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        New Message Board Archives >> 2005 General Board Posts >> misdiagnosed???? comments please
        
(Message started by: hughesa on Nov 15^th, 2005, 9:48pm)

Title: misdiagnosed???? comments please
Post by hughesa on Nov 15^th, 2005, 9:48pm

I was hoping to get some advice and/or comments on what some of you might think of this. I was diagnosed with cluster headaches some years ago. I never took the medication prescribed and basically have been living with the pain. I work sitting at a desk looking at a computer for about 6 hours a day. I was away from work for about 8 weeks and I did not once get a headache (sore eye as I call it). I’ve come back and as soon as I sat at my desk they have started again and “ruling my life”. Does this sound like I suffer from “cluster headaches” or does it sound like I was misdiagnosed.

Title: Re: misdiagnosed???? comments please
Post by marlin on Nov 22^nd, 2005, 6:47pm

I suggest that you see someone that actually knows what headaches are. Y

ours sounds like eye strain related headaches or something like that. Not minimizing the amount of pain but cluster treatments almost certainly won't help. I know thousands of people that do nothing but work on computers and none of them get clusters. I started getting clusters before I ever worked on a computer.

I've been episodic for 28 years.

Title: Re: misdiagnosed???? comments please
Post by hughesa on Nov 22^nd, 2005, 7:20pm

Thanks for your comments marlin I really appreciate it – the problem is I’ve had my eyes tested 3 times now by different people and they don’t find anything wrong with them . I guess I’ll just have to keep searching for answers.

Title: Re: misdiagnosed???? comments please
Post by forgetfulnot on Dec 19^th, 2005, 12:27am

You might be like me. A shovel just won't fit my hands. So I avoid them.

Lee

Title: Re: misdiagnosed???? comments please
Post by Ree on Dec 19^th, 2005, 9:39pm

Hi there and here is my two cents ... Most of the Cluster Sufferers that I know here cannot stand to be in front of the computer during an attack. I definately can relate to you though. Since owning my computer aproximately 8 years my eyes have gone down hill... I also suffer from Migraine, and Occipital Migraine... My pain sounds alot like yours at time. I have also noticed that during my vacation in the summer I do not have any headaches, or very few... I believe you were probably misdiagnosed... Cluster sufferers cannot sit still while having an attack... think yourself fortunate..... be well Ree