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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> The mother of all pain
        
(Message started by: unsolved1 on Jul 24^th, 2005, 9:23pm)

Title: The mother of all pain
Post by unsolved1 on Jul 24^th, 2005, 9:23pm

They don't call these things 'suicide headaches' for nothing !!

Do you remember your worst headache ? I'd like to hear about it and how you got through it.

Title: Re: The mother of all pain
Post by yikes-another-one on Jul 24^th, 2005, 9:40pm

:-X

1997. I had been married about a year,
and mis-diagnosed with migraines. Was taking tylenol
with the codeine and it wasn't do ing much for me.

I had had a level 8 at 8am, a level 9 at noon...
and another level 9 at 5pm.

I was so tired all i wanted to do was sleep.

by 8pm i was in bed...normally i don't slelep until 10....

woke up at 9 and my eye was jsut about swollen shut.
I was biting a pillow to keep from screaming,
and my husband still heard me from the den and came running in.

I just got up and paced. Went to the living room,
tried to watch some tv. That wasnt working.
Tried the tylenol...couldn't open the child proof lid so
had to ask hubby to open the bottle for me.
Swigged them down like a good little girl...and kept pacing.

the pain was so bad, my stomach was not happy.
I had never gotten sick with pain before or since....
but that was not fun. Head hurting and the eye not working
and the mouth and stomach teaming up against me.... it was quite a battle.

that was the only time I ever looked at my hubby and asked him to let me go....
take me out with a bat, a gun it didn't matter....
just get it over with.

That was the night I was convinced I wouldn't survive
and with the raging headache i was convinced I should
write goodbye letters to my mom and my sister. :'(
ugh. what a night.

He did ask several times, "Doyou wanna go to the E.R?"

Who in any state of mind "wants" to go. i said no,
and had to repeat that several times. :-[ :P

He got so angry at being helpless that he swore.

"Then stop complaining. It can't be that bad if you won't go the E.R." >:(

I muttered and that wasn't polite,
but he wasn't helping me off my self so what good was he at that point?
:-/ so it was enough to send him pouting to the den...out of my face.... :-*

I was quite rational....and yet totally insane. [smiley=huh.gif]
it raged for 2 hours. :o

then it just poof. disappeared.
didn't know where it went just was thankful it was gone.
I remember thinking to myself as I passed out ...
"I am glad I won't ever feel that pain again...." ;;D

Title: Re: The mother of all pain
Post by wip5150 on Jul 24^th, 2005, 9:42pm

interesting topic.....

had to be this cycle on a Sunday afternoon. i had taken four trex nasals in the previous 20 hours so I was on a self imposed detox. This one came hard and fast and within about 20 minutes, I was on the floor of the basement (coldest room in the house) crying like a baby that had just had his favorite toy burned in front of him. I remember growling, walking around, my head in my hands PLEADING with God for the pain to just end. This went on for about two hours - a definte Kip 10 and slowly, methodically, and rudely withered away over the next five hours. And, just for fun, a nice sharp hot poker in my eye every three and a half minutes or so.

Title: Re: The mother of all pain
Post by E-Double on Jul 25^th, 2005, 10:40am

on 04/28/05 at 10:16:00, E-Double wrote:

Good morning all!!!

Thank you all for the well wishes!!

Yesterday was a bizarre day.......Started out typical...low level shadows but seemed to progressively increase throughout.

Reached about a 6-7 around 1pm which is something I can usually grit my teeth and work.......I left my house (was in between cases) and kinda knew something was going to happen but I had to work....

I got half way to my case and had to pull over.....1:30 called client and the wife (lil_jo) knocked it back with o2

Drive on.....2 bam again k-9..call wife...."go get some coffee and hang in there....do all of your tricks then go to client" ....gave my self a shot and huffed air.....knocked back and by the time I got to client a 10...eye was completely shut and I was a mess again....I had to walk in the house this way because I was already late and the parent of my student was worried.....She sent me back out to do what I had to do.......

Anyway another 3 hrs in car and I couldn't take it anymore.....I usually suck it up no complaints and do what I have to do for fear of giving in to the beast....I will win not IT......

Called doctor in jitters and called dear frien Rori (who I thank with all my heart)..I had never gone to the hospital while in full blown unbreakable attack and didn't know despite all of the stories here what I should do....

Get to hospital they took me in right away once they heard CLUSTER so I guess that was inmpressive....

I danced a while ......O2, trex, Daludid?....took 4 shots of that shit through out evening there.....made me numb, stoned, couldnt move but still felt the damn HA but was kinda a blob of jelly......then they gave me a Decadron push........

I don't know....either had breakthroughs or full on HA 3 more times @ hospital prior to getting under control....Went home and the nausea began.....Reminded me of drinking way too much on an empty stomach.....Yacked like a champ and passed out....

It took a dear friend to teach me yesterday that it is ok to let someone else handle it for a few hours.....
I needed a break and we'll see what happens.....
Up until yesterday I thought it was not worth going to hospital.....I think now that I will never consider myself weaker for doing so......It took balls to get over there and to swallow my pride!!!

Thank you all, sorry for the incoherent babble (still a bit of brain mush) and I love ya!

Eric

Title: Re: The mother of all pain
Post by Kris_in_SJ on Jul 25^th, 2005, 9:33pm

I don't think my story can compare, as I've only had clusters episodically for the past 9 years. Of course, the first cycle went totally undiagnosed.

Second cycle, waiting for neuro consult, given Trex injects but scared of using a needle. Also given Percodan (GP ignorance at the time). Went from my usual sinus burning to a kip 9 within a few minutes. Still scared of the needle thing. Took 2 Percodan and proceeded to puke my guts out - sending me to a kip 10 within a few more minutes. Finally, my husband took out the Trex Autoinject, quickly read the instructions, and shot me in the leg.

What can I say but total relief within 3-4 minutes. Never been afraid of those needles since.

Kris

Title: Re: The mother of all pain
Post by burnt-toast on Jul 26^th, 2005, 7:28am

The first was my worst -

On an airplane out of nowhere comes a pain that grew so severe I thought I was going to die. Effected the entire upper right quandrant forehead, scalp, upper jaw/teeth, nose face, temple. Believed my head was about to explode so when I survived it I didn't know what to think. Ended up on this adventure, that first cycle lasted two years without remission.

No slow initiation for me, full blown CH attack and chronic right out of the gates. I've had many attacks of equal pain since but that first one and the confusion it caused has got to be my mother of all pain.

Tom

Title: Re: The mother of all pain
Post by vig on Jul 27^th, 2005, 9:09pm

there are so many wonderful stories...
I don't know which one to tell!

(I hate being asked what's my favorite movie too.)

Title: Re: The mother of all pain
Post by BlueMeanie on Jul 27^th, 2005, 9:42pm

Around five years ago. Doing a job out of town. Ran out of trex the second night on the job. Suffered a Kip9 that night in the hotel room without trex. Woke first thing in the A.M. and headed for the nearest Walgreens knowing I had 1 refill left.

While waiting for the pharmacy to open, I started to get the familiar twinge. By the time they opened the doors, I was ramping up fast towards the KIP10 level. As I waited for my refill order, snot began to pour, the eye began to tear, and I was hopping around ready to scream.

The poor lady came back with an aspirin and glass of water with such sadness in her face because she could see the full blown KIP10 right in front of her eyes. She nervously told me I had NO refills left.

I walked out the door like a lost puppydog. Went to the car and cried banging my head on the steering wheel for what seemed like hours. I'll never forget that day as it had to be the worst one of all.

The next day I got my refills. Boy was I relieved.

Title: Re: The mother of all pain
Post by Redd715 on Jul 27^th, 2005, 9:54pm

I think I'd have to say my worst was one prior to Dx. I had just woken up from the anestesia after my hysterectomy and bladder resection, and my head was on fire...I was on the gurney in recovery and I began to thrash around and it was a damn miracle the nurse caught me from hitting the floor. The rails went up, and every 15 minutes I was getting my ass shot with morphine. Nothing...after 6 shots I was still screaming and crying and thrashing...I wasn't even dopey, just screaming at the top of my lungs and at risk for ripping my internal sutures where the bladder was reattached and the cuff from the hysterectomy. They finally switched the injection to demerol, a double dose, and I don't recall much of anything after that till I woke up in my room. After that I had a hell of a round of attacks for the next 4 days and they kept me an extra day for observation for potential bleeding. After all that and still no DX...makes a person wonder.