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(Message started by: aladinsane on May 4th, 2005, 1:09am)
Title: is facial numbess & paralysis part of a CH att
Post by aladinsane on May 4th, 2005, 1:09am
I woke up yesterday morning after an attack, then I noticed that the left side of me face feels numb, its been 24 hrs since and things have not changed.  I havent had an attack for nearly 30 hrs now, but the left side of my face is still partially numb and has very litel movement.  I know that I need to see a DR but my med insurance wont kick in till the first of june....I need your thoughts and guidance...PLEASE..
Title: Re: is facial numbess & paralysis part of a CH
Post by TxBasslady on May 4th, 2005, 1:28am
That has never happened to me..

Trying to think....if I recall anyone mentioning this.

I do get jaw pain....but it goes away after a while.

What meds are you on?

Could it possibly be a side effect from the meds?

Damn, wish I could give you an answer.   Maybe someone will be along and do better with this than I did.

Do you take Imitrex???

PF vibes,

Jean
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 1:36am
yes, I just stared taking them a week ago, I've never like the effects that TREX gives me, I feel so spent.  My last episode was of january 2004 which lasted 22 days and I was given DHE, PREDS, TOPOMAX and of course the usual cocktail of painkillers.  Sad to say that when I had my recent episode, I am not covered by med ins. so I had to rely on OTC drugs and a fellow worker of my mine who is a migraine sufferer gave me some imitrex...why do you think that imitrex may have caused this?
Title: Re: is facial numbess & paralysis part of a CH
Post by TxBasslady on May 4th, 2005, 1:43am
Well, I am not a doc....so I really don't know.

Some folks here have had problems with the Trex.
For some the Trex causes rebound ha's.   Some have the tightning in the chest.

You do know, not to mix Triptan's...right?

Is the Trex the only med you took?    Of course, I have to say that you should call your doc.   I understand about the insurance...

I have never taken Trex....so this is a bit difficult for me.

I was hoping another would come along and maybe help.

Is the Trex pill form...or injections?

Jean
Title: Re: is facial numbess & paralysis part of a CH
Post by TxBasslady on May 4th, 2005, 1:50am
Hey Al..

There's a couple of guys gonna come see if they can help ya out.

Jean
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 1:54am
I take metformin once daily for my diabetes & multivimins.  I remember taking an OTC muscle relaxant that night, a few hours after took a dose of TREX.  I have no prior experience with TREX, and that I just moved to LAS VEGAS from the northwest a few months ago (divorce -related), so bottom line is no DR and no insurance as of press time. :-[
Title: Re: is facial numbess & paralysis part of a CH
Post by TxBasslady on May 4th, 2005, 2:00am
I'm still here....I sent a message to Gator.

Maybe he'll be here in a sec.
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 2:05am
Thank you so much.....my name is Lyndon, by the way... :)
Title: Re: is facial numbess & paralysis part of a CH
Post by TxBasslady on May 4th, 2005, 2:11am
Nice to meet you!

Welcome to the board...
Title: Re: is facial numbess & paralysis part of a CH
Post by Gator on May 4th, 2005, 2:14am
Okay, to bring everyone that reads this up to speed: (from  "what's a typical day like for a chronic" thread)


Quote:
Posted by: aladinsane       Posted on: 05/03/05 at 22:58:35

Hi guys, I am in the midst of an episode andd yesterday I woke up realizing that the left side of my face feels numb as if i just came from the dentsit office, is been 24 hrs hence and nothing has changed, I have very little movement on my left face, i can't eat nor drink properly without spilling liquid or food, I"M SCARED, I am new to my job and my med insurance won't kick in until the 1st of June, tell me, ive been properly diagnosed of CH 2 yrs ago, but ive been misdiagnosed for 14 years, is this numbness and lack of movement on the left side of my face normal, PLEASE I NEED ANSWERS, I'M SO SCARED

----------------------------------

Posted by: nani       Posted on: 05/03/05 at 23:14:20

I think you should see a dr. There is something called Horton's Syndrome where your CH eye can droop permanently, but I'm not sure if there's any numbness. IMHO it would be best to rule out anything more serious. PF wishes, nani

------------------------------------

Posted by: Gator       Posted on: 05/03/05 at 23:20:46

I've not seen this in anything that I have read and have definitely never experienced it.  There may be others who have, though.  I would suggest getting your butt to a doctor.  

What meds (prescription, otc, vitamins, herbals, etc.) are you taking?  Is it just in your face or is it in any part of the rest of your left side, arms, legs, etc?  What were you doing the day before you woke up like this?  While you are at it, go over your ch symptoms.  Maybe that will give a clue as well.

---------------------------------

Posted by: aladinsane       Posted on: 05/03/05 at 23:45:55

thank you so much, but in as much that i want to see a DR asap, my med insurance won't kick in by the 1st of june...Yes, i am very aware of the drooping eyelid syndrome, which I have, but what i experienced yesterday was totally different, i still feel pressure in my head.  No other part of my body, as of press time, feels numb or dull.  Did you think that I had a "silent stroke"?

--------------------------------

Posted by: Gator       Posted on: Today at 00:05:22

Don't know enough about you or your situation to be able to say anything intelligent.  Stroke and Bell's Palsy immediately come to mind.  There are a few nurses that are members here.  Hopefully one of them will be along soon.  In the meantime, I'd Google your symptoms and see what you come up with.  

Check out this page and see how your symptoms match up.

http://www.bellspalsy.ws/symptoms.htm

------------------------------

Posted by: aladinsane       Posted on: Today at 00:15:46

Thank you so much for the info, thought I've check the site earlier, however very few of the symtoms are related to mine.  I certainly appreciate your concern, GATOR.  I will try to cal my HR tomorrow and see if they can have my med insurance activated ASAP rather rather than June 1st
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 2:14am
thank you Ma'am, i certainly appreciated you concerns and attention, very few people outside this "circle of pain" truly understand what we go thru...again, gratis
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 2:19am
Gator, thanks a lot too, I know that youve done what needs to be done, I am just very much concerned and am just looking if what had occured to me was typical to a CH sufferer....and as far as I've searched each one is uniquely different from the other.  I cerainly hope that this is just an after effect of the meds that I took, or it could be worst....I have to make arrangements with my owrk to see if they can expedite my med. insurance, again, thank you so much...
Title: Re: is facial numbess & paralysis part of a CH
Post by TxBasslady on May 4th, 2005, 2:19am
You're welcome.

I hope things get better for ya.

Jean
Title: Re: is facial numbess & paralysis part of a CH
Post by Gator on May 4th, 2005, 2:47am
I'm sure we're not done here.  Like I said, there are medical professionals here that should come along and be able to offer better assistance.  In the meantime, I am still doing some research.


You say you are Diabetic and took metformin, imitrex and an OTC med the night before.  Do you remember the name of the med?  Do you take insulin?  How were your blood sugar readings?  Do you take any other OTC meds, vitamins, herbal  supplements, etc?  Did you consume any alcohol that night?  Have you had any trauma to your head recently?  Have you had any other illness recently?  Any pain anywhere in the face or ringing of the ears?
Title: Re: is facial numbess & paralysis part of a CH
Post by TxBasslady on May 4th, 2005, 3:13am
Al,

I'm sure it would be helpful if you can maybe list what the muscle relaxer was...brand..how much you took.

Also, you didn't tell us what dosage of Trex you took.

It would be helpful if you can answer the questions Gator listed in the above post.    I know you're offline now, but when you come back...list the meds and the amount you took, if possible.

Hope things get better....please let us know how you're doing.

PF vibes,

Jean
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 6:17am
I just woke up from a fitful sleep...cried myself to sleep to be exact! I couldn't belive what has happened to me, thats all! my fiance is coming this friday, and I can't bear the  thougth of her seeing me like this, how can I take her out to dinner, when I slubber al over myself? when I talk my face looks contorted,  I look normal if I stay quite and not use any facial expressions or movement...sorry guys I gotta let it out...Okey, these are what I took the day before my facial incident...my usual metformin, vit e & c, centrum multi vitamin, oogoplex, enzyte and a muscle relaxant called ALAXAN (a mxture of ibuprophen and paracetamol) I don't know the exact dosage og each cap but I took 2,  the TREX that I took was a pill not the injectables.  My sugar levels are okey and no I did not have any recent or history of head trauma....My hearing and eyesight are still the same, my tongue is not swollen,  I actually feel a bit better today than the days before, except of course for my face.  At 8 am today I shall be calling our HR to see if they can help me so I can bring my butt to a DR ASAP....again, thanks for listening to my story and your invaluable inputs
Title: Re: is facial numbess & paralysis part of a CH
Post by Bob P on May 4th, 2005, 6:46am
During almost my entier cluster cycle the cluster side of my face feels numb and swollen.  Over time I also tend to hold the cluster eye open wider than the other.  I've always chalked it up to inflamtion of the trigeminal nerve (the pain source in cluster).  I can't say that I've ever had parallysis.

Can't rule out a mini stroke.

I'd get medical attention quickly.
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 7:20am
hi bob,

I cant really tell if it's paralysis, it feels like i had just come from a bad dentist appointment....
Title: Re: is facial numbess & paralysis part of a CH
Post by Bob P on May 4th, 2005, 9:43am
I think we're probab;y talking the same thing.

As you can see here:  http://www.clusterheadaches.org/library/general/trigeminal_pic.htm the orange/yellow trigeminal nerve branches to 3 areas, lower jaw, cheek/nose and forehead.  This is the nerve that is the source of cluster pain.  I figure after being irritated multiple times a day for days on end, it just becomes constantly inflamed causing the feeling you describe.

The first time a neuro sent me for an MRI was because the eye on the cluster side was larger than on the other.  Nothing showed on the MRI.  It's just because I hold it like that due to the constant swollen feeling.
Title: Re: is facial numbess & paralysis part of a CH
Post by LeeS on May 4th, 2005, 1:08pm
Could be a form of 'partial Horner's Syndrome' and hence 'relatively' normal for CHers, however:

Quote:
Symptoms of CH can also be caused through abnormalities caused by disease or injury.  Any such circumstances reported by the sufferer, with the exception of sinking in of the eyeball, drooping of the eyelid or pupil constriction (known as partial Horner's Syndrome) warrants further investigation by the neurologist to search for potential organic causes.

I believe that if it is partial Horner's, then it will disappear over time.

-Lee
Title: Re: is facial numbess & paralysis part of a CH
Post by ghost62 on May 4th, 2005, 1:19pm
I have had that happen at first I thought it was a stroke along with the ch but went to doc they couldnt find anything ... it did clear about 3 weeks later. hope you get lucky too.
Title: Re: is facial numbess & paralysis part of a CH
Post by John_Booth on May 4th, 2005, 2:06pm
I am no doctor.  First thing that came to my mind after reading the orig. post was stroke.
Title: Re: is facial numbess & paralysis part of a CH
Post by thomas on May 4th, 2005, 2:50pm
There is an error in the big quoted thingamabob you put up there Gator.  The reference to Horton's syndrome should read HORNER'S syndrom.  Horton's syndrome is actually almost identical to CH as far as I can tell.  Horner's is the droopy eye.

http://www.focalpress.com/companions/0240804155/headache/head1.htm

http://www.eyemdlink.com/Condition.asp?ConditionID=227

We need to be sure of what we are speaking in order to help, not harm.  Our first mission as a support group here, should be to do no harm.
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 5:30pm
GREAT NEWS!!! My employer had agreed to move my medical insurance date to totaday (05-04-05) I am seing a DR @ 4:30 p.m. My condition remains the same, just came out of a CH attk ( still having leftovers) which lasted nearly 4 hrs, the pain was a Kip 8, I believe the beast is losing its steam...Thank a lot guys, youv'e all been wonderful
Title: Re: is facial numbess & paralysis part of a CH
Post by Bob P on May 4th, 2005, 5:39pm

Quote:
lasted nearly 4 hrs, the pain was a Kip 8, I believe the beast is losing its steam
If that's losing it's steam, you're one tough sumnabeech!
Title: Re: is facial numbess & paralysis part of a CH
Post by E-Double on May 4th, 2005, 5:41pm
Good employer & Good luck!
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 6:38pm
My previous attaks were off the wall that my next door neighbors thought I getting beat up....
Title: Re: is facial numbess & paralysis part of a CH
Post by Gator on May 4th, 2005, 6:59pm

on 05/04/05 at 14:50:00, thomas wrote:
There is an error in the big quoted thingamabob you put up there Gator.  The reference to Horton's syndrome should read HORNER'S syndrom.  Horton's syndrome is actually almost identical to CH as far as I can tell.  Horner's is the droopy eye.

http://www.focalpress.com/companions/0240804155/headache/head1.htm

http://www.eyemdlink.com/Condition.asp?ConditionID=227

We need to be sure of what we are speaking in order to help, not harm.  Our first mission as a support group here, should be to do no harm.


I agree we should be as sure as possible of what we are saying so as not to cause more harm than good and I try very hard to do just that.  As far as the "thingamabob," I just quoted from the original conversation so people would know what all had transpired before he opened this new thread with the same question.  Trying to avoid re-inventing the wheel.  The post with disease in question wasn't mine, but it was part of the thread concerned with his question so I included it without editting.
Title: Re: is facial numbess & paralysis part of a CH
Post by Sean_C on May 4th, 2005, 9:03pm
The first thing I thought of was Bells Palsy

http://www.bellspalsy.ws/

Best of luck at the docs Al, please keep us informed.

Sean.....................
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 4th, 2005, 9:10pm
Hi guys,

Just got back from the doctor and (drum roll pls.) Gator u were right, I have BELLS PALSY! treatment is with preds and an anti viral med.  I'm happy that STROKE was ruled out of the picture.  You guys have been awesome! Everyone have been there for me in my time of need, and I shall never forget that! In turn, I will extend whatever help I can to anyone who needs my assistance, I'm passing it forward.

THANK YOU VERY MUCH TO ALL

LYNDON
Title: Re: is facial numbess & paralysis part of a CH
Post by Sean_C on May 4th, 2005, 9:14pm
*Ahh  hem* Nice job Mike ;;D
Title: Re: is facial numbess & paralysis part of a CH
Post by Gator on May 4th, 2005, 9:48pm
I'm just happy your employer stepped up and got your insurance going so you could go to the doctor.  I hope you recover quickly.
Title: Re: is facial numbess & paralysis part of a CH
Post by TxBasslady on May 5th, 2005, 12:42am
Lyndon,

Good deal!!!!!   I'm really happy that you got in to see the doc today.

I sure hope everything gets better for ya.    ;;D

PF vibes,

Jean
Title: Re: is facial numbess & paralysis part of a CH
Post by Lizzie2 on May 5th, 2005, 1:29am
Hey Lyndon,

Sorry I jumped on this late, but I'm glad you got this checked out and have found out you have Bells Palsy.  How is the paralysis now?  Has it gone away?  If my memory serves me correctly, this is more common in males and can take several days to go away in some instances.

Did your doc fill you in on your potential for having this attack again or what sorts of things you can do to prevent this in the future?  I'm not sure if B vitamins are of help in this condition at all.  I could look up a lot more info, and I see someone posted a link to a site on Bells Palsy.  Hopefully your doc gave you some info, too.  I'm curious to know what you've been taught about it simply because I had learned about this condition in the past, but I don't remember a lot of the info.

This is nothing to scare you since you now have a diagnosis, but for future reference on paralysis and any relation to clusters, here is an abstract from a research article that my former neuro participated in that discusses a potential form of hemiplegic cluster.  If you look up hemiplegic migraine (which is an actual form of diagnosable migraine), it is a type of migraine accompanied by stroke like symptoms where potentially the entire half of the sufferer's body is going through a form of temporary paralysis which can last for days.  It is quite disabling and scary.  Apparently, there were some episodes of cluster which mimicked this seen by some of the physicians at Jefferson Headache Center.  Here is the abstract:


Quote:
1: Headache. 2002 Feb;42(2):136-9. Related Articles, Links  

 
Hemiplegic cluster.

Siow HC, Young WB, Peres MF, Rozen TD, Silberstein SD.

Jefferson Headache Center, Department of Neurology, Thomas Jefferson University Hospital, Philadelphia, PA 19107, USA.

We report four cases of a new variant of cluster headache associated with hemiparesis. Clinical similarities with hemiplegic migraine suggest that hemiplegic cluster, too, may be a channelopathy. One of our patients had a family history suggestive of an autosomal dominant inheritance.

Publication Types:
Case Reports

PMID: 12005289 [PubMed - indexed for MEDLINE]


Again, this is not intended to diagnose or to scare anyone, and since you (Lyndon) have a diagnosis now of Bells Palsy and don't need to be worrying with this, it is more of just an FYI than anything else that there have been reports of a type of hemiplegic/hemiparesis (half paralyzed or half loss of sensation) with clusters.

If this does happen or if anyone has any symptoms of sudden paralysis (no matter how short lasting) it is VERY important to call your doctor, and if you can't reach your doctor and they don't have someone on-call throughout the night, then you need to go to the ER.

Many neurological conditions are silent.  You can't detect what is going on inside the brain and nervous system from the outside, and while you may still be functioning to a point, things can be progressing badly on the inside without a person even knowing it.

Everyone -- please take very important care whenever dealing with any types of paralysis or sudden episodes of numbness/tingling that aren't going away, etc.

Now I sound like one of those overzealous paranoid nurse-types!  But seriously, I would hate to see anyone here suffer from a stroke and then have it go untreated and have it progress internally to an even worse state!

Hugz,
Carrie :)
Title: Re: is facial numbess & paralysis part of a CH
Post by Lizzie2 on May 5th, 2005, 1:35am
Here's just a link on signs and symptoms of stroke from the American Heart Association.  Everyone with any type of neurological condition should become familiar with this list in the event that a stroke of some sort does occur.  This also applies to those with cardiac conditions, since stroke can run hand in hand with these types of conditions.

http://www.americanheart.org/presenter.jhtml?identifier=4742

You can do a search on signs/symptoms of stroke to find even more information, and sometimes stroke is referred to as a "Brain Attack" which may lead to even more information.

Just another neurological resource because I truly feel we should be informed about red flags such as signs of stroke.  Because we suffer from a neurological condition every day, we may overlook even small symptoms of stroke because we are use to dealing with some pretty heavy neurological issues.  Therefore, it is just that much more important to know the signs and symptoms of stroke and other serious neurological conditions and to listen to your body!  

When in doubt, always always contact your doctor or get to the nearest ER as fast as you can!  With thrombolytic strokes, there are treatments that can stop the stroke from being deadly or even more damaging, but they usually have to be initiated within 3 hours of the initial stroke.  (Drugs like t-PA - also known as clot busters.)  However, these drugs are contraindicated for any type of hemorrhagic stroke because they can cause even more bleeding in the brain, which can be deadly.  The sooner someone gets to the ER, the sooner the correct diagnosis can be achieved and the proper potentially life saving treatment can be initiated!

Hugz and PF wishes to all!
Carrie :)
Title: Re: is facial numbess & paralysis part of a CH
Post by aladinsane on May 5th, 2005, 5:56am
I truly appreciate the invaluable info regarding paralysis and the like and I've printed out what I found on the links that you provided.  FOOD FOR THOUGHT-My grandmother, niece, nephew all died of mental illness.  My new doctor is okey, but not as thorough and detailed as my previous one (seattle).  He did not go thru , as you've outlined, the circumstances and details of my illness, all he said that it was curable.  I am in the process "shopping around" for a good NEURO in the Las Vegas area...Guys you are truly angels on my shoulder...love u guys...

LYNDON
Title: Re: is facial numbess & paralysis part of a CH
Post by rickyshot on May 5th, 2005, 7:52am
Great info on these posts. I suffer the dread of complicated migraines and episodic ch and when I am in cycle it is usually mixed with migraines (I sometimes wonder if the CH just triggers the migraines worse-dont' know). I have a long history of hemiplegic migraines described above with real paralysis. I always end up in ER and have to be worked up for stroke. But guess what I finally hit a TIA (a mini stroke) two years ago with facial paralysis that lasted five days and slurred speech ( I have a history of losing my speech). The neuro thinks too many spasms in my head might have triggered the TIA and he is of the thought that migraines are not benign and to be taken seriously. So is CH. Final thought Any paraylysis or stroke like symptoms have to be investigated because the body may cry wolf a lot of times but unfortunately one day it could come true especially for people with complicated neuro problems such as CH and migraines.
Title: Re: is facial numbess & paralysis part of a CH
Post by thomas on May 5th, 2005, 11:30am

on 05/04/05 at 18:59:58, Gator wrote:
The post with disease in question wasn't mine, but it was part of the thread concerned with his question so I included it without editting.

I know it wasn't you Mike.  Was just pointing out that in that conversation, the error was made, was trying to avoid "singling" out any one.

Edit to add, just trying to help, without people thinking I'm a jerk, but that is almost an impossibility anyway.  ;;D
Title: Re: is facial numbess & paralysis part of a CH
Post by Gator on May 5th, 2005, 11:44am

on 05/05/05 at 11:30:04, thomas wrote:
I know it wasn't you Mike.  Was just pointing out that in that conversation, the error was made, was trying to avoid "singling" out any one.

Edit to add, just trying to help, without people thinking I'm a jerk, but that is almost an impossibility anyway.  ;;D


No worries, Mate.  I think everyone is on edge right now.  Lots of people getting slammed, me included.  You just keep on doing what you do.  Better to step on someone's toes and get correct info out than to be PC and have someone get hurt.
Title: Re: is facial numbess & paralysis part of a CH
Post by nani on May 5th, 2005, 11:49am
Thank you both for not singling me out.  ;) I agree Mike, I would rather know if I made a mistake than have someone get hurt.
Sorry, aladinsane, for possibly misleading you in the original thread. I'm glad you had it all checked and treated. PF wishes, nani
Title: Re: is facial numbess & paralysis part of a CH
Post by Lizzie2 on May 5th, 2005, 12:08pm

on 05/05/05 at 07:52:16, rickyshot wrote:
Great info on these posts. I suffer the dread of complicated migraines and episodic ch and when I am in cycle it is usually mixed with migraines (I sometimes wonder if the CH just triggers the migraines worse-dont' know). I have a long history of hemiplegic migraines described above with real paralysis. I always end up in ER and have to be worked up for stroke. But guess what I finally hit a TIA (a mini stroke) two years ago with facial paralysis that lasted five days and slurred speech ( I have a history of losing my speech). The neuro thinks too many spasms in my head might have triggered the TIA and he is of the thought that migraines are not benign and to be taken seriously. So is CH. Final thought Any paraylysis or stroke like symptoms have to be investigated because the body may cry wolf a lot of times but unfortunately one day it could come true especially for people with complicated neuro problems such as CH and migraines.


And now you make me ask more questions! Are you wearing a medical id bracelet?  I wear one 24/7 from Medic Alert where I can update my conditions/allergies/medications/personal info/contact info at any time, 24 hours a day.  It has a pretty general statement on the back of it ("Multiple Medical Conditions, Multi Allergies, On Medication") plus the number for medic alert and my ID number for them to reference.  An emergency medical personnel can call and retrieve the info I've put into the database.  However, it's important to keep it updated as changes in health, medications, etc occur!

I have basilar and confusional migraine along with chronic daily migraine and clusters...trying to just experience a little bit of it all apparently....

I was just diagnosed with the basilar migraine recently after having massive vertigo, memory loss, difficulty thinking and speaking, and really feeling like crap...this happened while I was working in the ER and they admitted me to the ER very quickly after that, but I wound up staying all night until I saw neuro in the morning.  Apparently, all of those neuro symptoms were the aura phase...and for me, it lasted 2 hours.  When I was finally out of that, I had the WORST headache.  It really sucked.  So then I finally found out that I also can occasionally suffer from basilar migraine.

The confusional migraine aspect comes from the fact that sometimes I dont' even know who I am or I can't get words straight.  It seems like I'm drunk, high, or having a stroke.

So one of the things connected on my ID bracelet is "Migraine Accompaniments - Mimics Stroke or TIA"

http://www.medicalert.com for their site for those interested!

Be safe :)

Carrie :)
Title: Re: is facial numbess & paralysis part of a CH
Post by rickyshot on May 6th, 2005, 11:28am
Carrie you and I are soulmates. I do not wear a bracelet (ducking). But mine would not say mimicing TIA as I actually did have one and take aspirin daily. Still get those lovely m igraines and migraine/ch combo.The migraine CH combo are the WORST. I really feel like comitting suicide when going through that at times. Go batty with confusion, the aura etc and then the wonderful CH with the tearing droopy eye, and pain even Hell can't dish out from head and face sigh.........
Title: Re: is facial numbess & paralysis part of a CH
Post by Cynde on Jun 30th, 2005, 10:16pm
I had a feeling you were describing Bell's -- a tremendous, one-sided headache, sometimes intermittent over the course of several days, can be a warning of Bell's Palsy.  A friend of mine is still recovering almost a year after a severe Bell's case, and his hallmark warning was a horrific one-sided headache that even morphine drip wouldn't get under control...then his lips, tongue, eye, and cheeks were numb by about day 3 of the headache, and by the 5th day, the whole right side of his face was paralyzed.  So, I'm glad they checked you for Bell's.  Hope you're still doing better.
Title: Re: is facial numbess & paralysis part of a CH
Post by ivanov on Jul 1st, 2005, 8:13pm
Carrie,
I have been diagnosed with hemiplegic cluster by two neurologist. That is all well and good- the problem is they are just guessing on how to treat it.
Do you know where I can fine some comprehensive medical info
on this condition.
Any info would heip since I am at the end of my rope trying to deal with it.

Thanks, Dan


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