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New Message Board Archives >> 2005 General Board Posts >> Almost 14 weeks ...grrrrr
(Message started by: JenniferD on Dec 4th, 2005, 7:57pm)

Title: Almost 14 weeks ...grrrrr
Post by JenniferD on Dec 4th, 2005, 7:57pm
ok y'all, I am ready for this shit to be over.

I want off the meds, they're making me sick- first the nonsense with the topey and am starting to finally think clearly again.

Now the Vrap and I feel like crap. The room spins and I nearly fall over if I stand up or get up too quickly, just generally feel like crap.

I just want to stop taking the meds and feel normal again and I don't know if this damn cycle will ever end!
Sittin here can feel the shadows poking my temple and cheek and I just want it to end dammit.

I just needed to vent a little. I'm not gonna take any more meds, I can't stand it anymore. The only pills I should be taking should be VITAMINS, not this stuff. grumblegrumblebitchbitchbitch

bitchfest over.

Title: Re: Almost 14 weeks ...grrrrr
Post by Jonny on Dec 4th, 2005, 8:01pm
Its almost over....hang tight!!!

Title: Re: Almost 14 weeks ...grrrrr
Post by nani on Dec 4th, 2005, 8:02pm

Quote:
grumblegrumblebitchbitchbitch



Psst...Jen...
http://bestsmileys.com/whisper/1.gif

www.clusterbusters.com

;)  hugs, nani

Title: Re: Almost 14 weeks ...grrrrr
Post by E-Double on Dec 4th, 2005, 8:11pm
That's why I'm detoxing.......done w/meds.
Hopefull I can stick it out!

Good luck and keep positive!

Title: Re: Almost 14 weeks ...grrrrr
Post by kissmyglass on Dec 4th, 2005, 9:23pm
I don't think you should go cold turkey off of Verap....better check with your doc.  :(

Title: Re: Almost 14 weeks ...grrrrr
Post by gMike on Dec 4th, 2005, 10:38pm
Taper off of Verap so you don't spike your blood pressure.  Last thing you need is another problem when you're trying to get off of the meds!

Mike

Title: Re: Almost 14 weeks ...grrrrr
Post by Charlie on Dec 5th, 2005, 1:04am

Quote:
grumblegrumblebitchbitchbitch


Works for me and the wonderful side-effects of the drugs made my day too. Topamax turned me into a babbling idiot.  
Rant, beat the walls and scream.

Jonny is right. It's not going to last. http://www.netsync.net/users/charlies/gifs/pound down x.gif


Charlie

Title: Re: Almost 14 weeks ...grrrrr
Post by sandie99 on Dec 5th, 2005, 2:33am
Jennifer,
[smiley=hug.gif]

Be careful if you're going to stop taking meds. Do it gradually. Verpamil helped me when the dose was big enough (600mg/day), but we're all different. I hope that you'll find that thing which works for you. :)

Wishing you PF time asap,
Sanna

Title: Re: Almost 14 weeks ...grrrrr
Post by Jasmyn on Dec 5th, 2005, 2:36am
[smiley=hug.gif] to you Jen

Title: Re: Almost 14 weeks ...grrrrr
Post by unsolved1 on Dec 5th, 2005, 5:23am
5 years and 2 months. How many weeks is that ?   :-/

UNsolved

Title: Re: Almost 14 weeks ...grrrrr
Post by JenniferD on Dec 5th, 2005, 6:56am

on 12/05/05 at 05:23:42, unsolved1 wrote:
5 years and 2 months. How many weeks is that ?   :-/

UNsolved


that's how I know I'd never make it if I was chronic. You guys are the ones I feel the worst for cuz this shit episodic sux enough.

I'll take half the f'in Vrap (grumble and frown and act like child here). its a low dose anyway.

Title: Re: Almost 14 weeks ...grrrrr
Post by lionsound on Dec 5th, 2005, 7:04am
Hi Jennifer,
please call your doc and ask how much of the verap to decrease by. Even half may be too much.

When I got off of it it was at a very slow rate.

and a side note: when I first started taking verap it did make me dizzy. That went away in a few weeks and I was okay. I undertand  if you don't want to do that. you have every right to be frustrated.



Be well and PF,
lionsound

Title: Re: Almost 14 weeks ...grrrrr
Post by Redd715 on Dec 5th, 2005, 7:10am
Do be very careful and call your doc about tapering off the verap.  Low dose+ tip over/spinning room..reminds me of my situation which was my BP bottoming out.  Not a healthy thing.  

Definately reaf up at www.clusterbusters.com to see if this is something for you.

Pegg

Title: Re: Almost 14 weeks ...grrrrr
Post by zwibbs/Scott on Dec 5th, 2005, 8:32am
Hang in there--will be ending soon....I know what you mean about verapamil--I made a sudden move on a ladder this past saturday and almost blacked out. Very scary stuff. My head was spinning, and I have learned my lesson. Hope you have comfort real soon.

Title: Re: Almost 14 weeks ...grrrrr
Post by Beastfodder on Dec 5th, 2005, 9:19am
Sounds like you're getting through the worst of it.

Hope that's sooner not later.  I know exactly how you feel about the polypharmacy, got a bottle collection out of the past few years.

Carbazemine and pizotifen being two all time favourites.  So this year it was straight down to clusterbusters and what a difference it made.

4 headaches opposed to 50 plus and a two and a half month cluster cycle down to a few weeks with no side effects.

Title: Re: Almost 14 weeks ...grrrrr
Post by Kate in Oz on Dec 6th, 2005, 6:51am
Hey Jennifer,

I'm so sorry to hear your having such a sh*t time of it.  Perhaps you're peaking and very near the end of the cycle??!  I hope so.  

Sending you prayers and hugs from down under.

[smiley=hug.gif]

Kate



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