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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Very Unusual Attacks?
        
(Message started by: burnt-toast on Jun 28th, 2005, 9:11am)
Title: Very Unusual Attacks?
Post by burnt-toast on Jun 28th, 2005, 9:11am
Last night my second CH came on as an extremely sharp pinpoint-stabbing pain in my upper jaw - just in front of my right ear.  The pain never radiated to my eye, head, teeth or nose.  

My right eye began watering and usual sinus congestion/runny nose occurred but the pain never moved from one specific spot.  Never had anything like this occur in 10 years.

Does anyone else experience unusual variations in the way these things manifest themselves?

Tom      
Title: Re: Very Unusual Attacks?
Post by floridian on Jun 28th, 2005, 9:19am
Sometimes the pain migrates down into my jaw and teeth, but I don't remember a cluster headache ever starting there, or being limited to there.  

Could be trigeminal neuralgia or TMJ, or maybe a weird cluster manifestation.  How long did it last?
Title: Re: Very Unusual Attacks?
Post by burnt-toast on Jun 28th, 2005, 9:31am

on 06/28/05 at 09:19:23, floridian wrote:
Could be trigeminal neuralgia or TMJ, or maybe a weird cluster manifestation.  How long did it last?


Lasted 28 minutes.  Usually start around the eye/nose and radiate to forehead, scalp, jaw and teeth - common to involve the entire quadrant.

This one was truely unusual and the area is still very sensitive this morning.

Tom  

Title: Re: Very Unusual Attacks?
Post by Bob_Johnson on Jun 28th, 2005, 11:10am
The same nerve cluster, which involved in clustes, serves much of the head. This is why pain can feel as if it's in the eye and can also radiate to the jaw(s).

Movement of pain from site to site is not uncommon even as most folks finally settle down to one site. This movement has no special meaning from any medical information I've read.
Title: Re: Very Unusual Attacks?
Post by jcmquix on Jun 28th, 2005, 5:30pm
Tom

This is one of the weirdest cycles I have had also. I do not even know when they are gonna hit anymore. They have come on so fast at times, then I have times I feel the shadow and nothing happens.

I have been getting 2 or 3 a night, and then I have nights I do not get any.

I have not even been to the NERO Dr yet for any meds, thank God I go in this Thursday, I tell you this thing is about to drive me over the last edge.. :)

Just HANG IN THERE, I think this is just a really bad season..

PFDAN to ALL !!!!
Title: Re: Very Unusual Attacks?
Post by kimmeesue on Jun 28th, 2005, 5:45pm
My pain has always been directly behind my right eye, with the stuffy/runny nose and watering eye.  Even the shadows were specifically there.
Recently that has changed.  The pain is nowhere near as severe but includes my upper jaw, temple region.  Hits which used to always be a Kip 9-10 are now never above a 6, although they hit at precisely the same time every evening, which was never the case before.
So unless it is so different as to cause you alarm, I would consider it "the nature of the beast"
Title: Re: Very Unusual Attacks?
Post by Jonny on Jun 28th, 2005, 6:31pm

on 06/28/05 at 11:10:44, Bob_Johnson wrote:
The same nerve cluster, which involved in clustes, serves much of the head. This is why pain can feel as if it's in the eye and can also radiate to the jaw(s).


The orange/yellow nerve is the CH pain delivery system ;;D

http://img.photobucket.com/albums/v451/jonny68/CHnerve.jpg
Title: Re: Very Unusual Attacks?
Post by Kiwiinoz58 on Jun 28th, 2005, 7:10pm
Wow Jonny,
That pic is fantastic! It shows all the places I get The Beast every time! Thanks,
Cheers,
Jacqs
Title: Re: Very Unusual Attacks?
Post by Candycane on Jun 28th, 2005, 7:18pm
I get hit like that all the time when its a bad one!! You name it on the right side and its there and cuts me no slack either. SUCKS!!!! It has let my teeth alone now for awhile I kept telling the dentist something was wrong and he kept telling me my teeth were fine. My jaw hurts alot to but eye is the worst of it. Hang on and hope it lets you go soon [smiley=hug.gif]

Candy
Title: Re: Very Unusual Attacks?
Post by kimmeesue on Jun 28th, 2005, 8:23pm
THAT is the pic that should be on CH t-shirts, with just that one nerve center highlighted.
Then maybe people would get a clue.
Title: Re: Very Unusual Attacks?
Post by cheNY on Jun 28th, 2005, 8:42pm
mine are extremely unusual this time.  for the last 10+ yrs I've gotten them in the winter.  Also this episode are not as scheduled, usually the progression can almost be timed.  I just had one 5 minutes ago, it was probably one of the worst I've ever had.  It took the imitrex a lot longer to work than usual.  almost thought it was a dud.  this really sucks!
good luck........
Title: Re: Very Unusual Attacks?
Post by burnt-toast on Jun 28th, 2005, 9:10pm

on 06/28/05 at 18:31:28, Jonny wrote:
The orange/yellow nerve is the CH pain delivery system ;;D

http://img.photobucket.com/albums/v451/jonny68/CHnerve.jpg


Perfect Pic. Jonny - It hit right between the 1 & 3 but so localized it was like someone drove a large needle in.  

Actually prefered it - easier to deal with than the usuals that must love the color orange/yellow. [smiley=laugh.gif]

Tom  
Title: Re: Very Unusual Attacks?
Post by Leggs on Jun 29th, 2005, 8:43am
Dear Tom,

I don't want to say you have anything like I do, but I am going to share some links with you.  I will do that in the next post, since everytime I try to leave this window, the letter I was writing goes away....

I have been diagnosed with TN, but some of the things I have read about it just don't add up.  Unfortunately, the LOCATION of where you said you were having pain, is almost identical.  Also, for me, the pain is somehow, not as BAD as CH, not as intense, and it's more like an electrical short circuit.  Also, I don't feel like I want to rub my face off or beat my head anywhere, and I don't stutter, which I always do when I have a CH.

From all the reading I have been doing lately, my symptoms are more like Occipital Neuralgia, and they make more sense than TN.  On an article I read, diagnosis is always clinical, meaning just based on the description of WHERE the pain is, and the little nuances of diffference of how the pain feels, and where the pain is, since MRI and other things do not show it.   Let me get those links together......T.Ann
Title: Re: Very Unusual Attacks?
Post by Leggs on Jun 29th, 2005, 9:05am
The links:

http://www.mayoclinic.com/invoke.cfm?id=DS00446


http://www.umanitoba.ca/cranial_nerves/trigeminal_neuralgia/manuscript/types.html#atn


http://www.umanitoba.ca/cranial_nerves/other/index.html#on


http://facial-neuralgia.org/conditions/conditions.html#face

One of the links is good, lining up everything all at once so you can compare what is going on, and see how yours in different. Just when I had settled down and got "used" to my CH because it was SO predictable, they drastically changed after I had a car accident<<yikes, don't ever tell a doctor THAT, they avoid you like the plague.

Somewhere in that mess I read the Trigeminal Neuralgia can result when the Trigeminal nerve is over stimulated, the myelin wears off the outside of the nerve like with MS and just sort of short circuits.

Whatever I have, it's keeping me in constant pain of some sort, and oh Joy, the regular July CH is coming back on, woke up at 3am for the first time since my last CH, and my right eye is wacko...... Hey, if nothing else, the sites will give you something to read before you go to your doctor!  Hang in there, Thursday is a comin'!

T.
Title: Re: Very Unusual Attacks?
Post by Candycane on Jun 29th, 2005, 10:36am
Great Links BUT word of warning, because at one time my pain went all the way to the jaw and those areas. The Neuro gave me carbamamzephine and I ended up in the ER, triggered me BIG TIME!!!! So just be careful is all I am saying. Turns out I didn't have CN or the TN.
Title: Unusual Attacks? Keep in touch..
Post by Leggs on Jun 29th, 2005, 12:29pm
THAT is the kind of stuff I am scared of because of the a$$hole who diagnosed the TN, didn't want to hear a THING about my CH.

When your CH changes, it's important to know about WHY, but if it IS something different, you are so right, the meds for other stuff can totally wack out other issues in your CH.

It probably won't appear in any of the links I sent, but I know also, TN is OFTEN misdiagnosed, "weird pain on one side of face that jabs, TN" because it has so many variations, kind of like CH, but they are two TOTALLY different animals.  

Read as much as you can before Thursday oh $hit, that's TOMORROW!  You can go in there so imformed, saying it's not this because blah blah, but it is like this, etc.  

Let us know what happens! PF days very soon for you!
Title: Re: Very Unusual Attacks?
Post by burnt-toast on Jun 29th, 2005, 3:58pm
Thanks all, I'll check out the links.  It was the first really off-base attack I have ever had.  Was more curious if others experience a flyer now and then.  

I am happy unhappy to report that since then the've been their normal selves.

Tom


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