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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Thanks guys, Im BUZZ
        
(Message started by: snook on Feb 19^th, 2005, 3:15pm)

Title: Thanks guys, Im BUZZ
Post by snook on Feb 19^th, 2005, 3:15pm

first i would like to thank everyone for all their caring and support for me and my wife SNOOK.I DONT WANT YOUY TO GET THE WRONG IDEA this web site doesnt bum me out its just im so exhausted just talking about it , but i know this has been a lifesaver foir my wife.i guess some of you know my story by now. the va dococtor just put me on topomax but now im getting shadows three or four times a day.the va gives me six 5mg tabs a month to be cut in half ive had them a week got 6 doses left. tonight i go up to 3 topomax at bedtime . this is snook Im afraid buzz got alittle frustrated chs and all he had his 1st hit today and as clockwork another two will come. H refered to the 6 pills he gets that he has to break in half zomeg there so expencsive that worries him always fear of running out. I think hell return again to the site big step Im happy, I dont know what else he would have written or what ? he wanted to ask its a start SNOOK THANKS GUYS

Title: Re: Thanks guys, Im BUZZ
Post by nani on Feb 19^th, 2005, 3:20pm

Hi snook and Buzz...it is frustrating and exhausting. I've never taken Topamax, so I can't somment on it. I have recently found something that seems to be working for me. Look at this thread and read it all the way through. It's long, but worth reading.There's a lot of technical info in the thread, but you can just look at the posts that apply. I sincerely wish you luck with this. Pain free wishes and lots of hugs, nani

http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1107368408

Title: Re: Thanks guys, Im BUZZ
Post by Frank_W on Feb 19^th, 2005, 7:56pm

Hello again, Snook. Buzz, it's nice to meet you. Welcome aboard. I understand your frustration, too. Hang tough, pal.

-Frank

Title: Re: Thanks guys, Im BUZZ
Post by Kris_in_SJ on Feb 19^th, 2005, 8:09pm

Welcome Buzz. Don't give up. As Frank said, "Hang Tough!"

I've never had to try Topomax, but many here have had some pretty intense side effects from it. Clusterhead treatment is largely trial and error.

If it's making you worse or giving you bad side effects, you just have to try something else. You're lucky to have a strong supporter. You hang in there too, Snook!

Many Hugs,

Kris

Title: Re: Thanks guys, Im BUZZ
Post by Gator on Feb 19^th, 2005, 11:52pm

Well hot damn! Glad you could drop in and say hi. Sorry things are going so rough for you just now. With regular insurance companies, sometimes they will give you more of the meds you need if your doctor will write a letter of medical necessity saying how many you need. My neuro got my insurance company to give me 30 Zomig Nasal Sprays per month even though they normally only approve 6. I don't know if it will work with the VA. Even though I spent almost 10 years in the service I can't use the VA because, "we make too much money." Friggin news to me. Barely getting by is making too much money these days. ACK! Enough of that. Anyways, the letter of medical necessity is worth a try. The worst they can do is say no.

Again, I want to welcome you to our little corner of the funny farm. Snook, thanks for everything you do. Wishing you some pain free days and nights (PFDAN).

Title: Re: Thanks guys, Im BUZZ
Post by sandie99 on Feb 20^th, 2005, 5:49am

Nice to see you here, Buzz! :)
Welcome!

Frustration is familiar to me what comes to CH... I'm seeing neuro again in March. This time verpamil isn't working too well... ::) But I've been there before. CHit happends... ;)

I am afraid sometimes with some of my friends that I'm turning them into my CH therapy group...but then again is talking about CH any different than talking about bfs and gfs? Don't think so.

Anyways, I hope you're PF soon, Buzz.
All the best for both of you, Buzz & Snook! :)

Wishes,
Sandie