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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> I am about over the edge
        
(Message started by: aprilbee on May 20^th, 2005, 3:25pm)

Title: I am about over the edge
Post by aprilbee on May 20^th, 2005, 3:25pm

I have had no sleep since Monday, my neuro keeps sending me to the ER because he doesn't carry the medications I need in his office...whatever that means.

I am standing at the edge...these are the worst they've ever been, longer, harder, more intense. I'm kicking and screaming...Does God hate me??? I am about to teater off, death seams like such relief....I would never do something so stupid, mind you, but man just that though scares me....

Help, need vibes and prayers!!! I know I'll beat this, but I am falling into a very big funk over this, no sleep, not peace, no normalcy, WHY!!

Title: Re: I am about over the edge
Post by vig on May 20^th, 2005, 3:33pm

hang in there AB...

what are you taking now?

Title: Re: I am about over the edge
Post by aprilbee on May 20^th, 2005, 3:35pm

100 mg topomax, I think its making them worse, I was on Calan, O2 and relpax...My neuro and i are experimenting with different preventatives...I think we will be on to our next one soon.

Title: Re: I am about over the edge
Post by E-Double on May 20^th, 2005, 3:44pm

How high did you go with the Calan and for how long???

Ask your doc if you could take melatonin if you do not have anything else going on........

It has helped many of us and is OTC.....Read up on it.

Hugs & good luck!!!

Title: Re: I am about over the edge
Post by aprilbee on May 20^th, 2005, 3:48pm

I tried melatonin a couple of cycles ago, it didn't do any good. Thanks for the tips though!

I hope I am not person that preventatives don't work for. I have tried soooo many different preventatives, with no success. My Neuro probably bangs his head on the wall every time i call... ;)

Title: Re: I am about over the edge
Post by E-Double on May 20^th, 2005, 3:54pm

worth another shot.......how high did ya go on the melatonin?

and how high on the calan??

I'd take everyones hits on top of mine if I could!!!

Hang in there!!

E

Title: Re: I am about over the edge
Post by nani on May 20^th, 2005, 4:08pm

Sorry you're having a bad time, April. :'(
You are stronger than it...so stay strong.
You may want to look over some of the alternative treatments. Look on the Medications board to see about kudzu or LSA. Of course, all the regular "alternative" treatment info is there also.
Pain free wishes, nani

Title: Re: I am about over the edge
Post by aprilbee on May 20^th, 2005, 4:20pm

Thanks guys, I've been through just about everything you can think of since I was 12 years old, This cycle is just different somehow, I don't know if its my age or what...I am not new to this, in any way shape or form...I am trying new things, and I will beat this thing, I just needed some good thoughts and vibes....

Thank you guys so much!! :-*

Title: 'Re: I am about over the edge
Post by jefferator on May 20^th, 2005, 4:26pm

Hi April,
You hang tough girl. Remember all of those past trials that seemed non-overcome-able that are so far in your rear view mirror that you cant even remember them....you'll beat this. I agree with the others to consider trying some things again...O2 didnt originally work for me, and know it is my G-dsend. I dont know where I would be if I didnt take friends advice to try again. What about Verap? When its happening and it feels like each heartbeat sends a pang of pain...do the Kwai Chang Cane (the Kung Fu) guy and assume a position of control, strength, mentality of biofeedback that you can subside it, beat it and be victorious...not that it controls you...it will help....Tell me...what does the O2 do for you....is it aborting it?

Title: Re: I am about over the edge
Post by aprilbee on May 20^th, 2005, 4:35pm

O2 takes it away until the relpax kicks in...I plan on trying everything I can to get to the end of this cycle with my sanity, (oops too late ;))...

Again, thank you

Title: Re: I am about over the edge
Post by jeff4ever on May 20^th, 2005, 5:02pm

My newest med is FROVA (frovatriptan Succinate). It has kicked it out this session. (sleeping pain free for a week now).

I have taken Imitrex during my sessions, for about 8 years now and while it works most of the time, FROVA lasts longer and with one pill a day, (bedtime) seems better to manage.

God bless you and keep your head pressed!

Title: Re: I am about over the edge
Post by don on May 20^th, 2005, 5:10pm

Tried a prednisone taper yet?

Title: Re: I am about over the edge
Post by Linda_Howell on May 20^th, 2005, 6:22pm

Quote:

I am about over the edge

No you're not April. There's that big huge (and I mean HUGE) branch sticking out on that edge. It's all of us.

IM me if you need a hug or anything other little thing ;)

Linda

Title: Re: I am about over the edge
Post by gMike on May 20^th, 2005, 8:31pm

I'm sorry you're having such a hard time. I'm still finding my way, so I don't have much to offer other than good thoughts for you to beat the pain!!!

Mike

Title: Re: I am about over the edge
Post by kcopelin on May 20^th, 2005, 10:00pm

April,
This totally sucks and I know how you feel-asked my husband yesterday why God hates me. He doesn't. Listen...the sound of hope...it has always stopped before and it will again. It's what I hold on to-
hugs and good vibes coming at you
kathy

Title: Re: I am about over the edge
Post by Kim Y. on May 21^st, 2005, 10:43am

Quote:

I am standing at the edge...these are the worst they've ever been, longer, harder, more intense. I'm kicking and screaming...Does God hate me???No God doesn't hate you. I can't explain why we have been blessed with this suffering but its made us very strong people. I am about to teater off, death seams like such relief....I would never do something so stupid, mind you, but man just that though scares me....I know that feeling but it subsides once the pain goes away. We can't let the beast win.

[smiley=hug.gif]
Holding you up, don't let go ok.......PF wishes and vibes headed your way.

Kim

Title: Re: I am about over the edge
Post by kissmyglass on May 21^st, 2005, 11:58am

Hey April,
Hang in there! You are not alone, I'm in the same boat and my boat has a serious leak.... :)

Like Don said, have you tried Prednasone? at least you'll be able to get a weeks "vacation" from the beast.

Stay hard,

Kev

Title: Re: I am about over the edge
Post by aprilbee on May 23^rd, 2005, 5:13pm

UPDATE!

I am doing much better thanks to your kind words and pf wishes, and a couple of ER docs... ;)

Thanks for everything!!

Love, AB

Title: Re: I am about over the edge
Post by Dallas_Denny on May 27^th, 2005, 8:50am

Didn't see you post a reply on the calan (I know it as varapamil HCI) but when they put me on it a few years ago I went on a controlled inclrease all the way to 480mg a day before they started working!! Had to monitor my bp on a daily basis because it got so low but it worked!!

Title: Re: I am about over the edge
Post by RACH on May 27^th, 2005, 4:50pm

Hi...hope things are better! I thought I would let you know of something else that our new neuro was going to try when my husband had one leg hanging over the edge. He hospitalized him for 3 days, 250 mg of steroids per day with DHE treatments every 8 hours. He got one dose of the steroids before they found out that he had had a heart attack. Anyway, not one headache since the 250 IV. We will definetly do it again if a cycle returns. Wishing you rest!! RACH

Title: Re: I am about over the edge
Post by TonyG1 on Jun 1^st, 2005, 9:18pm

on 05/20/05 at 16:35:23, aprilbee wrote:

...I plan on trying everything I can to get to the end of this cycle with my sanity, (oops too late ;))...

April - Read the later posts here... glad to hear you are doing better ... to quote your earlier post .... the sanity intact is always questionable.... goes with the clusterhead territory I think !!! :) Hang in there ... this too shall pass