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Title: Remission? Post by gravelgirl on May 9th, 2005, 3:03pm Good news all around: My last HA was back on 4/30… 9 PF days!!! After my visit to the neurologist back on 4/22, per her suggestion I quit all caffeine and chocolate. I also started taking Verapamil, but have forgot to take it the past week… I’m horrible at remembering pills. Can anyone suggest what my PF days can be attributed to? Am I in some sort of remission? Or was it not CH’s to begin with? I have a follow-up neuro appointment on Friday and a MRI appointment on the 20th. Suggestions? Thoughts? Thanks to all! ~Bris~ |
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Title: Re: Remission? Post by E-Double on May 9th, 2005, 3:20pm Hiya Bris, glad you're PF.... It could have been just a very quick visit from our friend. If I recall this was your very first experience....Many people who first experience CH have very brief cycles to begin with. I hope it never comes back......BUT....Be prepared regardless!!!! Keep stock of your meds and if ever (hope not) you get that familiar twinge.....you will know what to do. Go have fun!! Eric |
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Title: Re: Remission? Post by sandie99 on May 10th, 2005, 11:54am I hope you also stay PF! :) |
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Title: Re: Remission? Post by ArCane on May 11th, 2005, 11:45am Totally agree with Eric. When CH first comes on, the cycles can sometimes be irregular. I remember my first cycle was 1 week followed by 2 weeks PF and then another week of pain. Now that I have had numerous cycles, its alot more regular. Get hit everyday for 1-2 months. I hope the beast leaves you alone. Stock up on your meds and get prepared for next time. There is always a next time. Its enough just to worry about the headaches when they come, let alone trying to get meds. PF wishes, Allen |
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Title: Re: Remission? Post by bnfreeman on May 13th, 2005, 2:55pm When I first got clusters I didn't know what they were. I thought they were bad migraines. I had them periodically until 7 months later when they stopped. I didn't know if I was cured or if it was medicine that I was on until October. They started again just like the year before last. So be prepaired because the beast is probably just sleeping! Good Luck- BF |
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Title: Re: Remission? Post by Langa on May 14th, 2005, 7:34am Ditto on what Eric said... Glad your PF and may it continue... Langa |
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Title: Re: Remission? Post by don on May 14th, 2005, 9:35am Have you been diagnosed with cluster or Migraine? |
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Title: Re: Remission? Post by SusieWong on May 14th, 2005, 12:23pm I was told 30 days PF with no medication before being considered to be in remission. :-/ |
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Title: Re: Remission? Post by gravelgirl on May 16th, 2005, 4:07pm 16 PF days! I even had 2 mikes hard lemonades the other night and I was fine! I have a MRI friday... so we'll see how that goes. Thanks All!!!! ~Bris~ |
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Title: Re: Remission? Post by sandie99 on May 16th, 2005, 4:17pm on 05/16/05 at 16:07:42, gravelgirl wrote:
Goo luck to your MRI... :) and lots of PF days, Sandie |
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Title: Re: Remission? Post by zebb37 on May 16th, 2005, 5:06pm 1 day pf would be nice :-/ seriously though - i tend to know when my cycle is over. good luck with the pf days and i really, really hope they last |
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Title: Re: Remission? Post by gravelgirl on May 17th, 2005, 3:43pm on 05/16/05 at 17:06:17, zebb37 wrote:
how do you KNOW? how often are your cycles? |
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Title: Re: Remission? Post by seasonalboomer on May 17th, 2005, 3:50pm many people know. many of us differently. For instance I have a pretty good idea my cycle over because there is a "clarity" that I wake up with in conjunction with a pain-free day or two. It's just a feeling. The only way I know for sure is when I take the leap of doing things that are triggers and there is no HA triggered. If you're doing trigger behaviors and not getting hit -- your cycle is over -- no need to overanalyze it. |
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