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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Wahoo! It works!
        
(Message started by: phydeaux on Jan 27^th, 2005, 11:13pm)

Title: Wahoo! It works!
Post by phydeaux on Jan 27^th, 2005, 11:13pm

I've been seeing Dr. Neil Raskin, and we have found what seems to be working for me (so far, so good!)

Using Verapamil as a preventative has been wonderful. I'm at 1000mg / day, and have now gone three weeks with only minor headache and no CH at all. This is the longest I have been without in three years!

Mucho water and Oxygen have been my key abortatives, with the od slapshot of Demerol thrown in.

But three weeks! I feel like a new man!

Wahoo!!

Title: Re: Wahoo! It works!
Post by BigRick on Jan 28^th, 2005, 2:37am

Thats great news,Im glad to hear you're getting a handle on things.3 years is an AWFULLY long time to go without a break.You must be one strong SOB.

Title: Re: Wahoo! It works!
Post by phydeaux on Jan 28^th, 2005, 3:12am

not always. It's been really REALLY tough. But I have a GREAT wife, who has helped more than I can ever say.

Title: Re: Wahoo! It works!
Post by sandie99 on Jan 28^th, 2005, 3:14am

I'm so happy for you that you've found meds, which work! :)

Best wishes & lots of more PFdays,

Sandie
another chronic

Title: Re: Wahoo! It works!
Post by Tom_Thumb on Jan 28^th, 2005, 5:08pm

That 's great you have found what works . Jump for joy and keep on smiling you deserve any and everything you want . WOW 3 years of hell an NOW let it all hang out . LOVE THAT WIFE BE THERE FOR HER SHE MUST BE A VERY GOOD LADY . BEST OF LUCK MANY PF DAYS TO COME

Title: Re: Wahoo! It works!
Post by mynm156 on Jan 31^st, 2005, 6:50am

Rock on dude!!!

Stay that way!

MYNM156

Title: Re: Wahoo! It works!
Post by RichardN on Jan 31^st, 2005, 2:33pm

[smiley=sayyes.gif]

Title: Re: Wahoo! It works!
Post by BMoneeTheMoneeMan on Jan 31^st, 2005, 11:44pm

That's really cool man!! I have been lucky lately. I have started verapimil and I think it may be working. I also have started taking melatonin and dyphenhydramine before bed and I sleep through the whole night with not so much as a shadow. When I wake up, i do not feel groggy at all. For the first time in many months, I slept through the whole night!!
It's completely amazing, I wake up feeling totally rejuvenated and refreshed.
I think you'll agree: thanks to this board and all the supportive people here.
PF wishes
BMonee

Title: Re: Wahoo! It works!
Post by Major_Headcase on Feb 1^st, 2005, 5:32pm

Just a reminder ... taper off the Verapamil slowly when you think your cycle's over; you don't want to quit suddenly. I was at 720mg (240mg SR 3X day) Verapamil this past cycle and my doc has me dropping down by 120mg every 2-3 weeks. I have high blood pressure so I stay at 240mg SR 365/year.

CONGRATS on finding something that works for you!! ;;D

Title: Re: Wahoo! It works!
Post by Frank_W on Feb 3^rd, 2005, 12:22am

Congratulations on finally getting some relief! Wonderful news!!

What happens if you drop Verapamil suddenly?

-Frank

Title: Re: Wahoo! It works!
Post by Ruth on Feb 3^rd, 2005, 10:23am

This is wonderful news, so happy for you.
Enjoy your PF time.

Ruth

Title: Re: Wahoo! It works!
Post by ahf330 on Feb 3^rd, 2005, 7:27pm

I've been seeing a headache specialist for about 10 years. Same one. Trie numerous drugs until we found the right combo. I am usually on Depakote 500mg AM and PM as well as Verapamil 120 AM and 180 PM. Right now I am in a cluster. Have been for 4-5 weeks. Doubled the meds. Hop it works.

I go in the Hospital about once per year for IV drug treatment when I can't get out of cluster. That might be soon.

Glad to hear that you are on the right road to recovery. :)