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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> The Indomethacin dosen't work
        
(Message started by: Jasen on May 27^th, 2005, 6:08pm)

Title: The Indomethacin dosen't work
Post by Jasen on May 27^th, 2005, 6:08pm

Just spent 45 mins. getting a K9 under control. Took and Indo. atthe first twinge, nothing. Took Frova some Oxy and O2 and that did the trick.
This should be good news, should mean that I do have Synalgia and can be fixed once and for all with a little trip to the OR.

Better days :)

Title: Re: The Indomethacin dosen't work
Post by E-Double on May 27^th, 2005, 6:11pm

I take indomethacin for another HA type (not the CH) but take it as a preventative...

never took as an abortive.

Maybe try that way.....ask doctor.

As opposed to PRN maybe on a schedule???

good luck dude and may better days come your way ;)

Title: Re: The Indomethacin dosen't work
Post by Jonny on May 27^th, 2005, 6:15pm

Indo is a preventative.....they only way to use it as an abortive is as a suppositorie. 50 mgs

Title: Re: The Indomethacin dosen't work
Post by kissmyglass on May 27^th, 2005, 6:33pm

Oxy?? ::) You are making things worse Don't know why people dont understand, Narcs DO NOT WORK for clusters.

Title: Re: The Indomethacin dosen't work
Post by Jasen on May 27^th, 2005, 6:34pm

The Dr. told me to take it as needed, and if it works it works, if not it never will because I don't have Hemicrania but the Synalgia instead. The Frova seems to work well but I'll have to take it on it's own to see. I believe the Dr. said to take Frova with Ibuprofin as well. Can't remeber, but I'm wating for the nurse to call me back to confern this.

Title: Re: The Indomethacin dosen't work
Post by Karla on May 27^th, 2005, 9:00pm

Yes I took 50mg 3 x a day (150mg total) everyday as a preventative. I would recomend trying it this way before I gave up on it. Good luck in finding some relief.

Title: Re: The Indomethacin dosen't work
Post by gMike on May 27^th, 2005, 10:03pm

I'm taking 75mg of Indomethacin, 3 times a day and it's working well. Just a couple of little twinges in the past couple days. Complete improvement for me!! ;;D

Title: Re: The Indomethacin dosen't work
Post by Gator on May 28^th, 2005, 1:34am

So who is this genious of a doctor that prescribed Indomethacin as an abortive?

Indomethacin is an NSAID used as a preventative treatment to be taken several times a day starting with a low dosage and increasing until relief is found up to 200mg. Indomethacin reaches peak plasma levels in approximately 2 hours and has a half life of roughly 4.5 hours.

Although documentation states that doses over 200mg may not provide any more relief, my neuro took me up to 300mg. It can be extremely rough on the stomach. My neuro had me taking OTC Zantac with it to head off any stomach problems.

Indomethacin is usually not an effective treatment for CH, but is almost totally effective for Paroxysmal Hemicrania (PH). For this reason, it is used as a diagnostic tool for people with cluster-like symptoms to help differentiate between CH and PH.

Don't be too quick to rush to the OR. There have been a lot of clusterheads permanently fucked up by "quick and easy" surgery that was all but guaranteed to fix the clusters.

Title: Re: The Indomethacin dosen't work
Post by Jasen on May 28^th, 2005, 2:54am

Thanx Gator.
She gave me so much info in a matter of minutes, plus explaining my brain structure to me as well as giving me 4 meds. I was a bit overwhelmed with info.
I've been playing phone tag with the nurse the past couple days to get this streightend out.
I'm going to try the Indo 3 times a day and see how things go.
She's also got me on Verapamil, Fravo and Oxycodone for emergancys.
And no, I'm not taking all these at once per attack ;)

Title: Re: The Indomethacin dosen't work
Post by Karla on May 28^th, 2005, 4:09pm

good news hope this helps. :)

Title: Re: The Indomethacin dosen't work
Post by Jasen on May 30^th, 2005, 12:21pm

OK, I've been taking the Indo. 3 times a day, it's been 33 hrs. now and nothing more then a few twinges. So I think/hope it was the Frova that casued my last rebounds. Probably need a few more days to be sure, but so far so good.

Thanx for the advice :)

Title: Re: The Indomethacin dosen't work
Post by gMike on May 30^th, 2005, 12:57pm

Pulling for ya!!!!

Mike

Title: Re: The Indomethacin dosen't work
Post by Jonny on May 30^th, 2005, 1:01pm

on 05/30/05 at 12:57:32, gMike wrote:

Pulling for ya!!!!

Please....do we really need to know what your doing in the privacy of your own home?.....I hope thats where your doing that.....LMAO ;;D

Title: Re: The Indomethacin dosen't work
Post by gMike on May 30^th, 2005, 3:13pm

Could have been pullin anything, but I wasn't! That's my story and I'm stickin to it!! ;;D ;;D

Mike

<Hits grounder back to Jonny...>

Title: Re: The Indomethacin dosen't work
Post by Jonny on May 30^th, 2005, 3:46pm

LMMFAO....Mike.....keep your head up.....im targeting everyone ;;D

PF to you Bro!!!

Title: Re: The Indomethacin dosen't work
Post by Jasen on May 30^th, 2005, 10:51pm

Hey!!!!! don't no one be pulin nut'n in my treads [smiley=yikes.gif] [smiley=laugh.gif] [smiley=laugh.gif]

Day 2 and stil doin good. Only a couple twinges today :)

Title: Re: The Indomethacin dosen't work
Post by Conrad on May 30^th, 2005, 11:26pm

Jasen,

Verapamil 360 mg a day and topamax 100mg a day for me works. I also use oxygen full face mask 12 LPM until I can pop a ZOMIG ZMT ... dissolvable on the tongue, dude they are magic. I am episodic, finally on the downhill of a long 8 week bout here. Setting up a FU appt. with my doctor to taper down off some meds etc. You are in my prayers, consider my route.. at least the Zomig ZMT's they rock. Take care.

Conrad 8)

Title: Re: The Indomethacin dosen't work
Post by sandie99 on May 31^st, 2005, 12:05pm

Indomethacin was once a preventative for me, but that was one hellish 3-week period! My neuro wanted me to try it as an abortive, too, but I didn't go for it.

But don't give up there, okay? You'll find you med, you will! :)

Title: Re: The Indomethacin dosen't work
Post by hdbngr on May 31^st, 2005, 2:03pm

I would really like to know if it would work as a preventitive, but man, you guys must have cast-iron stomachs!

Title: Re: The Indomethacin dosen't work
Post by kcopelin on May 31^st, 2005, 10:25pm

My doc just put me on 50 mg indomethacin twice a day and omeprazole to counteract the stomach problems.

Title: Re: The Indomethacin dosen't work
Post by gMike on Jun 1^st, 2005, 12:29am

You do have to eat when you take it or it will rot your pipes. A large glass of water on top of the Indo really helps too.

Mike

Title: Re: The Indomethacin dosen't work
Post by Jasen on Jun 1^st, 2005, 12:37am

I took one today without eating [smiley=bloos.gif] [smiley=frown.gif] hit me like I had eaten a tub of Jalapinos. But once I had a bite to eat I was fine.

I've nearly completed day three, nothing more then a twinge here and there and a couple shadows that kinda made me nervouse, so I took 1 Oxycodone just to make sure.

Still haven't found an abortive (tried 4 so far) that doesn't give me a K9-K10, but the Indo. seems to be working.

Title: Re: The Indomethacin dosen't work
Post by thomas on Jun 1^st, 2005, 9:39am

on 05/28/05 at 01:34:04, Gator wrote:

Indomethacin is usually not an effective treatment for CH, but is almost totally effective for Paroxysmal Hemicrania (PH). For this reason, it is used as a diagnostic tool for people with cluster-like symptoms to help differentiate between CH and PH.

Don't be too quick to rush to the OR. There have been a lot of clusterheads permanently fucked up by "quick and easy" surgery that was all but guaranteed to fix the clusters.

Really good stuff there.

Title: Re: The Indomethacin dosen't work
Post by Jasen on Jun 1^st, 2005, 12:55pm

Slept to long lastnight.Took my Indo. at about 11 PM didn't wake till 9:30 AM and took my meds again. By 10:00 I felt an attack coming on so I took a couple Oxy's and O2. That did the trick.
Went 3 days without an attack, guess I can trade sleeping in for living PF :-/ ;)

Gator,
That info about the surgery is still stuck in my head. Although it would be great to have this fixed I surely don't want to live with the negative side of a bad surgery :-/

Thanx again

Better days :)

Title: Re: The Indomethacin dosen't work
Post by Gator on Jun 1^st, 2005, 4:48pm

on 06/01/05 at 12:55:47, Jasen wrote:

Gator,
That info about the surgery is still stuck in my head. Although it would be great to have this fixed I surely don't want to live with the negative side of a bad surgery :-/

Thanx again

Better days :)

Don't get me wrong. I'm not saying surgery is NEVER the answer. There are some few who have been helped by surgery. People should just be sure to 1.> try the non-surgical options first, 2.> take it upon themselves to research and know ALL the possible outcomes from the surgery both positive and negative (getting a second opinion is a good idea, too) and 3.> if surgery is the only option then make sure your surgeon is damned good at what he does.

Title: Re: The Indomethacin dosen't work
Post by Jonny on Jun 1^st, 2005, 7:04pm

on 05/31/05 at 22:25:13, kcopelin wrote:

My doc just put me on 50 mg indomethacin twice a day and omeprazole to counteract the stomach problems.

Try taking it as an abortive....in your ass ;;D

They stopped making it in that form so now im onto even better drugs, the gods made Zomig NS...im convinced!

Title: Re: The Indomethacin dosen't work
Post by kcopelin on Jun 1^st, 2005, 9:42pm

Jonny I'm confused-take the indocin as a suppository :o, the zantac as a suppository or WHAT! :-/ well, never mind-the indocin is a no go as far as I'm concerned-I take zomig-orally-and O2 in vapor form using a non-rebreather mask. just that all the old tried and true methose (pred holiday and verapamil-don't seem to be working this time.
Its like, you know, the mighty morhing cluster headache.
kathy