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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Met my first clusterhead today!
        
(Message started by: marlinsfan on Jun 6^th, 2005, 1:24pm)

Title: Met my first clusterhead today!
Post by marlinsfan on Jun 6^th, 2005, 1:24pm

I met my first clusterhead (other than me) in person today ;;D! Quite emotional for me but not so much for her. She sees people like me all the time, I guess......
:P
I went to get my O2 prescription filled for the first time, and the lady working in the dispatch area is a clusterhead. She was very kind but seems to know very little about how to treat our condition. She only uses O2 as an abortive, and takes nothing else. She gave me 3 E-tanks (the little ones) and told me that each one will last for 3 to 4 attacks. Is that right? It was either that or getting a big one. I would rather have a few little ones in the closet than looking at a big one even when I'm out of the cycle. I guess I want to be a closet clusterhead ;;D

What sort of tanks are people using? How long do they last? Does oxygen go stale in the tanks? I'm thinking ahead of when my cycle ends.

Thanks.

Title: Re: Met my first clusterhead today!
Post by thomas on Jun 6^th, 2005, 2:48pm

on 06/06/05 at 13:24:52, marlinsfan wrote:

What sort of tanks are people using?

I use an M-60 tank, have 3 of them at the house. One by the bed, and two in the closet. They are between a large H tank and the small E tanks. I think they are the perfect compromise as they do hold quite a bit of O2 and are still fairly portable.

How long do they last?

When I am in cycle an M-60 lasts 2-3 days.

Does oxygen go stale in the tanks?

Not that I've ever known.

Thanks.

Title: Re: Met my first clusterhead today!
Post by lionsound on Jun 6^th, 2005, 3:34pm

Hi Jose!

Congrats on meeting your first clusterhead! (even though her reaction wasn't quite the same as yours. I would have been like you.) Maybe you can give her the "address" here so she can learn more.

An E tank will last me about three attacks.(I have about six)
I also have baby D's which I can tote around easier. Fits in a gym bag or backpack. Those last me about one and a half aborts.

I'm very glad you've got your O2!!!!
PF's for you,
lionsound

Title: Re: Met my first clusterhead today!
Post by burnt-toast on Jun 6^th, 2005, 5:35pm

My second neurologist was a clusterhead. Haven't met any others.

Title: Re: Met my first clusterhead today!
Post by Jasen on Jun 7^th, 2005, 11:51pm

I mainly use the bigger tanks, but have a small one I keep tied down in my van. I usuely take 8-10 12-14 for the really nasty bastards, LPM for 10-15 mins. which gets me 3, 3 1/2 maybe 4 attacks from each bottle, or about 45-60 mins. The little bottles only give me about 25-30 mins.

Better days :)