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        New Message Board Archives >> 2005 General Board Posts >> Mommy
        
(Message started by: kimmiedawn81 on Oct 14th, 2005, 7:21pm)
Title: Mommy
Post by kimmiedawn81 on Oct 14th, 2005, 7:21pm
I'm 24 years old.  And last night at 1:00 in the morning I called my Mom as I was balled up in the bathroom crying with a cold pack on my head.  I guess at the end of the day when things get bad I just want my Mommy.

I am just so incredibly glad that you guys know what it's like.  These damn things are a walk in hell.  And I'm really glad that I don't have a gun in my apartment.  

-Kim
Title: Re: Mommy
Post by Jonny on Oct 14th, 2005, 7:29pm
We are always here for you, but, get use to it. it could be a long road....sorry
Title: Re: Mommy
Post by BMoneeTheMoneeMan on Oct 14th, 2005, 7:30pm
Sorry you got hit so bad.  Im sure your mom was more than happy to provide support and comfort.
You have meds?
PF wishes
BMonee
Title: Re: Mommy
Post by Sean_C on Oct 14th, 2005, 7:31pm
Sounds like you had a tough night Kim. If I lose control I need support too. Just knowing someones there to make sure we don't die sometimes makes a difference don't it ;)

Hugs going over [smiley=hug.gif]

Sean...................................
Title: Re: Mommy
Post by kimmiedawn81 on Oct 14th, 2005, 7:33pm
Yeah, BMonnee, I have meds...taking Lithium, Verap, and Inderal.  I am running low on Trex injections, so I was gonna try to ride it out...not a good idea.
Title: Re: Mommy
Post by Sean_C on Oct 14th, 2005, 7:35pm

on 10/14/05 at 19:33:18, kimmiedawn81 wrote:
Yeah, BMonnee, I have meds...taking Lithium, Verap, and Inderal.  I am running low on Trex injections, so I was gonna try to ride it out...not a good idea.


No o2?
Title: Re: Mommy
Post by kimmiedawn81 on Oct 14th, 2005, 7:37pm
No, the last time I had 02 the lpm's were wrong and I haven't had it prescribed since.
Title: Re: Mommy
Post by Sean_C on Oct 14th, 2005, 7:38pm
Can you get it?
Title: Re: Mommy
Post by kimmiedawn81 on Oct 14th, 2005, 7:39pm

on 10/14/05 at 19:38:59, Sean_C wrote:
Can you get it?

How?
Title: Re: Mommy
Post by BMoneeTheMoneeMan on Oct 14th, 2005, 7:49pm
Hey Kimmee.  I never heard of the inderal helping clusters.  Verapimil yes, and they are similar drugs.  Be careful with mixing the verapimil and inderal (propranolol).  They both should reduce your heart rate and if you are taking enough, it could make your heart slow down too much, causing you to pass out.

I got O2 by going to a doc and demanding it.  They probably use a DME (durable medical equipment)company to distribute and deal with home delivery logistics.  Tell your doc you need a variable regulator that goes all the way up to 15lpm.  Thats very important.  Im sure the doc will balk, cause thats a lot of O2, most people havent even heard of taking that much O2.  But get it.  Along with that, tell the DME people you need a non-rebreather bag with a mask. (although i dont use a mask, just suck directly out of the bag).
O2 works well for lots of people.  Hopefully it will work for you.

If the doc says its too much O2, or wont even give you o2, you need to press them, demand it and demand that they learn a thing or 2 about your condition before they tell you what you can and can not have.
When can you get more Trex?  You have seen the imitrex tip on the left side menu here  <-------------?
I just get it in syrenge and vial form anyway.
PF wishes
BMonee
Title: Re: Mommy
Post by kimmiedawn81 on Oct 14th, 2005, 7:54pm

on 10/14/05 at 19:49:39, BMoneeTheMoneeMan wrote:
Hey Kimmee.  I never heard of the inderal helping clusters.  Verapimil yes, and they are similar drugs.  Be careful with mixing the verapimil and inderal (propranolol).  They both should reduce your heart rate and if you are taking enough, it could make your heart slow down too much, causing you to pass out.

I got O2 by going to a doc and demanding it.  They probably use a DME (durable medical equipment)company to distribute and deal with home delivery logistics.  Tell your doc you need a variable regulator that goes all the way up to 15lpm.  Thats very important.  Im sure the doc will balk, cause thats a lot of O2, most people havent even heard of taking that much O2.  But get it.  Along with that, tell the DME people you need a non-rebreather bag with a mask. (although i dont use a mask, just suck directly out of the bag).
O2 works well for lots of people.  Hopefully it will work for you.

If the doc says its too much O2, or wont even give you o2, you need to press them, demand it and demand that they learn a thing or 2 about your condition before they tell you what you can and can not have.
When can you get more Trex?  You have seen the imitrex tip on the left side menu here  <-------------?
I just get it in syrenge and vial form anyway.
PF wishes
BMonee


I know all about mixing the drugs, heard that many times.  And I never asked my new doc about the O2.  I know that it helps a lot of you and I know that I should.  And I do use the Imitrex tip.  Thank you!
Title: Re: Mommy
Post by Gator on Oct 14th, 2005, 8:12pm
Kim, don't be shy with the doc.  Tell him you want oxygen and that you want it at 15lpm via non-rebreather mask.

Here is something to take to him to show him that the high flow rate is justified in ch treatment.  If he still balks, then it's time for a new doc.  A doc who thinks he knows everything and can't learn a new trick is worthless.

http://www.chhelp.org/mhni.html  


Best wishes for some much deserved pf time.

Mike
Title: Re: Mommy
Post by Jonny on Oct 14th, 2005, 8:13pm

on 10/14/05 at 19:54:24, kimmiedawn81 wrote:
 And I never asked my new doc about the O2.


Charlie, wheres the "Loser" smiley"? ;;D
Title: Re: Mommy
Post by kimmiedawn81 on Oct 14th, 2005, 8:18pm

on 10/14/05 at 20:13:31, Jonny wrote:
Charlie, wheres the "Loser" smiley"? ;;D

Ha ha ha :P
Title: Re: Mommy
Post by Carl_D on Oct 14th, 2005, 8:21pm
[smiley=hug.gif]
Title: Re: Mommy
Post by Opus on Oct 14th, 2005, 8:27pm
Hang in there KD,

and don't be afraid to post if you run out of trex.

I am glad you could call your mother.

Many of us have family members who don't understand,
or worse think we are faking.

Opus/Paul
Title: Re: Mommy
Post by Jonny on Oct 14th, 2005, 8:30pm
Insist on 02, Kim........dont take no for an answer!

If you find yourself without, email me.....I will get you hooked up.
Title: Re: Mommy
Post by sandie99 on Oct 15th, 2005, 2:37am

on 10/14/05 at 20:27:13, Opus wrote:
Many of us have family members who don't understand,
or worse think we are faking.

Kimmie,
I'm so sorry that the beast is torturing you so strongly right now... [smiley=hug.gif]

I do agree with Paul: it's great that your mom can offer you the support you need. I think that's just wonderful. :)
I'm 25 and I do wish that my mother could be more suportive when she sees me during a hit. So don't worry about your age. We need our closeones during the moment we're in pain, it's natural. :)

PFDANs,
Sanna
Title: Re: Mommy
Post by sassy_lady on Oct 15th, 2005, 2:55am
[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]
Title: Re: Mommy
Post by Jasmyn on Oct 15th, 2005, 3:49am
Kimmie, so sorry you are getting hit so hard. :(

<<<<<<<<<<Vibes>>>>>>>>>>

and

[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]
Title: Re: Mommy
Post by Ree on Oct 15th, 2005, 6:47pm
((((KIMMIE))))
and much love from ree who has witnessed what you speak of and would love a walk off the planet....

be well honey.....love ree [smiley=hug.gif]


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