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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Trying to stay strong
        
(Message started by: Kim Y. on Jun 30^th, 2005, 12:56pm)

Title: Trying to stay strong
Post by Kim Y. on Jun 30^th, 2005, 12:56pm

Hello all, About a month of kip3-6 pain scale and it has been nice I guess. It was tolerable not gone but tolerable. Well yesterday I got hit with a kip 7/8 and my sinus is all stoped up and I am feeling pretty intense shadows today. My neck is driving me insaine it is so tight and knoted up from the head pain that I can't turn my head to the left without pain shooting up into my head. Last night I took a muscle relaxer hoping that it was a muscle spasm and not my usual but I was wrong ::).

Coffee is my friend at the moment hopefully I can wored of the beast for a little while. Have the day off and that is a plus.

I have forgotten what it feels like to be PF. Been at this going on 8 months now as a history update.

I am just typing this because I know that you all understand and I know that it bothers my husband so much that the pain is always here. I have nobody to talk to but you all. I appreciate those that read.

Thanks
PF wishes.......................Kim

Title: Re: Trying to stay strong
Post by vig on Jun 30^th, 2005, 1:30pm

keep it together kimchee
;;D

Title: Re: Trying to stay strong
Post by giffy76 on Jun 30^th, 2005, 1:34pm

Sending prayers and vibes.

Title: Re: Trying to stay strong
Post by Kim Y. on Jun 30^th, 2005, 1:37pm

[smiley=mad.gif]Ok rant and rave time. I hate insurance companies. Head is hurting with pure frustration. Just found out that I have been turned into the collection agency cbecause the doctors impatient on getting payment. They could care less that I am waiting for doctors to answer questions (x2doctors). Of course the doctors have recieved three or 4 letters and now another is coming out. I am going to cry I can't take care of all these damn bills myself. They are pileing up. That is it I am not going to the doctor anymore not until I can afford this... Hell my insurance ends after this month and I am on my own. Man this is sucking more by the minute. Crap I don't know what to do. What if I am not approved we will have to pay all those bills :'(

School is about to start. Thank God I have the GI Bill to pay for that. Hopefully I can get a pell Grant as well. :-/

Ok better stop. Just worrying and the hubby is gone so I am venting to you. Sorry...............Kim

Title: Re: Trying to stay strong
Post by giffy76 on Jun 30^th, 2005, 1:40pm

Rant, Vent ,Bitch away, that's why we are here. You're in my prayers. These things normally work themselves out. Be patient and don't beat yourself up over it.

Title: Re: Trying to stay strong
Post by kimmeesue on Jun 30^th, 2005, 2:44pm

Kim I just got off the phone with my son who was also in the army. He is in the middkle of filing a VA claim, had an appt today as a matter of fact which is what clicked when I read your post.
Anyway he said to take your DD-214 to a VSO (veterans service organization) and they will have all the information for you to get some help. He said that if you had clusters while enlisted you will definitely get some assistance. And since you are in the little apple you can go to Ft. Riley instead of a VA hospital. Hope this helps with some of your frustration.
My son's mother-in-law is an army chaplain and she knows all the ins and outs so if you have any questions I'll try to get them answered for you.
Hang in there.
The other Kim in KS.

Title: Re: Trying to stay strong
Post by Kim Y. on Jun 30^th, 2005, 3:22pm

Kim thanks for the reply but unfortunatly I have been out of the Army since 2002 Aug. and the Dog gone CH beast didn't show his bad side till I was out of the Army in April 2004. :-/

That was truly good advise. And I appreciate you trying truly I do....

PF wishes to you....................Kim

Title: Re: Trying to stay strong
Post by Bethany1 on Jun 30^th, 2005, 3:35pm

Hang in there Kim.... [smiley=hug.gif]

Rant and Rave all you like... just keep on trucking girl, things will get better, hell, they can only get better from here, right?

pm if you need to talk..

Beth

Title: Re: Trying to stay strong
Post by lionsound on Jun 30^th, 2005, 3:43pm

[smiley=hug.gif]

-lionsound

Title: Re: Trying to stay strong
Post by Kim Y. on Jun 30^th, 2005, 4:04pm

Thanks Rori, Beth, Paul, giffy76 and Kim. Everyone you are all wonderful listeners I truely appreciate the support. May all be blessed for the aide that you give to others...........................

PF wishes............................Kim

Title: Re: Trying to stay strong
Post by cheNY on Jun 30^th, 2005, 10:10pm

Hey Kim,
I believe as long as you had a honorable discharge you still have VA benefits. What you should do is go to the VA Hosp & see their Docs, a bit more limited but you should be covered as a vet. They are very flexible & understanding.
You also have the social services option, also know as medicaid, depending on your income. Usually medical collections is private & does not affect your credit. Try to deal with city hospitals & not private ones, city hospitals will be more helpful & are more familiar with financiallyy limited patients.
If i can be any more help........ don't hesitate to reach out.
hang in there, & hey if its that bad go to the hospital & get medicated there.
I work in hospitals, & if you really tight & need the care but can't afford it & don't want to go in collection you don't have to give your real name or info. They have no way on checking or tracking this. Believe me, I have done this for people who cannot afford it. Hang in there.
phil

Title: Re: Trying to stay strong
Post by burnt-toast on Jul 1^st, 2005, 8:41am

on 06/30/05 at 12:56:48, Kim Y. wrote:

I have forgotten what it feels like to be PF. Been at this going on 8 months now as a history update.

I am just typing this because I know that you all understand and I know that it bothers my husband so much that the pain is always here. I have nobody to talk to but you all. I appreciate those that read.

Thanks
PF wishes.......................Kim

Hang tough Kim. It's easy to forget what being pain free is like but keep going - tell yourself every day that tomorrow will start a remission. In my case every day of dissappointment is also a day of encouragement - may sound strange but it has kept me going for years.

My wife and two children desperately try to understand something that they can't begin to comprehend. You have to experience CH attacks to understand them and that's what makes the folks here so special to us all.

"I understand your pain" has real meaning here.

Tom

Title: Re: Trying to stay strong
Post by Kim Y. on Jul 1^st, 2005, 9:38am

Quote:

Posted by: cheNY Posted on: Jun 30th, 2005, 9:10pm
Hey Kim,
I believe as long as you had a honorable discharge you still have VA benefits. What you should do is go to the VA Hosp & see their Docs, a bit more limited but you should be covered as a vet. They are very flexible & understanding.

Was Honorably DC from the Army but didn't have CH at that time so there isn't any documentation in my records therefore I am not covered for this problem. Unless things have changed since I got out in 02??? Tell me more. The closest VA hospital is 45 min away in Topeka, KS :-/

Phil really appreciate the information. I will try and check into it. If you have anymore I am all ears...

Title: Re: Trying to stay strong
Post by sandie99 on Jul 1^st, 2005, 1:45pm

Kim,

you'll get your PF time. I'm sure of that! :)
[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

You're in my prayers.

Wishing PF time for ya,
Sanna/sandie99

Title: Re: Trying to stay strong
Post by Kim Y. on Jul 2^nd, 2005, 10:03am

Thanks Sandie, I am sorry for whining and venting ::) :-/I have just been having a lot of strong shadows and eye pain. Not to mentiion I am losing patients with my insurance company form my work as well as the doctors not answering the questionares. :-/

Title: Re: Trying to stay strong
Post by cazman on Jul 2^nd, 2005, 5:42pm

as jonny would say fuck em just fire bomb them, im in the same boat kim no insurance and the doc wants his money now , ive found ways around it not legal butt screw them all they are geedy not a very nice persons they could careless so you should feel the same about them send them a dollar aweek they cant say your not trying if you do that

Title: Re: Trying to stay strong
Post by kcopelin on Jul 2^nd, 2005, 7:21pm

Kim, any honorably discharged veteran can receive medical treatment at a VA clinic. Period. Even if its not service connected. They may want financial information to figure out what kind of co-pay you have, but they should help. If you tried to register at the nearest VA clinic and they turned you down raise hell girl-a grateful nation owes you something. This is coming to you from another veteran-I go to the VA for non-service connected needs and have a small co-pay. You may be able to get help at the nearest military facility.
Hang in there-
kathy

Title: Re: Trying to stay strong
Post by hdido on Jul 3^rd, 2005, 12:42am

Kim, go to the nearest VetCenter...run by the VA but separate from their hospital part and specialize in getting vets benefits that most vets and organizations don't even know that you may be entitled to..cost nothing, they will do paperwork, find a free representative for you at VA benefits hearings, etc. Go, Go, Go!

Title: Re: Trying to stay strong
Post by Kim Y. on Jul 3^rd, 2005, 12:05pm

Thanks all I will check into this on the next buisness day and see what they have to say. You all have been very helpful...................

PF wishes to all................Kim