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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Question? Do we ever out grow ch?
        
(Message started by: TerryS on May 28^th, 2005, 3:05am)

Title: Question? Do we ever out grow ch?
Post by TerryS on May 28^th, 2005, 3:05am

34 years of cluster headaches and shadows. I'm 57 and just getting tired of losing out on family time vacations and work. :-[

God bless,

TerryS

Title: Re: Question? Do we ever out grow ch?
Post by don on May 28^th, 2005, 8:20am

Mine started when I was nineteen. Every single year I would have 2-3 cycles.

I'm 47 now and have been out of cycle for going on 4 years.

I certainly hope we out grow them.

Title: Re: Question? Do we ever out grow ch?
Post by Grandma_Sweet_Boy on May 28^th, 2005, 9:37am

Hate to pee on your parade here but I'm 62 now - have had this misery in my life for well more than half of it and continue to do so.

The good news is that I skipped a cycle this year and maybe that means I've finally outgrown it! We can always hope.

Carol

Title: Re: Question? Do we ever out grow ch?
Post by BobG on May 28^th, 2005, 6:43pm

Hey Terry, good to see ya.

I'm 58 and been out of cycle for about 5 years. I have had cycles of just shadows from January to March each year since but that is something I can live with. I still get an individual attack now and then but usually it's my own fault by allowing myself to become overtired (damn rotating shifts) or by taking a nap.

Title: Re: Question? Do we ever out grow ch?
Post by Kris_in_SJ on May 28^th, 2005, 7:42pm

Perhaps I'm different than most ... mine didn't start until I was 42. However, my cycles are pretty consistently 3-5 years apart. So, don't let me rain on your parade!

Kris

Title: Re: Question? Do we ever out grow ch?
Post by Sean_C on May 28^th, 2005, 7:49pm

Hang tough Terry, no matter how tough it gets always remember somebody is having a rougher time than you somewhere, someplace.

Sean................

Title: Re: Question? Do we ever out grow ch?
Post by survivor13 on May 28^th, 2005, 11:22pm

All I can say, if you've ever had them, always be prepared to have them!

Title: Re: Question? Do we ever out grow ch?
Post by Jonny on May 29^th, 2005, 3:25am

on 05/25/05 at 19:34:44, Jonny wrote:

about my head, but I do post whenever something good is happening so others will have some hope (Newbies)

Ive been chronic for 30 years, been taking the magic cocktail of Lithium and Verapamil everyday for about the last 14 years. It has helped to kill 80% of the HA's from ever reaching my brain....LOL

Ok, now for the new news....6 weeks ago I made an appointment with my Neuro, it had been 18 months since I had blood work (I know....practice what you preach)

Knowing that I would run out of meds before I saw him I started half dosing, in the past this was a bad thing to do....I would get slammed every night cause of it. For some reason this time I had no daily shadows and when I did wake up at night it was just a shadow that 02 killed in 5 minutes (I have never killed a HA that woke me up with 02)

I told my Neuro this and he said "take what you feel you have to, you have been doing this so long you know more than I do".................I love that guy ;;D

Im going to continue to half dose as long as I can and hopefully ween off.....Can I get a Fuckeneh? [smiley=headbanger.gif]

.......................................jonny

I dont know if you saw this post Terry, but if someone told me that would happen I would have laughed at them....its happening and I dont know why.

If that can happen to me, even better can happen to you....If we are all lucky they will just go away like they did with Charlie (I still think he made a deal with the devil [smiley=sgrin.gif] )

Title: Re: Question? Do we ever out grow ch?
Post by TerryS on May 29^th, 2005, 4:42am

Yeah Jonny I agree......I think Charlie did Hahahaha ;;D

God bless Friend,

TerryS

Title: Re: Question? Do we ever out grow ch?
Post by sandie99 on May 30^th, 2005, 12:15pm

I hope we do!
Mine started when I was 21, I'm 25 now. So just few years of hell... But looking into the future with optimism. :)

Title: Re: Question? Do we ever out grow ch?
Post by Dave on Jun 4^th, 2005, 8:41pm

My physician told me that they get better in old age. I plan to cling onto that hope.

Title: Re: Question? Do we ever out grow ch?
Post by alleyoop on Jun 5^th, 2005, 11:51am

I've got an episodic brother whom has been in remission going on ten years now.

.....................alley

Title: Re: Question? Do we ever out grow ch?
Post by cherokee on Jun 6^th, 2005, 9:10pm

I just came out of a 10 yr remission and I forgot how bad they really are. There is alot more info I have access to now thanks to the web.

Peace

cherokee

Title: Re: Question? Do we ever out grow ch?
Post by Marc on Jun 6^th, 2005, 9:50pm

Wow, I missed this one so I didn't have a chance to say Howdy to Terry - Howdy Terry! Nice to see some of the long timers still popping in.

While I'll never be as old as BobG and that other geezer BobP, mine have gotten worse now that I'm in my 50's.

I WAS hoping that they would fade away into the sunset..... (The CH's - not the Bob's ;;D)

Marc

Title: Re: Question? Do we ever out grow ch?
Post by BobG on Jun 7^th, 2005, 10:24am

on 06/06/05 at 21:50:37, Marc wrote:

While I'll never be as old as BobG and that other geezer BobP, mine have gotten worse now that I'm in my 50's.
Marc

ROTFLMAO [smiley=laugh.gif]
Nice shot Marc.
[smiley=crackup.gif]

Title: Re: Question? Do we ever out grow ch?
Post by Linda_Howell on Jun 7^th, 2005, 5:57pm

Terry,

I, too am glad to see you posting...

Charlie is a real good example. But then again you have KIP who is still fighting the beast.

Don't know what else to tell you except I am glad you are here.

Linda