Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2005 General Board Posts >> Unexpected cluster attack!
        
(Message started by: LadyElaine on Nov 17^th, 2005, 10:57am)

Title: Unexpected cluster attack!
Post by LadyElaine on Nov 17^th, 2005, 10:57am

I went from being Chronic to Eposodic . I use to think that it would be easier, but I am not sure. I have not gotten a pattern since I became Eposodic. I just stopped a cyale a few weeks ago. I figured I would have 6 months to a year befor another attack. Not!

I always try to buy Christmas all year to avoid the Christmas rush. This year it did not happen that way. So Yeaterday. I packed JD in the Car and went to do my Christmas shopping. It took all afternoon and part of the night. Plus I had to get groceries. Well it was cold out. Night had hit and Devny met me to pick up JD and come home. Buddy met me to get a bit to eat before we got groceries. Plus I don't drive well at night so he met me to lead me home. We ate and bought grocerys and headed home. The roads are two lane dark and narrow.
No place to pull over. I am am behind Buddy in my truck and out of no where, no warning what so ever. I got hit and hit hard. It was all I could do to hold the wheel. I saw a church and pulled in. Buddy did not see me turn and my cell phone was DEAD. Buddy finally noticed I was not behind him he turned around. He passed me, but I was in so much pain I did not even see him to flick my lights. He finally found me. I had open the door of the truck to get air and was doing my rocking. We sat in that church yard over a hour befor I was able to drive.
It was scary. I had no meds, and my O2 was here, its a big tank to big to take with me. Plus I wouldn't have anyway since I thought I was over them.

I got back home. Really tired and I just fell over the bed and went to sleep. Wrong thing to do I was up in a hour full blown attack. Thank God I had O2 . IT WORKED!
It was great. I was afraid to go back to sleep so I did get some email done I wanted to do. Plus I cleaned the Den and wash room real good. But I am tired today darn it.

How do we figure our attacks?
I hate not knowing. It was like someone hit me in the head with a rock, that fast that bad of a pain. My eye watered so bad I almost missed the Church.

Title: Re: Unexpected cluster attack!
Post by rickyshot on Nov 17^th, 2005, 11:04am

That is the thing about being episodic. You never know sigh........That has happened to me more than once. Here at my job I am lucky because I work in the hosp and they send me quickly to ER for O2 etc. But on the road holy shit........

PS I lifted you up in prayer last nite. I felt led to. And your brother too. The Holy Spirit never fails us.

Title: Re: Unexpected cluster attack!
Post by Shaz on Nov 17^th, 2005, 11:23am

Really feel for you Elaine.

I am episodic and have been caught out a few times in the car. Last time, luckily I was only about a mile from home. It felt like fifty miles getting home and could hardly open my left eye, let alone the right that was pounding. Got into serious trouble from the family for even driving like that there was on one around at the time, so it was either rocking the pitch black layby for the next hour and half or going for it :( :(

Hope you get a rhythm sorted soon and you get a good night to night.

Shaz :-*

Title: Re: Unexpected cluster attack!
Post by Rock_Lobster on Nov 17^th, 2005, 11:33am

Sorry to hear it is back E.

When I am going back into it I will usually shadow for a bit... sometimes for a day or two, sometimes for only a few hours... but it is unmistakable and I start popping the meds that moment.

Even though I have avoided a major episode for 18+ months now, I still keep Trex with me most of the time. Both cars, my backpack, my laptop pack, my briefcase, my wifes purse... all have two vials and 4 syringes in them. I came across these perfect little hard eyeglass cases some time ago... ideal size for holding vials and syringes.

Now that I reread that last pargraph I see how obsessive I have become about 'agony avoidance'. Shit. [smiley=arg.gif]

Title: Re: Unexpected cluster attack!
Post by Jeepgun on Nov 17^th, 2005, 11:49am

That sucks, Elaine. Being episodic is like living with an anvil hanging overhead... Hang in there, my rattlesnake killing friend. [smiley=hug.gif]

-Franko

Title: Re: Unexpected cluster attack!
Post by Kevin_M on Nov 17^th, 2005, 12:05pm

Horrible situation to get caught with this kind of pain. Being similarly episodic with short pf windows that just wait for me to get lax, inventory checks are routine; an on-the-road abortive in every jacket pocket and a stash in the work sachel.
Not easy with different lifestyles though, maybe keep something safely by the door you'll notice when leaving. A few of those situations made me more conscious of prepared preventive caution. I pay only the interest on the loan for the brain cells I borrowed to maintain, reminders pop up on my computer before work and in the evening daily now. :)

[smiley=hug.gif]

Title: Re: Unexpected cluster attack!
Post by LadyElaine on Nov 17^th, 2005, 12:08pm

I can't take Imitrex so I been with meds. But thanks to some wonderful angels I now have o2 and it works when I can get to it. It feels so good to know it is there if I need it.

Frank did you know a snake doesn't have a heart?
I did suck a hack job on tha snake we are still finding parts of it. YUCK Thats what I get for killing something a big cluster attack.

Title: Re: Unexpected cluster attack!
Post by zanychef on Nov 17^th, 2005, 12:08pm

having been caught out a few times i now have a sign on the door on the way out in big red letters
GOT TREX MOTHERF$$$ER?????
believe me it works!!!
ian

Title: Re: Unexpected cluster attack!
Post by ghost62 on Nov 17^th, 2005, 12:13pm

I wish there was more I could do but Am sending Vibes and huge prayers. Got to admit going just opposite at least there where breaks as episodic. Hang tough as I am trying to do. [smiley=hug.gif]

Title: Re: Unexpected cluster attack!
Post by E-Double on Nov 17^th, 2005, 1:13pm

on 11/17/05 at 12:08:16, LadyElaine wrote:

I can't take Imitrex .......

Talk to doc about Zyprexa!!!!!!!!
You can take it regardless of heart conditions and it works as quick as trex.
AND IT"S CHEAP!!!!!

Hugs to you,

Eric

Title: Re: Unexpected cluster attack!
Post by sandie99 on Nov 17^th, 2005, 3:11pm

Elaine,

I'm so sorry that you got hit. :(
I hope that the beast won't be a regular visitor at your house. :)

I don't know which is worse; not knowing when ch returns or knowing that you'll have them every day in some point. I've had both.

I've had few short and mild reminders since April. I try my best to forget the fact that ch can return any day, but in the meantime I enjoy each PF day I have.

PFDANs,
Sanna

Title: Re: Unexpected cluster attack!
Post by Bondservant on Nov 17^th, 2005, 3:47pm

LadyE: http://images.kodakgallery.com/photos1177/4/15/26/29/70/0/70292615407_0_ALB.jpg I hate the beast. The start of my last episode was I was at work and it hit me like that. My boss offered to drive me home but I didn't want to appear weak, drove myself. Huge mistake and it won't happen again. I have no idea how I made it back to the house. My prayers are with you. Remember the Apostle Paul and his afflictions... "My grace is sufficient for thee..." said the Lord.

Title: Re: Unexpected cluster attack!
Post by Charlie on Nov 17^th, 2005, 5:27pm

http://www.netsync.net/users/charlies/gifs/RATS SIGN.png

So sorry E. It's time you got a effen break. Keep your O2 handy while you beat the beast to death. Rub him out. http://www.netsync.net/users/charlies/gifs/lysol.gif

Charlie

Title: Re: Unexpected cluster attack!
Post by mattchew on Nov 17^th, 2005, 5:29pm

Hopefully iit was an odd ball hit. Stay prepared.

Title: Re: Unexpected cluster attack!
Post by cootie on Nov 17^th, 2005, 8:43pm

Brad went into cycle over Xmas holidays the one year and it was aweful......hit him like arock to add to all the stress of the holidays and everything else !! Hope it was just a reminder and goes away forever Pam

Title: Re: Unexpected cluster attack!
Post by TxBasslady on Nov 17^th, 2005, 10:34pm

E,

Maybe you should consider getting an E tank...you know with a little wheel cart thingey.

Keep it in your truck....I know it won't hold alot, but it should hold 'nuf to get you thru in an emergency.

I hate the fuckin' ha's. :'( So damned unpredictable.

Much love to you, my dear friend

Jean

Title: Re: Unexpected cluster attack!
Post by LeLimey on Nov 18^th, 2005, 4:09am

Hi Elaine,
Please look into the zyprexa like EE suggested and also an E tank of O2.. there is nothing worse than getting caught out by the beast ESPECIALLY when driving :'(
love
Helen X

Title: Re: Unexpected cluster attack!
Post by Carl_D on Nov 18^th, 2005, 3:05pm

an E tank for Lady E. Sounds meant to me if you ask me.

Sorry your getting whacked by the beast again. Hope this is just a brief cycle and ends like - now.

Big hugs & vibes,
Carl D

Title: Re: Unexpected cluster attack!
Post by KingOfPain on Nov 18^th, 2005, 4:36pm

on 11/17/05 at 10:57:06, LadyElaine wrote:

and out of no where, no warning what so ever. I got hit and hit hard.

How do we figure our attacks?
I hate not knowing.

You don't.

Wecome to my world.

:(

Title: Re: Unexpected cluster attack!
Post by Jeepgun on Nov 21^st, 2005, 12:26pm

Ditto. 2 a.m. on Sunday morning, I got slammed... It lasted for a half hour, and I kept thinking it was going to either be mild, or else it was going to fade. Instead, the pain kept ratcheting up, radiating down into my teeth and the back of my neck... >:( :(

I can't figure this out... I'm not getting hit often enough to say definitively whether or not I'm in cycle. I'm getting hit like, once every two days. When I'm in cycle, I usually get hit four times a day. I can't figure out what's going on, and I'm so sick of waiting. It's like living with an anvil hanging overhead... :(

Title: Re: Unexpected cluster attack!
Post by Jasmyn on Nov 21^st, 2005, 1:45pm

Sorry to hear Elaine.

Driving with a hit can be life threatening!

Please take care and go prepared, the beast is a sneaky bastard :(

PF vibes to you and to you too Frank.

Title: Re: Unexpected cluster attack!
Post by TomM on Nov 21^st, 2005, 2:34pm

Dam, Elaine. I understand.

Funny how the Chronics feel sorry for the Episodics and vice versa.
Me, I am Episodic. No rhyme; no reason. Take every moment PF as if it were your last!
TomM