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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Back in cycle after 3 yrs
        
(Message started by: Lori on Apr 14^th, 2005, 1:48pm)

Title: Back in cycle after 3 yrs
Post by Lori on Apr 14^th, 2005, 1:48pm

Well i see many new names since I was last really active here. So glad to see many others are able to find this site and receive help. I have had a real rough last 1 1/2 yrs and haven't been able to be around. Major teenager problems that demanded my full attention and still does really. But anyway it's been three years since my last cycle and it's started again a week ago. The good news is I've been on lamictal (anti seizure drug) for 7 weeks for something else, so maybe that will help some. I saw my neuro this morning and got my script for verapamil to start and for O2 that is yet to be delivered. I've never used O2 so hope it works. If all that still doesn't dull the pain, we will add topomax as this helped the last cycle. I hate those side effects though! I have a stash of triptans so I think I'm ready. I quit smoking 2 years ago so hopefully that will have some inpact of some sort and I don't drink so that won't be a trigger. It also seems the time between cycles is getting a little longer each time. It use to be every 2 yrs for years, then the last one came in 2 1/2 yrs now this one it's been three years. I'm 38 so aging might be a good thing. :) I think I'm mentally stronger and ready to fight although I become a big baby during a hit. :(

Well, I will be reading alot of new stuff I see that I have missed since being gone for a while. Blessings and wishing you all a pain free day!

Lori in FL

Title: Re: Back in cycle after 3 yrs
Post by vig on Apr 14^th, 2005, 1:55pm

welcome back Lori in FLori....
read the Kudzu threads...

Title: Re: Back in cycle after 3 yrs
Post by nani on Apr 14^th, 2005, 2:30pm

Sorry you're having a hard time right now, Lori. :( As vig mentioned...do read the kudzu threads. Many have found significant relief with it. Read it all though and look for possible drug interactions. Pain free wishes, nani

Title: Re: Back in cycle after 3 yrs
Post by Lori on Apr 14^th, 2005, 3:40pm

I have read on the kudzu and today ordered two bottles to try. I will wait a week after starting to see if it helps before starting the verapamil. I may go longer if the O2 works to kill the HA's I may get. So glad to see an alternative that seems promising! :)

Title: Re: Back in cycle after 3 yrs
Post by PCMCCK on Apr 14^th, 2005, 7:55pm

Sorry that you are back in cycle after a 3 year break. I'm a chronic since 1996. I was placed on Lamictal in October of 2000 and six months later went into a remission that lasted a year. I faithfully took the lamictal during my remission and both my neurologist and myself thought that the Lamictal was the reason for the remission but, alas, 3 years ago this month the pain returned and has been with me ever since. I remained on the Lamictal for six months after my pain returned, but it did nothing so finally I stopped. One of the characteristics of chronic CH is that it can suddenly go into remission for reasons unknown to science. The remissions can be for weeks, months, years or forever (for the lucky few). I hope that your current cycle remits shortly and for a long time; stay with the Lamictal-who knows, it may work for you. Good luck! - PC

Title: Re: Back in cycle after 3 yrs
Post by sandie99 on Apr 15^th, 2005, 1:29am

I am so sorry that your cycle returned, Lori... :(
I am glad, though, that the beast gave you PF years! :)

PF wishes,
Sandie

Title: Re: Back in cycle after 3 yrs
Post by lionsound on Apr 15^th, 2005, 7:48am

HI Lori!

Sorry you're suffering right now.
Let us know what turns out to work for you. It sounds like you have a very good attack plan.

Welcome back home.

-lionsound

Title: Re: Back in cycle after 3 yrs
Post by E-Double on Apr 15^th, 2005, 8:54am

Hi Lori,
Nice to "meet" you.

Glad to hear that you are prepared. Way to go!

Kick it's a$$!!!

Best to you and here if you need.

Eric

Title: Re: Back in cycle after 3 yrs
Post by Kris_in_SJ on Apr 15^th, 2005, 8:32pm

Hi Lori,

Welcome home!

Kris

Title: Re: Back in cycle after 3 yrs
Post by De_Minimis on Apr 17^th, 2005, 10:42pm

Hi Lori:
Nice to meet another three-year cycle person. We're just weird, plain and simple (and really lucky). No explaining it. Weather is about the same. Diet is a little better. Basically same job. Makes no sense.

Title: Re: Back in cycle after 3 yrs
Post by TonyG1 on Apr 18^th, 2005, 7:08am

on 04/15/05 at 08:54:42, E-Double wrote:

Hi Lori,
Nice to "meet" you.

Glad to hear that you are prepared. Way to go!

Eric

Hi Lori - Nice to meet you! As Eric said, glad to see you are prepared to do the battle with the beast !!! I'm a 2 1/2 year cycle person (or was?) who knows when it will come calling again ... oh well can't worry about that.

Sorry you are in pain and hope the beast passes from you soon !! Many PFDANs !!

Tony

Title: Re: Back in cycle after 3 yrs
Post by supcomm on Apr 21^st, 2005, 1:22am

Hey, cool. My last attack was three years ago, too. It's so easy to forget about the beast when he's gone...until he comes back...(sigh)

Title: Re: Back in cycle after 3 yrs
Post by Lori on Apr 21^st, 2005, 9:41pm

Yes, it is easy to forget but I always wondered "when?"
I must say that this cycle is different. It hasn't progressed like it normally does. It's been three weeks now and I haven't had a bad HA for a week..just shadows. Some very brief and hardly noticable others a bit more than that. I have no idea what this means and wonder will I be spared this time or not. And if so..why?? Certain things are different in my life this time then past cycles so maybe that is why. I can only pray!

Anyway..PF days to you!

Title: Re: Back in cycle after 3 yrs
Post by yikes-another-one on Apr 21^st, 2005, 11:26pm

I felt that way when I had my first Zomig.

the dark stormy pressure lifted,
I felt the sun shine brighter,
and I was listening to birds singing
(like i was Cinderella or something)

That whole week I waited,
kept thinking the red-hot poker would return....
When? When?

My husband thought, "at last, the freak is cured!"
(I said he thought it, he never said it...lol)

and it did stay away a few months....