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Title: Celebrities? Post by mabus on Nov 26th, 2005, 10:32pm Not that it really matters, but I'm curious whether anyone knows of any celebrities/athletes of prominence/politicians, etc that are CH sufferers. Our affliction still seems to be pretty low profile, and I'm curious if there are any major public figures that are "out" as CH sufferers, which could only help to broaden public awareness. Maybe that would lead to research someday.... Michael J. Fox has does a lot for Parkinson's, and we could "use" someone similar on our side. |
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Title: Re: Celebrities? Post by Dave_Emond on Nov 28th, 2005, 1:54am We keep searching and searching mabus, but have not found any (living) celebrities who have made any public awareness that they suffer from CH. Always on the lookout though, some suspects, but they haven't replied. You're right though, it'd sure help if we had someone with a recognized household name bring CH out to the world to learn about. Dave |
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Title: Re: Celebrities? Post by Kate in Oz on Nov 28th, 2005, 4:37am Hey Mabus, Good idea I'll grant you. I spent far too many hours last night searching online for something but came up with nothing. Found out lots of other interesting titbits about CH but not anything useful here. Will keep my eyes and ears open tho cos I agree it would be a great way to get the word out. Kate |
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Title: Re: Celebrities? Post by BarbaraD on Nov 28th, 2005, 4:46am There have been a few. A basketball (or football) player a couple of years back was taken off the field with Clusters -it was in the paper the next day with a diagnosis of CH and an article about it. We sent him a shirt and a note, but heard nothing from him. A couple of celebs were on Larry King, but it didn't go anywhere either. One guy was giving the symptons of CH and calling it migraines.... Guess these guys just want to suffer alone..... whatever... Hugs BD |
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Title: Re: Celebrities? Post by Dave_Emond on Nov 28th, 2005, 6:50am on 11/28/05 at 04:46:00, BarbaraD wrote:
Yeah Barb ... it was the Basketball Player who didn't return our requests to talk about CH to whom the Shirt and notes were sent to. The football player you are probably thinking about was Terrell Davis of the Denver Broncos, who had to leave the Superbowl game due to ...??? So far as my research lead me as having contact with his doctors that he actually is "only" (sorry 'bout that word!) a migrainer. Since I'm no longer a OUCH officer or BoD member, I often wonder why Lisa Kudrow doesn't speak out on our behalf? Her father is a great specialist in CH. She must know this, but I would not intrude on that area for the sake of privacy and keeping Dr. Kudrow as a good asset to OUCH for his own practice. Dave |
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Title: Re: Celebrities? Post by Jasmyn on Nov 28th, 2005, 8:40am I think the reasoning is that we are not in wheelchairs(I don't knock them, I have siblings in wheelchairs) or look starved ;) to make us look pleading and pathetic enough to a cause for someone of their caliber to get the publicity they need :( |
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Title: Re: Celebrities? Post by vig on Nov 28th, 2005, 11:43am I think it was Kendall Gill of the CHarlotte Hornets... http://www.prolonews.com/migraines.htm he called them cluster migraines. |
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Title: Re: Celebrities? Post by Dave_Emond on Nov 28th, 2005, 4:36pm on 11/28/05 at 11:43:25, vig wrote:
Yes it was Vig ... just never heard back that I'm aware of. Dave |
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Title: Re: Celebrities? Post by ben_uk on Nov 28th, 2005, 6:31pm The King http://www.migraines.org/about_media/elvisdhe.htm http://www.elvis-express.com/ailmenmaia.html and Mrs King http://edition.cnn.com/TRANSCRIPTS/0504/26/lkl.01.html :o |
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Title: Re: Celebrities? Post by Not4Hire on Nov 28th, 2005, 7:30pm on 11/28/05 at 18:31:17, ben_uk wrote:
good one ben.... I did a search/find on the Larry King interview and the CLUSTER part showed this: Quote:
I think it's pretty interesting that the famous Dr. Seymour Diamond is so unfamiliar with CH that he can't, at first, remember why they're called *clusters*. Also, his remark about women rarely getting CH oughta put some bullets in BobP's scattergun....heh And Dave E: I absolutely agree that the Lisa Kudrow connection should explored by OUCH or by anybody that has *connections* to famous people. We NEED a POSTER CHILD!! I remember that *Sommellier* from the LA area had some pretty good shots at celebrities... (what ever happened to the Smelly ole wino anyways?) ...hell, we gotta *KING*..... too bad he's only famous HERE.... bite me jonny..... ;;D |
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Title: Re: Celebrities? Post by ben_uk on Nov 29th, 2005, 10:10am Celebrities and historical figures with “Headaches” include, among many: President, and architect of the Declaration of Independence Thomas Jefferson; the great painters Vincent Van Gogh, George Seurat (after which is named the Seurat effect, a current medical term often used to describe the visual phenomena of scintillating aura aka scotoma), and Claude Monet; great authors Virginia Woolfe, Cervantes (best known as the author of the classic, 'Don Quixote'), and Lewis Carroll who's “Headaches” are said to have influenced his gifts of literature still so popular today; leaders such as Julius Caesar, Napoleon, Ulysses S. Grant, Robert E. Lee, and Mary Todd Lincoln; scholars such as psychoanalyst Sigmund Freud, and Friedrich Nietzsche, the great German philosopher and poet; and Icon Elvis Presley, the King of Rock & Roll who struggled with the king of all 'headaches.' Performing artists who suffer from “Headaches” include Academy Award winning actress Elizabeth Taylor, actor James Cromwell who received a best actor nomination for his portrayal of Farmer Hoggett in Babe, movie star and Friends actress Lisa Kudrow sometimes suffers from “attacks”, supermodel and Friends actress Elle Macpherson, actress Lee Grant, Grammy award winning singer and songwriter Carly Simon, her number one single "Your So Vain" as popular now as it was in the 70's, country singing giant Loretta Lynn, Susan Olsen of Brady Bunch fame, Star Jones of The View daily TV show, Fred Norris of the ever popular nationally syndicated Radio & TV Howard Stern Show, and endearing & powerful Academy Award winning actress Whoopi Goldberg. Currently, some notable public figures suffering with “Headaches” are: Princess Margaret, Jennifer Ringley, the Jennicam girl (Jennicam.org) who put her life on the internet 24-7 and inspired the hit movies The Truman Show & Ed TV. Annie Glenn (wife of astronaut & Senator John Glenn who stood up to Vice President Johnson when she refused to let Johnson and reporters into her home after a launch attempt was scrubbed. Other notable “Headache” sufferers include sports basketball greats Kareem Abdul-Jabbar and Scotty Pipen. Top athletes cannot hide their disease as skillfully as many actors can, as we saw when MVP Denver Broncos running back Terrell Davis almost was knocked out of the Superbowl XXXII due to an ill-timed “Headache” attack. Other gifted major athletes who currently fight one of their toughest adversaries (“Headaches”) include Cleveland Browns Strong safety Marquez Pope, LSU's top quaterback Rohan Davey, and Arizona top runningback J.R. Redmond. Baseball's David Bell of the Seattle Mariners, Dwight Gooden pitcher for the Cleveland Indians, Minnesota Twins Pitcher Eric Milton, Jose Canseco of the Tampa Bay Devil Rays, and Sacramento Kings Jason Williams have been struck out by severe head-pain and the deep bench of ancillary symptoms from nausea to visual disturbances. Top woman golf pro Se Ri Pak, as well as LPGA leader Kathryn Marshall and golfer Fred Couples have to overcome the unpredictable “Headache” hazard. Basketball's Sacramento Kings flashy Jason Williams and collage basketball player Jordan Adams who starts for Kentucky, both have had debilitating “Headaches” take them from key games. Nationally ranked artists who suffer from “Headaches” include New York painter Janet McKenzie, California painter and sculpture Trevor Southy, painter Dennis Frings, and BJ Anderson who suffers from Migraine-like headaches (she is known around the world for her popular renderings of Cape Cod.) It is important to note that for “Headache” sufferers who have certain professions, such as the performing arts, which puts them in the public eye, it becomes difficult for them to admit that they have “Headaches”. With hundreds of thousands of dollars, or even millions of dollars riding on a performer being on a set on time, the stigma of such an episodic disease can interfere with getting the best job opportunities offered to them. And finally, some of the most notable “Headache” sufferers of all are mothers, many of whom around the world are challenged by debilitating “Headaches”. Despite their disease, they go on to raise families, manage households and/or careers, and contribute to communities. Many fathers, too, are “Headache” sufferers, who continue to care for family and loved ones, carry out careers, build homes, and participate in their communities. To continually fight a debilitating episodic disease while continuing to contribute to others makes them unsung heroes deserving of celebratory status in society as a whole, even though they are not household names. Well, they are, of course, household names, (as "Mom" and "Dad" are household names) --- so for those who read this and recognize their family member as a “Headache” sufferer, give them the love and respect they need and deserve. :o |
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Title: Re: Celebrities? Post by Dave_Emond on Nov 29th, 2005, 6:31pm on 11/29/05 at 10:10:36, ben_uk wrote:
Ben, could you send me an email with references to these possibilities of Celebs who may suffer CH? I'm pretty good at reasearch, even have been in contact with the Kapra family. I try to stay in "respect first" conversations with family members and don't push if they do not want to bring things out into the public. If I had references, I could do my own research and contacts, maybe could use for OUCH volunteers in way to help. I'm on the phone with Rex as I write, so excuse any confusion that might appear in this post ;) Dave |
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Title: Re: Celebrities? Post by Jonny on Nov 29th, 2005, 7:02pm on 11/29/05 at 10:10:36, ben_uk wrote:
Ive listened to the Stern show everyday its on for nearly ten years and thats news to me. |
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Title: Re: Celebrities? Post by Kate in Oz on Nov 29th, 2005, 8:02pm Hey Ben, I saw a few of these names listed when searching online but I was under the impression that the 'headaches' they suffered from where actually migranes???? Kate |
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Title: Re: Celebrities? Post by ben_uk on Nov 29th, 2005, 8:38pm Plagiarized from here - http://www.migraines.org/myth/mythgood.htm My CH was called “migraine” for 15 years – “trigeminal neuralgia” for 5 years and “migraineus neuralgia” for a further 5 years ! :o |
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Title: Re: Celebrities? Post by Jonny on Nov 29th, 2005, 8:53pm Just goes to show you that they will say anything, dont it? Dont matter if its true! |
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Title: Re: Celebrities? Post by Linda_Howell on Nov 29th, 2005, 9:03pm Quote:
uh-huh. And speaking of Bobby...He tried to get Kudrow on board a few years back when he was President of OUCH. Got a VERY cold reception if I remember correctly. I doubt if Lisa would be any more-so. :-[ Linda |
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Title: Re: Celebrities? Post by ben_uk on Nov 29th, 2005, 9:40pm on 11/29/05 at 10:10:36, ben_uk wrote:
The “migraine-like headaches” intrigued me and while looking for BJ Anderson, I found – MT Anderson - http://www.mkanderson.com/portal/modules.php?op=modload&name=News&file=article&sid=242&mode=flat&order=0&thold=0 Cluster Headaches Personal Posted by: mkanderson on Monday, November 14, 2005 - 10:00 PM Where have I been? Well, it's that time of year again when I'm injecting myself with Imitrex and trying to keep my sanity as cluster headaches take over my life and rule my schedule and destroy my sleep. Cluster headaches are some kind of cruel torture created in hell by the lowest of demons and inflicted on unsuspecting humans, I'm sure, as punishment for past sins. If you don't know what cluster headaches are, read this: Cluster headaches are severe, one-sided headaches that recur in groups, or "clusters," over a period of weeks to months. While common headaches can be painful, cluster headaches can be debilitating. Cluster headaches are sometimes referred to as "suicide headaches" because they are unbearably painful. Although cluster headaches can be temporarily disabling, they do not cause permanent damage. Cluster headaches are relatively rare, and are one of the few types of headaches that affect men more often than women. "Suicide headache" is right. The pain is so unbelievably unbearable, there have been times I thought my body would give up. I'm not really a suicide thinker, but I'd do anything to get rid of the headache. Which is why I have no hesitation to give myself a shot of Imitrex. Symptoms include burning or sharp, piercing pain on one side of your head. The pain radiates around the temple and eye, with the affected eye becoming red, watery, or puffy. The eyelid may droop, and you may have a runny or stuffy nose on the affected side. .... The pain usually intensifies quickly—within 5 to 10 minutes of onset—and may last for around 30 minutes to several hours. These headaches may begin at night, within 2 to 3 hours of falling asleep. They may start while you are dreaming; however, they can occur at any time. Cluster headaches can continue for days, weeks, or months before you stop having symptoms (remission). You may not have another cycle of cluster headaches for months or years; less commonly, your headaches may become chronic and continuous. Some historical figures have reported severe headaches that seem to fit the description of cluster headaches. Edgar Allen Poe and Friedrich Nietzsche are a couple of guys who self-treated their chronic headaches with opium and alcohol. I know what it's like to have these headaches without immediate relief. I've had cluster headaches since before Imitrex was created. Then I can only imagine not knowing what's going on because of the butchers that passed themselves off as doctors back then. I can imagine to avoid a lobotomy, opium seemed like a good idea. Imitrex is a wonder drug. Within 10 minutes of an injection, the headache is gone--completely. The downside to it is that a single, two-dose box, which is how the drug is packaged, is $135.00 at Sam's Club. My insurance doesn't cover the meds. For me to have what I need to get through a cycle of headaches, I have to cough up $2000 or more. So I take the pills when I don't need to go anywhere. They are slower, but I don't go broke treating the headaches. My goal for next year is to have a health savings account with enough money in it to cover a cycle with Imitrex injections. I'm going to get back to writing this week as the other treatments have made things bearable. I'm on Prednisone and Verapamil, which are both used to shorten the time I'm in a cycle. All of this is a lot to be on at the same time. But then again, I like my sanity. ? :o |
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Title: Re: Celebrities? Post by Lizzie2 on Nov 29th, 2005, 10:05pm Well hmm from history....lets not forget Frederic Chopin....who, as an Aussie journal pointed out several years back, may have died from Cystic Fibrosis instead of TB. He suffered from very vivid migraine aura and composed much of his music during these phases - as well as died in his 30s due to what was originally described as TB. I'm working on a programme of his music only right now because of what I just wrote above. |
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Title: Re: Celebrities? Post by ben_uk on Nov 30th, 2005, 6:59am Not sure that this is either a “celeb” or CHer, but I found it “interesting” – Lizbeth Finn-Arnold - http://www.literarymama.com/columns/momandpopculture/archives/000821.html :o |
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Title: Re: Celebrities? Post by ben_uk on Nov 30th, 2005, 9:05am More - http://www.lordsofpain.net/news/2004/articles/1086197148.php “Mine usually comes in clusters. For instance, I haven't had them for about 5 months until they hit me 2 weeks ago. When I get one, I usually suffer through several migraines until they might go away again” http://www.lukeford.net/archives/updates/040625.htm “I suffer thrice weekly from cluster headaches that center in my left eye, which experiences something akin to 40,000 volts pulsing through it every 40 seconds during six-hour attacks. Folks so afflicted don't gnash their teeth -- they poke their gums with dental picks as a distraction. A spike in the eye would be a welcome diversion.” :o |
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Title: Re: Celebrities? Post by zanychef on Nov 30th, 2005, 9:13am on 11/29/05 at 10:10:36, ben_uk wrote:
i think you'll find Princess Margaret is dead :( ;) |
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Title: Re: Celebrities? Post by Spike_Inmyeye on Nov 30th, 2005, 2:06pm I can think of some celebrities and politicians that I would like to have CH. Then, maybe, more time and $$ would be spent on understanding the problem. If we can spend $200M on a bridge (in Alaska) that goes nowhere and makes life more convienent for a lesser number of people than those who experience CH then why can't we give $5M to someone who is researching a way to, at least, provide more relief for CH. Rant over, give me the O2. |
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Title: Re: Celebrities? Post by Jonny on Nov 30th, 2005, 5:47pm on 11/30/05 at 14:06:03, Spike_Inmyeye wrote:
You sure you have CH? Even the mean bastard that I am I would never wish this on a someone!! ::) |
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Title: Re: Celebrities? Post by Spike_Inmyeye on Nov 30th, 2005, 6:51pm In the grand scheme of life there are plenty of maladies, or situations, that are worse than CH. Way too many. Unless it is my CH which is more important than anyone else's (at that moment)! What has caused me to vent my frustration are the trite celebrity pleas for every bullshit condition that is known to man. I really don't give a shit that Lindsey Wagner has acne, or that some guy who is so much better looking than I am, and has a girlfriend 25 years younger than himself, has errectile dysfunction. There are other things we can spend money on and other causes that can be trumpeted by the celebrities. Yeah, I want a celebrity for CH and I want it to be someone like James Earl Jones, Samuel Jackson, Sean Connery or Freddy Krueger. Someone with some gravitas, cojones, who generates fear and respect. Just like a CH. Think about it, would some fluffy comedian or pretty-boy actor truly define CH? As I sit here in the shadow of what is going to come 90 minutes after I go to bed I can honestly say that the brutality of a CH can not be conveyed by anyone else. And yes, you are right, I don't wish CH on anyone. Except the politicians. I'll stop before I explode. |
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Title: Re: Celebrities? Post by mabus on Nov 30th, 2005, 7:07pm Spike, you are so right that unless you are a CH sufferer, then you just cannot imagine what it is like. That's why it would be nice for someone who DOES know to be able to speak for those that don't have as much of a voice. And I'm glad to hear you wouldn't wish CH on anyone, including I'm hoping - even politicians. There's one in particular that I despise - and I wouldn't even wish it on him. Oh, maybe just one, so that he'd get it.... |
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Title: Re: Celebrities? Post by Bob P on Nov 30th, 2005, 7:17pm I tried to contact Kudrow (son of the first Kudrow headache guy and brother to Lisa). He wouldn't talk to me on the phone and didn't respond to my letter on OUCH letterhead. I think there was a little disagreement regarding his website "clusterheadache.com". He didn't use it for a long time but wouldn't sell it either. He grew to dislike us some from efforts to get him to turn it loose so we could use it. I guess some people just have no tact. |
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Title: Re: Celebrities? Post by Lizzie2 on Dec 1st, 2005, 9:48am Bob, It's funny that I'm reading this here as I've heard this about him from other places, too... Rather disappointing, isn't it? Lizzie |
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Title: Re: Celebrities? Post by Bob P on Dec 1st, 2005, 10:05am Yet I hear he's pretty good with clusters. At the first CalOUCH meeting, one of the guys, Lenny, had Kudrow for his doc. Said he really liked him. |
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Title: Re: Celebrities? Post by Lizzie2 on Dec 1st, 2005, 10:36am the son? |
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Title: Re: Celebrities? Post by Bob P on Dec 1st, 2005, 11:17am Yeah. The pop is retired. |
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Title: Re: Celebrities? Post by Lizzie2 on Dec 1st, 2005, 11:18am interesting.... never met the guy - heard good things about the dad though :) |
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Title: Re: Celebrities? Post by Kevin_M on Dec 2nd, 2005, 12:53pm on 11/30/05 at 18:51:20, Spike_Inmyeye wrote:
Founding father, John Jay, elected President of the Continental Congress, Secretary of Foreign Affairs, First Chief Justice, two-term Governor of New York and recently honored by the CIA as "America's first counter-intelligent chief. (James Fenimoore Cooper's popular book "The Spy" was based on information from Jay.) In retirement, he was asked to add some words for the Federalist party campaign but declined and lamented about the "vices and violences of parties and the corruption they generate and cherish." According to Jay, "all parties have their demagogues, and demagogues never were nor will be patriots." In his view the problem was not just a few individuals, but the whole system. "The rulers in democratic societies are generally men of more talents than morals. There can be little connection between cunning and virtue, and therefore our affairs will commonly be managed by political intrigue.' There were too many people in his view, who "love pure democracy too dearly; they seem to not consider that pure democracy, like pure rum, easily produces intoxication, and with it a thousand good pranks and fooleries." "There came forth from the French Revolution a spirit of delusion which, like an influenza passed over and infected all of Europe. Even our distant country has not entirely escaped. Delusions have their errands, and are sent for some purpose different than that of promoting peace." Jay negotiated the treaty which bears his name, Jay's Treaty, he signed on Nov. 19, 1794, which avoided a disasterous war with Britain. In 1809, Jay described Europe, then torn by war as " tempestuous and raging ocean; and who can tell what governments afloat upon it will escape destruction or distraction?" June 1812, at the request of President Madison, Congress declared war on Great Britain.* They are people, just like us, for which CH won't help. *bio. John Jay, founding father. |
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Title: Re: Celebrities? Post by Spike_Inmyeye on Dec 2nd, 2005, 5:15pm That's nice. Here is a better quote: "I never had sex with that woman" William Jefferson Clinton |
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Title: Re: Celebrities? Post by Kevin_M on Dec 2nd, 2005, 5:26pm on 12/02/05 at 17:15:18, Spike_Inmyeye wrote:
I guess that's something I've never done. ::) |
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Title: Re: Celebrities? Post by Spike_Inmyeye on Dec 2nd, 2005, 5:47pm I would have to agree that the quality of politician that we have now is but a fraction of those who wrote the Declaration of Independence and the Constitution. Of course none of this has anything to do with this thread (I think the thread had something to do with celebrities) but it did cause me to think this thought. What did those poor bastards in 1776 do when they had a CH? No O2, no lithium, no 'trex. I bet we were called witches back then. |
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Title: Re: Celebrities? Post by Kevin_M on Dec 2nd, 2005, 5:52pm on 12/02/05 at 17:47:22, Spike_Inmyeye wrote:
Oh, I thought it caused you to think this thought: Quote:
Perhaps you think differently now? |
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Title: Re: Celebrities? Post by Spike_Inmyeye on Dec 2nd, 2005, 6:17pm Maybe it is just a Friday evening rumination. Our politicians are better when we look backwards. But it still got me thinking about the history of CH and trying to imagine what people back then thought of the "beast" and how they dealt with it, if at all. Plus, the internet message boards weren't that good. So there you are, 1776, you are in what will become known as South Dakota, it is cold, snowing, you are hungry, it is night time and - bam - a massive cluster headache. What the hell do you do? Ouch! Your hunting companion is William Jefferson Clinton. There is nothing he can do nor anything you can do. He can't "feel your pain" no matter what he says. All you can do is wait until it goes away and then the two of you can go back to hunting beavers. gotta go. |
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Title: Re: Celebrities? Post by Jonny on Dec 2nd, 2005, 6:24pm on 12/02/05 at 18:17:23, Spike_Inmyeye wrote:
If only we could get that lucky!! ::) |
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Title: Re: Celebrities? Post by Kevin_M on Dec 2nd, 2005, 6:28pm Quote:
on 11/30/05 at 18:51:20, Spike_Inmyeye wrote:
on 12/02/05 at 18:17:23, Spike_Inmyeye wrote:
nice wish? [smiley=huh.gif] |
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Title: Re: Celebrities? Post by Jonny on Dec 2nd, 2005, 6:37pm Once I see someone wishing CH on someone else.....I KNOW they dont have CH! Nuff said! |
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Title: Re: Celebrities? Post by BlueMeanie on Dec 2nd, 2005, 7:19pm on 12/02/05 at 18:17:23, Spike_Inmyeye wrote:
Same thing most of us from the 60's & 70's did. Tuff it out and think you we're gonna die. No 02 or Trex back then. At least that I knew of. :o Lucky we never got burnt at the stake. [smiley=laugh.gif] |
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Title: Re: Celebrities? Post by sandie99 on Dec 3rd, 2005, 6:32am There's one Finnish soap actress who had CH. Apparently she spoke about it on TV once, but I missed that show. She has not given interviews about and the only time I've seen about it on papers was a small clip in one trashy magazine - and that was full of errors. I got so mad that I got hit... >:( But what comes to migraines, one mag announces that Desperate Housewives & Melrose Place star Marcia Cross has them. And according to that article, it truly is migraine. Sanna |
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