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        New Message Board Archives >> 2005 General Board Posts >> Tiny migraines!
        
(Message started by: rextangle on Oct 19^th, 2005, 10:08pm)

Title: Tiny migraines!
Post by rextangle on Oct 19^th, 2005, 10:08pm

She is on heart medication and two of the many symptoms she suffers are cluster headaches (tiny migraines lasting from a few minutes to an hour) and chronic fatigue, which creates a need for her to take frequent naps

This crap came out of this article...

http://www.dailytidings.com/2005/1017/101705back.shtml

Nice. ;;D

Title: Re: Tiny migraines!
Post by kimmiedawn81 on Oct 19^th, 2005, 10:10pm

"Tiny" my ass!

Title: Re: Tiny migraines!
Post by Mr. Happy on Oct 19^th, 2005, 10:23pm

"Tiny's" cute. In a nice shade of Teal.

And some Tofu.
RJ

Title: Re: Tiny migraines!
Post by cootie on Oct 19^th, 2005, 10:27pm

The person who wrote that article could use a tiny strangleing rite.......was I too violent Pam

Title: Re: Tiny migraines!
Post by rextangle on Oct 19^th, 2005, 10:52pm

Or we can send them the tiny video of Chuck having a tiny migraine, and see what kind of tiny response we get filled with tiny bullshit.... just a tiny idea...

REX

Title: Re: Tiny migraines!
Post by Drk^Angel on Oct 19^th, 2005, 10:54pm

I think the tiny reporter likes the word tiny a tiny bit too much. Of course, that tiny problem isn't as important as the total lack of research required to describe CH as a migraine, tiny or no. Gotta love the incompetence of the tiny media.

PFDAN........................................ Drk^Angel

Title: Re: Tiny migraines!
Post by cootie on Oct 19^th, 2005, 11:25pm

Why am I pictureing a midget author.......midget ramblings Pam ;;D

Title: Re: Tiny migraines!
Post by zanychef on Oct 19^th, 2005, 11:58pm

maybe a tiny k10 would help the tiny author grow up a tiny bit.......
zany ;;D

Title: Re: Tiny migraines!
Post by BMoneeTheMoneeMan on Oct 20^th, 2005, 12:09am

Oh look!! tiny migraines!! they are so cute!! Can i have one?
Tiny migraines, jesus, maybe we should get her a tiny chiropractic pillow for $29.95.

When she gets these tiny migraines, i wonder if she bangs her head on the tiny sink.
BMonee

Title: Re: Tiny migraines!
Post by LeLimey on Oct 20^th, 2005, 1:37am

tiny migraines and tiny naps sounds like a tiny misdiagnosis to me - naps and clusters are two words that don't go in any sentence I know ::)

Title: Re: Tiny migraines!
Post by JenniferD on Oct 20^th, 2005, 8:35am

Dear Mr. Green,
I read your article covering the triumphs of Kara Quinn, the young lady with Graves’ disease. While I applaud your sensitivity to her struggles and your ability to help the reader understand the difficulties she has faced and overcome, I must point out what to me and many others is a major misunderstanding.

You mentioned that one of Kara’s symptoms are cluster headaches which, as you put it, are TINY migraines lasting a few minutes to an hour. As a cluster headache patient, I can say with 100% certainty, you are very wrong. Cluster headaches are not migraines, and are NOT tiny in any way. They are one of the worst kinds of pain known to man, and are so horrific that they are referred to by physicians as “suicide headaches”.

I am currently “in cycle”, meaning, my headache cycle has begun and I am looking forward to 3 to 4 months of excruciating pain. My headaches will come 3 to 8 times a day. I have no medication specifically for clusters. There is none. Cluster patients have to rely on what is available for migraine sufferers, and that is inadequate and ineffective at best.

Since you were so interested in reporting on struggles, trials, and triumphs of human spirit over adversity, please check our www.clusterheadaches.com. There you will find a wealth of information on this affliction, the truly debilitating effects it has- not the TINY migraine you stated. I hope that you will report on this problem in the same compassionate and sensitive style and enlighten your readers to what many cluster patients must deal with. We desperately need the attention in the media, so that funding will be made toward finding a cause and one day, finding a cure.

Very Sincerely,
Jennifer Donald

Title: Re: Tiny migraines!
Post by ghost62 on Oct 20^th, 2005, 9:23am

Hey why dont we all send him that letter? Tiny my arse! >:(

Title: Re: Tiny migraines!
Post by Kevin_M on Oct 20^th, 2005, 10:33am

Nice composure Jennifer. ;)

Title: Re: Tiny migraines!
Post by JenniferD on Oct 20^th, 2005, 10:35am

Thank you, here is his response. Perhaps Kara doesn't have clusters- just heard the term and applied it herself, not knowing what they actually are.

*********************
Dear Jen,

I appreciate your clarification.

Please understand that the article was written to reflect Kara's
perspective, not my own. She described her cluster headaches in the manner
written in the article. Since I am blessed to have never experienced such
trauma, I have no concept of it outside of how it was described to me.

Nevertheless, I certainly do sympathize with both her and your suffering and
daily struggle with what must be a most horrible malady.

Thank you again for the clarification. I do feel enlightened about this
issue.

Mike Green
Content Editor
Ashland Daily Tidings

Title: Re: Tiny migraines!
Post by catlind on Oct 20^th, 2005, 10:37am

Very cool Jennifer. Education to the public at it's best :)

You did well!

Cat

Title: Re: Tiny migraines!
Post by zanychef on Oct 20^th, 2005, 10:39am

how about him giving a tiny reporter a tiny job and doing a BLOODY HUGE ARTICLE ......on us tiny ch'ers????

Title: Re: Tiny migraines!
Post by giffy76 on Oct 20^th, 2005, 10:48am

Carfull, some bodys gonna accuse us of oneupsmanship :-/

Title: Re: Tiny migraines!
Post by ClusterChuck on Oct 20^th, 2005, 10:56am

on 10/20/05 at 10:39:21, zanychef wrote:

how about him giving a tiny reporter a tiny job and doing a BLOODY HUGE ARTICLE ......on us tiny ch'ers????

Is that WHINNING I see, Ian? ;) :D :-*

Chuck

PS: Good to see you posting again!

Title: Re: Tiny migraines!
Post by nani on Oct 20^th, 2005, 11:15am

Excellent jobs!
Rexie...for finding it.
and Jennifer for doing a great job educating someone.

Ya know.... OUCH needs volunteers.... ;)

nani

Title: Re: Tiny migraines!
Post by thomas on Oct 20^th, 2005, 11:37am

Mr. Green also just recieved a letter from the chair of the OUCH media committee. ::) Let's see if he can right his wrong.

Title: Re: Tiny migraines!
Post by JenniferD on Oct 20^th, 2005, 12:05pm

on 10/20/05 at 11:37:56, thomas wrote:

Mr. Green also just recieved a letter from the chair of the OUCH media committee. ::) Let's see if he can right his wrong.

I absolutely LOVE IT! :) Though I think it was her mistake in terminology, not his.

Title: Re: Tiny migraines!
Post by Carl_D on Oct 20^th, 2005, 12:34pm

If someone has CH and describes it as a tiny migraine - they have never been beyond a kip3-4. When mine first started, they weren't real strong. However, with each new cycle the beast grew into a monster beyond anything I've ever known.

If anyone were to tell me that I get TINY migraines I might respond with "Okay, then let me poke you with this tiny needle" and whip out a sword!

Jennifer - AWESOME responding letter!!!

Peace,
Carl D