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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> you know you can deal with it when:
        
(Message started by: survivor13 on Dec 10th, 2004, 7:02pm)
Title: you know you can deal with it when:
Post by survivor13 on Dec 10th, 2004, 7:02pm
i realized i was learning do deal with this when i knew i was in cycle, had no imitrex and decided to go out and have some drinks! knowing this would cause at least one level 7/up attack.
Title: Re: you know you can deal with it when:
Post by Connie on Dec 10th, 2004, 8:09pm
Was it worth it?  
Title: Re: you know you can deal with it when:
Post by survivor13 on Dec 10th, 2004, 9:30pm
honestly, after crawling in a hole for five years, because i had no-one to talk to about it. yes it was! it taught me it was not going to control my life anymore. i was'nt about drinking, but rather crawling out of that hole.
Title: Re: you know you can deal with it when:
Post by Grandma_Sweet_Boy on Dec 10th, 2004, 9:31pm
Lord man - have you got a death wish or something?  Why would you inflict that misery purposely!  You're one sick puppy my friend! ;;D
Title: Re: you know you can deal with it when:
Post by nani on Dec 10th, 2004, 11:02pm
I personally would not suggest knowingly indulging in a trigger just to prove you can take it. Kinda like jumping off a building to prove you're not afraid of heights. :-/
Title: Re: you know you can deal with it when:
Post by don on Dec 11th, 2004, 8:11am

Quote:
i realized i was learning do deal with this


Continuing on with life despite the pain is learning to deal.

Engaging in an activity that will trigger the pain is not.
Title: Re: you know you can deal with it when:
Post by marlin on Dec 11th, 2004, 1:01pm
Not something I'd do.  I use the "night out drinking" as a definitive litmus test after I figure my cycle's over.  After 3 cocktails and no hit I declare myself CH free.  Then I proceed to make good-and-damned-sure I wake up with a HA just to see what a regular HA feels like.  ;)

I'm lucky.  My cycles have been getting further and further apart and somehow I don't think I am seeing quite the level of pain I used to get 20+ years ago.  DOn't know if I can just tolerate it better knowing it'll go away. more neurons are toasted or the meds really are as good as I think they are.  A walk in the park (barefoot over broken shards of glass) for me these days in comparison.

You chronics have stamina and are tough as nails out of necessity.
Title: Re: you know you can deal with it when:
Post by Langa on Dec 13th, 2004, 10:44am

on 12/11/04 at 08:11:37, don wrote:
Continuing on with life despite the pain is learning to deal.

Engaging in an activity that will trigger the pain is not.


My thoughts exactly...

Langa
Title: Re: you know you can deal with it when:
Post by amct15 on Dec 15th, 2004, 7:54pm
Interesting.  I did the same thing the other night.  Company holiday party.  I just said what the hell, if I get a big hit after a few drinks at least everyone will be able to see I'm not making this stuff up when they see me rocking back and forth grabbing my head.    
 As it turns out, a few glasses of wine and a few scotches later, I was rocking alright, but on the dance floor.  I can't dance worth a diddly, but it must have been fun to see.  I did get a headache that night but is was your standard booze headache.  
 The most interesting thing is that I went the following two full days without a CH.  I thought maybe I was out of the cycle but I've had a couple hits yesterday and today.
Title: Re: you know you can deal with it when:
Post by thebbz on Dec 15th, 2004, 8:01pm
If you drink knowing the price you will pay for it, perhaps CH isn't the only problem you have. :-/
Careful what you ask for,you may get it. :o
BB ;)
Title: Re: you know you can deal with it when:
Post by Jonny on Dec 15th, 2004, 8:01pm
I feel sorry for you poor bastards.....I really do
Title: Re: you know you can deal with it when:
Post by kimh on Dec 17th, 2004, 11:01pm
you'd be shocked at how many clusterheads relate to your post.  sometime down the road though, should you come to a crossroads, you will not be alone then either :)

Well wishes***
Title: Re: you know you can deal with it when:
Post by justin on Jan 2nd, 2005, 2:00am
been there , done that

sometimes if i just get really drunk quickly i can trick the beast. but when i start sobering up  i get hit. by then i'm home so i can take O2 or imitrex if i need it
Title: Re: you know you can deal with it when:
Post by unsolved1 on Jan 3rd, 2005, 10:04am
To hell with that! I wouldn't trade a screw for a cluster !!

[smiley=laugh.gif]

Unsolved
Title: Re: you know you can deal with it when:
Post by Wendy1 on Jan 5th, 2005, 11:10pm
You've just come from ER, 100 mg Demerol and you feel the beast starting up over and through the Demerol.  Damn!!!
Title: Re: you know you can deal with it when:
Post by nani on Jan 5th, 2005, 11:11pm
As you probably know now Wendy...demerol doesn't so a damn thing for CH.
Title: Re: you know you can deal with it when:
Post by Wendy1 on Jan 5th, 2005, 11:13pm
I don't care if I was going through withdrawals from alcohol, I would NEVER do something that I KNOW would give me a damn h/a ~ You guys are CRAZY!!! and deserving of that h/a if you do that.
Title: Re: you know you can deal with it when:
Post by Wendy1 on Jan 5th, 2005, 11:15pm
Nani,  Oh yes, I do know that Dem does not take the h/a away, however it beats the alternative when I got it bad:  The big 'S'....

It does take my pain away for the moment.... :P
Title: Re: you know you can deal with it when:
Post by nani on Jan 6th, 2005, 12:07am
Did it really help you for a moment? I had 2 shots of morphine/phenergan on my last ER visit and it didn't even touch the hits. (I was getting hit every 30 minutes) I didn't even feel drugged out like I should've been. I was really disappointed. I figured it might at least knock me out.  :-/
Title: Re: you know you can deal with it when:
Post by becky8 on Jan 6th, 2005, 10:01am

on 12/15/04 at 20:01:21, thebbz wrote:
If you drink knowing the price you will pay for it, perhaps CH isn't the only problem you have. :-/
Careful what you ask for,you may get it. :o
BB ;)

My thoughts for sure!
Title: Re: you know you can deal with it when:
Post by don on Jan 6th, 2005, 10:32am

Quote:
i realized i was learning do deal with this when i knew i was in cycle, had no imitrex and decided to go out and have some drinks! knowing this would cause at least one level 7/up attack.


Dealing is disciplining yourself to accept the condition as part of your life and to do nothing that further causes harm. Drinking knowing your going to get hit is FAR from dealing with CH.
Title: Re: you know you can deal with it when:
Post by guesst on Jan 6th, 2005, 10:43am

on 12/15/04 at 20:01:21, Jonny wrote:
I feel sorry for you poor bastards.....I really do

Me too, alcohol is no longer a trigger for me!  ;;D  [smiley=me&mb.gif]
Title: Re: you know you can deal with it when:
Post by rickyshot on Jan 6th, 2005, 11:29am
Wow This guy is either the bravest or craziest person I heard of. This type of thinking is not uncommon in those gravely ill. I work in a hospital and see lung cancer patients smoking all the time stuff like that. Kind of the hell with it attitude. This behavior is more common in men than women. It would make an interesting study. Kind of like the child who touched the hot stove and got burned and then gingerly reaches his finger to try it again soon after.  ::)
Title: Re: you know you can deal with it when:
Post by don on Jan 6th, 2005, 1:01pm

Quote:
It would make an interesting study.


That study has been studied to death by every psche/med student to come down the pike.
Title: Re: you know you can deal with it when:
Post by toolong on Jan 6th, 2005, 4:41pm
Alcohol is a major trigger for me but then again so is sex.I'll forgo the booze but can't give up the sex.02 right after the orgasim is usually a fix for me.And I'd take loving over a drink any day. [smiley=biggrin.gif]David
Title: Re: you know you can deal with it when:
Post by E-Double on Jan 6th, 2005, 7:44pm

on 01/06/05 at 10:43:36, guesst wrote:
Me too, alcohol is no longer a trigger for me!  ;;D  [smiley=me&mb.gif]


Me niether! What's that mean??? Other than being able to enjoy a cocktail or a beer....Does it mean anything in regards to the CH?? (serious question)

Anywho.....
Dealing truly means being able to go on with your life. Not hiding in your house letting your livlihood subside and those who love you....
For that good for you! For setting yourself up for a hit..not so sure...I learned to go out and not cocktail and still had a good time. Now as said above I could drink if I choose to.

Oh well....PF wishes either way!

E.
Title: Re: you know you can deal with it when:
Post by Kevin_M on Jan 6th, 2005, 11:20pm

on 12/10/04 at 21:30:52, survivor13 wrote:
it taught me it was not going to control my life anymore. i was'nt about drinking, but rather crawling out of that hole.


I guess the part about convincing yourself that clusters won't control your life is proven by drinking; and crawling out of a hole is accomplished by drinking, but yet it wasn't about drinking... goes right over my head.


Kevin M
Title: Re: you know you can deal with it when:
Post by guesst on Jan 7th, 2005, 11:49am

on 01/06/05 at 19:44:34, E-Double wrote:
Me niether! What's that mean??? Other than being able to enjoy a cocktail or a beer....Does it mean anything in regards to the CH?? (serious question).

I don't have a clue, all I know is it's one less thing the beast can steal from me.
Title: Re: you know you can deal with it when:
Post by CC2004 on Jan 8th, 2005, 12:35am

on 01/07/05 at 11:49:14, guesst wrote:
I don't have a clue, all I know is it's one less thing the beast can steal from me.


I think I might be on th eopposite side of this - I dont remember alcohol ever being such a serious trigger before.  Xmas eve I tried a couple of champagnes to see if I would be OK as my cycle seeme dto be ending and I had only had a few hits in more than 2 weeks - and Ithought if I did get hit it would be over 20-40 mins as usual - WRONG!  I was slammed for nearly 5 hours - outrageous [smiley=bomb.gif]
That also happened earlier in the cycle, and nothing like the usual hits other than when my cycle was peaking.
Maybe the difference this time is since my last cycle Ive been drinking a lot more, usually I have a few wines pretty much every night, but now completely intolerant in cycle.  
Does this ring any bells with anyone?
CC
(still missing my champagne  [smiley=bigcry.gif])
Title: Re: you know you can deal with it when:
Post by aceserve on Jan 8th, 2005, 9:37pm
I'm in my 28th day in this cycle (the first cycle in 2 1/2 years). It's one way of forcing me onto the wagon, I tell ya. A couple weeks ago I felt like having a nice single malt, knowing I'd get a headache anyway. It was not a good idea. I got a banger of a headache, and probably it was a headache on top of one I would have had anyway. So I stay away from alcohol. What other things act as triggers for you folks? I think chocolate may be one, as for others, I have not been able to isolate and identify them.
Title: Re: you know you can deal with it when:
Post by sailpappy on Jan 19th, 2005, 1:14pm
;;DDon,
     Your the voice of reason in this thread, I guess everyone has their own demons to deal with, but just smelling beer sets off my attacks, Oh to be episodic for just one week, a few days or even 1 full day?
     From my vantage, severe chronic with hundreds of triggers, well my money is on sanity not insanity.
     I have a daily level that fluxuates from 3 to 15 per day, so I have learned to deal with it, 35 years with no end in sight, so I guess I should hold red hot rivots in my hand to see if I am really dealing with the pain----I don't think so!
      While I'm at it the last time my Neuro consulted with Dr. Diamond it was Seymoure Sr. I know of a Jr. but have no knowledge of a Mrs. Dr. Diamond?  Pappy

I think if the Histamine destintion worked for anyone, well they have A Typical Histamine headaches and not Clusters? JMHO
Title: Re: you know you can deal with it when:
Post by mitChell on Jan 20th, 2005, 1:30pm
Good for you Survivor !

I go drinking when im in cycle,
sometimes I get CH's, sometimes I don't.

Its about getting on with your life.

If you live in fear of the beast, then you live by his rules, and in doing so build him up as some invincible demon.
Title: Re: you know you can deal with it when:
Post by survivor13 on Jan 21st, 2005, 2:01am
finally someone get's the point i was trying to make!


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