Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> I could be a late night fan here
        
(Message started by: Dangitboy on Mar 9^th, 2005, 7:26pm)

Title: I could be a late night fan here
Post by Dangitboy on Mar 9^th, 2005, 7:26pm

Hi everyone,
Hope all is well, and you have great sleep and are pain free, but if that was so, you wouldnt be here.
My CH's are back with a vengence, I might need some encouragement here late at night, or we could help each other out. Whichever we Cluster Heads have to stick together, because no one else on this world knows or understands how bad this is.
Anyway, Hope you have a good one, hang in there!

Title: Re: I could be a late night fan here
Post by BlueMeanie on Mar 9^th, 2005, 7:54pm

Welcome Dangitboy,

Here's a link to late night chat for late night sufferers.

http://headachesupportgroups.com/echat45/public/index.html

Take care.

Title: Re: I could be a late night fan here
Post by TonyG1 on Mar 9^th, 2005, 8:53pm

on 03/09/05 at 19:26:44, Dangitboy wrote:

My CH's are back with a vengence, I might need some encouragement here late at night, or we could help each other out. Whichever we Cluster Heads have to stick together, because no one else on this world knows or understands how bad this is.

Hey there Dangitboy. Sorry to hear your HAs are back... you're right we CHs have to stick together. I was extremely excited when I found this site and board! Take care and I wish you PFDANs!

Tony

Title: Re: I could be a late night fan here
Post by E-Double on Mar 9^th, 2005, 9:19pm

If you do have the "typical" wake you up in the middle of the night horrors then.... Melatonin might be a savior.
Many of us (myself included) have found that taking 6-9mg (some take more) about a 1/2 hour to 45minutes prior to bed have Knocked out the night visits and can finally get sleep.

With the exception of 5-6 times.....I have slept through the night since August.....Still get hit during the day but my overall quality of life is better because I am not as exhausted all the time.

Some people report that it seems to make them worse....The fact is that we are all different and respond differently to everything therefore it may or may not...

The one thing I will tell you as far as my experience was that I had to stick with it...The first night I took melatonin, I was awoken with a doozy only I was too groggy to find my O2 .....It got a lot better for me....I then slept through the night but would get slammed about 1/2 hour after waking up....kinda like knocking the beast off schedule.....then again I was peaking and this cycle has been all over the place with no real pattern.
I stayed with melatonin and have had decent sleep overall.

It may help and it is natural with not too many sideeffects....also ask your doctor b/c if there are any side effects or contraindications...I think they have to do with mild depression.....

Like I said we are all different.

Best wishes, good luck & stay as positive as you can!!!!

Eric

Title: Re: I could be a late night fan here
Post by don on Mar 9^th, 2005, 9:19pm

Quote:

Hope all is well, and you have great sleep and are pain free, but if that was so, you wouldnt be here.

Not true. Many of us here have been fortunate enough to be out of cycle for extended periods. We stay to offer support and hope.

And to irritate the living shit out of Jonny.

Trouble with the sleep? Melatonin. I use it now even out of cycle.