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Title: May be of help to you Post by Reneee on Feb 1st, 2005, 10:36am I am 42 and started around 20 years old with my CH. They come like clockwork around every 2 years for 2 to 3 months. I never knew what they were until I researched it myself a few years ago. My doctor wanted to give me a preventative - high blood pressure medicine but I didn’t feel it would work during a cycle so I just bought excedrin migraine and continued to read. Over time I heard about ice, which helps, and I also tie a bathrobe tie as tight as possible around my head like a ninja, until my head becomes numb. That also helps a little. It brings the pain from a 10 to a 7. Last week when my cycle started getting to peak again I got online to see what else I could do and found a sight called SinusBuster. I bought the stuff and got it yesterday. It worked instantly but didn’t eliminate the headache all together but brought the pain to a manageable pain level of 2 to 3 which the ice pack took care of. I had to use 6 squirts instead of the recommended 1-3 but I would use the whole bottle if I had to. After using it before bed last night I slept all the way thru til 7am with no headache at all! I got up and was so excited but then I started feeling the dreadful twinges. I instantly used more nasal spray stuff and thru the ice pack on. The headache never got past a level 3 and went away after 15 min. Today is only my second day using it but I felt I needed to share this with anyone with a cluster headache because I would want to know if it was me. It was $9.99 and worth every penny. I’m carrying it around in my pocket like it’s gold. Maybe it’s a coincidence but I don’t think my cycle is on it’s way out yet, it’s only been 3 weeks-I think the stuff works. You definately need more squirts than they say and you need some big squirts which burn but it’s better than a CH. Also, don’t forget to shake it. Go to http://www.sinusbuster.com/index.html Let me know if it helps. P.S. I do not work for SinusBuster, I'm just a sufferer. Renee |
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Title: Re: May be of help to you Post by floridian on Feb 1st, 2005, 10:44am on 02/01/05 at 10:36:13, Reneee wrote:
Applying a tourniquette to the head is NOT safe NOR is it a good idea. I'll leave it at that. |
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Title: Re: May be of help to you Post by guesst on Feb 1st, 2005, 10:49am ::) |
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Title: Re: May be of help to you Post by floridian on Feb 1st, 2005, 11:01am I recommend Ms. Kim Chee, perhaps she may be of help to you. She's a spicy little dish, every day when I come home to her, she make's my mouth water and eyes burn. More capsaicin than a squirt of some other products, with Kim Chee you don't have to remember to shake it!! |
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Title: Re: May be of help to you Post by LeLimey on Feb 1st, 2005, 12:30pm Hey DD!!! Redd!!! Your troll is here!!! Get your sticks ready girls!! [smiley=laugh.gif] Begone before someone drops a house on your head.. if you want to practise quackery go and look for donald-duck.com |
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Title: Re: May be of help to you Post by nani on Feb 1st, 2005, 12:33pm I tried Sinusbuster. In my last batch of chili...I'm gonna stick with tabasco. |
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Title: Re: May be of help to you Post by Reneee on Feb 1st, 2005, 2:51pm All I know is I have been pain free for the whole night and day! The first time in weeks. Without DRUGS!!! SinusBuster worked for me, sorry if you're too closed minded to appreciate that. You can make fun all you want but some other sufferer may find some relief and I don't think it's fair to them that you act all high and mighty. I am only writing to help someone, not because I have nothing better to do with my life than sit and chat with strangers. As far as the bathrobe tie goes, I don't really care how dangerous you think it is, I have been doing it for 22 years and I'm still here. |
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Title: Re: May be of help to you Post by floridian on Feb 1st, 2005, 3:00pm I've been talking with Vig, and we have come to the agreement that Kim Chee is addictive - he wasn't hooked, but his friend was and I am. If I can taper off the stuff, I will switch to tobasco or sinus bustier. |
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Title: Re: May be of help to you Post by LeLimey on Feb 1st, 2005, 3:03pm Well maybe if you spent FIVE MINUTES researching this site you would see how many times people have come on recommending total crap such as sinusbusters. Plenty of real research has been done and do you REALLY think anyone would use expenisve meds most can hardly afford to pay for if such twaddle worked? Why don't we all just go out and buy a pound of chilies and snort them huh? Now lets see... you registered about four hours ago and posted within ten minutes of that. I really think you did ALOT of reading to see what other people have found didn't you? How many other sites with desperate people in pain have you |
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Title: Re: May be of help to you Post by floridian on Feb 1st, 2005, 3:20pm Honestly From a sinusbustier press release: Quote:
No legitimate budget... yeah, that sounds accurate. Guerilla marketing by impersonating clusterheads. Over and over. http://www.sinusbuster.nl/images/Image1.gif For Your Information: Bell peppers and sweet peppers do not contain capsaicin. You should inform your Dutch lackeys to correct their website. |
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Title: Re: May be of help to you Post by guesst on Feb 1st, 2005, 3:48pm on 02/01/05 at 14:51:08, Reneee wrote:
Not close minded at all, I've tried putting that shit up my nose. |
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Title: Re: May be of help to you Post by Reneee on Feb 1st, 2005, 3:51pm I've spent the whole week reading about all theDRUGS everyone is on and yes, I had resigned myself to the fact that, I too, would have to get some if the Sinus stuff didn't work, but it did. You can think I'm from sinus buster all you want. Who are you kidding, are you afraid to spend $10 for relief. I don't care if that company is worth billions, it helped me. They can make trillions for all I care, as lng as they keep making the stuff. I have the best insurance going and could probably get all the drugs I want for free, but then I might get addicted like my sister did when she got her finger ripped off. It took her 3 months of counseling and sleeping pills to come off her pain meds. I'M DRUG AND PAIN FREE!!!!!! HOW ABOUT YOU? |
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Title: Re: May be of help to you Post by LeLimey on Feb 1st, 2005, 3:52pm nope not pain free.. you are still here.. |
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Title: Re: May be of help to you Post by vig on Feb 1st, 2005, 3:59pm well then, why don't you tell us all about your cluster history and the drugs you tried first then? who was your doctor? your neuro? |
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Title: Re: May be of help to you Post by guesst on Feb 1st, 2005, 4:01pm on 02/01/05 at 15:51:10, Reneee wrote:
Well, let's see I've been taking meds for ch for about 11 years, have yet to find one that is a pain killer or that is addictive. Have been able to STOP taking my meds as soon as a cycle has ended. Trust me, no one here wants to take the meds that they are on. |
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Title: Re: May be of help to you Post by floridian on Feb 1st, 2005, 4:27pm Sinus buster is marketed as a 'cure.' It is not. A few people have reported pain relief from capsaicin (the hot ingredients in some peppers), but the cluster headaches keep coming. It IS a medicine, it IS a drug. You may feel more comfortable with it for various reasons, but that is a different issue. We have had so many shills promoting sinusbuster here - first post, pretending to have clusters, they were skeptical, but hey, why not give it a try - and voila! They are cured. Except when (as has happened) they get tripped up in their own lies and admit that they are from the sinusbuster company. If you have cluster headaches, you are not cured by sinus busters. Maybe it will help you ride out this cycle. But you are not cured, not even pain free by your own admission - just partial relief. Hot pepper can block certain pain messages - think of it as a potentially useful drug, for some people the 'aspirin for clusters.' Quote:
Lots of companies make hot sauce, capsaicin cream, etc. It is easy to add a controlled amount of heat to a little salt water and put it in a spray bottle. Lots of us here have done that ourselves - a few people thought it helped some, for most, it caused lots of burning/tears but little or no pain relief. |
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Title: Re: May be of help to you Post by Tom_Thumb on Feb 1st, 2005, 4:36pm WELL FOR ALL OF THAT CRAZY STUFF GOING AROUND. I THINK SOMEONE SHOULD TELL YOU THAT IT IS NOT A GOOD IDEA TO TELL THE PEOPLE HERE IN REAL PAIN ABOUT SOME KIND OF S--- THAT YOU NO ABOUT WITHOUT TALKING TO US FIRST . WE ALL WOULD SNORT CLOROX IF IT HELPED .BUT THANKS TO YOU REAL CH YOU OPEN MY EYES ABOUT THIS SITE. I DID NOT EVEN THINK ABOUT THAT LONG IN DATE .ABOUT SOLD ME MY DAMN HEAD IS KILLING ME!!!! OH YEAH NOW I AM LEARNING LOVE YOU GUYS |
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Title: Re: May be of help to you Post by Reneee on Feb 1st, 2005, 5:24pm From what I hear there is no cure, so what else is there but to ride out a cycle? That's more than I can ask . For years I had nothing, I didn't even know about ice until 2 cycles ago, about 5 years. I found great relief in the ice. Are you going to say that the ice is quacky too? I heard oxygen can HARM your lungs. If you think pepper is a drug then there's something wrong with you. I guess I've been giving my kids drugs for years in all the chinese and mexican food they eat. I'm not begrudging anyone their drugs, like I said, I was headed in that direction, but if someone out there can benefit from the spray like I have wouldn't you agree that it was a good thing? Maybe it's just a freak thing that it worked but I still feel it's my obligation to let sufferers know. There are people out there slamming their head on the floor and you think pepper spray is going to harm them? And by the way, the spray I used only burns for a few seconds, I don't think a homemade recipe of pepper and salt water would be as comfortable. It didn't even cause tears. |
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Title: Re: May be of help to you Post by cathy on Feb 1st, 2005, 5:58pm What is it with you lot...??? okay maybe you have to pay for this BUT and here is my twopennithworth (sp) all Reneee is doing is saying it worked for HER!! and maybe just maybe it could work for someone else...and in my book if one person is helped then it's worth knowing about.....thanks Reneee for passing this on.... |
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Title: Re: May be of help to you Post by Reneee on Feb 1st, 2005, 6:21pm Thank you Cathy, that's all I really wanted to do. I was so excited today when I realized I had slept all night and this morning I only had a shadow of a headache that went right away that I felt I needed to share it with everyone. I've been miserble for 3 weeks and today, even though I'm menstruating, I feel great! I don't even have a menstrual headache! I'm finally off the couch and out of bed-all day. I was never a chronic sufferer so maybe my ch is not as bad as some peoples but I've had PLENTY OF 10's on the pain scale to know what it's all about. Thanks again Cathy and good luck to everyone. Even though some of you are real jerks and would like a house to fall on me, someone should strangle me and some of you should get your sticks out, I still don't wish this pain on you. I hope you all feel better. This is a terrible affliction. But you should think real hard before you start harrassing someone else. |
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Title: Re: May be of help to you Post by guesst on Feb 1st, 2005, 6:27pm on 02/01/05 at 18:21:29, Reneee wrote:
I never said anything of the kind. I am just not a believer in that particular product. |
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Title: Re: May be of help to you Post by _L_ on Feb 2nd, 2005, 1:13am SINUSBuster? Never heard of it. Blah |
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Title: Re: May be of help to you Post by Major_Headcase on Feb 2nd, 2005, 1:35am Reneee, "The Strangler" here ... my apologies, Troll or not you didn't deserve my crass comments. I deleted that post ... embarrassed I put it up actually. A couple hours later I felt like I'd taken part in a playground "pile on" ... I'm sorry. I think I better STFU and leave it up to the official Troll Patrol ... [smiley=bag.gif] -John ... I'm glad it works for you, but I still have my doubts |
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Title: Re: May be of help to you Post by Sophie on Feb 2nd, 2005, 9:56pm I fell for the sinusbuster spray and gambled my $10.00. I found that if I used it, as soon as the first twinge of CH, I could delay the hit for 10 or 15 minutes. Not a cure for me---but has bought me some time to get home and buckel down for the real thing. I believe it will help a sinus problem, but after some use, you can have an irratated throat. Just my experiance--------always hoping Sophie :) |
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Title: Re: May be of help to you Post by LadyElaine on Feb 3rd, 2005, 1:04pm I don't know if you work for sinusbuster or not. It does not matter to me if you do or don't. I will try the spray, because I can no longer take imitrex for my clusters. Before I found out that what I had was clusters. I did some of the same things you listed. I find myself doing them again now that I am without meds. I use breath easy strips at night on my nose. I treat the different pains with over the counter stuff. I use oral jell for my gums, I use sinus meds for my face pain, I use ice for the pain in my eye. I am like you durning the pain even knowing the danager I would do things like a scarf around my head. When your in the kind of pain we are in and you have no meds you reach for what ever. I have learned from some here how to deal with my pain in away that keeps me calmer than I use to be. I keep in my mind it will end, I won't die and that keeps me calmer. I don't write anything off unless I have tried it ! I can't now that I can't use imitrex. |
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Title: Re: May be of help to you Post by BlueMeanie on Feb 3rd, 2005, 1:19pm on 02/03/05 at 13:04:55, LadyElaine wrote:
That's funny... I have thought about making a helmit kinda contraption where threaded rods with rubber cups are statigically set in place so I can turn them in at the pressure points needed instead of using my hands and fingers. My wife just laughed at me saying I was nuts. (what's new). Haven't made it yet, but one day I just might. |
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Title: Re: May be of help to you Post by Frank_W on Feb 3rd, 2005, 1:25pm If/when you do, can I buy one? :) |
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Title: Re: May be of help to you Post by BlueMeanie on Feb 3rd, 2005, 1:29pm on 02/03/05 at 13:25:30, Frank_W wrote:
LOL... I guess I better patten it and sell them to Clusterheads. Of course at a discount to CH.com folks. ;) |
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Title: Re: May be of help to you Post by nani on Feb 3rd, 2005, 1:30pm I'll taKe one. :) |
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Title: Re: May be of help to you Post by guesst on Feb 3rd, 2005, 1:32pm I'm being serious here, I know that may come as a shock to some of you, but could you make the cups vibrate? |
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Title: Re: May be of help to you Post by nani on Feb 3rd, 2005, 1:33pm on 02/03/05 at 13:32:00, guesst wrote:
...at varied speeds. With a dark visor. |
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Title: Re: May be of help to you Post by BlueMeanie on Feb 3rd, 2005, 1:36pm I'm sure it's possible. I already use a message vibrator that I press as hard as I can on those pressure points. Just have to use the same mechanics. ps: For the dirty minded ppl, no it's NOT one of those vibrators.[smiley=laugh.gif] |
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Title: Re: May be of help to you Post by nani on Feb 3rd, 2005, 1:37pm on 02/03/05 at 13:36:33, BlueMeanie wrote:
Honey...they're all those kinds of vibrators. [smiley=bloos.gif] |
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Title: Re: May be of help to you Post by Frank_W on Feb 3rd, 2005, 1:44pm LMAO, Nani! |
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Title: Re: May be of help to you Post by rickyshot on Feb 3rd, 2005, 2:02pm This sounds exactly like Cindee who was trolling these boards two weeks ago. [smiley=stfu.gif] |
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Title: Re: May be of help to you Post by BobG on Feb 3rd, 2005, 2:42pm on 02/03/05 at 13:32:00, guesst wrote:
Why not put your cell phone on vibrate and call yourself? ;) |
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Title: Re: May be of help to you Post by nani on Feb 3rd, 2005, 2:43pm on 02/03/05 at 14:42:03, BobG wrote:
LMAO Bob! |
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Title: Re: May be of help to you Post by guesst on Feb 3rd, 2005, 2:44pm on 02/03/05 at 14:42:03, BobG wrote:
You ever tried to use a phone while getting hit, besides as something to bash against your skull? |
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Title: Re: May be of help to you Post by Frank_W on Feb 3rd, 2005, 2:47pm For you folks that are given to uncontrolled head-banging: Stop it. Just... stop it. When I am getting hit, I've found that it's just as effective (and a hell of a lot less masochistic) to gently and rhythmically "pat" the area over the affected eye with the fleshy portion of my palm. It seems to diffuse the pain; "spread it out" a little. Reformed Head-Banger, -Frank |
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Title: Re: May be of help to you Post by West88 on Feb 5th, 2005, 3:08pm I cant take the triptans and thats the only thing that really worked for me. So I appreciate all the posts on this site. Too bad theres not a board with alternative methods for those that want to share. I know that there are a few salesman out there pushing a load of crap, but for .1% of the population, and probably only 10% of them, I don't see a big profit headed their way. West |
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Title: Re: May be of help to you Post by Sean_C on Feb 5th, 2005, 11:09pm Is this the Renee we all know or is this a new Reneee? I've use sinus medication during a cycle because my nose gets completely blocked during a hit. Its usually my first symptom that its coming. And I swear by it. Nothing worse than being unable to breath your o2. Cheers Sean.......................... |
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Title: Re: May be of help to you Post by vig on Feb 5th, 2005, 11:15pm This is NOT our Renee... |
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Title: Re: May be of help to you Post by Renee on Feb 6th, 2005, 5:32am Vig, Thanks for clarifying. This is NOT me but her. She is not me. If she were me, me would leave but since she's not me I won't leave. [smiley=laugh.gif] Note, she spells her/his name Reneee. Mine is Renee. Freakin' troll trying to mimic others as well. 'nuff said? [smiley=laugh.gif] [smiley=laugh.gif] RenEE |
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Title: Re: May be of help to you Post by Gator on Feb 8th, 2005, 9:02am Geez! I gotta check the other boards more often. I checked out the sinusbuster website last year after a snake oil salesman made his rounds. After reading through the website and finding many contradictions and some plain old incorrect info, I e-mailed the company to point out the errors and inconsistancies. All I got back was some double talk, a few excuses and an offer to sell me their product from some guy named Bob using someone named Joyce's e-mail account. |
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Title: Re: May be of help to you Post by vig on Feb 8th, 2005, 11:48am Funny, she hasn't been back to try to clarify the issues... |
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Title: Re: May be of help to you Post by Gator on Feb 8th, 2005, 12:12pm They never do. |
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