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Title: Coping Post by rextangle on Oct 13th, 2005, 5:14pm This may or may not help you... The important thing about having this condition is to try to maintain your sanity. Don't let the beast win. Since I stopped all meds a year ago, I rely mainly on 02. Of course, it doesn't always work as fast or as well as we wish. Everytime I get hit, I go into a different mode. I try to focus on anything but the pain. And that's extremely difficult to do, no doubt.... but with practice I've been able to make those attacks more bearable. Focus on music, bad TV, or think very hard about something and analyze it in your head as the beast messes you up. When it's over, go back to be who you are... don't think about what just happened or what's coming up next. Try to be happy about something no matter what it is... a family member, your spouse, something good to eat... As I get hit multiple times per night, day after day, I get to practice this method a lot. It truly helps me. Look at CH as something you have to do on a daily basis, just like taking a crap. Yep, a painful crap or multiple crap indeed, but move on the minute it's over... None of us (I hope, but could I be wrong) don't stay by the porcelain bowl after taking a dump and feel sorry about how bad it was, staring at it crying.. right??? So do the same with your CH attacks. Put the lid down, and flush it. Move on... do something you love... Any questions? Rex |
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Title: Re: Coping Post by Kate in Oz on Oct 13th, 2005, 8:51pm Good on you Rex, that is so true!! If I get woken with a hit there's not much to do but ride it out... but during the day as soon as I get the twinge I get busy, frantic even, you've never seen me get up so quick to start on the house work!! And sometimes it even works. Luckily for me I am pf at the moment but next time... I'm gonna remember what you said about crying over a shit. It might just help ;) Thanks, Kate |
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Title: Re: Coping Post by nani on Oct 13th, 2005, 9:00pm on 10/13/05 at 17:14:24, rextangle wrote:
Truly, some of the most profound words of wisdom I've ever seen. Seriously. :-* hugs, nani |
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Title: Re: Coping Post by unsolved1 on Oct 13th, 2005, 9:22pm That's some of the best advice I've seen on this website! I've had to learn to 'flush it' and move on years ago. I learned it the hard way too. >:( Thanks for your valueable post Rex ! UNsolved |
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Title: Re: Coping Post by jon019 on Oct 13th, 2005, 9:30pm [quote author=rextangle lThis may or may not help you... See the full quote above Oh wow Rex, you are so 100% right. And coping is exactly the right word. We've all been there when the meds, or O2, or alternatives just did not work. Now what... Ride it out? Been there. Wanna try something else? I know you do. This may sound weird but as a wise man once told me "desperate people do desperate things". basically its a form of meditation (which I know nothing formally about) and another way of stating what Rex has already said. When the hits come, and nothing else works, I FORCE myself to concentrate. Surround the center of the pain with a circle and enclose it. Tell myself it is not pain but a "thing", do not allow it out, slowly close the circle, squeeze the bastard out, DO NOT give in to the pain! Does this work every time. Nope! Does this even work MOST of the time, NOPE!. Does this work once in a while? Damn right! The satisfaction and relief is indescribable (see descriptions of people finding O2 or triptans for the first time). Am convinced if I had the training AND the will power it would work more often. It IS exhausting (as much as the CH itself). it takes enormous concentration (try that with a kip 8-10) but its another option that you should at least consider. What have you got to lose? Regards Jon019 |
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Title: Re: Coping Post by E-Double on Oct 13th, 2005, 9:56pm You rock brother!!!!! Follow the motto....It is what it is so live the life you've got ;) |
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Title: Re: Coping Post by Mr. Happy on Oct 13th, 2005, 10:37pm So a decent CH is like passing a mental turd, and we're left holding the shitty end of the stick. I'm wearing gloves around y'all, RJ |
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Title: Re: Coping Post by jon019 on Oct 13th, 2005, 11:21pm Put the gloves on Hap, All I'm sayin' is that when you get served a shit sandwhich in proper company. Miss Manners be damned, there is more than one one to eat it. Regards Jon019 |
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Title: Re: Coping Post by BMoneeTheMoneeMan on Oct 14th, 2005, 12:12am Thats some real good advice, Rex. Yes the pain is bad, and the no sleep for 6 to 10 weeks sucks too, but keeping my sanity is probably the hardest thing for me. Thanks a lot man. BMonee |
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Title: Re: Coping Post by LeLimey on Oct 14th, 2005, 3:45am Rex that is bloody brilliant! I love it and you couldn't be more right! :-* Helen |
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Title: Re: Coping Post by Sandy_C on Oct 14th, 2005, 1:19pm Absolutely, Rex. We all do whatever we have to do to cope, and then get on with our lives. I, personally as I'm rocking back and forth, say "go to He** you bitch"(my CH is female, I just know it), over and over until she's gone. And then, I get up and go about my business for the day. I try desperately not to think about the next hit. Sandy |
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Title: Re: Coping Post by sandie99 on Oct 16th, 2005, 3:46am Great post, Rex! :) Thank you. I keep that in mind... :) Sanna :) |
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Title: Re: Coping Post by Jonny on Oct 16th, 2005, 3:49am on 10/13/05 at 17:14:24, rextangle wrote:
Yep....When do we get to see you throw down the unbreakable rifle? ;;D |
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Title: Re: Coping Post by Jasmyn on Oct 16th, 2005, 4:00am [smiley=thumb.gif] |
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Title: Re: Coping Post by jcmquix on Oct 16th, 2005, 1:18pm Rex... This is truely Great ADVISE and after reading it I just wanted to BUMP it back to the top.. Thank You God Bless & PFDAN's Charlie |
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Title: Re: Coping Post by AussieBrian on Oct 17th, 2005, 12:44am Putting the lid down and flushing is one thing, mate, but this one's stuck in the S-bend. Otherwise, great advice. |
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Title: Re: Coping Post by zanychef on Oct 17th, 2005, 8:17pm i flush mine daily! |
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Title: Re: Coping Post by rextangle on Oct 17th, 2005, 8:58pm Keep on flushing this shitty condition people! [smiley=thumb.gif] |
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Title: Re: Coping Post by BlueMeanie on Oct 17th, 2005, 10:27pm I never thought of CH's like taking a crap before. But since you put it that way, I think instead of taking a crap, it's more like taking a piss. When it's over, you shake it off. If you hold on too long, it's hard to let go. ;;D |
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Title: Re: Coping Post by AussieBrian on Oct 18th, 2005, 5:15am Flushing, flushing and flushing - and it just keeps floating back. Ever have one like that? Try every trick you've got and , gazoompah, it's still there looking you in the face and laughing. Still, if that's the beast personified, it's also the best place for it. |
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Title: Re: Coping Post by Phil L on Oct 21st, 2005, 9:43pm I wonder if learning and saying a mantra would help. I'll try it and let you know. Phil |
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Title: Re: Coping Post by Kate in Oz on Oct 21st, 2005, 10:32pm on 10/21/05 at 21:43:47, Phil L wrote:
I've got a few I use.... one goes kinda like this shit fuck shit fuck shit fuck oh ouch shit fuck.... and so on and sometimes its just kind of oooooh grunt grunty fuck grunt ooooh fuck It doesn't necessarily help with the pain tho - but for the life of me if it's a bad one I'll be doing it - otherwise I'm reduced to tears, screaming and jumping about. It's never a pretty sight :P |
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Title: Re: Coping Post by Kate in Oz on Oct 23rd, 2005, 7:21am Sorry bout that last post :-/ I bought the whole 'inspired' theme of this post to a really rotten level :( Guess I should have thought to flush the other shit in my life before posting - been a tough week. Sorry all :-[ |
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Title: Re: Coping Post by MJ on Oct 23rd, 2005, 10:33am Thatta girl Kate. We all have a mantra of sorts. Use it when you need it then Leave it behind and move on if only for a moment |
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Title: Re: Coping Post by jon019 on Oct 23rd, 2005, 12:51pm Oh Kate, No apologies necessary as far as I'm concerned. It's called coping. You do whatever you gotta do. A mantra happens most of the time (for me anyway). It just is; like the rocking, pacing, head squeezing, screaming... Sometimes profane, sometimes stupid, sometimes pleading. Can't say whether it helps or not, it sure doesn't make it worse, and maybe, just maybe, it allows the briefest respite we all crave if you can concentate on SOMETHING else, ANYTHING else. Regards Jon019 |
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Title: Re: Coping Post by drivin_blind on Nov 3rd, 2005, 11:43am Perfectly said. I am in awe of how well CHers seem to be able verbalize. But I couldn't agree more. Life goes on. I have a family that depends on me. I don't have a life threating disease. (at least that I'm aware of at this time.) I can't and we can't let this totally dictate our lives! There are more important aspects of our lives. Dick |
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Title: Re: Coping Post by Jasmyn on Nov 3rd, 2005, 2:34pm [quote author=Kate in Oz link=board=chspecific;num=1129241664;start=0#22 date=10/23/05 at 07:21:08]Sorry bout that last post :-/ I bought the whole 'inspired' theme of this post to a really rotten level :( Guess I should have thought to flush the other shit in my life before posting - been a tough week. Sorry all :-[/quote] Kate never apologize again here for something so bloody normal and human! ;) |
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Title: Re: Coping Post by Langa on Nov 3rd, 2005, 4:59pm Thanks for this post Snoopie... ;;D Very wise words! Langa |
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Title: Re: Coping Post by JenniferD on Nov 7th, 2005, 4:41pm rex, in spite of the extremely crappy way i feel right now, an dthe rather crude analogy you used, i must say: i love you. you are truly genuine. i'd high five ya, but teh slamming of palms would prolly make my brain slam against the inside of my skull... don['t need that right now. prolly just need a good dump ;) |
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Title: Re: Coping Post by rextangle on Nov 7th, 2005, 5:27pm Well Jenn, high five well received... I can see the paw print on my monitor! Be well, Rex |
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