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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> 7%
        
(Message started by: maffumatt on Apr 17^th, 2005, 9:56am)

Title: 7%
Post by maffumatt on Apr 17^th, 2005, 9:56am

How many people here have family members with CH? The ones that can attribute Ch to hereditary factors, how many got it from the maternal side?

Title: Re: 7%
Post by sandie99 on Apr 17^th, 2005, 10:00am

I'm the only one in my family. That's why they don't get it... One of my great aunts did have migraine, but the others (lucky) don't even get HAs!

Title: Re: 7%
Post by pattik on Apr 17^th, 2005, 10:02am

I had one great aunt (maternal side) who suffered greatly from headaches. But, it is impossible to say from the stories I have heard weather or not they were cluster or migraine. Back in those days, she was probably drugged into a stupor from narcotics by her docs for her relief. This was in the 1930"s and 40's. [smiley=huh.gif]

Title: Re: 7%
Post by maffumatt on Apr 17^th, 2005, 10:09am

I have found two family members that could have Ch, both being on the maternal side. Both have passed now but they reported that it felt like their eye was going to explode. Sound familar? Also CH has had so many names that its hard to pinpoint what is what. One was diagnosed with histamine headaches ( that is CH right? ).
The reason I am asking is that we are expecting, and I was looking into the chances of me passing this crap on.

Title: Re: 7%
Post by Jonny on Apr 17^th, 2005, 10:29am

Only one in my clan to battle the beast...and im glad its me rather than someone I love.

Title: Re: 7%
Post by Langa on Apr 17^th, 2005, 11:24am

No one in my family that I know of...Thank God...

Langa

Title: Re: 7%
Post by nani on Apr 17^th, 2005, 11:52am

My sister has ECH. Our mother had migraines. No other family history that I know of.

Title: Re: 7%
Post by TonyG1 on Apr 17^th, 2005, 12:14pm

My uncle (mother's brother) had terrible headaches from the way my mother describes them -- don't know if they were clusters or not as he passed away when I was two. From her description in terms of things that would go on with his autonomic functions when he was having a HA --- it sounded a lot like cluster symtoms. My mother's twin sister has migranes. Other than that I can't think of anyone else in the family besides me.

Title: Re: 7%
Post by Marta on Apr 17^th, 2005, 1:40pm

No, just little old me!

Marta

Title: Re: 7%
Post by samsara on Apr 17^th, 2005, 2:11pm

I'm the only one in my fam too... my 10 year old daughter has been complaining of HA's that seem similar but different for the few months, but I can't pin it down. She gets them at the same time of day, they only last an hour or hour and a half, but they are not unilateral. And they seem to mostly be at the top of her head. Hmmm.. I'm thinkin just pre-pubescent hormones.

So, to answer... I'm the only one in my family that I am aware of.

Title: Re: 7%
Post by LMVK on Apr 17^th, 2005, 3:35pm

My husband is the one who suffers from the Cluster Headaches.

His sister suffers from nasty migraines.

His father used to get seriously mean headaches that was always thought to be migraines. But, after talking to my mother-in-law, the symptoms sound a lot more like Cluster Headaches.

Title: Re: 7%
Post by BikerBob on Apr 17^th, 2005, 3:44pm

My father's sister is a clusterhead.

Bob

Title: Re: 7%
Post by the_old_man on Apr 17^th, 2005, 5:52pm

My mother had migraines. My oldest son has an occassional migraine. My daughter has migraines and so does her 9 year old son. I'm the only one in the family with ch, which makes it hard because they equate my ch pain with their migraine pain and think I just have a low threshhold of pain. It's actually the opposite because I battle the beast completely med free and O2 doesn't work for me to abort. Thankfully I'm out of cycle right now.

The Old Man

Title: Re: 7%
Post by pubgirl on Apr 17^th, 2005, 6:19pm

Professor Trembath, the man here doing the genetic research into CH will be reporting back at our annual conference in June, I'll let you know what he says.

As far as I'm aware he has the biggest "collection" (I know that is the wrong word) of blood samples from CH sufferers as he took them at what was at the time (maybe still is??) the largest get together of CH sufferers ever.

Hope he has come up with something worth reporting!

W

By the way maffumatt, I'm being dim but what is the 7% thing?

Title: Re: 7%
Post by purpleydog on Apr 17^th, 2005, 6:38pm

I get them, my dad gets them, his mother used to get them, not in a few years, though, she is 83 now, and her mother, my great grandmother used to get them. Interesting.

Title: Re: 7%
Post by Ueli on Apr 17^th, 2005, 7:34pm

I have a sister with CH. No other relatives with any sort of headaches, including another sister and a brother.
Two of my uncles had a brain tumor in their thirties, does that count?
[smiley=smokin.gif]

Title: Re: 7%
Post by Kevin_M on Apr 17^th, 2005, 7:42pm

on 04/17/05 at 18:19:24, pubgirl wrote:

By the way maffumatt, I'm being dim but what is the 7% thing?

It's fuzzy now but there was something mentioned in Nashville in the doctor's presentation of a figure like 7% or 8% of clusters had seemed to be hereditary.

Kevin M

Title: Re: 7%
Post by BarbaraD on Apr 17^th, 2005, 7:47pm

My grandmother (paternal), my father and my son have migraines... But no one else has CH in our family,.

Hugs BD

Title: Re: 7%
Post by Kris_in_SJ on Apr 17^th, 2005, 8:14pm

I have a maternal aunt who gets Migraines. No CH history that I know of ... and I've done alot of questioning.

Kris

Title: Re: 7%
Post by BlueMeanie on Apr 21^st, 2005, 2:13am

If I remember correctly, Kevin is right. In Nashville the doc said it was around 7-8% hereditary. We had 8 kids in our family. I'm the only lucky one to get CH's. :o Mom had migraines.

Title: Re: 7%
Post by Bob P on Apr 21^st, 2005, 7:28am

http://www.clusterheadaches.org/cgi-bin/survey/gene_survey.cgi?survey_name=gene

Title: Re: 7%
Post by ArCane on Apr 21^st, 2005, 11:21am

I have them, my father has them, my aunt (father side) has them, and my grandfather has them. It probably goes further back then that, but these are the only people I know for sure. CH seems to run strong in my family. If I have a kid it will be literaly like flipping a coin to see wiether or not they get it. My grandfather had 2 out of 3 kids have it and my father had 1 out of 2. The thing I want to find out is if my brother's kids will have them. This would mean that people that don't have them could still be carriers of CH. If this is true, this could be why people are the first ones in their family to get it. CH, in atleast my family, is hereditary.

Title: Re: 7%
Post by seasonalboomer on Apr 21^st, 2005, 11:36am

My father is a clusterhead. It allowed me to quickly recognize what was happening when I got them too.

Going back further there were a series of public stonings, on my father's side, something about "the SIGN OF THE BEAST in his right eye!" Each time my ancestor would kept asking the people throwing stones to aim better, "right here above my my cheek!" they'd yell. Glad that the neuro's finally diagnosed them as something other than "diablo's eye", or the curse of the "evil eyeball".

Disclaimer: I frequently digress into stories filled with mendacity. This is one of those times.

Scott

Title: Re: 7%
Post by Judge_Smails on Apr 21^st, 2005, 3:49pm

2 brothers with occasional migrains as well as 2 or 3 cousins. But no CH as far as I know.

Title: Re: 7%
Post by Braindead on Apr 21^st, 2005, 5:02pm

No one else in my family. Just the lucky one- ME :'(

Title: Re: 7%
Post by taraann on Apr 21^st, 2005, 5:49pm

My mom had migraines and I think I witnessed her go through a cluster cycle a few years before she passed. The docs had no clue what was wrong with her and put her in a contagious disease containment room for a few days. Drugged her beyond belief and sent her home with no answers. After that she suffered through the pain at home most of the time. I strongly believe she had undiagnosed Clusters.

My maternal grandfather was diagnosed with histamine headaches (aka clusters).

One of my sisters is diagnosed with migraines. My other sister and my brother both get "bad" headaches that I think are migraines.

That's my story and I'm sticking to it!

Title: Re: 7%
Post by Karla on Apr 21^st, 2005, 5:53pm

I was chronic for several years and just turned eposodic. My son turned eposodic ch first at a young age. We both also get migraines. His identical twin doesent get ch or migraines. I have another son who just gets migraines and no ch. There DAD gets sinus ha all the time.

Title: Re: 7%
Post by Redd715 on Apr 21^st, 2005, 5:56pm

Maternal side for me. Both my grandma and great grandma had CH. Two of my mother's sisters are migrainers, and I have a sister and a brother with migraines, and I have CH.

Title: Re: 7%
Post by maffumatt on Apr 21^st, 2005, 6:28pm

Thanks for the input guys. And thanks for the link Bob. It answered alot of my questions. By that chart it seems to me that I have about a 3% chance of passing on that trait, compared to 7% reported in most of the articals I have read. It does seem to run on the female side more than the male side of the family if you include the unproved and migraines.
Thanks Matt

PS Redd your family knows real pain. I feel for you guys.