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New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Need lots of vibes..the beast is pissed at me!
(Message started by: nancyc on May 28th, 2005, 3:17am)

Title: Need lots of vibes..the beast is pissed at me!
Post by nancyc on May 28th, 2005, 3:17am
All of a sudden, nothing is working...know my stress level is over the top but this is awful....keep me in your prayers as I  am shooting imitrex again like it is going out of style and my supply is running down fast....I hate insurance companies that approve 3 injections a month for chronics......hope you all are doing good...smiles,nancyc

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by Renee on May 28th, 2005, 4:13am
I'm so sorry Nancy to hear you're getting hit so often and hard right now.

Hang in there!
hugs
Renee

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by PerryGR on May 28th, 2005, 4:28am
I'm very sorry to hear you're having such a hard time. I hope you'll catch a break REAL soon!

PFDAN,
Perry.

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by Grandma_Sweet_Boy on May 28th, 2005, 9:37am
Sorry to hear this Nancy - hang in there girl.  You're tougher than the beast it!

Carol

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by Kim Y. on May 28th, 2005, 10:30am
[smiley=hug.gif]Prayers and vibes coming your way.  Sorry you are having it so ruff.  Kick the beast B-U-T-T.  Take care....

PF wishes........Kim

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by Karla on May 28th, 2005, 3:59pm
Have your dr perscribe you imitrix in injection, pills, and nasal spray form.  That will get you further along in pain relief.  Maybe oxygen, zomig, axert, etc might also work for you.  If so ask for some of that.  I am confussed.  Are you off the patch now?  Did you decide to take a break or are you having breakthrough ha.  I am so blessed not to have any ha while on patch.  Maybe you need a stronger dose.  Im thinking you were on 25mg.  I am on 50 and Terry takes 100mg so maybe you need to up your dose?.  I will be praying for you.  

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by kissmyglass on May 28th, 2005, 4:21pm
I think you left a few statdoses here...let me know where you want me to send them..Okay??

Kev

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by broomhilda on May 28th, 2005, 5:09pm
:( Sorry to hear this Nancy, stay strong and keep fighting, we know you can do it!

Thinking of you,


Andrea

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by lionsound on May 29th, 2005, 9:35am
nancy,
((((((((((((((((Pf's and strength))))))))))))))))

[smiley=hug.gif]


lionsound

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by nani on May 29th, 2005, 10:54am
Hang in there, nancy.... [smiley=hug.gif]

You guys are all still in my prayers, I'll be adding more PF prayers for you. Tons o' vibes out to you, too...
hugs and love, nani

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by nancyc on May 29th, 2005, 12:41pm
Karla, not sure what this is...if it is 3 or so breakthrus a day...or what ....all i know is they think it is coming from the cervical spine triggering off the trigeminal....i am on a 50 patch now....i go back to the doc next week so we can go from there.....i do know things here have been very very stressful and in the past that tension has never been a friend for me......Kev, God bless you bro..check your messages....I need all the ammunition I can round up rite now....love you, nancyc

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by unsolved1 on May 29th, 2005, 7:33pm

on 05/29/05 at 12:41:42, nancyc wrote:
.I need all the ammunition I can round up rite now....love you, nancyc


Have you tried hitting up your neuro for Imitrex samples ? That's where I get my stockpile.

Goodluck

Unsolved

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by nancyc on May 30th, 2005, 12:22am
his rep has not brought any injections in two months now...neither has my GPs....smiles,nancyc

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by sandie99 on May 30th, 2005, 12:11pm
LOTS OF VIBES

[smiley=hug.gif]

Wishes,
Sandie

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by Jasen on May 30th, 2005, 12:24pm
Hang in there Nancy. I'll keep you in my thoughts.

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by hdbngr on May 31st, 2005, 1:56pm
Hang in there, Nancy. You are never alone with this. Wish I had more I could offer that would provide comfort.


V

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by Svenn on May 31st, 2005, 1:58pm
:'(

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by aprilbee on May 31st, 2005, 2:43pm
PF wishes...you'll come out the other side, I promise!! :-*

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by marlinsfan on May 31st, 2005, 3:51pm
Hope you're feeling better..... :-/

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by jokrs2 on May 31st, 2005, 6:15pm
Vibes and hugs Nancy. Blessings, Joe

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by nancyc on Jun 1st, 2005, 4:12pm
Things are worse now..i am out of work again....had botox put in my face and head today...i will try anything at this point....keep me in your prayers...smiles,nancyc

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by E-Double on Jun 1st, 2005, 5:28pm
I hope you go CH free and wrinkle free ;)

Feel good!!!

Ex2

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by nancyc on Jun 2nd, 2005, 2:17pm
Kev, I love you, bro! I can breath alittle easier now...Doc put me out of work for three days to up my topamax after the botox thing....my forehead is really sore from the injections and so far, no help at all....still getting hit alot....thanks for the prayers and and good wishes sent my way.....pray for all of you guys and gals nightly...smiles,nancyc

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by vig on Jun 2nd, 2005, 3:01pm
good luck NancyC, sounds like a bear of a week.
hang tough

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by LadyElaine on Jun 2nd, 2005, 8:31pm
Praying for you Nancy!

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by kcopelin on Jun 2nd, 2005, 10:50pm
Nancy,
words really are inadequate aren't they?  healing calming soothing warm thoughts coming you way....
PFDAN
kathy

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by nancyc on Jun 3rd, 2005, 12:17pm
I finally slept all nite last nite....is it working? personally, i feel it is the prayers and vibes going up and not so much the botox.....keep up the good vibes, my friends....love you,nancyc

Title: Re: Need lots of vibes..the beast is pissed at me!
Post by Sandy_C on Jun 3rd, 2005, 1:34pm
Maybe botox didn't work for Ch - but  you maybe you are absolutely goregous now.  There's a silver lining in here somewhere.

Wishing you PF days & nites - hang in there - we're with you


Title: Re: Need lots of vibes..the beast is pissed at me!
Post by nancyc on Jun 4th, 2005, 5:26pm
thanks for the thumbs up, sis...gorgeous...Nope....Pf today...Nope but i do have my grandson this weekend so i can bear the pain....Love ya'll so much, nancyc



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