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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Thankful I found this board
        
(Message started by: KristenNYC on Jan 22^nd, 2005, 8:46pm)

Title: Thankful I found this board
Post by KristenNYC on Jan 22^nd, 2005, 8:46pm

Hi Everyone,

My name is Kristen, I am 27 years old, and I have been suffering with episodic CH's for the past 12 years.

I have gone as long as 5 years without a headache, and doom knocked on my door again about 6 weeks ago. For years the only way I dealt with them, was an ice pack, crying, and pacing. No doctor ever knew what was wrong with me. MRI upon MRI revealed nothing. 2 weeks ago, I made an appointment with a neurologist, and he was the first doctor in 12 years to figure it out. I went with printouts from this board. He prescribed me Verapamil, once a day, and Imitrex shots. I am at the point right now where they are only lasting about 20 minutes or so without meds. I only have 3 shots left, and because of me medical insurance, I cant get another 4 for 20 days. So, I have been suffering without the meds, just in case I get a real whammy. Mine are like clockwork. 10 pm, and 5 pm. I find that the trex shots really work for me. When I get my 5 am CH, I usually log on here and read, and before I know it, its gone.

Well, I just wanted to introduce myself, and say thank you to ALL of you, for being here, sharing your experiences, and giving helpful advice.

Kristen

Title: Re: Thankful I found this board
Post by Langa on Jan 22^nd, 2005, 8:51pm

Hi Kristen and Welcome!

Quite a few of us from NY, myself included...maybe we'll do a meet and greet soon.

Langa 8)

Title: Re: Thankful I found this board
Post by KristenNYC on Jan 22^nd, 2005, 8:52pm

Enjoying this snow? UGH

Nice to meet you. Where in New York are you?

Im on long island, amityville to be precise.

Title: Re: Thankful I found this board
Post by don on Jan 22^nd, 2005, 8:55pm

Check your PMs Kristen

Title: Re: Thankful I found this board
Post by Langa on Jan 22^nd, 2005, 8:58pm

on 01/22/05 at 20:52:30, KristenNYC wrote:

Enjoying this snow? UGH

Nice to meet you. Where in New York are you?

Im on long island, amityville to be precise.

We have about 1 foot already :'(...i'm upstate NY, but I have lots of family in NYC...visit at least monthly...

Langa

Title: Re: Thankful I found this board
Post by KristenNYC on Jan 22^nd, 2005, 9:12pm

We have about 11 inches here so far. Stuck in the house. Wish this could have happened during the week so I wouldnt have to go to work! [smiley=laugh.gif]

Title: Re: Thankful I found this board
Post by don on Jan 22^nd, 2005, 9:17pm

Can someone post up that pic of the head showing the hypothalamus gland?

Title: Re: Thankful I found this board
Post by Redd715 on Jan 22^nd, 2005, 9:24pm

The hypothalthingy gland or the trigeminal nerve pic don?

I only have the trigeminal nerve pic.

Title: Re: Thankful I found this board
Post by E-Double on Jan 22^nd, 2005, 9:35pm

You mean this one?

http://ed3.photosite.com/~photos/tn/239_348.ts1104806253531.jpg

Just kidding.......

Pleasure to meet ya Kristen!
I'm not to far from you.....over on the North Shore, East Northport. Whew Alottttta Snow today.

Anyway, wishing you the very best and if you ever want to meet up for coffee or need something I'm literally a drive away and can help with what ever ya need!

Welcome to the family.

Eric

Title: Re: Thankful I found this board
Post by don on Jan 22^nd, 2005, 9:36pm

Either or both.

Title: Re: Thankful I found this board
Post by Redd715 on Jan 22^nd, 2005, 9:41pm

http://im1.shutterfly.com/procserv/47b4db35b3127cce99b85d1bb38500000016108AauGjFu2ZNh

Title: Re: Thankful I found this board
Post by don on Jan 22^nd, 2005, 9:52pm

Thanks Redd.

I owe you one sexual encounter. Kinda guy that I am.

Title: Re: Thankful I found this board
Post by Redd715 on Jan 22^nd, 2005, 9:57pm

on 01/22/05 at 21:52:04, don wrote:

Thanks Redd.

I owe you one sexual encounter. Kinda guy that I am.

I'm not really the bath house type Don but thanks for the offer. ;;D

Title: Re: Thankful I found this board
Post by RichardN on Jan 22^nd, 2005, 11:14pm

Hi Kristen

If you haven't already, do investigate the 02 as abortive. For those of us it works for . . . is a miracle! I can't take Imitrex and 02 is my only abortive . . . and it works for most of them. Verapamil is my preventative and I also take 6mg Melatonin . . . also water/water/water.

Welcome to the family,

Richard

Title: Re: Thankful I found this board
Post by Gator on Jan 23^rd, 2005, 2:34am

One of the hypnothingy. LOL

http://www.nlm.nih.gov/medlineplus/ency/images/ency/fullsize/19239.jpg

Here is a website that lets you see the different layers of the brain via MRI/PET Scan. Select the box that say Show List. On the popup page, scroll down to Brain-Axial to the right of Diencephalon you'll see the option for hypothalamus.

http://www.med.harvard.edu/AANLIB/cases/caseNA/pb9.htm

Gator

Title: Re: Thankful I found this board
Post by sandie99 on Jan 23^rd, 2005, 7:52am

Welcome to CH family online, Kristen! :)

I am so sorry that you have CH, though... :(
I wish that one one had it.

But I am glad that you found this site. It must have been horrible for you to suffer so long time alone.

Best wishes & PFdays,

Sandie

Title: Re: Thankful I found this board
Post by don on Jan 23^rd, 2005, 7:57am

Kristen,

That there is the culprit.

The hippopatamus gland.

http://www.whozoo.org/Intro98/herrick/HippoFWZ21Jn01A47C.jpg

Title: Re: Thankful I found this board
Post by ShariRae on Jan 23^rd, 2005, 12:50pm

Hi Kristen.....
Welcome aboard!! NY here too,,, but I am in the Buffalo/Niagara Falls area...stick around..it's the best group of folks you will ever know!!!
Huggs
Shari

Title: Re: Thankful I found this board
Post by BarbaraD on Jan 24^th, 2005, 5:47am

Welcome Kristen,

Clusterville folks are here to help. Feel free to PM or e-mail any of us when you need help. We've been there, done it all and lived to tell about it. We're the best support you'll ever find.

Hugs BD