PF vibes, from the HOUSTON area! Jean |
||
|
Title: Re: Debut Post by amen on Feb 10th, 2004, 12:48pm welcome! Lot's of great folks here and lots of great info! Andrea |
||
|
Title: Re: Debut Post by Cerberus on Feb 10th, 2004, 3:40pm WELCOME! Tayo.. Hrrmmm...er......what THEY said. :D Ramon |
||
|
Title: Re: Debut Post by thomas on Feb 10th, 2004, 4:22pm Welcome aboard. I like the smell of the sea, myself. |
||
|
Title: Re: Debut Post by cathy on Feb 10th, 2004, 4:35pm Tayo....Great to have you on board, lots of good info about, and a great crew to share thoughts with... Cathy :) |
||
|
Title: Re: Debut Post by ZAIRA on Feb 10th, 2004, 4:54pm [smiley=smokin.gif] Nice to meet you, Tayo! And, sadly....... Welcome aboard. We all felt hopeless untill found this site. This message board has proved to be a major life line to some of us sufferers, and I am sure that you will find lots of help and support and love from people who understand what you are going through. If you post on this board, you can guarantee that somebody will reply to you. ;;D Stay with us..... regards, Zaira |
||
|
Title: Re: Debut Post by echo on Feb 10th, 2004, 5:21pm Welcome to the family Tayo. Sorry you needed to search us out. Glad you found us. \ |
||
|
Title: Re: Debut Post by Paigelle on Feb 10th, 2004, 7:29pm Happy you found us! We have been here awhile, just wandering around in circles, but you will get used to that. At least we wander together! You will find your best friends here, we are a family. Paige |
||
|
Title: Redoubt......... Post by Mr.Happy on Feb 11th, 2004, 12:04am Taaaaaaaaaaaaaaaaaaaa-Yo, me say Ta-aa-aa-Yo, Daylight come, and we welcome you home. Tally me bananas, RJ |
||
|
Title: Re: Debut Post by ClusterChuck on Feb 11th, 2004, 1:02am Welcome aboard, Tayo. You asked how we deal with this damn affliction. We all have our own ways. Most of us do whatever we can to keep this bastard from ruling our life. We have to make adjustments, yes, but we try to life our life to the fullest, regardless. When I am getting hit, I work very hard not to think about the pain. I distract my mind. Many listen to heavy metal music. I prefer classical or opera. When I get a bad hit, I bang my head. I used to do the wall, but I have patched too many holes. I now get down on my hands and knees and bang my head on the carpeted floor. I am not sure why so many of us do that, but we do. Maybe it is just to distract ourselves, or maybe it is just frustration. I try not to let CH get me down, but it does. Many times, a phone call to another clusterhead works wonders. There have been many phone calls that involved crying, either myself crying to another, or my brother/sister crying to me. Do not be ashamed of crying. We all do it, and we all need it. It helps SO much to have some one who REALLY knows what you are going thru to relate with. I am now into my 26th year with the beast, and I am still learning new tricks. The best treatment, is the support and love that is in this family! Welcome aboard, and let us know more about you! Chuck |
||
|
Title: Re: Debut Post by Callico_Kid on Feb 11th, 2004, 1:19am How do I survive? Only by the grace of God and these crazy people here. They have said it all above. I would definately second Jean and Cluster Chuck. Find a way to get to Dallas on the 28th. It will be an awesome lifechanging occasion. You have suffered alone long enough. Just to meet another who knows what you are feeling is priceless. We laugh and joke and fight and argue like family around here, but the support is unmatched anywhere I have ever seen. jc |
||
|
Title: Re: Debut Post by Woobie on Feb 11th, 2004, 7:13pm YO! Tayo You still with us or did we lose ya already??? check in - wuddya? tina |
||
|
Title: Re: Debut Post by eyhavhedaches on Feb 12th, 2004, 12:41pm Tayo, I am 2 days new to the board and your story sounds alot like mine! Started having ch's at age 13 and I am 32 years old now. I was just diagnosed last year. Keep reading and learning, your among fellow clusterheads here and you can learn alot from them. Take the medication survey by hitting the butten to the left, when you have completed it you will get the survey results and may help you in finding some good abortive and preventive suggestions to use with your docter |
||
|
Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1! YaBB © 2000-2003. All Rights Reserved. |