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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Sleep (yeah right) study
        
(Message started by: kimmeesue on Apr 22^nd, 2005, 2:23pm)

Title: Sleep (yeah right) study
Post by kimmeesue on Apr 22^nd, 2005, 2:23pm

Well, I completed the "stay awake all night in a strange room hooked up to a bunch of wires with a camera aimed at you" study. Will make an interesting story for my grandchildren.
Since I wasn't allowed a timepiece I have no idea how long I may have drifted...do remember a dream shortly before the tech came in but don't think it was for long. Mostly I was aware of fighting the urge to do all the things one does in the privacy of ones own bed (will spare you the details) knowing I had an audience.
Since they didn't come in and put me on CPAP during the night I assume sleep apnea is not the issue. Will be intersting to see what the report tells my neuro...other than "she kept singing something about Alice's restaurant all night"

Title: Re: Sleep (yeah right) study
Post by nani on Apr 22^nd, 2005, 3:12pm

[smiley=laugh.gif]
That song has been in my head for 2 days now! Thanks, Frank! :P

Those studies are awful enough when you can sleep. I can't imagine how awful that was for you, kimmiee. :(
When I had one, the cpap wasn't used until I went back for the second study. In my case, the techs turned over all to results to the dr the next day, and then I was called to make the second appoinment. Hope the Lunestra keeps working for you at home.

Title: Re: Sleep (yeah right) study
Post by bigAl on Apr 22^nd, 2005, 5:34pm

on 04/22/05 at 14:23:36, kimmeesue wrote:

Mostly I was aware of fighting the urge to do all the things one does in the privacy of ones own bed (will spare you the details)

Please, don't spare the details!

[smiley=laugh.gif]

Title: Re: Sleep (yeah right) study
Post by kimmeesue on Apr 22^nd, 2005, 6:15pm

well, I was thinking along the lines of scratching and passing gas...
what were you thinking????? ;)

Title: Re: Sleep (yeah right) study
Post by kimmeesue on Apr 22^nd, 2005, 6:18pm

Nani,
The yechs told me they would assess my breathing during the night and put a mask on me if needed, thus I assume it was not needed since they didn't.
I don't see my neuro for a month and he didn't say anything about a follow-up study. Eegads. Please, no.
Kim

Title: Re: Sleep (yeah right) study
Post by Marta on Apr 23^rd, 2005, 7:48am

Well done Kim,

I think if I had one of those sleep things I would come over all claustraphobic (sp?). Did you have a hit while you were on your sleepover , CH or anything like that?

Keep us posted

PF

'Alice.....' :-X Marta

Title: Re: Sleep (yeah right) study
Post by lionsound on Apr 23^rd, 2005, 10:21am

LOL kim!

I felt the same when I had mine done.

I believe there will be a report that will go to the doc that ordered the test and you should be able to get a copy of that even if there is not follow up at the sleep center.

PF's
-lionsound

Title: Re: Sleep (yeah right) study
Post by mcf69 on Apr 23^rd, 2005, 11:06am

Make sure you get a full report from the study, and bring it with you to the doctor, the full report will be long and give the doc a better idea of what's going on than just the synopsis that the lab may send him, including all the details on oxygen saturation by the minute instead of just averages. I only slept probably 3 or 4 hours when I had mine done, and they didn't come in and put the cpap on me because the sleep tech didn't think I was having enough apneas to warant the machine. To my surprise when I went to the doc 2 weeks later he decided to put me on the auto machine because of the clusters, so goes to show what the sleep techs know.

Title: Re: Sleep (yeah right) study
Post by kimmeesue on Apr 23^rd, 2005, 8:41pm

Thanks everyone for the follow-up info. All they tell you is "we'll send a report" Well, duh. Otherwise the point would be????
I went well armed with melatonin and lunesta and still didn't sleep but had only minor hits during the night. Wish I had known the time to see if anything on the report corresponded. I am glad to know to ask for a full report....I always forget that we patients have rights.
All in all not a wholly bad experience....beats a root canal :P

Title: Re: Sleep (yeah right) study
Post by mcf69 on Apr 25^th, 2005, 3:13pm

Quote:

I always forget that we patients have rights.

Very good point Kim, and beleive me, if you don't ask for it, you won't get it. Like I said, make sure the doctor has a copy of the full report, it may make a difference in his choice of treatment. Best of luck.