Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> A light at the end of the Tunnel
        
(Message started by: Matt Rutherford on May 26^th, 2005, 11:18am)

Title: A light at the end of the Tunnel
Post by Matt Rutherford on May 26^th, 2005, 11:18am

Hi My Name is Matt, for about 10 years I have been suffering these 'Headaches'. I have been to the doctors and they had no answers, one even suggested taking normal pain killers and riding it out!!!! Recently my Mum (who just happens to be a nurse) read an article about Cluster Headaches and suggested that it may be what I was suffering with. I Entered CH in a searh engine, and all these sites came up. Looked at the first site and it decribed my pain to the letter. It was a revelation. For so long I thought I was alone, and was something I would just have to deal with for the rest of my life. I feel like I am half way to taming the beast. My problem is I am wary about taking lots of different prescribed drugs. I have read about Kudzu on this site. Does anyone have further info on this or any other alternative remedies I could use in the battle against the dark lord?

Title: Re: A light at the end of the Tunnel
Post by Matt Rutherford on May 26^th, 2005, 11:27am

Sorry If I mislead anyone into thinking I have a wonder cure with my subject title, but I am very happy to have found other poeple in the same boat.

Title: Re: A light at the end of the Tunnel
Post by giffy76 on May 26^th, 2005, 11:35am

Hi Matt.
Sorry to here you'r on of us, I too am fairly new to this site and feel very welcome. Go to the thread that reads, Medication, Treatment & Therapies there is alot of great information in there on kudzu and other medications.
Ryan
I guess if I wer paying attention I would have read that you already found it, sorry. But I am on 1000mgs of Depekote and Imitrex injections for the pain. if that helps

Title: Re: A light at the end of the Tunnel
Post by Kim Y. on May 26^th, 2005, 11:45am

Matt

Glad that you found us just sorry that you had to. This place is packed with oooodles of information.

O2 10-15 L nonrebreather mask. 15 min. An Abortive only.

Vitamins CQ10, Magnesium, Fish oil

Melatonin 3-9 mg at night helps with night attacks.

Biggest thing is to read information on the left and go to the doctor armed with information and determine the best treatment for you. Each person is different and we all have different things going on besides the beast.

Kim

Title: Re: A light at the end of the Tunnel
Post by blueeyes_rn on May 26^th, 2005, 11:52am

Matt,

There is a website with guidelines doctors are supposed to follow...

If your Mum is a nurse she can translate the medical lingo for you but it has the BEST, proven, therapies (abortive and preventattive) out there!www.guielines.gov
just do a search and it should come up with a list and it's ....
"Treatment of primary headache: cluster headache. Standards of care for headache diagnosis and treatment. National Headache Foundation - Private Nonprofit Organization. 2004. 14 pages."

Good luck on your quest for shorter cycles and longer PF periods :)

Are you chronic or episodic?

blueeyes_rn

Title: Re: A light at the end of the Tunnel
Post by blueeyes_rn on May 26^th, 2005, 11:53am

I spelled teh website wrong sorry
www.guidelines.gov

Title: Re: A light at the end of the Tunnel
Post by bnfreeman on May 26^th, 2005, 10:21pm

Hi Matt, I am new to the site also. And like you I thought I was the only one going crazy with these headaches. Then one day I found this website and knew I wasn't the only one. Good luck to you. Now when anyone asks about my headaches I tell them to go to this site and then they will understand.

BF

Title: Re: A light at the end of the Tunnel
Post by Chillrmn1 on Jun 1^st, 2005, 6:36pm

Hey Peeps,

Welcome and sorry you had to find yourselves here due to clusters. Like Kim said, this site has a wealth of information on clusters, treatments, and coping with them . Read all you can, ask questions, and soon you'll find a better understanding of what you're dealing with.

I've had them for 28 years and still learning about 'em.

WYPFDANS,
Bob

Title: Re: A light at the end of the Tunnel
Post by Candycane on Jun 1^st, 2005, 7:04pm

There is a light at the end of that tunnel and you have come to the right place for it!!! These are the most wonderful, helpful people here. Read all you can and then read some more. You will find knowledge and support here, hang in there!! We are here :) :)

Title: Re: A light at the end of the Tunnel
Post by marlinsfan on Jun 1^st, 2005, 7:45pm

Candycane is right! You are in the right place an the light is very bright for people like you and me.

I just got here myself this past weekend, after 20+ years of being misdiagnosed. Thanks to this WONDERFUL place and all the people in it, I now have the right diagnosis confirmed by my neuro, the right abortive (imitrex & O2), transitional (steroids) and preventive (verapamil) to tame the beast.

I also know that I'm in a cycle which will end in the next week or so, and should stay away for some time.

READ, READ, READ. You'll be amazed how much good info is here!

Jose

Title: Re: A light at the end of the Tunnel
Post by Gator on Jun 1^st, 2005, 8:46pm

It's been my experience that the light at the end of the tunnel is a train fixing to flatten your ass. LMAO

BTW, welcome to the funny farm! Lots of good info here and even more good people. Stick around and read all you can find and share it with your doctor.