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        New Message Board Archives >> 2005 General Board Posts >> Re: Clusterville Implodes [A Re-post]
        
(Message started by: Cathi04 on Oct 13^th, 2005, 9:50pm)

Title: Re: Clusterville Implodes [A Re-post]
Post by Cathi04 on Oct 13^th, 2005, 9:50pm

Dear Me.......

That's one of your best so far, even if it is a rerun.......but, y'know the one I like best?It begins with....

"There Once was a princess................."

Steve, you are one of a kind, a true gem, and I miss you!

Cathi

Title: Re: Clusterville Implodes [A Re-post]
Post by don on Oct 13^th, 2005, 10:19pm

Quote:

And you wonder why I don't come around so much

Ummm. No. Not really.

Title: Re: Clusterville Implodes [A Re-post]
Post by gore2424 on Oct 13^th, 2005, 11:42pm

so sorry you feel that way KOP I myself have nothing but a great time reading all the wonderfull posts which in begining I got a lot of info to give my neuro ideas what I could try next with helping me cope with the pain and have even learned just this week how to post my picture on "Getting to know you" message board Thank you Don so much for the great help you gave me and after I called you bitter sorry and to be able to chat and help someone that is feeling down or to talk to someone when I am down on the Chat Room PLUS if I hadnt found this site I would of never meet another clusterhead that has meet in a hotel just 6 blocks from my house last two January's and really looking forward to next one pain-free wishes to all Terry

Title: Re: Clusterville Implodes [A Re-post]
Post by deltadarlin on Oct 14^th, 2005, 8:01am

Steve,
I enjoyed meeting you in Dallas and really loved your *laid back* attitude. I've only been a member here for a short while and I'm sorry, but I have to agree with you. I've been a member/moderator/admin of boards for many years now and some of what goes on here takes the cake. I don't understand why it goes on.

'darlin

Title: Re: Clusterville Implodes [A Re-post]
Post by kimmiedawn81 on Oct 14^th, 2005, 8:25am

I love this website. If it wasn't for this website and the caring people here, I would have a much more miserable life. I don't know what I would do if this website was ever shut down.

I guess I just don't see all of the in-fighting and such, but even if I did, there are still TONS of caring people here who would give you the shirt off of their back if they could.

-Kim

Title: Re: Clusterville Implodes [A Re-post]
Post by DonnaHar on Oct 14^th, 2005, 8:37am

It is hurtful and sometimes very childish, but when you take a look at how many personalities dwell here, it's a wonder it isn't a lot worse.

I think we try pretty hard to bite out tongues sometimes. I've gotten pretty angry and swore I'd never come back, but there's more here than just what appears on the surface. It's a special place and a very needed place.

Title: Re: Clusterville Implodes [A Re-post]
Post by Margi on Oct 14^th, 2005, 8:55am

Very well said, Donna. There have always been threads here that ruffle some feathers. I came here in the first year of ch.com and it was happening then too. Some will remember Waterdog. And LindaB. and..and..and. Nothing's changed.
This is a website for people in pain and with that pain, comes stress and close-to-the-surface feelings. Poo poo's gonna happen. But at the end of the day, if someone shows up here needing cluster support, they get it - unconditionally.

Title: Re: Clusterville Implodes [A Re-post]
Post by Bob P on Oct 14^th, 2005, 9:04am

Shut up Margi!

Title: Re: Clusterville Implodes [A Re-post]
Post by Margi on Oct 14^th, 2005, 9:06am

and yet still others will remember BobP.

see? nothing's changed here.

:P to Bob.

Title: Re: Clusterville Implodes [A Re-post]
Post by jcmquix on Oct 14^th, 2005, 9:29am

on 10/14/05 at 08:55:16, Margi wrote:

Well SAID !!!! [smiley=hug.gif]

God Bless & PFDAN's
Charlie

Title: Re: Clusterville Implodes [A Re-post]
Post by Sandy_C on Oct 14^th, 2005, 12:48pm

KOP,

I know you and I have never met, because I've only met one CH in my life, and I don't think you and I have ever had any sort of interaction on these boards. As I have said in other recent posts regarding the subject of shutting down this site, I was here, joined up, in 1999. I didn't last long. I learned very quickly, that because I had not been "officially" diagnosed with CH, (you see, in 1999, my husband was unemployed and we had no health coverage, we had two daughters in college so getting "officially diagnosed" was out of the question). I was not accepted into the "club" of CH sufferers. If I voiced any opinion on any topic, I was ridiculed and personally attacked, by the "club members" (one person in particular). I was actually accused of fabricating CH as the "fad of the week" ailment. Oh, yes, there were a couple of people who actually tried to help me, to give me suggestions on what I could do to minimize my CH problems, but those people were few and far between.

I left the old board shortly after I joined. I was not made welcome. I was made fun of, and outside of one or two people, I was either ignored or riduculed. Why stay?

For the next few years, I battled my CH on my own - and by the way, was finally "officially diagnosed". This year, 2005, I decided to lurk on the board to see if anything had changed - and it HAD. I found real people here, people who suffer the same thing that I do and who do not judge, who do not ridicule, who do not make fun of (other than the obvious trolls) anyone. I re-joined, and found a whole new family.

This is a CH support board. In addition to sharing information about CH, medications, new medical information, we support each other. To be supportive, the conversations must go beyond just CH. Coversations must cover laughter, sadness, problems in our personal lives, our children, our spouses, our work, and our anger - not only at our CH, but at anything else in the world that is affecting our lives, as well as allowing each of us to be ourselves, including posting "questionable" jokes and pictures. We support each other in all things, good things and bad things.

I'm sorry that you feel this board (this is my assumption) should be relegated to CH and only CH, when there is so much else in all our lives that demand our attention, and require others to help us get through the hard times.

Give all of us a chance. Open your mind to anything, and everything that you read on these boards. Yes, many things are not quite "tasteful", many are downright obscene, some people are obnoxious, some are always sweet at sugar, but we are all suffering from the same thing, and we are all a family of sufferers. As a family, we accept each other for what we are. If you really read everything, you will learn just how much we all mean to each other.

Feel free to PM me and I'll give you my telephone number so that I can tell you personally just how much the people on these boards mean to me. They have saved my life and my sanity. I can overlook their "quirkiness" because they were there for me when I needed them.

Sandy

Title: Re: Clusterville Implodes [A Re-post]
Post by BarbaraD on Oct 14^th, 2005, 1:57pm

on 10/14/05 at 09:06:34, Margi wrote:

and yet still others will remember BobP.

see? nothing's changed here.

:P to Bob.

You're right Margi - Nothing ever changes here. Some of us have just been around so long we take it with a grain of salt - or else we just can't be insulted (Ok, Bob P I know I left that one open for you!)

Hugs BD

Title: Re: Clusterville Implodes [A Re-post]
Post by Jonny on Oct 14^th, 2005, 2:02pm

on 10/14/05 at 09:04:43, Bob P wrote:

Shut up Margi!

Now thats fucking funny!!!...LMMFAO ;;D

Title: Re: Clusterville Implodes [A Re-post]
Post by fubar on Oct 14^th, 2005, 2:31pm

KOP,

I think everybody who has been, or will be part of this family all share a common problem. It's a problem that goes far deeper than what most humans have to deal with, and because of that we all cycle through extreme emotions and sensativities. Everyone here has been ready (at some point) to:

- beg for help
- lash out at people who try to help
- praise the awesome family that is clusterville
- donate time/money/resources to clusterheads and events
- pack up their toys and go home to wallow in pity
- fill in the blank

The problem is we cannot all be in sync, and irrational behavior is really a regular occurance with people under our kind of stress. *Everybody* here is going to experience good AND bad here. You have to ignore the bull sheet and learn to benefit from the good stuff.

I've kept my mouth shut for the most part, but your post made me want to respond because I don't think it's any worse that it has always been... just maybe you are in a place where you're less tolerant of the bad stuff and less aware of all the good stuff. It's still the same place, but the people, including you, are cycling through different modes. Just chill out and ignore the crap, look for opportunities to help if your able, and it will all work out.

-Shawn

Title: Re: Clusterville Implodes [A Re-post]
Post by Jimi on Oct 14^th, 2005, 4:03pm

And all God's chillins said........Amen.

Title: Re: Clusterville Implodes [A Re-post]
Post by ghost62 on Oct 14^th, 2005, 4:27pm

I like you too!

http://www.webworksllc.com/I_Like_You.swf

;;D

Title: Re: Clusterville Implodes [A Re-post]
Post by Jonny on Oct 14^th, 2005, 4:32pm

on 10/14/05 at 14:31:42, fubar wrote:

Just chill out and ignore the crap

Thats easy to say for some, DJ shut this whole site down for a whole weekend years ago (Im sure you remember)

That weekend was black...and I mean BLACK for a lot of folks. I try and warn the folks that this could happen when these threads get out of control with the BS, I cant speak for DJ, but dont be surprised one day that you click and it says "This site is down untill...."

WE can ignore and click to the next post, but, how long will DJ do that before another black weekend?

BTW, your post was excelent, Fubar

Title: Re: Clusterville Implodes [A Re-post]
Post by Sean_C on Oct 14^th, 2005, 4:36pm

on 10/14/05 at 16:32:27, Jonny wrote:

BTW, your post was excelent, Fubar

My thoughts exactly ;;D

Title: Re: Clusterville Implodes [A Re-post]
Post by fubar on Oct 14^th, 2005, 4:44pm

I know 'chill out' sounds trite and is probably unrealistic for some people, but it's the only rational thing to do IF you can do it. Fact is, we will always have irrational people here and sometimes it's the person in the mirror. By being concious of this fact before, during, and after posting... you can avoid falling into those emotional traps that only make your problems seem worse than they are. I've fallen for the political rants and some other BS threads in the past... now I hardly read any threads unless they catch my attention. It's just my way of avoiding the mayhem that disheartens me. And I feel better for it too.

Thanks for the comment Jonny, Sean.

Title: Re: Clusterville Implodes [A Re-post]
Post by rextangle on Oct 14^th, 2005, 4:48pm

Fubar, I think you're absolutely right.
Keep in mind we're not a normal bunch regardless of our backgrounds, political views, etc... how can we be with what we have to deal with on a regular basis?
I don't participate in these threads but get saddened when they turn to shit.
I post humorous threads every once a while to try to lift the spirits and make people laugh for a minute. Laughter's good medicine.
Cheers,
Rex

Title: Re: Clusterville Implodes [A Re-post]
Post by Leesa on Oct 14^th, 2005, 8:02pm

The "game" doesnt change only the players do.
Den says it best "take what ya need and leave the rest." When youve around as long as some of us, you know the threads to avoid. KOP you are MISSED big time at least by ME!! Hey man BTW shoot me PM with your number honey!!! We need to TALK babe. ;)
Love ya lots, Leesa :-*

Title: Re: Clusterville Implodes [A Re-post]
Post by Jasmyn on Oct 15^th, 2005, 7:24am

Same ol same old stuff.

What Fubar said, good, that's what it is.

Title: Re: Clusterville Implodes [A Re-post]
Post by karma on Oct 15^th, 2005, 8:38am

Quote:

Thats easy to say for some, DJ shut this whole site down for a whole weekend years ago (Im sure you remember)

So nothings changed accept the club has new members.
Same rediculous arguements, Same antoginists, Same opinionated, overinflated ego's, Same royalty Its like a rerun of " Groundhog Day" over and over again.
I think whats needed is to have a designation above Hall of Famer so that the old guard can feel
"special" (said with a lisp)
and anyone that arrived here in the last five or six years can aspire to joining that elitest crowd.

Title: Re: Clusterville Implodes [A Re-post]
Post by LeLimey on Oct 15^th, 2005, 9:00am

Hmm.. you know, I've only been here just over a year and non of the "old guard" have made me feel like that [smiley=huh.gif]

Title: Re: Clusterville Implodes [A Re-post]
Post by Linda_Howell on Oct 15^th, 2005, 9:50am

That's because you're cuter than a bugs ear Helen, so we tolerate you and your newbie-ness.

JK....lmao Linda

Title: Re: Clusterville Implodes [A Re-post]
Post by rumplestiltskin on Oct 15^th, 2005, 10:15am

Yikes
The only thing worse than bad poetry...is bad poetry twice.... with feeling.
I liked the subject heading...so i opened this thread.

Jonny...you are a prophet...warning sodom and gamorrah...warning ninevah...if it ain't "9-11" it's DJ and fire and brimsione...we heard you...now shut the fuck up...or better yet...send those to the world leaders and sign them "god"

I think it was very rude of BobP to tell Majee to shut up. She is very sweet and Canadian. He has become a crotchety old bitter man...as has Don.

I am a member of the elite old posters here. It is a shitty club. ...butt it is all i have. If you are new today...do what I did...find ways to deal with yer CH...then hook up with someone here and have sex...then quit drinking...become an agnostic...and whatever you do...never loose yer wonder.

or...do whatever ya want...it's fuckin AmeriKa!

...one last thing...if ya want a polite CH world...go to OUCH UK....their shit don't stink...man that place gives me the creeps...talk about "imploding"...hanging on in quiet desperation. Gimme liberty to say "fuck you" or give me death.

love
den

PS: sometimes the only way to say less...is to talk more.

Title: Re: Clusterville Implodes [A Re-post]
Post by Jonny on Oct 15^th, 2005, 11:04am

on 10/15/05 at 08:38:19, karma wrote:

I think whats needed is to have a designation above Hall of Famer so that the old guard can feel
"special" (said with a lisp)
and anyone that arrived here in the last five or six years can aspire to joining that elitest crowd.

Thats a damn good idea!! ;;D

Title: Re: Clusterville Implodes [A Re-post]
Post by Callico_Kid on Oct 15^th, 2005, 4:27pm

PS: sometimes the only way to say less...is to talk more.

Den, you couln't have said it better.

Steve, I'm sorry you feel this way, but over the last couple of months I have had to be away from this board due to responding to the hurricanes, and I have found I really needed it.Since Katrina hit I have been on the board a total of three times, and this is the first I have had more than 10 minutes. I'm late leaving now, but I had to try to find out about some of our folks affected by the storms. You have a lot to give here, and you have been a help to me a number of times while I was trying to find out what was going on in my head. As someone posted earlier, this board saved my life. Don't let a little garbage from a few destroy what has been such a Godsend to others of us. I bless the day I found this place, and I bless DJ for creating it.

Jerry