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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> NEW HERE!
        
(Message started by: benetton on Jan 31st, 2004, 9:32am)
Title: NEW HERE!
Post by benetton on Jan 31st, 2004, 9:32am
Hi Everyone, I just wanted to say hello and introduce myself.  I am Italian but I live abroad for my work (often in the USA). Now I'm in Italy ;;D. Is there any Italian here? I live in a village near Venice. ;;D

I am new to the site but, not to CH.  It started 5 years ago, I’m episodic. Four things have helped me fight the pain; Verpamil and Litium, Imigran and Oxigen. And when I’m in cluster I try to stay away from alcohol, heat, I try not to go hungry, etc.

Anyway, It was so nice to finally find others who are going through the same thing I am. Finally found people who understand!!!! Thank you!!

Regards,  Sara Benetton
Title: Re: NEW HERE!
Post by Edski_1 on Jan 31st, 2004, 9:57am
Welcome Sara! :)

I'm going to guess that Imigran is the Italian name for Sumatriptan, what we call in the USA "Imitrex"?  Seems to be the most commonly used triptan for abortive...

Yes, it is good to find a community that understands this beast.
Title: Re: NEW HERE!
Post by t_h_b on Jan 31st, 2004, 9:58am
Welcome to Clusterville.  There ARE others like you.


Quote:
Is there any Italian here?


Yes, and there's OUCH Italia, too:

http://www.ouchitalia.it/

Sounds like you're on the right medications and have the triggers under control as well.  What's your story about how you got diagnosed and found such appropriate treatment?

Check out OUCH USA as well:

http://www.clusterheadaches.org/

Sorry that you have CH, but you've found the right place if you have to have them!
Title: Re: NEW HERE!
Post by brad267 on Jan 31st, 2004, 10:05am
Welcome to the club, Sara!

-Brad
Title: Re: NEW HERE!
Post by jadedgazer on Jan 31st, 2004, 10:12am
Welcome Sara!
Title: Re: NEW HERE!
Post by Woobie on Jan 31st, 2004, 6:25pm
Hello Sara --- welcome!!!

There are TOO MANY NEWBIES!!!    TOO MANY --

more people with CH?  or more people with computers??   either way - sucks.

Welcome aboard Sara... stick around!

tina
Title: Re: NEW HERE!
Post by Kevin_M on Jan 31st, 2004, 6:48pm
Chiao, or how you say, hello~!

Glad you found us.  Love to hear your accent.  Welcome to the Villa da Cluster.

Kevin M
Title: Re: NEW HERE!
Post by Cerberus on Jan 31st, 2004, 8:44pm
welcome aboard... :D

Ramon
Title: Re: NEW HERE!
Post by Callico_Kid on Jan 31st, 2004, 10:11pm
Welcome aboard Sara.  Sounds like you have your situation pretty well under control.  Let us know how you were diagnosed and how you were prescribed the four most potent reliefs for CH.  That is awesome!  Many here have gone for ten years or more without even a diagnosis, let alone proper medications.  

Jerry
Title: Re: NEW HERE!
Post by TxBasslady on Feb 1st, 2004, 12:11am
Hi Sara,

Welcome to the board.

We do have an Italian sufferer that posts here regularly.  Her name is Zaira.  Even though she suffers a great deal with CH, she is a fantastic supporter.

Stay close....we will be here for you, should you need us.

PF vibes,

Jean
Title: Re: NEW HERE!
Post by Tiannia on Feb 1st, 2004, 12:56am
Welcome and yes there are lots of Italians here. Great people.  

Tiannia
Title: Re: NEW HERE!
Post by tsayswhy on Feb 1st, 2004, 2:20am
welcome sara

glad you found us ;) stick around and let us know how you are doing!
Title: Re: NEW HERE!
Post by And on Feb 1st, 2004, 5:28am
Ah Sara, neppure si capisce che sei di Treviso, dal cognome intendo!! Hehehehe  ;;D

I can say you are lucky, Sara.     OUCH Italia has a fantastic supporter and CH sufferer, her name is Zaira, she lives in Treviso. I give you her phone number, talk to her. She is WONDERFUL. She is in a bad time but I know she will be very happy to meet you........ be well, Andrea  (trevigiano pure e puro ;;D)

Title: Re: NEW HERE!
Post by stevegeebe on Feb 1st, 2004, 8:23am
Glad you have found a good mix to fight the pain.

Welcome.

Steve G
Title: Re: NEW HERE!
Post by benetton on Feb 1st, 2004, 5:21pm
Thank you for the warm welcome! ;)


Quote:
Sounds like you're on the right medications and have the triggers under control as well.  What's your story about how you got diagnosed and found such appropriate treatment?



Quote:
Sounds like you have your situation pretty well under control.  Let us know how you were diagnosed and how you were prescribed the four most potent reliefs for CH


I had the first attack 5 years ago, my ex husband is a Doctor and immediately he said: you have CH. I was recovered and, sadly, he was right.......I was diagnosed of CH. In the hospital I had some treatments with no results, so the meds decided to give me Lithium and Verapamil, a mounth later the treatment started to work. I read that someone of you is chronic, or is having a very bad time.... I feel lucky if I think about it!


Quote:
Ah Sara, neppure si capisce che sei di Treviso, dal cognome intendo!! Hehehehe  

Zitto ;;D probabilmente nessuno sà che Benetton è un marchio nato dalle nostre parti ;;D. Cmq, Avanzi una birra, voglio ringraziarti di persona per avermi dato il nome di Zaira.

Anyway, Thanks Andrè ;;D, I met Zaira this evening and I’m really proud to know her! And what a coincidence! Her grandfather was my teacher at the University! WOW!
Zaira’s art is what first attracted me, I’m so impressed with her art, I can say she has exactly  her grandfather’s talent. We spoke a lot this evening, Zaira is a very special person and she has a wonderful spirit and she is beautiful inside. I’m trying to to tell you that she has an effect on people, a strong positive effect. Even if she is suffering horribly, she gave me strength to go on. Really happy to have such a wonderful woman near me!!

Greetings to you and a prayer for whom is suffering in this moment! I'm sorry!

Sara Benetton
Title: JustRe: NEW HERE!
Post by Little Deb on Feb 1st, 2004, 8:48pm
Just want to say WELCOME!


Little Deb
Raleigh, NC
Title: Re: JustRe: NEW HERE!
Post by Paigelle on Feb 2nd, 2004, 9:27am

on 02/01/04 at 20:48:54, Little Deb wrote:
Just want to say WELCOME!


Little Deb
Raleigh, NC


Ditto!

Paige
Title: Re: NEW HERE!
Post by Charlie on Feb 3rd, 2004, 12:49am
Welcome to the fold and I see you met some of your own. You'll also find Jonny here. The last I heard he is Italian  :D Poor dope lives near Boston though.  ::)

Glad to have you and you'll find some good ideas and ways to deal with this horror.

Let us know how you're getting along.

Charlie
Title: Re: NEW HERE!
Post by ZAIRA on Feb 3rd, 2004, 2:47pm

Hmmm........ Italian people make always a lot of compliments.... ;;D ...... smooooooch Sara :-* :-* :-*
Title: Re: NEW HERE!
Post by aprilbee on Feb 3rd, 2004, 3:11pm
Welcome!!   ;;D
Title: Re: NEW HERE!
Post by mediccpc on Feb 3rd, 2004, 3:58pm
Welcome Sara,

You will find alot of information here. I recently became a member also. Working in the US is not bad I do it every day. I am also Italian. Lived in Naples.
Title: Re: NEW HERE!
Post by ZAIRA on Feb 4th, 2004, 11:08am

on 02/03/04 at 15:58:16, mediccpc wrote:
Welcome Sara,

You will find alot of information here. I recently became a member also. Working in the US is not bad I do it every day. I am also Italian. Lived in Naples.



Hi Compatriot ;;D! I have not read  your post.... BTW  Welcome by me too! Zaira  :P
Title: Re: NEW HERE!
Post by amen on Feb 6th, 2004, 5:52pm
Welcome, sorry you have to be here.  I have been away from the board for about a week now.  I am amazed at how many new people there are.  I am sad because there are so many.  I am not sure if it is a good thing that there are so many because it shows that people are finally getting proper diagnoses, or a sad thing becasue there are sooo many of us suffering :'(
Very mixed feelings here :-/
Andrea


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