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New Message Board Archives >> 2005 Cluster Headache Specific Posts >> We 86 Tomomax!!! Thanks just in time.
(Message started by: snook on Feb 22nd, 2005, 11:52am)

Title: We 86 Tomomax!!! Thanks just in time.
Post by snook on Feb 22nd, 2005, 11:52am
:P  Hey ya'll, my thanks from buzz and I. ? B2 WAS PERSCRIBED to BUZZ any suggestions on the amount he didnt tell buzz said it would help, also what if any meds has worked for ANYONE to shut down chs for at least a desent time peroid. He wants to try o2 having problem with va so far in getting it, so now hes on zomeg 5mgs 6 a month, verapamil 180mds daily, thank god hes off the tomamax you all helped nix that he was showing sighns of being blonde ( even though he is you know what i mean turning on the heat instead of ac, lost train of thought etc sooooo glad hes off that shit, boy this ride is like watching him as a human guienea pig anywho later my friends pf day to you all love SNOOK

Title: Re: We 86 Tomomax!!! Thanks just in time.
Post by JJA on Feb 22nd, 2005, 12:11pm

on 02/22/05 at 11:52:46, snook wrote:
what if any meds has worked for ANYONE to shut down chs for at least a desent time peroid

www.clusterbusters.com

Title: Re: We 86 Tomomax!!! Thanks just in time.
Post by jasckorohod on Feb 22nd, 2005, 12:21pm
Do you mean Topamax?  I'm about to start a trial of that medication tomorrow; if that is what you are writing about, I'd like to know what effects, good and bad, that it had.  I will be working my way up to 100mg a day over a 4 week period (starting with 25mg tomorrow, etc.).  Thanks.

Title: Re: We 86 Tomomax!!! Thanks just in time.
Post by sandie99 on Feb 22nd, 2005, 12:40pm

on 02/22/05 at 12:21:31, jasckorohod wrote:
Do you mean Topamax?  I'm about to start a trial of that medication tomorrow; if that is what you are writing about, I'd like to know what effects, good and bad, that it had.  I will be working my way up to 100mg a day over a 4 week period (starting with 25mg tomorrow, etc.).  Thanks.

check out older messages on this board.
But let's just say that if you're not a zombie now, you could turn into one... and I got 24/7 HA for nearly a week... not to mention, 11 CHs a day!!!! >:(

Title: Re: We 86 Tomomax!!! Thanks just in time.
Post by Gator on Feb 23rd, 2005, 6:00am
Sorry.  I am still looking for that magic med or combination of meds myself.  So far I've tried various combinations of

Exercise, Heat, Ice Packs, Water

OTC meds: Tylenol Allergy Sinus, Excedrin, Pseudofed, Tylenol PM, Benadryl, Motrin, Melatonin, etc

Prescription Meds:  Naproxyn, Relpax, Indomethacin, Percocet, Demerol, Fioricet, Topamax, Verapamil, Lithium, Depakote, Trileptal, Tegretol, Nortriptyline, Prednisone,  Halcion, Sonata, Seroquel, Oxygen, Zomig, Imitrex

What has actually worked:  Prednisone (stops working as I taper down), Oxygen, Zomig and Imitrex.  Sometimes ice seems to help the O2 work faster.  Sometimes a hot shower helps break a shadow.

What's next?  Neuro #3, Kudzu and if nothing else - maybe Clusterbusters


Quote:
Posted by: jasckorohod on: 02/22/05 at 11:21:31
Do you mean Topamax?  I'm about to start a trial of that medication tomorrow; if that is what you are writing about, I'd like to know what effects, good and bad, that it had.  I will be working my way up to 100mg a day over a 4 week period (starting with 25mg tomorrow, etc.).  Thanks.  


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