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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> new supporter
        
(Message started by: bird_at_the_back on Feb 7^th, 2004, 9:16pm)

Title: new supporter
Post by bird_at_the_back on Feb 7^th, 2004, 9:16pm

Hi my boyfriend has suffered with CH since he was 17/18 in the 14yrs I have know him they have gotten steadily worse. There was one yr he didn't get them he was taking an antidepressant dotheapan?sp at the time is there any connection does anyone know?

I was reading on someone elses post about slurred speech, tingling fingers etc. My boyfriend has had those same symptoms before I believe that some are due to hyperventilating from the pain... try yoga breathing as this seems to help him.

Title: Re: new supporter
Post by bird_at_the_back on Feb 7^th, 2004, 9:22pm

BTW am sure that everyone at the height of an attack will have raised bp and lowered pulse this is classic symptom of raised intracranial pressure (why it hurts soooooooooo very much)

Title: Re: new supporter
Post by BobG on Feb 8^th, 2004, 3:45am

on 02/07/04 at 21:22:58, bird_at_the_back wrote:

BTW am sure that everyone at the height of an attack will have raised bp and lowered pulse this is classic symptom of raised intracranial pressure (why it hurts soooooooooo very much)

Hey bird, Welcome to the board. Good to see a new supporter here.
Intercranial pressure is why it hurts? I don't know about that but my take is it is the dilations of the blood vessels pressing on the trigeminal nerve that cause the pain.

Title: Re: new supporter
Post by bird_at_the_back on Feb 8^th, 2004, 8:20am

The vasodilation is what causes the raised pressure in the brain. more fluid more pressure

Title: Re: new supporter
Post by Mark C on Feb 8^th, 2004, 2:47pm

Welcome to the board...sorry you need us but glad you are here. The exact cause is not known, many theories abound the most popular being....

From the Department of Neurology, Karolinska sjukhuset, and the Department of Neurology, Södersjukhuset, Stockholm, Sweden.

THE PATHOGENESIS OF cluster headache incompletely known. Several authors consider the attack to be associated with local dilatation of extra-cranial vessels in the regions supplied by branches of the external carotid artery. According to Friedman and Mikropoulos1 this is suggested by the fact that during an attack one observes 1) a dilated temporal artery in some cases, 2) injection of conjunctiva and congestion of nasal mucosa, 3) local rise of skin temperature, 4) reduced ache on compression of the temporal artery, 5) a favorable response to vasoconstrictor agents. The pain has been assumed to be due to local release to the tissues around the dilated vessels of a substance which lowers the threshold of pain.2

However, it is probable that the internal carotid artery as well participates in the pathophysiological process in many cases of cluster headache. This is evidenced by the occurrence of a partial Horner's syndrome on the side of the pain.3,4 An attempt has been made in the present study to throw further light on the nature of the pain in cluster headache. The patients were thoroughly studied during attacks by means of simple clinical procedures aimed at relief of the pain. Some new observations will be discussed.

OUCH Library (http://www.clusterheadaches.org/library/general/pain_ch.htm)

Imitrex Injection (http://us.gsk.com/products/assets/us_imitrex_injection.pdf), Oxygen (http://www.headachesupportgroups.com/oxygen/oxygen.htm) and Fungus (http://clusterbusters.com/) are my weapons of choice.

Good Luck,
Mark

Title: Re: new supporter
Post by Charlie on Feb 9^th, 2004, 1:23am

Welcome aboard and we treasure supporters here.
If you stick around you'll find good ideas for dealing with this horror. Here is a technique that worked for me:

http://www.netsync.net/users/charlies/

This one is to help others understand that this has nothing to do with what is thought of as "headache:"

[url]["http://www.ouch-uk.org/ch/note_colleagues.cfm" /url]

I hope you let us know how you're doing.

Charlie

Title: Re: new supporter
Post by bobkip on Feb 9^th, 2004, 2:01am

Welcome Bird,
I used to hyperventilate before I got on O2 but doubt anyone was brave enough to come near me during an attack to see if I had slurred speach. Don't remember having tingles and never checked bp but will try to do so tomorrow right after the beast leaves.
Kip

Title: Re: new supporter
Post by bird_at_the_back on Feb 12^th, 2004, 10:57pm

Hi all and thanx for the warm welcome.

bobkin by the time the beast leaves your bp will have returned to normal, the only way you will know for sure is to have someone else check it while you are being attacked.