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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> it's changing frequency (dx and cope folks)
        
(Message started by: her_redhed on Apr 25^th, 2005, 8:35am)

Title: it's changing frequency (dx and cope folks)
Post by her_redhed on Apr 25^th, 2005, 8:35am

what d'y'all know about frequencies? wife's h/a attacks started changing 2 days ago. morning "7" blast pushed back to early afternoon, knocked down to "4" with O2/Imitrex and knocked out for the evening with a nap. go figure. is it like that old video game asteroids, will the h/a's get shattered into parts or (hopefully) just go away peacefully? doc ramped up the verapamil (480mg) last week and topamax (300mg) yesterday. also extended the prednisone taper another week. she's taking melatonin (6mg) and some pain meds. god bless you folks for the support and information. michael

Title: Re: it's changing frequency (dx and cope folks)
Post by don on Apr 25^th, 2005, 11:48am

I would say that the frequency has changed due to the increased dosage of verapamil. Thats what it is supposed to do.

Sounds like she's on the right path to PF days.

Title: Re: it's changing frequency (dx and cope folks)
Post by her_redhed on Apr 26^th, 2005, 9:21am

we're very hopeful. also anxious, angry, agitated and all the other available adverbs. thank god for you folks and your advice. led us first to the O2 and now the ramped up verapamil. best, michael

Title: Re: it's changing frequency (dx and cope folks)
Post by TonyG1 on Apr 26^th, 2005, 9:08pm

Agree with Don on this one. I started verap for this past cycle and noted the frequency and intensity of my HAs changed after being on the meds for about a week. Eventually, the HAs tapered down to only shadows and then finally the cycle ended (Oddly enough I could feel when the cycle ended vs. HAs being prevented by the verap).

Good luck to you all & many PFDANs!!

Tony

Title: Re: it's changing frequency (dx and cope folks)
Post by don on Apr 26^th, 2005, 9:13pm

Quote:

also anxious, angry, agitated

If you weren't then there would be some real cause to worry.

Once you find an effective treatment a lot of those emotions tend to abate.

I've been suffering for 28 years and I'm STILL pissed! LMAO.

Title: Re: it's changing frequency (dx and cope folks)
Post by TonyG1 on Apr 26^th, 2005, 9:16pm

on 04/26/05 at 21:13:00, don wrote:

I've been suffering for 28 years and I'm STILL pissed! LMAO.

19 years here --- what he said .... ;;D

Title: Re: it's changing frequency (dx and cope folks)
Post by her_redhed on Apr 28^th, 2005, 9:19am

wow, you guys must be really old... yuk, yuk. we've an appt. with boston doc this afternoon and will carry all your experience, strength and etc with us. thanks and god bless. michael

Title: Re: it's changing frequency (dx and cope folks)
Post by her_redhed on May 4^th, 2005, 4:22pm

spent the weekend at 'club meds' taking the dhe by iv. kicked the living stuff out of her. nausea, dehydration, etc. due to big time reax and side effects. ended up spending extra 3 days in hospital and 2 days after that she's still doing that stumble shuffle around the neighborhood. should add that even the neuro department of a big city hospital is baffled by clusters. but guess what, the headache pattern seems to have broken. couple of good sized ones here and there but whatever cycadian clock there is behind these things got really confused. they also dropped some meds in favor of lithium. anyone have thoughts on that one. thanks again, michael

Title: Re: it's changing frequency (dx and cope folks)
Post by Jonny on May 4^th, 2005, 4:48pm

Hey Mike,

Those othere two jamokes are just kids, Ive been chronic for 30 years ( live just down the SE expressway from you) and im still pissed as hell also....LOL ;;D

14 years ago I started 480 Verap and 600 Lithium aday....it has kept 80% of the CH's away...I can kill most of the ones that break through with 02.....It changed and saved my life.

Verap and Lith is known as "The chronics cocktail" but it also works for many episodics.....cant hurt to try, Dude.

Good luck!

...................................jonny

Title: Re: it's changing frequency (dx and cope folks)
Post by her_redhed on May 4^th, 2005, 9:52pm

thanks jonny. she just started lithium, 300mg, which replaced depakote (bad reax) which replaced 'dope'amax (didn't work.) any side effects or advice regarding the lithium. she's been ok on the verapamil, 480mg, till this weekend, the nice hospital docs took her off everything (bad reax to DHE). by the way, from where we sleep in central mass.. that se expressway sure would look nice with some shiny new toll booths...