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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> CPH or clusters
        
(Message started by: fat___pam on Jul 12^th, 2005, 5:30pm)

Title: CPH or clusters
Post by fat___pam on Jul 12^th, 2005, 5:30pm

Hi, I am hoping you can help me out. Dave has been doing pretty well lately, he ha recently started taking Melatonin and it has seemed to reduce his HA during the day, they now come at night but he likes it better that way so that it doesn't disrupt his daily activities. (Any one else experience this?)

I came across the CPH link on this page and I was wondering if anyone has thought they had CH but actually has CPH. What are the differences? I tried to link to one of the pages and it was unavailable. I understand that CPH occurs more in women, happens more often during they day than clusters, and that many people with CHP prefer quiet rather than pacing (Dave lays in our bed and shakes usually through the HA, which is why we are curious). I have also read that CHP attacks are shorter but more frequent than clusters. I have also read that neck pain can be related to CPH, although I can't find that info now.

Has anyone tried Indocin to rule out CHP? We are still waiting to go to the Neuro at the end of July, I want to be as informed as possible. Thank you all for your time and consideration.
C :'( wish I had spell check

Title: Re: CPH or clusters
Post by unsolved1 on Jul 12^th, 2005, 5:42pm

I think all clusterheads should give Indomethacin a try to rule out CPH. It's nearly 100% effective they say. Dr. Rozen from MHNI says if the Indo doesn't work in 6 days, it's not going to.

Unsolved

CPH http://www.mhni.com/faqs_other_headaches.html#CPH

Title: Re: CPH or clusters
Post by E-Double on Jul 12^th, 2005, 6:43pm

Like clusters, paroxysmal hemicrania can be either episodic or chronic......
http://www.ninds.nih.gov/disorders/paroxysmal_hemicrania/paroxysmal_hemicrania.htm

There are a few here who have multiple HA types (myself included) One of them is responsive to indocin.it does squat for the CH but keeps the zaps away( feels like being electrocuted....anyone wants to know ..put your tongue to a 9 volt battery then imagine 100's of those 10x as potent)

As far as time of day...I get majority of my Cluster Floggings during the day.....It used to be only @ night.
the nature of my personal beast I guess...Ya never know.

I agree though.....more doctors should use it as a screening tool

Title: Re: CPH or clusters
Post by fat___pam on Jul 12^th, 2005, 8:50pm

Thanks for your replies, I think we will ask the neuro about the Indomethacin.

E-double: Dave read your post about the "zaps." He said "thats happened to me." It didn't hurt him as bad as you describe but he said it felt like a shock in his eye.. He never told me that before so thanks for mentioning it, I guess its just another piece of the never ending puzzle.

Title: Re: CPH or clusters
Post by E-Double on Jul 12^th, 2005, 9:05pm

He might have multiple HA.....ask doctor about a trial of indocin......it may keep those "Zaps" at bay.

Good luck!

Title: Re: CPH or clusters
Post by gMike on Jul 12^th, 2005, 10:00pm

I'm Hemicrania Continua (originally diagnosed as Cluster). I finally talked my Neuro into a trial of Indomethacin and it stopped my headaches cold. It killed the HA with the first dose. I've been painfree for a couple months and it's a blessing.

Indo is cheap and should be tried with anyone that has serious headaches. If it works, great. If not, the only thing lost is a little time!

Mike