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Title: is anyone there coz this really hurts Post by cablemate on Feb 6th, 2004, 7:02am if tehere is anyone online who really knows what it's like, i could do with some inspiration right about now |
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Title: Re: is anyone there coz this really hurts Post by BarbaraD on Feb 6th, 2004, 7:10am Hang in there. There's a few of us in the same boat. And I have to go to work in a few minutes.... Think today I may scare little children and animals.... My left eye is swollen almost shut. I still think it's the barometric pressure. It's going crazy right now. That's usually when I get hit. But we're here for ya ... Hugs BD |
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Title: Re: is anyone there coz this really hurts Post by cablemate on Feb 6th, 2004, 7:20am Thank you, This is only the third time in 2 years that i've had a CH but this is the first time that the medication hasn't worked and I'm scared shitless. |
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Title: Re: is anyone there coz this really hurts Post by bobkip on Feb 6th, 2004, 8:00am We're here. Woke up from a sound sleep around 4:30 am with a 6. Tried to tough it out but after 10 minutes it was pushing 7 and I hit the O2. 5 minutes later it was gone but couldn't get back to sleep. If you haven't tried O2, give it a go. Kip |
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Title: Re: is anyone there coz this really hurts Post by benj on Feb 6th, 2004, 8:02am hey cablemate, stay strong - there are heaps of different meds to try - you don't have to put your faith in just one. Same goes with personel support - lots of us here (some live close too). We all fight this and we live through it - because we just have to. Some won't admit defeat to the beast, some just can't comtemplate anything else, and some are scared by the pain but fight the fucker anyway. Whatever you choose, don't back away. Try different doctors, different meds, different combos. Your answer is out there, everyone's answer is out there - you just have to hold on - it's the only fucking way mate. I'm in your neck of the woods - give me a buzz whenever you need someone who knows the pain to help. |
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Title: Re: is anyone there coz this really hurts Post by Tim_w on Feb 6th, 2004, 8:44am cablemate Hang in there ! If you need to talk to someone go to headachesupportgropes.com Chat Ill be there for a while wishing you some pain free time TimW Happy Pappy |
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Title: Re: is anyone there coz this really hurts Post by Tim_w on Feb 6th, 2004, 8:46am That Was to be headachesupportgroups.com sorry cant spell worth a $hit LOL TimW |
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Title: Re: is anyone there coz this really hurts Post by jonny on Feb 6th, 2004, 3:23pm CableDude, Turn up your speakers and click the link below, it ought to scare the beast right the fuck out of your head ;;D http://www.rathergood.com/lightsabre/ ..................jonny |
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Title: Re: is anyone there coz this really hurts Post by Little Deb on Feb 6th, 2004, 5:06pm There are LOTS of us here....you will NEVER be alone again. welcome to Clusterville......Little Deb |
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Title: Re: is anyone there coz this really hurts Post by Tiannia on Feb 6th, 2004, 5:14pm We are here. We will listen and we understand. THere are lots of different thigs to try and like many of us have learned not everything works everytime and forever. So dont be afraid to ask for / demand to have somethign different if what you have is not working. Stay stong. Tia |
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Title: Re: is anyone there coz this really hurts Post by Callico_Kid on Feb 7th, 2004, 1:17am There is almost always someone on line here. You will not find a more caring group of people anywhere. Pull up a chair and start reading and asking questions. You have met those who really do feel your pain. Jerry |
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Title: Re: is anyone there coz this really hurts Post by TxBasslady on Feb 7th, 2004, 2:18am Hi Mate, Welcome to the board...... Jerry is right..........we know and have felt your pain. Did you send an email to benj????? You guys must live close to one another. Contact with another CH sufferer will do you a world of good. Nothing better than meeting one in person!!! Hope you guys live close enough that you can maybe meet. I am so sorry that you are having a rough time right now. It WILL get better! I know it's hard to see that right now. Always remember that you are not alone in this battle. Someone usually here 24/7. Post at any time... Sending you lotz of pf vibes across the miles ;) Jean |
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Title: Re: is anyone there coz this really hurts Post by Cooked Brain on Feb 15th, 2004, 9:08am be tough and hang in there cablemate! might be easier said than done but still, we understand that too... |
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Title: Re: is anyone there coz this really hurts Post by Sean_C on Feb 16th, 2004, 9:26pm Cabledude, Sounds like a kip 10 of sorts, hang on bro sometimes its a roller coaster ride. Jonny my brother..........you are fukked LMMFAO I love it Try to get some O2, you'll love it ;;D ;;D ;;D ;;D ;;D PFDAN vibes comin your way Sean |
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Title: Re: is anyone there coz this really hurts Post by Charlie on Feb 17th, 2004, 8:41pm Welcome and we know what you mean. Here you don't have the frustration of people not knowing that this horror has nothing in common with what people think of when they hear the word: "headache." Here are a couple links that may be helpful. The first being to a technique that worked for me: http://www.netsync.net/~charlies/ "http://www.ouch-uk.org/ch/note_colleagues.cfm" Let us know how you're getting along. Charlie |
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Title: Re: is anyone there coz this really hurts Post by ClusterChuck on Feb 19th, 2004, 1:46am Cablemate, welcome aboard, and how are you doing? We are concerned. Let us know how you are doing. this is the ONLY place where you will find a whole shitload of people that REALLY know what you are going thru. We are a family, and we need to know you are alright. Tell us more about what you are going thru, what meds you have tried. Ask questions. Cry. Bitch. Vent. We all do it at one time or another. We are here for you, Brother! We DO care. Give us an update. Chuck |
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