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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> hi ia m new hear 
        
(Message started by: disco on Feb 2^nd, 2004, 6:14pm)

Title: hi ia m new hear
Post by disco on Feb 2^nd, 2004, 6:14pm

hi i have just been diagnosed with cluster headaches . every morning i wake up i have a thumping sore head and it feels like my head is going to explode i live in scotland in britain and no 1 else has heard of these things the i am going to see a neuro next week and am lookin for sum advice none of my pills are working so i have no realef untill i go to a&e and then they stick a needle in me full of morphine and it makesme in to a zombie not the way i want to be as i am only 21

Title: Re: hi ia m new hear
Post by Little Deb on Feb 2^nd, 2004, 6:16pm

Welcome to Clusterville!!!

Little Deb

Title: Re: hi ia m new hear
Post by jonny on Feb 2^nd, 2004, 6:19pm

on 02/02/04 at 18:16:01, Little Deb wrote:

Welcome to Clusterville!!!

Damn!!!....Thats deep.....LOL

................................jonny ;;D

Title: Re: hi ia m new hear
Post by BlueMeanie on Feb 2^nd, 2004, 6:56pm

Welcome Disco.

Morphine ? There are many meds out there to treat Clusters. Read all the info you can starting to the left of this screen. Lots of prevents & aborts to help you with your Clusters. Sound like you need a Doc that knows something about Cluster Headaches too.

Title: Re: hi ia m new hear
Post by Charlie on Feb 3^rd, 2004, 12:40am

Welcome to the fold. If you stick around you'll find some good ideas and ways to deal with this horror. Pain killers aren't the best way to deal with it. Look around here for some more effective ideas.

Here is a link to one that worked for me:

http://www.netsync.net/users/charlies/

Charlie

Title: Re: hi ia m new hear
Post by Callico_Kid on Feb 3^rd, 2004, 12:47am

Welcome,

It sounds as though you have to do a lot of learning and be able to work with your doc to develope a plan of treatment for yourself. Unfortunately, you are not alone in this. There is a lot of good information available in the buttons to the left. In particular I would check out the "medical info" button and the ""oxygen info" button. Print out any material that you think would be helpful to your Dr. and take it with you. Understand that CH is a rare malady and most Drs have never seen it, and the only exposure they have had to it is a paragraph in a medical book back when they were in school. Also, I would check out OUCH UK. They will have more information pertaining to the health care system in the UK.

Take advantage everything available here and don't hesitate to ask questions. There is usually someone around.

jc

Title: Re: hi ia m new hear
Post by amen on Feb 6^th, 2004, 5:54pm

Sorry you have to be here :'( But since you are :-/ Pull up a chair and start reading! You'll be amazed.
Andrea

Title: Re: hi ia m new hear
Post by cootie on Feb 7^th, 2004, 12:41am

Hi disco.....welcome and hope you find sumthin that works for ya besides zombie'ism ! You'll learn alot here that's fer sure ! Pam that remembers disco days

Title: Re: hi ia m new hear
Post by tsayswhy on Feb 7^th, 2004, 1:59am

welcome Disco

I hope being here you find other alternatives for meds.
lots to read here so pull up a chair and relax. ;)

wishing you pain free .....tsays