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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Worst Medications
        
(Message started by: unsolved1 on Jul 12^th, 2005, 8:00pm)

Title: Worst Medications
Post by unsolved1 on Jul 12^th, 2005, 8:00pm

What was the worse medications you've taken for CH and why ?

I have 2...Topamax cause it gave me kidney stones twice and Keppra cause of the psychotic nightmares and relentless poundings !!

Unsolved

Title: Re: Worst Medications
Post by Topical on Jul 12^th, 2005, 8:11pm

Lithium - cookoo / cookoo

Title: Re: Worst Medications
Post by E-Double on Jul 12^th, 2005, 8:11pm

Dopeymax

Title: Re: Worst Medications
Post by eyes_afire on Jul 12^th, 2005, 8:35pm

No doubt. Easy.

1. Paxil - the addiction was fucking horrible (physical dependence, whatever... call it what you wish), I can't believe I survived the withdrawl month.

2. Ultram - a useless waste... gave me a migraine to go with my CH. They call it a painkiller? LOL, right.

--- Steve

Title: Re: Worst Medications
Post by broomhilda on Jul 12^th, 2005, 8:50pm

on 07/12/05 at 20:11:45, E-Double wrote:

Dopeymax

Ditto, I still can't find some of the brain cells I lost...

Title: Re: Worst Medications
Post by Chillrmn1 on Jul 12^th, 2005, 8:57pm

Prednisone - Very uncomfortable physical withdrawals while tapering down and large increase in appetite.

Imitrex - Caused rebound headaches, seemed the rebounds intensity were increased, memory loss, background headaches, shakiness.

No problems with alternatives and O2 ;-).

Title: Re: Worst Medications
Post by kimmeesue on Jul 13^th, 2005, 1:33am

Lithium....horrendous tremors

Topamax...cognitive impairment

Title: Re: Worst Medications
Post by burnt-toast on Jul 13^th, 2005, 3:24am

No question - Cafergot

Really altered the timing of my CH attacks.

Made my arms and legs fee toasty/numb - looked like they belonged to disfigured and well steamed lobster.

Tom

Title: Re: Worst Medications
Post by sandie99 on Jul 13^th, 2005, 4:35am

on 07/12/05 at 20:11:45, E-Double wrote:

Dopeymax

and

Indomethacin: 8h banging HA on the back of my head. Don't recommend it to anyone. :(

Title: Re: Worst Medications
Post by Gator on Jul 13^th, 2005, 11:05am

Don't even have to think about this one:

Topomax - Made me dumber than a bag of hammers, made the attacks worse.

Tegretol - Gave me a loud and nearly maddening ringing in my ears that has never completely gone away. Did nothing for the CH.

Title: Re: Worst Medications
Post by BarbaraD on Jul 13^th, 2005, 11:13am

Lithium

Valporic Acid

Neurotin

Imitrex

topamax was my lifesaver (back on it now after a sabatical)

I just hate meds

Amitriptriptalye (or however you spell that one) Couldn't wake up for weeks..... Didn't help the pain = just couldn't stay awake - Space cadet school time.

Predisone -- still trying to get the weight off.... didn't help the pain either

Lots of blood pressure stuff -- almost killed me (low blood pressure to start with).

Don't know about the rest of you -- I'm tired of being a guinia Pig, but what the hell else can we be?????

Hugs BD

Title: Re: Worst Medications
Post by Redd715 on Jul 13^th, 2005, 11:14am

Neurontin

Topomax

Relpax

Indo

Lexapro

Verapamil

Prednisone

If need be what will I try again? All of the above if I'm desperate enough. :-/

Title: Re: Worst Medications
Post by hdbngr on Jul 13^th, 2005, 4:46pm

Topamax - Otherwise known as the dumb blonde pill. and gave birth to two kidney stones.

Reglan - Supposed to be for nausea and HA treatment but that stuff makes you feel even more lousy.

Paxil - a quick way to gain 20 pounds and it didn't help.

Title: Re: Worst Medications
Post by cazman on Jul 13^th, 2005, 6:07pm

Amitriptriptalye was like throwing gas on a fire gave me a kip 9 for three hours thought i had gave myself a permanant freaking headache scared the shit out me.

aderall killed the headache but delivered a killer rebound ha and i couldnt eat on it no appitiete

herb made it worse wich was a bummer.
relpax was good for two weeks then it just stopped working at all waste of money there at $21 a pill.

neurontin worked good to keep them away but i developed hand tremors from prolonged use wich was a posted side effect.

vicodin and percs did nothing at all but cause rebounds that sucked i got a bottle of 100 with 4 refills and they are useless.

so now i just do alternative treatment wich cost near nothing and really work with no side effects

Title: Re: Worst Medications
Post by Karla on Jul 13^th, 2005, 7:25pm

Valporic Acid (Depakote) , Tegretol, Dilantin allergic problems breathing and itching.

topamax made me very stupid

I just hate meds

Amitriptriptalye caused me to have seizures

Predisone -- weight gain

verapamil - caused irregular heart beat

thorazine - makes me crazy

morphine -makes me crazy and I hear myself breath!

I agree with Charlie!!!
Don't know about the rest of you -- I'm tired of being a guinia Pig!

Title: Re: Worst Medications
Post by BlueMeanie on Jul 13^th, 2005, 7:42pm

Stadol nasal spray. Knocked me out for hours and numbed whatever side I fell asleep on. Nasty stuff.

Title: Re: Worst Medications
Post by AussieBrian on Jul 13^th, 2005, 8:12pm

Idiot bloody neuro had me on Cafergot up to 12 a week, then says he wants to try me on Deseril twice daily.

They're the same thing, of course, so I'm ODing something fearful.

Woke up one morning a week later with a sprained ankle. Odd, thinks I. Next morning I wake up with the other ankle sprained and a sprained knee as well.

Pharmacist was horrified when she realised what was happening and that was just on 10 years ago - the last time I took anything for CH.

Title: Re: Worst Medications
Post by Jimmy_B on Jul 14^th, 2005, 8:18am

For me...and I know it's a lot of clusterheads savior...but Imitrex makes my chest tight and gets me nauseous.

Then Topamax

and finally Stadol either nasal spray or I.M.

Title: Re: Worst Medications
Post by clarence on Jul 14^th, 2005, 8:54am

Prednisone - Wicked appetite increase. I would eat dinner, and then less than an hour later, go and eat a whole pizza. When I told my doctor that I "wanted" to eat a whole pizza, she said, "Well, you're not acting on that impulse are you? Because that would be bad." I said, "Um, no. Of course not. ::) I gained like 20-25 pounds last summer on 2 pred tapers.

Methysergide - After only a week I couldn't remember how to eject a CD from my computer. Told the doc, she was shocked, not sure if she believed me. I told her I wanted off.

Imitrex helps, but I think I get rebounds. And I also think that its effectiveness is decreasing for me.

Starting a garden.

Casey

Title: Re: Worst Medications
Post by bnfreeman on Jul 14^th, 2005, 9:39am

Same here with Topomax, any nasal sprays cause me not to be able to breathe through my nose for a long time. Lexapro caused 20 lbs of weight gain. And a long list of stuff that just doesn't work for me.

BF

Title: Re: Worst Medications
Post by JDH on Jul 14^th, 2005, 1:40pm

I'm with Blue and Jimmy on this one.
Stadol NS is the nastiest stuff I've ever tried. It messed me pretty bad and I STILL had the headache.
Never went back for a second time.

Jim

Title: Re: Worst Medications
Post by kevinchristian77 on Jul 14^th, 2005, 2:53pm

predisone, doc kept me on it for 4 months withdrawel sucked, 2 months worth of excurriating knee and ankle pain due to the dependency

Verpamil, gave me hiccups for hours.

And Ultram, i agree with eyes- a three hour migrane right after the CH

Title: Re: Worst Medications
Post by clusterkat on Jul 14^th, 2005, 4:58pm

(((((wrinkles her nose)))))
[b][/b]ELIVAL-was a zombie in pain
topomax-was flakey in pain
imitrex-was nausea's in pain (killer rebounds)
What can't be cured must be endured.
Author: Robert Burton 1576-1640, British Clergyman, Scholar

Title: Re: Worst Medications
Post by hurtinunit on Jul 14^th, 2005, 5:19pm

verapamil-blood pressure down to corpse levels
indomethacin- spent my days with head in toilet puking
ultram, percocet, fiorecet, vicodin gave me massive "regular throbbing headaches- migraine like,also lots of puking
depakote never tried

Title: Re: Worst Medications
Post by firebrix on Jul 14^th, 2005, 8:02pm

Prednisone

Title: Re: Worst Medications
Post by burnt-toast on Jul 15^th, 2005, 3:54pm

on 07/14/05 at 20:02:25, firebrix wrote:

Prednisone

Have I got to agree with this one. - My neuro sold this as the end all treatment - did nothing for my CHs but turned me into a walking, talking eating disorder while I was on it. Family had taken to hiding food before they went to sleep. [smiley=laugh.gif]

Title: Re: Worst Medications
Post by Cooked Brain on Jul 15^th, 2005, 8:28pm

Ergotamine (Deseril), because my hands and feet became icy cold and I could't sleep because I was tripping in bed, but...

it kept the headaches away and I would surely take it again if I had to...