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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> To All those suffers out there
        
(Message started by: Kim Y. on Jul 30th, 2005, 10:55am)
Title: To All those suffers out there
Post by Kim Y. on Jul 30th, 2005, 10:55am
I am a suffer as well.  8 1/2 months now.

I am busy with school these days but wanted to send out a general message and let you all know that I think and pray for you and you are always in my thoughts. [smiley=hug.gif]

I know there are times when you are tired and fed up because I have been there myself.  This place is a wonderful place to turn for support and advice.  We all care and have all been in your shoes.  Take a deep breath and educate yourself.  Stay strong kick the beasts butt and arm yoursself.  The information to the left is a good start about good abortives such as O2 and son on.  Take the quiz to answer those numerous questions the weigh the do I or do I not have CH.

Before trying anything get a diffinitive Diagnosis from your doctor and get advise especially on the new idea of Kudzu that is out there since it is still in experimentation.  Note that many have recieved great relief from it.  The reason for medical advise is any other medical conditions that may contradict the use.  All of our bodies are different so seek medical advise first.  

Numerous supporters here are packed with more knowledge then I since they have had it a lot longer and have been down this road one to many times.  Ask your questions and read read read......Advice will come...

PF wishes to you all and welcome if I don't always have the opportunity to reply to your messages....Kim
Title: Re: To All those suffers out there
Post by brainfreeze on Jul 30th, 2005, 11:29am
Thanks for the 'heads up' (no pun intended).  I am in a cycle right now and  everyone around me hasn't a clue on what CH does and thinks a doctor or a different doctor is always the answer.   I know that they want to help and believe me I'd let them if only there was cure to be found.  I've searched high (very high) and low (very low) for relief and I'm with you.  I pray daily  (sometimes every half second)  that no one is afflicted with CH.  
Rest easy everyone,  as best as you can.  We fellow sufferers know your heartache (or headache) as the case may be.
Thanks for the post.  I needed it today.
Title: Re: To All those suffers out there
Post by burnt-toast on Jul 30th, 2005, 11:36am
Thanks for the thoughts and prayers - mine go out to you and the rest of us ClusterHeads as well.

That's good advice for all.

Keep the confidence up - you'll do well.  When ya' need a little support - I'm certain you'll be able to count on the good folks here.

Tom



Title: Re: To All those suffers out there
Post by Kim Y. on Jul 30th, 2005, 11:56am

Quote:
Thanks for the 'heads up' (no pun intended).  I am in a cycle right now and  everyone around me hasn't a clue on what CH does and thinks a doctor or a different doctor is always the answer.   I know that they want to help and believe me I'd let them if only there was cure to be found.  I've searched high (very high) and low (very low) for relief and I'm with you.  I pray daily  (sometimes every half second)  that no one is afflicted with CH.  
Rest easy everyone,  as best as you can.  We fellow sufferers know your heartache (or headache) as the case may be.
Thanks for the post.  I needed it today.

Chin up we are here for you.  I am sorry that you are down today anything I can do to help...Kim
Title: Re: To All those suffers out there
Post by brainfreeze on Aug 1st, 2005, 9:31am
Replying to the post is much appreciated.  I'm in the isolation mode right now and don't want to venture too far away from the house. My family is offended (or annoyed) and I can't help it which brings all of those emotions (regret, guilt, you name it) to the surface.  It's nice to talk with ones (here) who know where I'm coming from.  I had a CH  (7) upon awakening today and those tend to ruin my day.  I can shake off the aftermath of the night ones by daytime but the morning ones tend to put my morale into a fog all day.  Take care and wishing you and all others a PF day.
Title: Re: To All those suffers out there
Post by seasonalboomer on Aug 1st, 2005, 9:39am

on 08/01/05 at 09:31:57, brainfreeze wrote:
Replying to the post is much appreciated.  I'm in the isolation mode right now and don't want to venture too far away from the house. My family is offended (or annoyed) and I can't help it which brings all of those emotions (regret, guilt, you name it) to the surface.  It's nice to talk with ones (here) who know where I'm coming from.  I had a CH  (7) upon awakening today and those tend to ruin my day.  I can shake off the aftermath of the night ones by daytime but the morning ones tend to put my morale into a fog all day.  Take care and wishing you and all others a PF day.


Hang in there! I'm also in cycle and had to entertain from 7 to 15 people since last Thursday. "Hey, Can I get anyone one a beer?" without being able to have one myself was kind of a bummer. Hung in there best as possible and just had to face up to the fact that there are certain times when you just need a little quiet time so I did retreat some, and turned in early. My wife is a pretty good supporter but she did actually ask the question, "it seemed like you didn't really want to be around everybody sometimes.....", it wasn't worth a response. Got a nice "shadow" all day so far today so I feel ya on the "fog all day" statement.
Title: Re: To All those suffers out there
Post by millie the episodic on Aug 1st, 2005, 12:14pm
Don't you just hate when the beast joins you at a family gathering or party. :'(
I was at out of town and at my sisters house to be with family. Yes I knew that I was in a cycle, but I get tired of anyways not being able to go. My brother-in-law is a fireman, so I cornered him first thing (to check on the 02). Would you know that right in the middle of laughing and enjoying one another I get a knock in my brain. I left the room and started trying to refocus.  Clean, sweep, wash dishes, anything to try to not give into the pain. I don't want my mother to meet this devil. Finally I had to go outside with my friends, zomig and Mr. Ice Bag.
I have been in this cycle since March and am beginning to wonder when or if it's going to end.
OH enough about that because I could very easily enter into depression, but I refuse.
Good Luck with school Kim and thanks for your prayers, as we all need them. And thank God for this site!!!
Clusterheads are special people! [smiley=laugh.gif]
Title: Re: To All those suffers out there
Post by Jasmyn on Aug 1st, 2005, 1:11pm
PF wishes to you all.

;)
Title: Re: To All those suffers out there
Post by vig on Aug 1st, 2005, 9:27pm
it sux, but do your best & they'll appreciate you...




...eventually
Title: Re: To All those suffers out there
Post by brainfreeze on Aug 1st, 2005, 11:04pm

on 08/01/05 at 09:39:01, seasonalboomer wrote:
Hang in there! I'm also in cycle and had to entertain from 7 to 15 people since last Thursday. "Hey, Can I get anyone one a beer?" without being able to have one myself was kind of a bummer. Hung in there best as possible and just had to face up to the fact that there are certain times when you just need a little quiet time so I did retreat some, and turned in early. My wife is a pretty good supporter but she did actually ask the question, "it seemed like you didn't really want to be around everybody sometimes.....", it wasn't worth a response. Got a nice "shadow" all day so far today so I feel ya on the "fog all day" statement.

It definitely sucks to have to entertain or have anyone rely on you when the beast decides to takeover (added pressure).  I too was at a function last weekend and steered clear of the beer.   It didn't bother me too much other than I have to pay attention to that.   It's good that you have 'home support'.  I have willing participants yet they can't relate when I'm distant so a non-response is probably appropriate. Today...has been a blue day.  I've had enough and am ready for them to be overwith.  :'(
Title: Re: To All those suffers out there
Post by Kim Y. on Aug 2nd, 2005, 7:33am
Millie

Quote:
Don't you just hate when the beast joins you at a family gathering or party.
[smiley=hug.gif]  The beast never plays fair.  I looks like you delt with it well even though you wish you didn't have to.  Keep strong you are doing great.  The beast can't win.

Brainfreeze

Quote:
Today...has been a blue day.  I've had enough and am ready for them to be overwith.
[smiley=hug.gif]I am sorry that you are feeling blue.  I know what you mean about wanting this over with and so truley wish it could be for you as well.  For all of us.  Stay strong brainfreeze.  Soon your cycle will be over and things will look better.



Quote:
Good Luck with school Kim and thanks for your prayers, as we all need them. And thank God for this site!!!
;;DThank you so much.  Just took test number 2 yesturday and today is Hands on testing.  Can't wait till it is over at 1030.  The home to read for tomorrow.

Best of wishes for PF days and nights all....Kim
Title: Re: To All those suffers out there
Post by brainfreeze on Aug 3rd, 2005, 10:53am

on 08/01/05 at 12:14:11, millie the episodic wrote:
I have been in this cycle since March and am beginning to wonder when or if it's going to end.
OH enough about that because I could very easily enter into depression, but I refuse.
Clusterheads are special people! [smiley=laugh.gif]

Hope you are doing well...today... Wishing you pf day and for your cycle to end....
Title: Re: To All those suffers out there
Post by Kim Y. on Aug 4th, 2005, 6:45am
Brainfreeze

I love the picture  [smiley=laugh.gif].  That is so cute. [smiley=laugh.gif]Kim
Title: Re: To All those suffers out there
Post by brainfreeze on Aug 4th, 2005, 9:37am

on 08/04/05 at 06:45:35, Kim Y. wrote:
Brainfreeze

I love the picture  [smiley=laugh.gif].  That is so cute. [smiley=laugh.gif]Kim

Thanks,  that's what I believe you fellow CH'ers do for me.  Shove my head into a pot of freezing water.  To help of course  ;;D


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