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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> did the surgery bring on another episode?
        
(Message started by: catherinelane on Aug 22^nd, 2005, 4:14pm)

Title: did the surgery bring on another episode?
Post by catherinelane on Aug 22^nd, 2005, 4:14pm

i have been cluster free for over 2 years my appendix were about to bust a few weeks ago so i had surgery to remove them next thing i know bang im in full blown ch cycle and am seriousley contemplating jumping off the nearest cliff so just wondered did the anasthetic bring on a cycle??

Title: Re: did the surgery bring on another episode?
Post by LeLimey on Aug 22^nd, 2005, 4:28pm

Hi Catherine,
The simple answer is I don't know, it could have done.. how long do you usually have between your cycles? You have been pretty lucky to get two years PF in all honesty so it could just have been unlucky coincidence that the two have hit together OR.. it could be triggered by the anaesthetic.
Are you currently under a neuro in the UK? Do you have any meds or O2? You'll find alot has changed since your last cycle for the better I hope!
I don't know if you found OUCH UK last time round but they are great, the website is fantastic, a lot of useful info on drugsd available in the UK and O2 etc (which I have to say is FANTASTIC!!) If you haven't tried it please do.. I cna't believe the diffeence its made to my life!
The website for OUCH UK is

http://www.clusterheadaches.org.uk/home/index.cfm?address=../home/txt_welcome.cfm&added=Dec2001&code=AD

They have a doctors site you might want to point your GP at here

http://gpinfo.ouchuk.org/

and they also have a helpline. I don't know if you have ever spoken to another ch'er but its an expereience like no other. To speak to someone who truly understands what you are going through is very liberating. Its an answerphone so leave your name and number and someone will call you back. 0161 2721702

I hope this all helps, let us know how you are getting on here regardless okay?
I hope you get some relief soon
Helen

Title: wRe: did the surgery bring on another episode?
Post by catherinelane on Aug 22^nd, 2005, 4:42pm

ty helen this helps a lot i had my first cycle 3 years ago for 2 weeks then a months rest and another cycle for a week now ive not had a cycle for 2 years till now going into my 2 nd week (lost all track of time) the docs here know nothing about the condition and in my recent visit to hospital just sent me home with yet more painkillers i now have an appointment with a specialist after a 3 year wait on the 6th of septmber so i have my fingers firmly crossed

Title: Re: did the surgery bring on another episode?
Post by marlinsfan on Aug 23^rd, 2005, 7:29am

Hi Catherine,
I had back surgery in April, and 3 days after it my cycle started. Like you, I had been pain free for 3 years.... The thing you must remember is that if you are episodic, which sounds like you are, the cycle WILL end.
Hang in there.
Jose

Title: Re: did the surgery bring on another episode?
Post by catherinelane on Aug 24^th, 2005, 1:48pm

that is so freaky 3 days after my surgery my ch restarted im sooo glad to have found you all though.

Title: Re: did the surgery bring on another episode?
Post by marlinsfan on Aug 24^th, 2005, 3:51pm

I think mine was either the anesthesia of the surgery, or the meds that I took after. I was on Vicadin and the CH started the day after I stopped the meds.

I'm glad I found this place too!

Title: Re: did the surgery bring on another episode?
Post by don on Aug 25^th, 2005, 7:37am

I had an emergency appendectomy last year. At the time I had been cycle free for 3 years. I was lucky and a cycle wasn't triggered.

What worried me was the use of the narcotics. A sure trigger.

Title: Re: did the surgery bring on another episode?
Post by hwm54112 on Sep 4^th, 2005, 2:45pm

Had a RFTN for CH. Had all symptoms of CH but felt no pain for 5 years. Nerves grew back and pain began again. After 2 years of pain, I was again faced with no choice but surgery. The 2nd RFTN was unsuccessful (couldn't get electrode to brain). Another surgeon tried a few weeks later and was also technically unsuccessfull, however, after the two attempts, I was PF for 2years. It's thought that the trauma of the surgery stopped the pain.

Title: Re: did the surgery bring on another episode?
Post by Sean_C on Sep 4^th, 2005, 3:56pm

on 08/25/05 at 07:37:35, don wrote:

I had an emergency body cavity search last year. At the time I had been cycle free for 3 years. I was lucky I've had them before and a cycle wasn't triggered.

Hope you get out soon my friend, bigtime vibes comin your way [smiley=hug.gif]

Title: Re: did the surgery bring on another episode?
Post by sandie99 on Sep 6^th, 2005, 1:14am

on 08/24/05 at 13:48:35, catherinelane wrote:

that is so freaky 3 days after my surgery my ch restarted im sooo glad to have found you all though.

I'm so glad that you found us, we're here to help. [smiley=hug.gif] I'm so sorry that your ch is back. :(

Wishing you PF time,
Sanna

Title: Re: did the surgery bring on another episode?
Post by Kevin_T on Sep 19^th, 2005, 1:37pm

I had an episode of bad headaches in April 2002 which were never properly diagnosed but disappeared after a month or so.

I have just had surgery (sigmoid colectomy for the boffins) and the day after leaving hospital I had a beer which triggered a massive headache. I've been getting these for the best part of a month now and they show all the symptoms of CH (although some mis-givings as I've explained in the thread I started).

Maybe there is something in this anesthesia thing?