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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> CH Database Part 2-1
        
(Message started by: cluster on Oct 1^st, 2005, 5:11am)

Title: CH Database Part 2-1
Post by cluster on Oct 1^st, 2005, 5:11am

Global Cluster Headache Database
Some Available Cluster Headache Statistics and Surveys

(Please see also: http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1126505637 )

There is some quite interesting stuff which can be found with the search engines at Blackwell-Synergy.com http://www.blackwell-synergy.com/search/advanced and at JNNP. There is more to find at Blackwell-Synergy.com, but if you want to read the full story, they want money. JNNP is free but does not have as many articles as Blackwell.
JNNP Online - Journal of Neurology, Neurosurgery & Psychiatry

Here is my ‘Best Off’ so far:

Features involved in the diagnostic delay of cluster headache
J A van Vliet, P J E Eekers, J Haan and M D Ferrari for the Dutch RUSSH study group
http://jnnp.bmjjournals.com/cgi/content/full/74/8/1123?maxtoshow=&HITS=10&hits=10&RESULTFORMAT=1&andorexacttitle=and&andorexacttitleabs=and&fulltext=cluster+statistic+headache&andorexactfulltext=and&searchid=1127311453342_1265&stored_search=&FIRSTINDEX=0&sortspec=relevance&resourcetype=1,10&journalcode=jnnp

The Netherlands have about 16 Million inhabitants. The survey was send to ALL Dutch GP’s and to ALL Dutch neurologists. They got about 2000 questionnaires filled in by the patients in return. “Linear regression analysis was used to test relations between two continuous variables.” – Yes, that is one of the things I would like to see being used on the Global Cluster Headache Database. Once all the data is gathered let the computer work to find out if there are any relations we may not know yet. E.g.: Does treatment ‘X’ only work for patients who trigger on ‘A’?

Black, David F., Swanson, Jerry W. & Stang, Paul E. (2005)
Decreasing Incidence of Cluster Headache: A Population-Based Study in Olmsted County, Minnesota. Headache: The Journal of Head and Face Pain 45 (3), 220-223.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1526-4610.2005.05048.x

Houle, Timothy T., Penzien, Donald B. & Houle, Chris K. (2005)
Statistical Power and Sample Size Estimation for Headache Research: An Overview and Power Calculation Tools. Headache: The Journal of Head and Face Pain 45 (5), 414-418.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1526-4610.2005.05092.x

- To be investigated, could be useful. - Sample size? All worldwide CH patients to start with: descriptive statistics. Once this has been done, representative statistics may be used.

Bahra, May, Goadsby, Neurology 58(2002)354ff - United Kingdom, 230 patients
http://www.neurology.org/cgi/content/abstract/58/3/354?maxtoshow=&HITS=10&hits=10&RESULTFORMAT=&author1=bahra&fulltext=cluster&andorexactfulltext=and&searchid=1126879851272_2723&stored_search=&FIRSTINDEX=0&sortspec=relevance&resourcetype=1&journalcode=neurology

Chakravarty et al. Cephalalgia 24(2004) - India, 58 patients over 17 years
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1468-2982.2004.00759.x

Well. - Where do Indian women go with their CH ?

Lin et al. Cephalagia 24(2004)631ff – Taiwan, 104 patients
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1468-2982.2003.00721.x

Mosek et al. Cephalalgia 21(2001)198 – Middle-age and elderly women
http://www.blackwell-synergy.com/doi/abs/10.1046/j.1468-2982.2001.00184.x?prevSearch=allfield%3A%28mosek%29

Rozen et al. JNNP 70(2001) 613ff –female (32)/male (69) comparison 1995-1998
http://jnnp.bmjjournals.com/cgi/content/full/70/5/613?maxtoshow=&HITS=10&hits=10&RESULTFORMAT=&author1=rozen&fulltext=cluster&andorexactfulltext=and&searchid=1126880125559_1569&stored_search=&FIRSTINDEX=0&sortspec=relevance&firstpage=613&resourcetype=1&journalcode=jnnp
Ekbom, K, Svensson, DA, Träff, H & Waldenlind, E (2002)
Age at onset and sex ratio in cluster headache: observations over three decades.
Cephalalgia 22 (2), 94-100. Sweden, 554 patients between 1963 - 1997
http://www.blackwell-synergy.com/doi/abs/10.1046/j.1468-2982.2002.00318.x
Torelli, P, Cologno, D, Cademartiri, C & Manzoni, Gc (2001) – Italy, 652 patients
Application of the International Headache Society classification criteria in 652 cluster headache patients. Cephalalgia 21 (2), 145-150
http://www.blackwell-synergy.com/doi/abs/10.1046/j.1468-2982.2001.00185.x

Torelli, P., Beghi, E. & Manzoni, G. C. (2005)
Validation of a Questionnaire for the Detection of Cluster Headache.
Headache: The Journal of Head and Face Pain 45 (6), 644-652.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1526-4610.2005.05131.x?prevSearch=allfield%3A%28cluster+headache+survey%29

Good point, who has not seen useless questions in a questionnaire yet? And it is very important to make sure that the questions are very well understood by the patients.

Please let me know, if I have overseen any important article and/or if you know of any important study which was not mentioned above .

Summary:

“The need for statistical evaluation of various aspects of Cluster headaches is documented by the variety of surveys which already exist.” … “Do we have one with a sound scientific background yet?” – Yes, we have some (see above). But maybe we have just too many of them. It is a patchwork of valuable work which has been done. I think we have to re-start from scratch, but the available data will not be lost.

See also part 2-2

Pain free times!

Friedrich

Title: CH Database Postings - Overview
Post by cluster on Oct 14^th, 2005, 6:32am

Global Cluster Headache Database
Overview of CH.com message board postings

- I had to split the postings because the text was to long -

Proposal for a Global Cluster Headache Database
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1126505637

Part 2: Some Available Cluster Headache Statistics and Surveys

Part 2-1 Scientific surveys, statistics and literature
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1128161475

Part 2-2 Non scientific surveys, statistics and databases
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1128161636

Part 3: Some ideas on how this could be made to work

Part 3-1
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1128162323

Part 3-2
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1128162464

Pain free times,
Friedrich

Title: Re: CH Database Part 2-1
Post by Sandy_C on Oct 14^th, 2005, 1:10pm

Thanks, Cluster.

You've posted some really good links, with lots of information.

We appreciate it.

Sandy