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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> Suffering and in pain
        
(Message started by: Sharpie on Jan 12^th, 2005, 12:55am)

Title: Suffering and in pain
Post by Sharpie on Jan 12^th, 2005, 12:55am

I can't take it any more. I know this is not much of an introduction to the board. I apologize and when I am not as desperate, I will formally introduce myself. :'(

I am suffering with headaches, as the main reason why I am here. I took the cluster headache test and most of them I said yes too.

I have been to my Family Physician and they had me do a CT scan. Nothing showed up for it.

What is happening is either when I wake up in the morning or by noonish I will start to feel pressure in my nose. Then comes the pulsating, throbbing headaches and then it proceeds to feel as though my eye is about to pop out of the socket. It is ALWAYS on the right side of my face. When the headache climax, it is very painful. I cry from the pain. My eye will throb and hurt, it feels like my viens are going to pop out of the temple area. I can barely lay down. I have to flip back and forth. It seems as thought nothing will make it go away. They ususally last about an hour and a half to two hours.

I usually got these headaches during the summer so assumed that they were sinus induced from allergies. Now for the past 2 years I have gotten them during the winter as well. I had to go to the doctor last Thursday, it got so bad. These headaches started the week of Christmas and I have had at least 2 or 3 a day since.

I cant take it anymore. I have been researching on the internet trying to figure out what the hell it is. The doctor said that she thinks its Migraines, but really couldnt tell me much.

What should I do? I cant live like this. Please. :'( :'(

Title: Re: Suffering and in pain
Post by nani on Jan 12^th, 2005, 1:02am

I'm so sorry you are suffering...I think it would be a good thing for you to see a neurologist as soon as possible. Most primary care drs are not very well informed about headaches. Once you have a definitive diagnosis you can go on about the business of getting treatment. Look around the boards here and at the OUCH site (link to the left) and arm yourself with information. Many people with cluster headaches get relief from Oxygen. Many use the triptan drugs like Imitrex and Zomig to abort headaches. Many of us are also taking preventative meds. They take a while to get into your system, so you will want to discuss abortives with the dr, too. Hang in there, you are stronger than any headache ...get some answers and hopefully you'll get some help soon. Pain free wishes to you...nani

Title: Re: Suffering and in pain
Post by Sharpie on Jan 12^th, 2005, 1:10am

I am just bawling as I read your post. I feel so let down by my body. I am only 25 years old. What the hell is the matter with me. :'( I get so embarrassed when I am at work and I get "them" I feel like noone understands how much pain I am in. Like they cant see it, my right eye gets so blood-shot and hurts so bad I can barely look at someone.

I think I just needed one post, just one response of understanding before I went to go lay down.

I will look into a nuerologist. When I saw my doctor on Monday for a follow-up I was in great spirits because I "felt" better at the appointment. Then tonight, I got the most brutal headache, my husband was so concerned, he wanted to take me to the ER and I just wanted to be left alone. I was in so much pain.

Now I just feel desperate to get it fixed before I get another one. I just cant take it. :'(

Title: Re: Suffering and in pain
Post by nani on Jan 12^th, 2005, 1:14am

I know it's hard, honey...but you can take it. Someone wise here once said...never tell a dr that your not getting headaches. My last neuro appointment was the only pain free day I'd had in a year! Figures, huh. You must get in asap...look at the oxygen info button on the left. If you get hit a lot at night, melatonin might help. Look on the meds board for threads on it. Verapamil and Lithium are common prevents. Remember that the more info you have, the better armed you are to battle this. YOU CAN DO THIS! [smiley=hug.gif]
-nani

Title: Re: Suffering and in pain
Post by Sharpie on Jan 12^th, 2005, 1:23am

Nani,

Thank you. I am very grateful for your responses. Thank you.

I will read the info you recommended.

You have helped, more then you know.

Thank you.

Title: Re: Suffering and in pain
Post by maureeng96 on Jan 12^th, 2005, 2:22am

I am a supporter, not a sufferer, but your feelings carry a familiar tune. When I met my boyfriend 4 years ago, he had been suffering from "migraines" for about six years, which his doctor was treating with pain meds.

Who finally diagnosed him with cluster headaches? ME! With the help of CH.com and OUCH.

Everyone has heard of migraines, but he was in so much pain that I wanted to learn more. I stumbled on this site while looking for migraine info. I did the cluster quiz because he couldn't sit still long enough, and I knew all his symptoms. He was a textbook case!

Since then, most of his treatments have been the result of suggestions we made to the doctors. His first two doctors refused to prescribe oxygen, so he moved onto the third. When we have had to go to the ER, I tell them that he needs a non-rebreather mask. Normally a timid person, I somehow get the courage to speak up when it comes to get the right treatment for the man I love when he's suffering so much.

He still has his bad cycles, and we're still working on getting the right mix, but he is now episodic, rather than chronic like he was two years ago. I am guilty of straying away from here when things are going well, but this is the first place I come back to when the beast rears its head.

Try to get your husband to read the info too, if he hasn't already. The supporter's corner has been a life-saver for me more than once.

Best of luck and hang in there!

Title: Re: Suffering and in pain
Post by Maggi Jons on Jan 12^th, 2005, 6:49am

hey Sharpie

Hang in there..

This is the place to find out everything there is to know and how to handle your condition.

What helps me alot is to drink a lot of water, when i dont have meds... Gallons of it! Flush the beast out!

Definently go to a Neuro armed with info from this site.

best of luck

Maggi

Title: Re: Suffering and in pain
Post by E-Double on Jan 12^th, 2005, 7:39am

Research Research Research!!!
Hang in there and be ready and armed with info....

Print this out...A realy good article with info for you and your doctors http://www.future-drugs.com/admin/articlefile/ERN020304.PDF

Not all treatments work for everyone and being that you have no meds @ this point nor have you been officially diagnosed, there are a few things that might be able to give you some relief non-medicinally.

If you do have the "typical" wake you up in the middle of the night horrors then.... Melatonin might be a savior.
Many of us (myself included) have found that taking 6-9mg (some take more) about a 1/2 hour to 45minutes prior to bed have Knocked out the night visits and can finally get sleep.
Some tricks that I used to use and sometimes still do are:
*Wrapping a bandana tightly around my skull (be careful)
*Filling a sink with scaulding water creating a steam bath and placing my head over it with a towel covering
it.
*Going from Steam to Frigid shower.
*Standing infront of A/C
*Icepacks or frozen veggies on the back of the neck or eye
*Tons of STRONG coffee.

Have you taken the "quiz" located to the left of the website?

All in all , pain sucks but this place will offer you tons of support if you need to be here. Kinda saved my life and apparently 1000's of others ;)

Pain free wishes to you and gather as much info as you can

Best,

Eric

Title: Re: Suffering and in pain
Post by Langa on Jan 12^th, 2005, 9:15am

HI Sharpie and Welcome!

I'm sorry you're hurting, but if you do have clusters (and it sounds like it) you couldn't be in a better place.

You've already received great advice and I'll reiterate to definitely get to a Neuro with as much info printed from this site as possible.

Check your PM's by the way.

Best wishes and hugs to you... [smiley=hug.gif]

Langa

Title: Re: Suffering and in pain
Post by Sharpie on Jan 12^th, 2005, 9:49am

Thank you for all your responses. It truly helps. As I read each thread or post, more and more I feel I can relate.

Maureen: I will have my husband read this site. I just feel relieved that I found it.

Maggie: Thank you for your response. I plan on arming myself with all the info and emailing my doctor today.

E-Double: I do not get them when I am asleep at night. I get them as I wake up, or around noonish or in the evening. All around the same time. I can get up to 3 a day.

Langa: I pm'd you back. Thank you so much for your kindness.

Title: Re: Suffering and in pain
Post by Bob P on Jan 12^th, 2005, 9:52am

If they are clsuters, laying down usually makes them worse. Most sufferers find that rocking, pacing, moving around helps.

Title: Re: Suffering and in pain
Post by Sharpie on Jan 12^th, 2005, 9:53am

I also want to add, that on my first initial doctors appt the last Thursday before, I was prescribed Midrin. I took it that day when I had a severe one, but it didnt seem to work. All it did was make me drowsy and my viens in my head felt like they were throbbing more. Maybe it didnt have anything to do with the Midrin. Who knows!

Title: Re: Suffering and in pain
Post by nani on Jan 12^th, 2005, 10:01am

No you're right...Midrin won't help. E-doubles ice advice helps me some. That may be all you can do until you get the right meds. Sorry I forgot to tell you last night. Sometimes drinking lots of water helps me, too. Hang in there...pain free wishes, nani

Title: Re: Suffering and in pain
Post by vig on Jan 12^th, 2005, 10:03am

welcome Sharpie!

Title: Re: Suffering and in pain
Post by AIRS on Jan 12^th, 2005, 11:53am

Hi Sharpie,

read your posts today...hey I'm a fellow sufferer and have only just signed up today as I'm in the throws of my own cycle.

As everyone else has said...your bigger than the cluster, always remember that.

I'm 30 and have danced with the devil for over 10 yrs now...we actually challenge each other some days...sometimes I win and send him packing, and on other days the bugger brings me to tears...hey ho!

The biggest awakening I had was accepting the fact that they happen to me, and the best thing to do is to alleviate the pain.

Here are some of my tricks of the trade:

1. cold air blowing in your face.
2. pacing around a room while concentrating on your breathing...try and visualise your breath as blue and focus on it entering and leaving your bouth
3. and old greek taxi driver game me this one...stand on you head and forearms...leaning against a wall
4. water...by the gallon!
5. take a shower

these are little tips I've picked up over the years. Once you've beat it, and if possible fill up the bath, make your self a milkshake and chill out...you need to loosen the muscles in your neck and back.

Hope this helps

amir

Title: Re: Suffering and in pain
Post by nani on Jan 12^th, 2005, 12:00pm

Quote:

stand on you head and forearm

CAUTION...this may not work and in fact, may make it worse. CH is a vascular headache caused (at least partially) by too much blood flowing through your veins. Inversion will send more blood there. I can't even bend at the waist...it's a trigger for me.

Title: Re: Suffering and in pain
Post by LadyLuv on Jan 12^th, 2005, 4:14pm

First of all, you can take it and you will... We will be here for you. I'm sure that each and everyone one of us have felt like that at one time or another.

And second, you don't owe anyone an opology, trust me, we completely understand.

Until I found this group, I thought that I was the only person in the world having such headaches. When mine first started (over 25 years ago) I would crawl around the floor and beg God to take me. When I was rushed to the hospital, the Doctor would order 'nerve blocks' for me (injections at the base of the neck- under the skulll) and for the next several days the only way that knew I had a head would be to reach up and touch it. And I'm still here.

So yes dear, you can take it.. when mine started I had no one that I felt understood.. now you have several hundred people that not only understand, but are there for you.

I will add you to my daily Prayer list..

Peace & Blessings
LadyLuv ;)

Title: Re: Suffering and in pain
Post by Jake on Jan 12^th, 2005, 7:09pm

Sharpie:

You have all my sympathies and support. I'm in the 2nd week of m y latest episode and I had to be driven home from work today. The level of pain and inability to acuratley describe what it feel likes makes me feel like a helpless child. All I wanted to do was get home and hug my oxygen concentrator. So far, oxygen, Maxalt, my wonderful wife and some great people at work is all that's getting me through this.

I urge you to find a doctor you trust who understands CH and knows who to treat you. Best wishes, the bloody things will go away and you will get your life back.

Title: Re: Suffering and in pain
Post by msharpe2k1 on Jan 12^th, 2005, 9:16pm

Sharpie-- I too am new to this website-- found it by accident after just typing in clusterheadaches.com to see what I could find out about my cycles-----
I have had this garbage attack me 10 years now.Seems as each year goes by,my episodes last longer and are much more intense...
I have had a mild headache since 2 weeks before Christmas,and every single nite I am woken up to a fiery,stabbing pain behind my left eye.,sometime between 10pm and 1am.......this hell I go thru lasts 2-4 hours,then time to go to work.I feel like I have been thru WW2 each time..physically + emotionally drained just in time for work...Banging my head against the wall does take my mind off the real pain,but only for a second.
I dont know how I can still see out of my eye with all the pressure and pain put on it by these clusters.
Its funny reading everyone elese's pain process,because I'm in the same damn boat,and I really dont know if I can take it anymore either..Iwill see the neurologist next week.Hope I can last til then,,You need to do the same--good luck---------Mike

Title: Re: Suffering and in pain
Post by BlueMeanie on Jan 12^th, 2005, 10:23pm

Sharpie,

So sorry to hear about your headaches and I hate to tell you but it sounds to me like Clusters. I started getting them when I was 21. Usually Spring & Fall. You can handle it. It's NOT easy, but you can. I see there has already been many replies and suggestions so I won't gab too much. I've had them 26 years so if you have specific questions feel free to send an instant message.

Someone replied they can't bend over. To me, it feels better when I let all the blood go to the top of my head. Usually I'll get in the tub and let water run down the back of my head with it tilted straight down. Drinking lots of coffee helps rid the residue headache after a CH attack. Read all you can to the left of this page to get familiar with all your options.

Take care,
BlueMeanie

Title: Re: Suffering and in pain
Post by CC2004 on Jan 13^th, 2005, 1:08am

on 01/12/05 at 09:49:28, Sharpie wrote:

I do not get them when I am asleep at night. I get them as I wake up, or around noonish or in the evening. All around the same time. I can get up to 3 a day.

hi Sharpie - hope you're doing a little better now, there's no better place to find than here :)

Just a couple of things to add to the great info already posted here -

Its common to get hit in the morning after waking. Your hits around noonish and in the evening could be triggered by certain foods, or it could be going from activity to inactivity, ie commonly we sit down & relax to eat lunch and dinner, relaxing has been a serious trigger for me and I learnt to eat standing, pace around all evening, never ever relax - so difficult as the cycle goes on and you become more & more exhausted!
(also on triggers - I suppose you know alcohol can be a major trigger for most of us clusterheads)

I urge you to keep a diary and write down everything, not just hits - the time you wake, what you eat & drink, times of hits, duration & level of pain, when you go to bed... This may help you recognise any triggers/patterns - the more info we have the more we understand the easier to cope

Also I urge you to drink water water water - it stopped my cycle :D - the moment you wake drink a good size glass, then every half hour until after your usual lunchtime hit time has passed, then 1 glass an hour, then a few hours before your usual time for evening hit go back to every half hour. Its hard to do but Ive been there and had success and ITS WORTH IT! Within a day or two of this it will be much easier to drink these large amounts - I promise! But you have to write it down, each glass (I use a daily chart for water/food/hits) otherwise you'll forget ;)
(Let your doctor know you're doing this, also take some vitamens so you're not flushing them all out. I also take magnesium which may or may not have helped - 2 x RDA)

For the hits do try the cold - icepack/frozen peas in a tea towel - if it helps GREAT - BUT if its [smiley=yikes.gif] [smiley=bomb.gif] [smiley=bigcry.gif] (like me)
then you're a hottie (like me ;)) - try heat - a hot water bottle in a cloth will last longer than a hot cloth or water

long winded [smiley=sleep.gif]- but hey, anything to try to help, just the tiniest relief can be such a huge blessing, we all know
take care & keep strong
and keep in touch
[smiley=hug.gif] CC

Title: Re: Suffering and in pain
Post by RichardN on Jan 13^th, 2005, 2:37am

Hi Sharpie and Welcome

As I sit here with 02 by my side (have beat him three times so far this evening). Make sure and copy the 02 info . . . . for those of us it works for . . . . tis a miracle.
When I came here I was having 6-8 per day, KIP 5-9 and over a year of mis-diagnosis, non-working meds and multiple tests (all normal of course). This place gave me a "name-for-the-pain" and a direction to go to alleviate same. Yes, he's still there, but I can cope now.
My only abortive is 02. Preventative is Verapamil 240mg (120 morn and eve), Melatonin 6mg at night, and water/water/water.
You're not alone . . .

Be safe,

PFDANs

Richard

Title: Re: Suffering and in pain
Post by RichardN on Jan 13^th, 2005, 2:44am

Almost forgot

You too CC

If it's heat you like (is for me), try some rice in a cotton sock heated in the microwave. Stays hot quite a while and molds to your face/neck better than the water bottles. Of course, people tend to wonder why you keep a couple of sock "beanbags" by the microwave, but. . .. ;;D ;;D

Title: [smiley=sgrin.gif]Re: Suffering and in pain
Post by CC2004 on Jan 13^th, 2005, 3:18am

on 01/13/05 at 02:44:10, RichardN wrote:

Almost forgot

You too CC
...

hey Richard - such a bugger you're still battling so often, and yet here you are ALWAYS to help where you can
[smiley=hug.gif]
wish we could all just bring in the [smiley=bigguns.gif] and blast the f*....s away

CC

;;D BTW still [smiley=smokin.gif] [smiley=sgrin.gif]

Title: Re: Suffering and in pain
Post by Langa on Jan 13^th, 2005, 3:49am

on 01/13/05 at 02:44:10, RichardN wrote:

Thanks for the tip Richard, heat works better for me too...i'll try this technique... ;;D

Title: Re: Suffering and in pain
Post by Sharpie on Jan 13^th, 2005, 9:28am

Had another attack. :'( Woke up at 5:20am this morning to a very severe one (kip 9). My husband tried everything to help. I tried to get up and walk it off, tried laying there like I normally do and roll back and forth, tried hot compress, turned shower on in bathroom and stood there, took an excedrin, I didnt want to take my midrin because I was concerned if I took it I wouldnt be able to go into work. Turns out my CH is still here. This ones lasting a long time. Its a little over a shadow right now. But i still feel it as I type. Cant go into work anyways.

We got a humidifier last night and honest to pete I think thats what triggered it this morning. Every time I breathe a shooting pain goes through my nose, my eye and my temple area, all on the right side.

This morning all I kept telling myself, was I am going to be okay, its going to go away. Please god make it go away. :'(

I called my doctors office at 8:00 this morning, spoke to the nurse. I begged and cried to see a Nuerologist. She said I had to see my doctor first. :'( I told her I cannot live like this. Its affecting my everday activity. My is appointment at 1:15pm. My husband it taking off of work to take me so he can help and maybe better explain whats going on. I know this HAS to be CH. It has too.

Thank you for your support. :-/ :-/ :-/ :-/

Title: Re: Suffering and in pain
Post by nani on Jan 13^th, 2005, 9:44am

Even a primary care doc can prescribe oxygen and drugs like Imitrex and Verapamil and lithium. Print out what you can from here and show it to him/her. You may be able to get some relief while you wait to see a Neuro. Go here for some helpful info:
http://www.clusterheadaches.org/resources/dr.htm
Keep us posted...and hang in there... [smiley=hug.gif]

Title: Re: Suffering and in pain
Post by Rock_Lobster on Jan 13^th, 2005, 1:27pm

So how did you appt turn out Sharpie?

What do your prescriptions look like?

Title: Re: Suffering and in pain
Post by Sharpie on Jan 14^th, 2005, 2:24pm

I am so unbelievably amazed at the support here. I feel so loved and you dont even really know me. :-* :'( Thank you for the PM's that were sitting in my box.

Okay, here is the update:

As you already know I had an "attack" yesterday morning. I went to my appointment at 1:15. Before I left I took a shower to see if that would help and I took my midrin. I still had some shadowing and slight pain (that I could handle)

I went in with all the print outs I could find on Cluster Headaches. My husband took notes as I had an attack that morning and he went with me to help better explain the pain I was in and what I said at the time. I felt it was neccessary to have him there (after reading several posts on this messageboard!!!) because I felt I wasnt explaining myself well with my doctor.

She said it was a ver HIGH possibilty that it was Cluster headaches, but expressed that it is so rare in woman. But from the frequency , timing and the amount of pain I am in, and where it was located (thank you lord for the diagram at mayo someone posted!!!) it did lean towards that. Soooo..

Great news! I have an MRI & MRA schedule on Monday to rule out other causes. I have an appoint with a Neurologist ON the 25th of JAN! She is being so proactive and supportive. I am so grateful

She insisted I take my midrin as soon as I feel like I am going to get "hit" At first, I was taking excedrin, THEN I would take the midrin. She said just take the midrin right away. She also prescribed me Indomethacin (apparently its suppose to help) and I am to take it every day. This is all suppose to be safe for me, because my husband and I are trying to have a baby.

After I see the neorologist and get an official diagnosis, I can look into various treatments.

It all has come together for me, the once thought sinus headaches were in fact this. Its just now, they are considerably worsening.

I appreciate the support here and I cant tell you enough how much I have gleened from here and how I feel like other people know whats going on. I have read numerous post and felt I could relate so much. It really has been very empowering to finally figure out what the heck was wrong and is wrong and hopefully to find a fix.

Thanks. :-*

Title: Re: Suffering and in pain
Post by RichardN on Jan 14^th, 2005, 2:47pm

WAY TO GO SHARPIE!

And you're wrong, we do know you . . . . . or at least the"devil" in you. ;)

Wish your doc had given you a script for 02, but make sure you take the 02 info in for your neuro. I'll shut up about it now . . .. . . but I will nag you til' you get to try it.

Having a name-for-the-pain makes a huge difference doesn't it?

Congratulations again, and best wishes

Be safe,

PFDANs,

Richard

Title: Re: Suffering and in pain
Post by nani on Jan 14^th, 2005, 2:59pm

That's good news Sharpie!! Yes, please do as Richard says and talk to your neuro about oxygen...very safe if you're trying to conceive. I'm so glad you're getting some help...love to you, nani [smiley=hug.gif]

Title: Re: Suffering and in pain
Post by Sean_C on Jan 14^th, 2005, 4:04pm

Clusters are not rare in women, men just complain more.................................did I just say that ;;D

Good luck

Sean....................................

Title: Re: Suffering and in pain
Post by nani on Jan 14^th, 2005, 4:10pm

LMAO...I love you Sean!!! :-*

Title: Re: Suffering and in pain
Post by CC2004 on Jan 14^th, 2005, 5:35pm

on 01/14/05 at 16:04:16, Sean_C wrote:

Clusters are not rare in women, men just complain more.................................did I just say that ;;D

Good luck

Sean....................................

hehehe [smiley=laugh.gif]

Its not so rare in women. It seems stats (in the '60s)used to be 6 men to 1 woman, now apparently 3 to 1 - but maybe what Sean says and its really 50/50! ;;D

Plenty of us women here

I must say again, I agree with oxygen - it seems to be the MOST effective & quickest abortive, its not a drug and therefore as Nani says its safe for you, providing you've got no issues like heart problems or whatever.
Also I have to say it again, please try WATER WATER WATER - it kicked my cycle in the butt - but you have to drink heaps like I said before
So you've got some excellent drug-free options...
Continue to keep us informed wont you
[smiley=hug.gif] CC

Title: Re: Suffering and in pain
Post by MOMO3 on Jan 14^th, 2005, 6:49pm

Sharpie,
Welcome, glad you found us. I am a supporter for my brother, who has suffered with chronic clusters for over 10 years and just recently found this site. I must tell you, your husband sounds like a wonderful supporter, and you are lucky to have each other. Hope you find some PF time soon and good luck with everything. Michelle

Title: Re: Suffering and in pain
Post by unsolved1 on Jan 14^th, 2005, 10:28pm

Welcome Sharpie ... Grab an oar ;;D

PF Wishes,
Unsolved

Title: Re: Suffering and in pain
Post by Rock_Lobster on Jan 15^th, 2005, 1:12am

I just feel bad that your GP did not give you something.. even a few Imitrex NS or Zomig NS samples.

Man... I would crush someones throat to get at a triptan or some o2 now that I know the relief they bring. It pains me to see someone doing without.

Where are you... update your map on your profile?

Title: Re: Suffering and in pain
Post by maureeng96 on Jan 15^th, 2005, 2:18am

Sharpie,

I was on the OUCH site earlier tonight, and I was looking at the headache comparison chart (even though I know my boyfriend has CH). It listed a headache that I never heard of before - (CPH) Chronic Paroxysmal Hemicrania. Many of the characteristics seem to be similar to CH, but CPH is more prevalent in women, while CH is more prevalent in men. CPH also seems to be more frequent, shorter duration attacks.

Obviously, that's not to say that you do not have CH just because you are a woman, but CPH might be worth researching. I would be willing to bet that someone here is familiar with it. That's all the info I have, but I wanted to pass it along.

Good luck to you and your husband.

Title: Re: Suffering and in pain
Post by Renee on Jan 15^th, 2005, 7:00am

Sharpie,

If you are actually suffering from CPH the indomethacin will help alot! This is not to say that indo won't help with CH.

I'm a chronic ch'er and indomethacin is a prevent for me. Recent studies have shown that indomethacin can be beneficial as a prevent but only for women.

Get some oxygen...

Isn't it nice to know you are not alone in this pain now?

Good luck at the neuro,
Renee

Title: Re: Suffering and in pain
Post by jillybean on Jan 15^th, 2005, 4:59pm

Hi Sharpie,

So sorry you are suffering. Isn't it amazing how hard you have to fight to get help? Don't the silly doctors know you don't feel well? Congrats on finding the strength to keep pushing them. Great that hubby goes with you. My hubby also often cannot express his attacks etc and wants me to explain for him.

I'm glad it appears you have a loving husband to get you through this.

I have been doing the tests and seeing the specialists with my husband. He's the sufferer in our house.

I hope both our journeys lead to pfdan soon!

Jill

Title: Re: Suffering and in pain
Post by rickyshot on Jan 16^th, 2005, 10:59pm

HI Sharpie. I am a woman too who has suffered 20 years spring and winter with this. Like you when it first started, I though I could never live through it. Well I have although it has affected my life greatly. When not in cycle, I have wonderful complicated migraines to deal with. :oLife is beautiful lol. You have come to the right place.

Title: Re: Suffering and in pain
Post by unsolved1 on Jan 16^th, 2005, 11:32pm

CPH'ers have 20 - 50 attacks per day. Pain much like CH. Attacks are much shorter ( a few seconds to 5 minutes or so ) Indomethacin is said to be very effective on CPH but not effective in CH.

Unsolved