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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> the fear of the pain
        
(Message started by: blaughland on Feb 1^st, 2005, 1:11pm)

Title: the fear of the pain
Post by blaughland on Feb 1^st, 2005, 1:11pm

just found this site i have been taking these headaches for the past 6 years jan to march at the same time seen my gp he said i need glasses thought no not glasses the pain is extreme every night beetween 10pm 12am it wiil last for 1hour then come back between 4am 5am .i have had my glasses for 4 weeks but i see constant shadows with them so i went back to the optiction he said the glasses were fine but now i no what the shadows are i think only last thursday i had the mother of all it was blindingi felt my whole right side was in severe pain i felt like taking my eye out ;)

Title: Re: the fear of the pain
Post by nani on Feb 1^st, 2005, 1:28pm

Welcome blaughland and I'm sorry you're here. Eyestrain would not cause such extreme pain, in my opinion. I think it would be a good idea to see a neurologist and get a diagnosis. While you're waiting for your appointment, look around the boards here and at the OUCH site (link to the left) and print out any information that may be helpful in the diagnostic process. Good luck and pain free wishes to you, nani

Title: Re: the fear of the pain
Post by clarence on Feb 1^st, 2005, 2:04pm

Hey blaugh,

I see you are in Glasgow. I just moved from Edinburgh a few months ago. There was someone else here from Glasgow. Well, not from Glasgow, but going to Uni there. I thought I had her screen name, but i can't find it. Anyway, I agree with nani. Get to the doc, and hopefully get oln to the neuro. In Edinburgh I was referred to a headache clinic where I had a great neuro. I imagine there will be something similar in Glasgow as well.

I hope it gets better for you. Read some of the info at the site. The OUCH UK site is very helpful for UK specific issues, such as getting oxygen, getting the right mask, etc...

Pubgirl was real helpful to me when I first got here. The UK site is fantastic. Get on there or call them for some great support. But stick around here too!

Casey

Title: Re: the fear of the pain
Post by Frank_W on Feb 3^rd, 2005, 12:27am

Welcome, Blaughland.

Between now and the middle of February, I'm expecting to go into cycle. I was talking with another clusterhead and they said it was like living with an anvil hanging overhead, knowing that the cord could snap at any moment. I thought that a pretty apt description of the fear that we live under...

Welcome to the board. Sorry you have reason to be here...

-Frank

Title: Re: the fear of the pain
Post by blaughland on Feb 3^rd, 2005, 2:32pm

thanks very much doctors app next week . also phoned ouch missed the call last night phoning tonight 3/02 05 this site has learned me what i have been suffering for the past 6 years the doctor would just give me over the counter painkillers i would tell him they are no good this time i will be armed with the help of this site he will no what ch are when i leave his surgery i think i have printed a book about this site for him........thanx..................ps at the begining my old uncle would tell me to eat oranges when i thought i had any headache coming i dont no if it was in my mind but i think it worked then .....brian

Title: Re: the fear of the pain
Post by guesst on Feb 3^rd, 2005, 2:33pm

on 02/01/05 at 13:11:00, blaughland wrote:

i had the mother of all it was blindingi felt my whole right side was in severe pain i felt like taking my eye out ;)

Now THAT sounds like ch. Welcome aboard.

Title: Re: the fear of the pain
Post by ArCane on Feb 3^rd, 2005, 3:15pm

Welcome blaughland sorry you have to be here but glad you are. Everyone here is alot of help to me and I know they will be to you. PF vibes heading your way.

Title: Re: the fear of the pain
Post by BMoneeTheMoneeMan on Feb 3^rd, 2005, 10:31pm

man, i hear ya about the fear of the pain that will come.
welcome and good luck in getting relief. there are several meds and prescriptions that are talked about here that should bring you some relief.
You have to demand things from your Doc. Tell him your quality of life is in the shitter and you need these items in the worst way.
I took OTC and prescription painkillers and they only seemed to make it worse for me. I was poppin like 20 pills a day of a mixture of painkillers.
PF wishes
BMonee

Title: Re: the fear of the pain
Post by Frank_W on Feb 3^rd, 2005, 11:43pm

Ditto, Monee. For the past eight years, everytime I was in cycle, I probably ate my own weight in sinus headache medication... Ugh... Amazing that my liver still functions!

-Frank

Title: Re: the fear of the pain
Post by ArCane on Feb 4^th, 2005, 1:14am

I describe the fear to people like this. Its like being a POW for 3 months and getting the shit beat out of you everyday. Then one day your finally released to your own government, but they are in need of good men for the war. They send you right back over to the country you just came back from. You live everyday in fear that your going to be captured and tortured once again.

Title: Re: the fear of the pain
Post by clarence on Feb 4^th, 2005, 7:29am

ArCane,

Nice description. It resonates.

Casey

Title: Re: the fear of the pain
Post by E-Double on Feb 4^th, 2005, 8:06am

on 02/04/05 at 01:14:59, ArCane wrote:

good one!!
I'll be quoting that one.

Title: Re: the fear of the pain
Post by blaughland on Feb 4^th, 2005, 4:16pm

two days where it has gone i do not no........always seem,s to finish when i dont have to work ... the tingle is still there ..... suppose the fear will always be there..........someday i will have just the normal everyday headache...if ..only..the mind will decide.xx

Title: Re: the fear of the pain
Post by Night_Zombie on Feb 4^th, 2005, 4:52pm

Hi,
Bet you are glad you found this site :) I cant tell you how much its kept me goingxxxx
One word about the Docs in our part of the world(im from Scotland also), dont let them fob u off, push push and keep pushing till you feel you are getting some place, Im not long on meds,and Im sure all on this site will tell you it's hard to get it right, but keep with it.

Title: Re: the fear of the pain
Post by blaughland on Feb 4^th, 2005, 7:17pm

thanx