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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Famous Clusterheads?
        
(Message started by: Dave on Jun 4^th, 2005, 8:50pm)

Title: Famous Clusterheads?
Post by Dave on Jun 4^th, 2005, 8:50pm

Are there any celebrities who suffer from CH syndrome?

Title: Re: Famous Clusterheads?
Post by E-Double on Jun 4^th, 2005, 10:10pm

Me ;)

Title: Re: Famous Clusterheads?
Post by sandie99 on Jun 5^th, 2005, 12:53am

I'm working on it. ;;D

Title: Re: Famous Clusterheads?
Post by nani on Jun 5^th, 2005, 6:48am

From Floridian's book:

http://med-owl.com/clusterheadaches/tiki-index.php?page=HomePage

Frank Capra film maker
Franz Kafka writer
Oddvar Nordli Norwegian Prime Minister - clusters forced his retirement!

Title: Re: Famous Clusterheads?
Post by zebb37 on Jun 5^th, 2005, 8:28am

wow - capra & kafka

Title: Re: Famous Clusterheads?
Post by Ueli on Jun 5^th, 2005, 5:04pm

King Jonny

Title: Re: Famous Clusterheads?
Post by vig on Jun 5^th, 2005, 5:49pm

and Poe

Title: Re: Famous Clusterheads?
Post by kcopelin on Jun 5^th, 2005, 11:19pm

me, of course.
and i really believe st. paul, the christian formerly known as Saul of Taursus had clusters.
my family-who i think are famous all suffer from a major pain in the ass (me)-ooops-that's not clusters,

Title: Re: Famous Clusterheads?
Post by giffy76 on Jun 6^th, 2005, 6:45am

What about Jekyl and Hyde?

Title: Re: Famous Clusterheads?
Post by seasonalboomer on Jun 6^th, 2005, 8:21am

on 06/05/05 at 06:48:55, nani wrote:

Franz Kafka writer

Kind of makes you think a little differently about "The Metamorphosis"?

(for those that haven't read it: http://www.storybites.com/kafkametamorph.htm)

Title: Re: Famous Clusterheads?
Post by hdbngr on Jun 6^th, 2005, 4:34pm

Lisa Kudrow's dad is a clusterhead. He's famous in his own right for his scholarly pursuits.

Title: Re: Famous Clusterheads?
Post by Margi on Jun 6^th, 2005, 5:16pm

on 06/06/05 at 16:34:39, hdbngr wrote:

Lisa Kudrow's dad is a clusterhead. He's famous in his own right for his scholarly pursuits.

uh, don't think so. Lee Kudrow was a pioneering neurologist (now retired) in search of a cure for cluster and his son, David, continues in his footsteps. But I don't think Dr. Kudrow was a sufferer himself, though. He did discover the lidocaine therapy though.

Title: Re: Famous Clusterheads?
Post by thomas on Jun 6^th, 2005, 5:32pm

Me, I am internationally known, just like Freddy Tiffany. [smiley=laugh.gif]

Title: Re: Famous Clusterheads?
Post by Jonny on Jun 6^th, 2005, 7:38pm

on 06/05/05 at 17:04:21, Ueli wrote:

King Jonny

Awwwe, I knew you loved me you big hairy tiger ;;D

Title: Re: Famous Clusterheads?
Post by Jasen on Jun 7^th, 2005, 11:47pm

I'll get back to you after I've won the MegaMillions lottery [smiley=laugh.gif]

Title: Re: Famous Clusterheads?
Post by aceserve on Jun 14^th, 2005, 10:03am

Maybe Thomas Jefferson.

Upon reaching majority in 1764, Jefferson came to inherent the 2,750 acres of land left him by his father. In this way he officially entered into Virginia society. And while Jefferson spent significant time amongst his elders, he also made acquaintances with his contemporaries. He shared rooms near the college for an extended period with John Tyler, father to the eventual eleventh President of the United States. In addition, an early disappointment in love came during this period, when he unsuccessfully attempted to court a highly sought-after sixteen-year-old by the name of Rebecca Burwell. With the frustrations that accompanied his failure in this regard came the first of many severe migraine headaches that would sporadically plague him throughout his adult life.

Title: Re: Famous Clusterheads?
Post by Bethany1 on Jun 14^th, 2005, 10:11am

on 06/05/05 at 19:49:36, cazman wrote:

joe perry from aerosmith is a ch head i cant tell ya how i know but he does,

He's one of my all time favorite guitarists. I love him. I don't think he has clusters tho. I have all the bio's from Aerosmith and never once have I seen anything that says he even gets any kind of headaches.

Title: Re: Famous Clusterheads?
Post by Pinkfloyd on Jun 15^th, 2005, 9:10am

on 06/14/05 at 10:11:34, Bethany1 wrote:

Although now that it will come up on google that unconfirmed sources (the earlier post) say he does, Joe Perry does not have clusters.

bobw

Title: Re: Famous Clusterheads?
Post by Flash on Jun 21^st, 2005, 8:58pm

Max Cohen... and oh shit there is someone else famous... damn who is it?

Title: Re: Famous Clusterheads?
Post by Bob P on Jun 22^nd, 2005, 9:36am

From Max (in the movie Pi):

Quote:

When I was a little kid my mother told me not to stare into the sun. So once when I was six, I did. The doctors didn't know if my eyes would ever heal. I was terrified, alone in that darkness. Slowly daylight crept in through the bandages, and I could see, but something else had changed inside of me. That day I had my first headache.
Failed treatments to date: Beta blockers, calcium channel blockers, adrenalin injections, high dose ibuprofen, steroids, Trager Mentastics, violent exercise, cafergot suppositories, caffeine, acupuncture, marijuana, Percodan, Midrine, Tenormin, Sansert, homeopathics. No results. No results...

Title: Re: Famous Clusterheads?
Post by Iain Nicol on Jun 22^nd, 2005, 9:54am

ALL OF US

Well - we may not all be famous, but we're all bloody heroes!!!!!

Title: Re: Famous Clusterheads?
Post by seasonalboomer on Jun 22^nd, 2005, 9:55am

What kind of headaches did Hemingway and his father have? anybody know?

Title: Re: Famous Clusterheads?
Post by cheNY on Jun 22^nd, 2005, 3:14pm

I think the kind you get from a hangover........... ;;D

most likely.

Title: Re: Famous Clusterheads?
Post by seasonalboomer on Jun 22^nd, 2005, 3:35pm

on 06/22/05 at 15:14:29, cheNY wrote:

I think the kind you get from a hangover........... ;;D

most likely.

no really, i overheard some special on tv this morning about hemingway and it mentioned that his father suffered from "severe" headaches which was a contributing factor to his dour outlook and subsequent suicide (after he noted the tingling in his feet -- being a diabetic he knew things weren't looking good for his future). Then read something later that Ernest himself also suffered from severe headaches (among other issues obviously).

Title: Re: Famous Clusterheads?
Post by ben_uk on Jun 22^nd, 2005, 5:20pm

http://www.pithemovie.com/who.html

RE:- MAX COHEN

RUMOUR CONTROL
>
Max Cohen is a real living legend in computer science, the renegade
number theory genius who dropped out of Columbia ten years ago and
has built a big homemade supercomputer in his apartment in NY Chinatown.

His mission is to predict movements in the NY Stock Exchange.
Cohen believes that any system complex
enough to be "chaos" must have a natural order within it, and that
this order can be cracked by number theory. I've heard he is getting close.

His senior thesis, in which he proposed the idea, was published by
Horizon and became a sort of collector's item and running joke among
Wall Street types. But last year, a stockbroker at Lancet-Percy somehow got
hold of some of Cohen's stock picks and played the market with them...just
before the big Asian downturn last year. Butterfly effect? You decide.

Cohen is also supposed to be a migraine sufferer, and very shy. Some
people say he is really crazy. I guess time
will tell if he's a genius or just another obsessed dropout.

“Crazy, genius, obsessed dropout” – Classic symptoms

:oben

Title: Re: Famous Clusterheads?
Post by Conrad on Jun 24^th, 2005, 11:22pm

Famous CH folks? Who cares????? This board is here for us to vent when we hurt and help each other with remedies. Not gossip about wether or not Tom Cruise is slammin his head against the wall as well. Good grief get a grip and stick to the game plan.

Title: Re: Famous Clusterheads?
Post by Dave on Jun 25^th, 2005, 3:12pm

Have to respectfully disagree with you Conrad.

It is inspiring to know that people have suffered from CH syndrome and have made great life accomlishments despite it.

If a cluster headache sufferer can make a film called "It's a Wonderful Life," there is reason for hope for all of us.

Title: Re: Famous Clusterheads?
Post by Redd715 on Jun 25^th, 2005, 3:21pm

on 06/24/05 at 23:22:11, Conrad wrote:

>:(Let me see....Michael J Foxx....Parkinsons Disease....Mary Tyler Moore.....National Diabities Association

If there is ever to be a spotlight on CH and the hopes of increased awareness and getting the research and funding into better and more effective treatments for us, don't you think a prominent face as a spokesperson might just help? Just a little bit?

Title: Re: Famous Clusterheads?
Post by paul_pero on Jul 3^rd, 2005, 8:13am

I agree Red.

The more awareness, the more chance of someone wanting to find the answer apart from us sufferers.

Also in Australia I heard on the radio last week a radio (ex TV) presenter talk about O2 being helpfull for his CHs. For you guys in OZ it was Steve Leibman (ex channel 9 morning show presenter)

That was the first time I have heard about CH in the general media.

Paul

Title: Re: Famous Clusterheads?
Post by Jonny on Jul 3^rd, 2005, 2:55pm

on 06/15/05 at 09:10:13, Pinkfloyd wrote:

Although now that it will come up on google that unconfirmed sources (the earlier post) say he does, Joe Perry does not have clusters.

bobw

I can confirm that, I worked for Aerosmith in the early 80's and even drank a few beers with Joe Perry.

Title: Re: Famous Clusterheads?
Post by seasonalboomer on Jul 6^th, 2005, 4:52pm

on 06/24/05 at 23:22:11, Conrad wrote:

Well, it is here for that, but it is also a community. sometimes chatting about something other than how much you're hurting, or someone else is hurting, or when you might stop hurting or when you're going to start hurting again is a good thing. So, i may not care all that much about whether a celeb has CH, but it might just be a diversion for the community to chat about. what, should we all just sit here and be grumpy and talk about grumpy things?

lighten up.

Title: Re: Famous Clusterheads?
Post by Sandy_C on Jul 6^th, 2005, 5:08pm

on 06/24/05 at 23:22:11, Conrad wrote:

Conrad, there is more to life than just our CH problems. There's life itself (waking up on top of the grass is better than under it) for one thing. There's love for our families and others, and for ourselves, there's good friends (especially on this board), good food, drink (when it doesn't trigger), and good sex. Why not talk about the good as well as the bad on this board?

:)

Title: Re: Famous Clusterheads?
Post by StressFree on Jul 8^th, 2005, 11:41am

Quote:

Lisa Kudrow's dad is a clusterhead. He's famous in his own right for his scholarly pursuits.

uh, don't think so. Lee Kudrow was a pioneering neurologist (now retired) in search of a cure for cluster and his son, David, continues in his footsteps. But I don't think Dr. Kudrow was a sufferer himself, though. He did discover the lidocaine therapy though.

Actually Lee Kudrow did suffer from cluster headaches. He diagnosed mine after many misdiagnosis, and broke the chronic cycle with verapamil and ergotamine as abortive. He wasn't very sympathetic to my suffering on subsequent cycles though. (Verapamil didn't work the next round). I think it had been many years since he'd had cluster attacks. It would likely help to be able to prescribe yourself anything you wanted. He did do much research over the years as he treated many patients for cluster and other headache disorders. I think he wrote a book or two... 8)

Title: Re: Famous Clusterheads?
Post by Bob P on Jul 8^th, 2005, 1:19pm

And David isn't very fond of CH.com nor OUCH. I think it has something to do with a certain webmaster telling him to go fuck himself.

Title: Re: Famous Clusterheads?
Post by seasonalboomer on Jul 8^th, 2005, 1:36pm

on 07/08/05 at 13:19:30, Bob P wrote:

And David isn't very fond of CH.com nor OUCH. I think it has something to do with a certain webmaster telling him to go fuck himself.

maybe he's too sensitive. people get told to fuck themselves everyday and don't hold a grudge forever.

Title: Re: Famous Clusterheads?
Post by BobG on Jul 8^th, 2005, 4:19pm

on 07/03/05 at 08:13:40, paul_pero wrote:

The more awareness, the more chance of someone wanting to ~~find~~ fund the answer apart from us sufferers.

on 07/08/05 at 13:36:22, seasonalboomer wrote:

people get told to fuck themselves everyday and don't hold a grudge forever.

LMAO! Been to New York, huh?

Title: Re: Famous Clusterheads?
Post by Linda_Howell on Jul 8^th, 2005, 4:37pm

Quote:

--------------------------------------------------------------------------------
on Jun 6th, 2005, 7:34pm, hdbngr wrote:Lisa Kudrow's dad is a clusterhead. He's famous in his own right for his scholarly pursuits.

uh, don't think so. Lee Kudrow was a pioneering neurologist (now retired) in search of a cure for cluster and his son, David, continues in his footsteps. But I don't think Dr. Kudrow was a sufferer himself, though. He did discover the lidocaine therapy though.

Have to agree with Margi re: Pioneering neurologist.

Dr Kudrow was my Dr.

I have no idea if he suffered from this shit...But the elder Kudrow has my profound respect.
Only charged me 500.00 for a work-up after I had already diagnosed myself by reading my medical books.
He was the one who prescribed 02 however, and for that I will be forever grateful. [smiley=bow.gif]

(I think it was his nephew who took over Margi...not sure it matters though ) ;;D

Luinda