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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Update on Laura-Lili.  List of Meds in sep po
        
(Message started by: Lili on Mar 6^th, 2005, 2:16am)

Title: Update on Laura-Lili. List of Meds in sep po
Post by Lili on Mar 6^th, 2005, 2:16am

Hi Everyone
Went to Neurologist on Monday, they did EEG & I started getting a ch half way through the EEG. Also did some kind of nerve tests where they physically shocked me to see nerve function between brain & eye, brain & ear, brain & hands etc. He doesn’t talk much. But he said that some isolation / insulation in my brain is too thin and that’s causing the mood swings, irritability & depression. He then gave me a script that will also help with the clusters. But he wanted to book me into hospital to do a 24hour EEG, check my blood sugar and other blood tests because he said if my blood sugar drops suddenly, it can trigger an attack. He was also concerned as I had bad co-ordination (failed badly a sobriety test so thank god I was never stopped!). I picked up the script Monday night and started using the meds, I also used the meds on Tuesday. I went to hospital Wednesday & Thursday. They did blood tests, the 24 hour halter EEG, heart test, normal blood pressure & temperature, blood sugar, mri scan etc. I got a very, very bad ch Wednesday afternoon while in hospital! The Neurologist spoke to me Thursday night and told me that (I think) the neuro transmitters in my frontal lobe are dysfunctional and they did pick up abnormalities with the EEG. My cholesterol is high & my blood sugar is also not okay. So he gave me more meds and said I need to see my Dietician.

But I see now why it was such a good idea to see the Neurologist and Bob, thank you, thank you, thank you for telling me to see Psychologist. It is unfair what I put everyone close to me through because I didn’t seek help. And I believe that even though there is now a sound medical explanation for the emotional outbursts, the fact that they happened, the aftermath, I need to process and therefore need therapy. I cried from relieve when the neurologist told me most definitely there is a medical reason for the moods! And I’m just thinking that – maybe some of you also has something like this, which is either causing the ch or in addition to the ch. And I been to a Neuro 11 years ago who diagnosed cluster headaches and each cycle I didn’t see a neuro again, because I thought they can’t do anything for cluster headaches , they aren’t curable. And that’s true. But technology changes and modern technology can do things and show things they didn’t know 11 years ago!

I haven’t (touch wood) had a ch since Wednesday. I’ve had mild shadows Thursday, and that’s it. I also feel much stronger emotionally. It’s like my head cleared! But it’s bad, because now you have to repair all the “sores” you made. My boyfriend keeps telling me that I should stop apologizing, there’s no need to apologize ‘cos you don’t apologize for things you did when you’re sick, but I wasn’t a nice person to be around! I will most definitely continue seeing David, the Psychologist. But this is the first steps to being better and I am glad I am where I am now, rather than where I was last week this time!

I am giving list of meds in separate post ‘cos can’t post long messages.

Title: Re: Update on Laura-Lili. List of Meds in sep po
Post by Bob_Johnson on Mar 6^th, 2005, 9:36am

It's such a relief to read that you have found some good medical support and that you're on your way to handling what sounds like several, complex issues. Perhaps, the next few weeks will be demanding on your patience as you adjust medications/doses--but patience will be needed.

The list of meds indicates some for clusters, some for the other issues. At this early stage, I'd encourage you to put your faith on your physicians' guidance/judgments. We are not in a position to evaluate this mix of meds--are they useful or appropriate, etc.

Support we can offer! So keep us informed.

Title: Re: Update on Laura-Lili. List of Meds in sep po
Post by Lili on Mar 6^th, 2005, 11:39am

Bob
I know I said thank you in the post. But I again want to thank you so much. A combination of things broke through my stubborness, and you were one.
Gator - thank you for the links & the logical way you were able to get through to me.
Thank you to EVERYBODY else: Sandie, Sean, Nani and everybody. This may sound cruel but you guys really made me realize that I need to take the next step, even if it isn't for myself but for the people that care about me.

This site is really most powerful. And it's the people that makes it so.

Title: Re: Update on Laura-Lili. List of Meds in sep po
Post by Gator on Mar 7^th, 2005, 12:55am

I am very happy that things seem to be turning around for you. Sounds like you have a good medical team helping you. It also sounds like your boyfriend is a good supporter.

You are right about this place. It has been a life saver for me and so many others. The knowledge and support I have received has been a blessing to me and I try to repay that by being here for others.

Like Bob said, keep us posted on how things are going.