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New Message Board Archives >> 2005 Cluster Headache Specific Posts >> short term menory lost
(Message started by: unclejake127 on Sep 18th, 2005, 8:55pm)

Title: short term menory lost
Post by unclejake127 on Sep 18th, 2005, 8:55pm
i seem to be having short term menory lost and having problems spelling very simple words is this common
with ch or is it just in my head   any  help   jim  :-[ :-[

Title: Re: short term menory lost
Post by unsolved1 on Sep 18th, 2005, 10:52pm
Maybe due to meds ? What meds are you taking ?

PF Wishes
UNsolved

Title: Re: short term menory lost
Post by Chillrmn1 on Sep 19th, 2005, 3:37am
What meds are you taking? I noticed memory loss while I was taking Imitrex injections............to the point when going from the kitchen to my bedroom, then forgetting what I went to the bedroom for. Memory returned for me when I stopped with the Imitrex...........at least most of my memory.
Bob

Title: Re: short term menory lost
Post by Jasmyn on Sep 19th, 2005, 3:44am
What UNsolved said.

During a period - I still don't know if it is from the meds or the after effects of the hits - I do tend to pick up a few awkward traits such as:

Slurred speech - my tongue seems not to know how to form the words correctly anymore

Concentration goes out the window - seem to lose my trend of thought

Intensified senses - Colours, smells, sound etc. all seem to be more intense

But then maybe its just old age with me [smiley=laugh.gif]

Thats just me but it does happen.

Hope the others can be more helpful, just hang in there!

Jas

Title: Re: short term menory lost
Post by Chillrmn1 on Sep 19th, 2005, 5:10am
Jas,

Interesting you mentioned slurred speech. I get that too while in cycle, and I don't take conventional meds anymore, so I can't blame the slurred speech on the meds. I don't recall others mentioning the slurring before. But it does happen to me.
Bob

Title: Re: short term menory lost
Post by Jasmyn on Sep 19th, 2005, 5:23am

on 09/19/05 at 05:10:54, Chillrmn1 wrote:
Jas,

Interesting you mentioned slurred speech. I get that too while in cycle, and I don't take conventional meds anymore, so I can't blame the slurred speech on the meds. I don't recall others mentioning the slurring before. But it does happen to me.
Bob


Bob hopefully others will also mention this otherwise you and me have a problem - and not a drinking problem at that! ::) ;;D

Title: Re: short term menory lost
Post by Chillrmn1 on Sep 19th, 2005, 5:28am
Jas,
Can't be the drinking, haven't touched the juice in years ;-).
Bob

Title: Re: short term menory lost
Post by Jasmyn on Sep 19th, 2005, 5:31am

on 09/19/05 at 05:28:06, Chillrmn1 wrote:
Jas,
Can't be the drinking, haven't touched the juice in years ;-).
Bob


Hell of a trigger in any case ;;D

Title: Re: short term menory lost
Post by E-Double on Sep 19th, 2005, 6:41am
Short term memory loss, slurring and some drooling has been mentioned especially during peak of cycle.

Title: Re: short term menory lost
Post by Frank_W on Sep 19th, 2005, 7:15am
The cycle before last, I had a truly horrific cycle. It was longer and the intensity and frequency of hits far surpassed anything I've ever experienced. At the time, I was taking Verapamil and using injectable Imitrex, and after that cycle, went off of them, of course. Since that cycle though, I've noticed that my short-term memory is worse than it's ever been. It's a little scary, sometimes. I've always been a bit absent-minded, but this is really above and beyond that.

Title: Re: short term menory lost
Post by Redd715 on Sep 19th, 2005, 7:31am
Topomax has had this effect on me, and it does seem as though I've never really gotten all my IQ points back.  I have a tendancy to think that the stess and sleep deprivation has alot to do with it as well.  

Title: Re: short term menory lost
Post by ghost62 on Sep 19th, 2005, 2:04pm

on 09/19/05 at 07:31:10, Redd715 wrote:
 I have a tendancy to think that the stess and sleep deprivation has alot to do with it as well.  

I got to agree lack of sleep and other things have greatly affected my memory and concentration levels especially when in cycle. ok I also have Adult ADD but no biggie. 1 good hit and I always remember the beast.

Title: Re: short term menory lost
Post by seasonalboomer on Sep 19th, 2005, 2:23pm
[quote author=unclejake127 link=board=chspecific;num=1127094905;start=0#0 date=09/18/05 at 20:55:05]i seem to be having short term menory lost and having problems spelling very simple words is this common
with ch or is it just in my head   any  help   jim  :-[ :-[/quote]

Hey Jake,

Like many others, and you, I also tend to be a little weak-headed when in cycle. I try to pull words out to speak and stumble, knowing the word but not being able to spit it out. My vocabulary feels as though it drops back to 1-2 syllable words only and I have difficulty concentrating.

And then after the cycle, things get back to normal and I am again able to find a way to interweave the word "f*ck" as a prefix or suffix for about any word. Gifted...

Scott

Title: Re: short term menory lost
Post by yikes-another-one on Sep 19th, 2005, 2:43pm
;)

Well, I can tell you I was worried i had brain damage or something.  For 6 long lonely years, I had Ch and was told it was a migraine....and I sufered loss of energy, dyslexia, confusion ....all sorts of things.

I think is is a side effect of the CH...
maybe pre-occupied with fighting the beast....
I had a 3 day "remission" in April....because of
using steroids for an un-related medical thing...
and guess what!!!!
For 3 days I had energy,
no trouble recalling short-term memory information,
no trouble with dsylexia....and I could finally organize
a "to-do" list without starting over 5 times.

of course once off the steroids, the headaches returned like clockwork, and all the good went out the window.
But it was a nice little vacation....and proof enough to me that there is more to the troubleof CH than just pain.
(As if it weren't enough)  Keeping a specific journal can help you sort out what is related and what just "seems" to be.

I now jsut carry around pen and paper EVERYWHERE.
That way, when someone accuse me of forggetting,
i can flip back and say, "Oh yeah, you did tell me that."
and act sheepishly sorry.
If they have known me more than a week or two,
they know better than to expect any more than that.
;)

Title: Re: short term menory lost
Post by seasonalboomer on Sep 19th, 2005, 2:52pm

on 09/19/05 at 14:43:41, yikes-another-one wrote:
;)
I now jsut carry around pen and paper EVERYWHERE.
That way, when someone accuse me of forggetting,
i can flip back and say, "Oh yeah, you did tell me that."
;)


Hey yikes,

why don't you tell the person that's telling you something to write it down, then responsibility for remembering is in their pocket instead of yorrs. As you are carrying the evidence of proof of being told you don't get the benefit of deniability which is so valuable as we get older....  8)


Scott

Title: Re: short term menory lost
Post by yikes-another-one on Sep 19th, 2005, 5:04pm
;)
Well I like to try to keep 80% of the promises i make,
and I got sick of defending myself.

i'd answer the phone and my sister would say,
"Can ya babysit for me this Friday?" yada, yada
and then she'd go on about something else and
we'd hang up.

Friday would roll around, and I wouldn't be at her house
and she'd call me to say, "If you didn't want to all you had to do was say so..."
and I'd swear I jsut plaion forgot about the call...

it was causing bad blood to srping up everywhere.

Now I got pen and paper, and every night (or each morning) i get out the "to-Do" list
and make certain I get things done.

With the chronic beast popping up 4 -8 times a day
I get a little pressed to remember my address, let alone
where i am supposed to be for dinner.... ;)

Title: Re: short term menory lost
Post by Kate in Oz on Sep 19th, 2005, 9:29pm
Same... I write down everything!!  I'd be lost without a notepad for thoughts, a list of things to do today & in what order to do them!!  

I keep diaries, and always write in the calendar so that I know what's coming up and remember what I've done.  My memory has been terrible for as long as I can remember  :P  I have boxes of diaries and notepads dating back 20+ yrs.

Without some prompting I couldn't tell you what I did day before yesterday.

Kate

P.S.  This is true for me during a cycle or not... however do notice greater problem with co-ordination and slurring during a cycle.

Title: Re: short term menory lost
Post by longfatyoung on Sep 20th, 2005, 11:02am
Thought it was just me! I forget my Kids names What i was doing a minute ago or what I was looking for!  

Title: Re: short term menory lost
Post by unclejake127 on Sep 21st, 2005, 8:07pm
Sorry it took so long to answer forgot where i was lol [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif]
the med i'm taking at this time
trex inject 6mg to stop ch
prednisone 60mg in am started at 80mg every week going down 20mg per doc i think my cycle is over
topamax 100mg in pm
protonix 40mg at dinner time
my cycle every 3 years from june /july to sept/oct   8 to 12 weeks was always between 1am and 4am
 since i started meds have had 2 or 3 ch some days
      thanks for all responses   jim

Title: Re: short term menory lost
Post by Kate in Oz on Sep 21st, 2005, 10:03pm
Jim,

good to hear your cycle is nearly over  :)

take care

Kate

Title: Re: short term menory lost
Post by ete on Sep 22nd, 2005, 1:57am
[quote author=unclejake127 link=board=chspecific;num=1127094905;start=0#0 date=09/18/05 at 20:55:05]i seem to be having short term menory lost and having problems spelling very simple words is this common
with ch or is it just in my head   any  help   jim  :-[ :-[/quote]

Hi Jim,

it is one of the typical symptoms of CCH, but medical profession ignore mostly this obvious problem.

Iīve hundreds of new tools - screwdrivers, hammers, knives, drills and so on. You find nothing and after 2 hours of search, you buy new at the hardware store. You come back from the store and find the lost item. grrrr.

Thatīs what we named CRS (canīt remember shit)

I take a long time (4 yrs) the med piracetam 1200 2x2 daily, when Iīve not the diagnose CCH.

Today if I canīt concentrate me, I take the dosis for some days, sometimes for 2 or 4 weeks.

The faqīs to piracetam on erowid-site are helpful.

http://www.erowid.org/smarts/piracetam/piracetam_faq.shtml

the searchresult  at google:

http://www.google.de/search?hl=de&q=piracetam&btnG=Google-Suche&meta=

speak with your neuro about this med.

best

ete

Title: Re: short term menory lost
Post by giffy76 on Sep 22nd, 2005, 8:40am
I have slurred speach, twisted tounge, absent minded, drooling (even when not in cycle [smiley=laugh.gif]) but the one that bothers me the most is that I don't give a f#ck about anything. I go into this self preservation mode and end up hating everything and everyone....ya know, in a different thread I posted that Deoakote didn't change my mood but now it's got me wondering...Hmmmm.

Title: Re: short term menory lost
Post by dodie on Sep 22nd, 2005, 2:06pm
wow you really started some thing here!
Seems we all have similar symtoms specialy on the Topomax (dopomax). Yes durring a cycle I will slur speach and be forgetfull! I have always been a bad speller no matter what! LOL if I am in the throws of a CH I sometimes look like a stroke patient, sound like one too. I forget all kinds of stuff it hurts too much to think. Litteraly I cant talk or find words I need.
I dont think you have much to worry about sounds like we all have similar problems.
dodie

Title: Re: short term menory lost
Post by Salvelinus on Sep 23rd, 2005, 8:02pm
After this last cycle, I've had much more trouble with spelling.  I am usually very finicky about it, but have had some embarrassing mistakes lately.

I've had memory issues for quite a few years, but thought it was just me.  Maybe it was the CH . . .

Thanks.  I learn something every time I log on . . .

Namaste,
--Scott

Title: Re: short term menory lost
Post by Ree on Sep 24th, 2005, 7:34pm
I noticed that you spelled memory loss wrong twice. Once in the subject line... Once in the body of the letter. While complaining about misspelling words.... Did you know that you were spelling memory loss wrong... or do you prounce MeMory with a N in the middle.... seems a little trollish to me.... just curious

ree

Title: Re: short term menory lost
Post by joey_the_grip on Sep 25th, 2005, 2:09am
With my ch I feel an aura similar to what migraine sufferers experience. Sometimes this is more disturbing than the actual pain. It lasts pretty much throughout a cycle with little relief. The aura includes cognitive changes, memory loss, personality changes as well as physical symptoms like lethargy, weakness, drops in blood pressure, vertigo, loss of coordination and changes in body temp. When a headache reaches a crescendo I am literally debilitated. I can not put a proper sentance together much less write or even get my own meds out of the bottle.  

Title: Re: short term menory lost
Post by unclejake127 on Sep 25th, 2005, 9:44pm
REE  I just noticed   i spelled memory :-/ worng thanks
                                jim

Title: Re: short term menory lost
Post by bnfreeman on Sep 25th, 2005, 10:28pm
I've noticed since they upped all the medicine I am taking that I have a lot of memory loss. I think slower and need to concentrate harder. I can't do more than one thing at a time. I also make a to do list EVERY day.

Brandi



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