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Title: Cluster Headaches Post by don on Oct 9th, 2005, 10:21am Just thought I'd make mention of them here. I wonder. How many of us go to the Help and Support board and the Guest Book after posting pics of what we are having for dinner, what we are listening to, pains in out toe nails, etc. etc. |
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Title: Re: Cluster Headaches Post by Cathi04 on Oct 9th, 2005, 10:32am Pardon me, but I cannot, for the life of me, understand why you would even give a rip what someone else is posting. After all the mindless drivel you have been involved in lo these many years, NOW you have turned around, all the caliber of words, the subject matter and presentation are suddenly important to you? :-/ |
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Title: Re: Cluster Headaches Post by Jonny on Oct 9th, 2005, 10:46am Not me...I never do shit like that ::) on 10/09/05 at 10:37:27, Jonny wrote:
You will never find me on those unfun boards.....LMAO Guestbook?....Fuckem, let them step inside if they want to talk!! |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 11:10am Quote:
Only the governor can do that. Quote:
Guess you been reading it. How many years? |
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Title: Re: Cluster Headaches Post by sandie99 on Oct 9th, 2005, 11:12am Well, Don, I do more than that. I'm a support person to a 15- year-old who is dealing with hellish ch cycle right now. |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 11:14am Quote:
Thats about as unjust as it gets. What meds can a 15 year old take? |
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Title: Re: Cluster Headaches Post by nani on Oct 9th, 2005, 11:55am on 10/09/05 at 10:21:17, don wrote:
Not me...I'm only in this for the fun and games. ::) Do your toenails hurt, too? Sending vibes and prayers. |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 11:57am Hey Cathi. LOOK! I bought my girl a new boat. Seemed appropriate. http://www.defender.com/images/453450.jpg (More Drival for ya) |
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Title: Re: Cluster Headaches Post by pattik on Oct 9th, 2005, 12:01pm What are the Help and Support boards [smiley=huh.gif] |
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Title: Re: Cluster Headaches Post by Opus on Oct 9th, 2005, 12:13pm Thanks for the heads up Don, I didn't realize you are trolling the other boards too. Opus/Paul |
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Title: Re: Cluster Headaches Post by Jill on Oct 9th, 2005, 1:11pm on 10/09/05 at 10:32:36, Cathi04 wrote:
Cathi... I dont think that Don was 'ripping' at anyone about anything. What he said shouldnt be taken personal and actually should be construed just as a reminder. Sometimes people can get wrapped up in what is going on on the message board section of this board and tend to forget that there are other parts like the guest book. This isnt a bad thing and neither is what Don said, we just need to remember to check those parts out once in awhile. There are some posts on the guest book that are looking for help and guidance from fellow clusterheads... hopefully we can be there for them. And thanks to all that do. I hope that this isnt taken the wrong way at all, it isnt anything personal.. just dont think that he said anything wrong and I thank him for the reminder. Jill |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 1:14pm Quote:
Whats up Opie? Still pushin your buttons aren't I ? Get some control bud. LMAO! Quote:
Ya see Opie? Some people get it. Stick around. You'll learn. |
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Title: Re: Cluster Headaches Post by Carl_D on Oct 9th, 2005, 1:17pm on 10/09/05 at 12:01:04, pattik wrote:
Over to the left in the buttons there is one that says message board. Open it uo and there are several boards that are for CH advice, meds, alternative therapies, etc. We even have a section that everyone likes called GENERAL POSTS where we can post pics, humor, laugh and cry together, oh and Don can whine and complain about the way in which we use this board when he isn't busy doggin' somebody or giving someone like me a hard time. BTW Don - Nice boat. Did Lance like it? Peace, Carl |
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Title: Re: Cluster Headaches Post by Gator on Oct 9th, 2005, 1:20pm on 10/09/05 at 10:21:17, don wrote:
I jump in here and there where I feel led in the other boards, but it has been a while since I visited the guest book. Thanks for the reminder, Don. |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 1:21pm Quote:
ROFLMMFAO This from the ruler of the whine lands. LMAO! Quote:
Your welcome. And thats all it was Gator. Some people get it. |
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Title: Re: Cluster Headaches Post by Carl_D on Oct 9th, 2005, 1:50pm on 10/09/05 at 13:21:33, don wrote:
You have just proven my point Don. |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 1:56pm Carl. Truth be told I've helped more CH sufferers on and off these boards over the years than you have suckered into payng your rent, food, utilities, ciggarettes, travel and hotel expenses. We both know those numbers are high. |
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Title: Re: Cluster Headaches Post by Opus on Oct 9th, 2005, 1:58pm on 10/09/05 at 13:14:44, troll wrote:
You are not pushing my buttons don. I was merely thanking you. I am not sure who you are quoting because I ignore all improperly coded quotes. I assumed that your reference to "Opie" is referring to me and that you just have the 'i' and 'e' keys confused with 'u' and 's' keys again. Maybe a typing class would help. I do have one question, why do you go through the trouble of removing the name and date from the quotes in the first place? I usually only see this type of deliberate attempt to cause confusion in the most dedicated of Internet trolls. I guess I have answered my own question. Your continuous attempts at demoralizing the OUCH BoD prove how dedicated you are to the troll lifestyle. Opus/Paul PS I can play the messing with quote tags game too but will only reserve it for you. |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 2:01pm Quote:
ROFLMAO! Opie your killin me here! |
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Title: Re: Cluster Headaches Post by catlind on Oct 9th, 2005, 2:22pm on 10/09/05 at 10:21:17, don wrote:
Because the site has grown so much, this is exactly why DJ set things up like this. A general board, music, dinner, circus midgets whatever, it is on this board that the family fights come out, where the true mettle ofa person is gauged beyond the mere pain of CH. The Medical professionals get to see the 'other' side of a CH patient, is that such a bad thing? Most of the info on the other boards right now is info that I could add nothing of futher value to. Right now, my help is through trying to helping state of mind. Cat |
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Title: Re: Cluster Headaches Post by Jill on Oct 9th, 2005, 2:35pm I dont want to make anyone mad here - really but I want to say this... Why does this have to turn into a fighting match? I cant find any reason for it. Don was merely, as I said before, reminding us that there are other places on this board where people are looking for some help. So it should be a thank you for reminding me. I dont think that his original post was towards anyone in particular. I dont think that it was an attack on anyone not posting or posting certain places nor do I think that it was meant in a way that says that no one is helping others... jeesh, did that make sense? The point, help when you can and when you can, dont forget to check out the guestbook. Jill |
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Title: Re: Cluster Headaches Post by Redd715 on Oct 9th, 2005, 2:37pm Cat writes: Quote:
This is the board is a playground for all of us. Don's inflatable dolls, Lance, dinners works of photographic masterpieces. We all help in the ways we can, and play to forget the ways this disease destroys parts of our lives and steals pieces of our souls with each attack, each cycle, each year that passes. Every piece we steal back with a laugh, a joke, a prayer, a sharing of the daily lives where we transcend the pain is another piece the beast cannot keep. Pegg |
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Title: Re: Cluster Headaches Post by Carl_D on Oct 9th, 2005, 3:06pm on 10/09/05 at 13:56:01, don wrote:
Are they now? Let me see here, for one - I've suckered NO ONE thank you very much, but have been suckered a time or two. No one here has paid my rent but me, I pay my utilities and my smokes, But I have been helped by a few clusterheads with meds and back when I had no insurance or anything and couldn't even get into see a doctor, Elaine and Phil C started a medical fund for me, and it was documented where the money for that went. And as far as the hotel goes, I was staying with BarbD last year when Jonny surprised me with my own room. Did I sucker him into doing that? No. Did I repeatedly thank him? Yes. When I got to DavCon, Liz had told me she got me a hotel room. Did I ask her to? No. Did I thank her? Yes. And for your information, I have helped people both on and off this board as well. I just don't go tooting my own horn everytime I do. Maybe you even forgot that little event I tried back in 2003 called OUCHfest. Sure it failed, but I gave it everything I had. When I look at how little people actually participate on the OUCH boards, I'm not surprised that it failed. It broke my heart because I put so much work into it for weeks. What is funny though is how little help I received from the OUCH prez at that time DON. Right now I am trying to put together another OUCHfest, but I won't be performing since the last one I emceed, performed twice in one night, etc. I learned alot from the first attempt, and am trying to get one of the bigger midwest acts to perform. Normally I wouldn't let an attack like this bother me except the fact is, I have left alot of shit off of this board that I had have to go through because I don't want people feeling sorry for me or whatever. In fact, the last couple of months I have screwed myself by helping others (including my own brother who could give a rip what happenes to me) and I will do anything I can to help anybody. Sure, there are people here who have helped me in alot of ways, and then there are some who I have helped. I will give you one example: Last year after Nashville, Jonny got on the board and said his cycle was cranking up and he couldn't get his meds right away. I was one of many who shipped him some stat-dose cartridges asap. But just another instance of my greed and selfishness is since I wasn't able to go down and help in Houston after Katrina hit, I donated $100. My sis in law thought that was crazy since I really couldn't afford it, but my conscience wouldn't let me go until I did something. But I'm not gonna sit here and brag about all of the good things I do because I don't need to stroke my own goat. I knew some people on this board viewed me as a 'low-life' but to say I've 'suckered' people on here is probably the coldest thing I've ever been called. I've gone out of my way for others many times and got burned. But that isn't even this cold. :'( But I'm sure this will make you smile and brighten your day Don, since I'm now a low life with a broken heart that is little good to anybody,even myself. Thanks for the encouragement bro in letting me know that no matter what I try to do for anyone, it will only fail. Happy now Fuckhead? |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 3:41pm Quote:
OH God. I'm a heart breaker. Toughen up Carl. Quote:
Yup. That was pretty much it. Quote:
Except for the new sufferers who are pleading for help. I take exception to the inflatable dolls comment. Its only one. My one and only. |
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Title: Re: Cluster Headaches Post by LeLimey on Oct 9th, 2005, 3:55pm I don't need to justify myself to anyone, and nor does anyone else. What I do or don't do for anyone else is between me and them and not the whole world. If I want you to know I'll tell you. To everyone else, sometimes all of you being here is all the help I need. Emotional support is as beneficial as knowledge particularly when it is given with an open heart. My two cents worth. |
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Title: Re: Cluster Headaches Post by TxBasslady on Oct 9th, 2005, 3:59pm Be kind, be decent, be generous, be tolerant, compassionate, and understanding. Be fast to praise, slow to judge. Remember, we're all human, and don't cast the first stone. ~ Allen Drury J |
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Title: Re: Cluster Headaches Post by Jonny on Oct 9th, 2005, 4:07pm STFU!!! In fighting like this is just gonna make DJ shut this whole site down. Hes done it before and he will do it again.....just ask him. Trolls are one thing, this is not right....egos in check and STFU!!!! |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 4:12pm Quote:
Betcha he didn't have CH. Quote:
I thought you had Euros over there. It would be two Euros worth. 8) |
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Title: Re: Cluster Headaches Post by Jill on Oct 9th, 2005, 4:21pm I gotta agree with Jonny on this one - the fighting is so unneccessary and it boggles my mind that one post can stir up so much anger. I think that if anyone has a problem with what someone says than it needs to be done in private - I believe that I have read this before on the board. This is such a tight family even though everyone is spread so far apart - we all have one condition that brings us together, for better and for worse. I also dont think that anyone needs to get defensive as far as the original post - take it as it was... a reminder to check in the guest book once in awhile. That is all, nothing more. Lets get back to remembering why we are ALL here and try to keep each other going... Jill |
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Title: Re: Cluster Headaches Post by purpleydog on Oct 9th, 2005, 5:13pm on 10/09/05 at 16:12:36, don wrote:
Quote:
Does this mean that when you have CH, that it is ok to be unkind, cruel, selfish, intolerant, uncompassionate, and not understanding? To be fast to judge? Seems to me that would just make someone as ass. Whether they had CH or not. |
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Title: Re: Cluster Headaches Post by Cathi04 on Oct 9th, 2005, 6:56pm Don, I arrived here during your term as president. I've watched you join in the festivites, and wallow in the dirt. Now I see you as a renegade-perhaps a spin Dr....someone who enjoys causing trouble, then turning your words around to make you seem so altruistic. As for Jill...well she needs to reread my words. I never said anything about ripping anyone apart. What I SAID was "who gives a rip what the subject is?" Read it again. DJ did a good thing when he added categories to this board. Sometimes, the only thing a person can do to help is to bring some laughter.........and when ONE of the biggest jokesters here admonishes us for enjoying some light conversation, well, that's just par for the course. Oh, and Don, you have NO idea what is going on behind the scenes. Not everyone announces what they have done each day for a Clusterhead. The subject is Clusterheadaches........I will address my Clusterhead friends........I wont be responding to the Clusterpolice any longer. Cathi |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 7:31pm Quote:
NO NO Not that. I dont want to to have an idea. Pull the curtains quick. I'm going blind! Quote:
You can only be admonished if you feel that way. Now thats pretty altruistic. |
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Title: Re: Cluster Headaches Post by AussieBrian on Oct 9th, 2005, 7:50pm Sex. |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 8:03pm Quote:
Now thats what I call stretch and spin. |
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Title: Re: Cluster Headaches Post by Jill on Oct 9th, 2005, 8:11pm Cathi... I am sorry if you think that I misread your original post. I do stand by my what I wrote though. I, personally, dont think that you or anyone else should have gotten on Don's case about what he wrote. I just dont think that what you wrote was fair - if that makes people mad than I am sorry. And as for the other thing that you said to me, since I cant write you back, that is so uncalled for. Go ahead and support whoever you want - just dont attack those that you dont support. Jill |
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Title: Re: Cluster Headaches Post by Cathi04 on Oct 9th, 2005, 8:25pm What I said, Jill, is I have blocked you from PMing me..... as for the comment to which you take such umbrage..... YOU NEED to READ it...I never intended to rip anyone anything. What I said, was, why GIVE a rip? As in why care? ::)Cathi |
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Title: Re: Cluster Headaches Post by Jill on Oct 9th, 2005, 8:47pm Cathi... I dont want to fight with you. I read and understood what you wrote - you are right, you never said that he was ripping into anyone directly but your post made it seem that way. Why does it matter if he cares or doesnt care? That wasnt the point to his message, people tend to write before they really read what was said and understand it the right way. The point in that post was to remind people to check the guest book and nothing more than that. As for the PM'ing - block me, doesnt matter. That isnt what I had a problem with, it was what you said in that private message. I am sorry for anyone else reading this but I am tired of being walked on and want to say what I think but I cant do it in private. Please dont tell me to re-read what you wrote - I heard what you wrote and still dont agree. Maybe you need to re-read the original post and take it for what it is. A reminder that there are other places that sufferers are posting and asking for help and that we shouldnt forget to check there and help when we can. I really hate to make this public, I am really sorry to everyone else. Jill |
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Title: Re: Cluster Headaches Post by Gena on Oct 9th, 2005, 8:49pm Drink more Beer [smiley=me&mb.gif] |
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Title: Re: Cluster Headaches Post by gore2424 on Oct 9th, 2005, 9:24pm hello all Terry here in cold and windy DavCon been reading this post and one I remembered was when (now please correct me if I am wrong please) Don wrote about the donation or such with the OUCH tee-shirts and I asked if I could have one since he said wasnt going to wear one again and I said I pay for shipping and he told me $186.00 lol but as I read on wow the name calling and such darn now I read this post and all over again how many pages will it go on ok so now I have a ? for you Don (why are you so bitter?) both posts and you say words and turn them around at others not here to make enemies just friends Terry |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 9:54pm Quote:
LMAO! I suggest people go to the "Help" boards and I'm bitter, post drivel, and sure as hell cant post a quote. LOL [quotee]I am not sure who you are quoting because I ignore all improperly coded quotes.[/quote] UH OH! I'm a goner now. |
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Title: Re: Cluster Headaches Post by unsolved1 on Oct 9th, 2005, 10:00pm Well, kick me in the ass if i'm wrong, but i've been going to the 'help' boards frequently. I also check the guestbook (often) and have even e-mailed those asking for help to invite them to the message boards ;;D Quote:
LMAO Can't we all just git along ?? UNsolved |
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Title: Re: Cluster Headaches Post by gore2424 on Oct 9th, 2005, 10:06pm I putor dummy cant do the quotes and you LOL so I know you are ok and also " I said your hair looks nice" Terry btw I sure wish I could learn how to post pictures here too but one day my 19 year old son will show me lol |
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Title: Re: Cluster Headaches Post by nani on Oct 9th, 2005, 10:16pm on 10/09/05 at 20:49:32, Gena wrote:
LMAO Gena... ...best post on this thread. ;;D |
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Title: Re: Cluster Headaches Post by Gator on Oct 9th, 2005, 10:24pm on 10/09/05 at 19:50:37, AussieBrian wrote:
Now THERE's a good idea. Of course, Gena's idea wasn't bad either. Maybe a combination of the two, eh? That reminds me, I've got a Michelob Amber Bock waiting for me in the fridge. |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 10:29pm Thats the beauty of the inflatable. They dont drink much. Cheap date and you dont have to talk to them after. ZZZZZZZZZ ! |
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Title: Re: Cluster Headaches Post by gore2424 on Oct 9th, 2005, 10:48pm btw everyone Don is trying to help me post pictures on here and I thank him oooooohhhhhhhhhhh so much maybe I wont be such a putor dummy after all lol Terry |
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Title: Re: Cluster Headaches Post by don on Oct 9th, 2005, 10:49pm Quote:
Better not be. Opie will label you as a troll. LOL |
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Title: Re: Cluster Headaches Post by cootie on Oct 9th, 2005, 11:13pm Did you buy an inflateable boat for your inflateable girlfriend.......does it have an inflateable liferaft, oars and beer cooler ? Be sure and sit in the middle Pam 8) |
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Title: Re: Cluster Headaches Post by Jasmyn on Oct 10th, 2005, 2:01am Now this is what I call home! ;;D I love you guys. It seems we're all in a period, or have period pains now. You know it doesn't really matter what you guys say to each other, you are still the best family around. Variety is the spice of life! ;) |
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Title: Re: Cluster Headaches Post by Bethany1 on Oct 10th, 2005, 9:24am When I first came to ch.com in 2002, Don was one of the first people to pm me. He was also the first clusterhead I met. Through the years he has shown me so much support I can only hope that I may ever repay him. A lot of you think he is bitter, mean spirited or whatever, but only a select few know the real Don. Don is one of the most compassionate, kind, supportive people I have ever met, and I thank ch.com that he has come into my life and he will forever stay special to me. :) |
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Title: Re: Cluster Headaches Post by ghost62 on Oct 10th, 2005, 9:31am ok everyone grope hugs! :o [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=moonwiggle.gif] [smiley=moonwiggle.gif] [smiley=moon.gif] [smiley=moon.gif] [smiley=moon.gif] [smiley=moon.gif] [smiley=gossip.gif] [smiley=gossip.gif] [smiley=gossip.gif] [smiley=guyflash.gif] [smiley=lick.gif] [smiley=lick.gif] [smiley=oops.gif] [smiley=headbanger.gif] [smiley=headbanger.gif] [smiley=bigguns.gif] Did I miss anyone? :-* ;) |
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Title: Re: Cluster Headaches Post by don on Oct 10th, 2005, 9:31am I'll tell you how to re pay me. Just promise not to leave the keys in the Jeep. |
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Title: Re: Cluster Headaches Post by ghost62 on Oct 10th, 2005, 9:33am That is code for pull out when you are done ;;D :o :o ;) |
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Title: Re: Cluster Headaches Post by Bethany1 on Oct 10th, 2005, 9:39am on 10/10/05 at 09:31:53, don wrote:
:P I promise! LOL |
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Title: Re: Cluster Headaches Post by don on Oct 10th, 2005, 9:51am I got 1/2 the Boston cops looking for a stolen car thats two blocks from the house. I finally told them they found it burned in Chelsea. |
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Title: Re: Cluster Headaches Post by lady_bug on Oct 10th, 2005, 2:15pm I would have never met Langa, wouldn't have attended the conference and met many other great people, would have never gotten the tons and ton of great advice about the clusters, etc, if no one had responded to me on the guest board...but I don't think I have ever actually recipricated. Thanks for the reminder! |
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Title: Re: Cluster Headaches Post by Charlie on Oct 10th, 2005, 7:33pm Wow. http://www.kolobok.wrg.ru/images/smiles/icon_idea.gif?SSImageQuality=Full Coming to this thread after the fact; I read it differently. I thought it was on the money/amusing/serious/cranky/and--well pretty good. Man; I haven't posted in the guestbook in a long time. It seems to me that there used to me many more newbies there a few years ago. [smiley=huh.gif] Charlie http://www.subscribe.smileygenerator.us/all/albums/0riginals/eekout.gif?SSImageQuality=Full |
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Title: Re: Cluster Headaches Post by don on Oct 10th, 2005, 7:42pm Quote:
Why yes. It does have a marvelous essence of variety. (I gotta sell off that Martha Stewart stock) |
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Title: Re: Cluster Headaches Post by Redd715 on Oct 10th, 2005, 8:57pm on 10/10/05 at 19:42:43, don wrote:
The cards predict isolation and bars in your future.... [smiley=laugh.gif] [smiley=laugh.gif] |
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Title: Re: Cluster Headaches Post by Margi on Oct 11th, 2005, 3:09pm Wow, Don - you really stirred the pot with this one, didn't you? Holy! :o I see you were soundly and promptly (within 11 minutes, no less) admonished for your reminder. You gotta lotta nerve, mister - reminding folks of the purpose of ch.com. Jeez, is there no end to your depravity? Man, you have 'nads, don't you. You even succeeded in pissing people off who don't even have cluster headaches in their lives. Wow. You ARE good. I'm with Nani on this one. Game, set, match to Gena. ;) |
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Title: Re: Cluster Headaches Post by don on Oct 12th, 2005, 1:39pm You mean we have cluster "Groupies" here? I'm shocked. Quote:
Can I kick you in the ass if your right? Cmon be a sport! |
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Title: Re: Cluster Headaches Post by Margi on Oct 12th, 2005, 4:07pm Damnit, Don - will you PLEASE learn how to use the quote thingly properly and include the user's name when you're quoting?? i've just gone through this whole thread trying to figure out who said that and who's ass you wanna kick. Even though I know, most likely, it's mine...but I just need to be sure. Quote: Username Text Unquote. It's quite simple, really. |
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Title: Re: Cluster Headaches Post by don on Oct 12th, 2005, 4:10pm Margeriie said: [qute]will you PLEASE learn how to use the quote thingly properly [/quote] Dammit! |
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Title: Re: Cluster Headaches Post by Margi on Oct 12th, 2005, 4:23pm on 10/12/05 at 16:10:57, don wrote:
oh, Donalda, you kill me. I still don't know who you were originally quoting though. |
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Title: Re: Cluster Headaches Post by unsolved1 on Oct 12th, 2005, 4:28pm Don't worry, it's my ass he wants to kick !! LOL Maybe I should've stayed out of this thread after all !! LMAO ;;D ;;D UNsolved Don, you're alright, I don't care what everybody else says about you !! |
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Title: Re: Cluster Headaches Post by don on Oct 12th, 2005, 7:21pm Quote:
Me needda. I dont really want to kick your ass. If you give me $10.00 I'll get Chuck to pat it though. Pimpin aint easy. |
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Title: Re: Cluster Headaches Post by Opus on Oct 12th, 2005, 7:40pm on 10/12/05 at 16:07:43, Margi wrote:
Margi, Give up like I did, Just set in your lameness filter to disregard all posts by Don troll Young. This will make your viewing of CH.com so much nicer ;;D If you haven't already, now would be the time to rejoin OUCH, turn off the lameness filter, and check out the top non sticky thread, it is a classic. Opus/Paul corrected for Jonny |
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Title: Re: Cluster Headaches Post by don on Oct 12th, 2005, 7:54pm Oil up your slide rules. Adjust your pocket protectors. Poindexter is in the house! |
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Title: Re: Cluster Headaches Post by Jonny on Oct 12th, 2005, 8:03pm Opie.....WAAAAY out of line dude!!! If you dont like Don fine, but dont drag nobody elses name into this! I hate the prick but im not adding names that are not asked to be there ;;D |
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Title: Re: Cluster Headaches Post by unsolved1 on Oct 12th, 2005, 9:20pm on 10/12/05 at 19:21:29, don wrote:
From what i've read, Chuck's already groped enough ass this year !! LOL j/k UNsolved |
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Title: Re: Cluster Headaches Post by BobG on Oct 12th, 2005, 9:43pm Hmmmmm…………… Been following this thread since Don started it 17 weeks ago and just have to say I agree with Gena and AussieBrian. |
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Title: Re: Cluster Headaches Post by don on Oct 12th, 2005, 9:56pm Quote:
(BobG said that)(today) LMAO |
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Title: Re: Cluster Headaches Post by don on Oct 12th, 2005, 10:03pm Quote:
Opie loves me. Why else would he let me consume so much of his time. Hey Opie! Wanna go to Vegas? LMMFAO |
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Title: Re: Cluster Headaches Post by Opus on Oct 12th, 2005, 10:09pm on 10/12/05 at 20:03:37, Jonny wrote:
There, is that better Jonny? Opus/Paul PS, don't drag your mouse in the space after Don's name. |
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Title: Re: Cluster Headaches Post by don on Oct 12th, 2005, 10:12pm Told ya. Opie cant even post without putting my name in there. Vegas baby. Vegas. :-* |
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Title: Re: Cluster Headaches Post by Kevin_M on Oct 12th, 2005, 10:25pm Quote:
Don said that, today. [qutoe][qyhote] |
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Title: Re: Cluster Headaches Post by Linda_Howell on Oct 13th, 2005, 1:16pm I'd just like to say something here. I've been away for a month or so and not able to post or read anything, until now. Just now read through this 4-page thread & even though I have a lot of comments I only want to make one thing perfectly clear. Cathi (04) Pearce, has been an awesome supporter of me, as well as others at calouch and here. No, she does not have CH...as others here do not also. So-f-in-what? When I did not have anyone...she was there and only a phone call away to listen to me bitch and moan. She called me when I was ingognito and licking my wounds and did not want to talk to anyone. She made me talk to her so she could rest easy at night knowing she hadn't deserted a friend in need. She has also done this for a lot others here that can step up if they want. She is yet another true supporter if you ask me and I've been here a long time and seen a lot of them. I cannot and will not say anything else, as her views and opinions are hers. I just NEEDED to say this. Linda |
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Title: Re: Cluster Headaches Post by LeLimey on Oct 13th, 2005, 1:56pm Bloody good for you Linda. I couldn't agree more. I'd also like to add that for some people HERE is the only support they get, thats only not best which it is for many of the rest of us. Pep has always been there for me and I've heard nothing but good things about Cathi too. I personally am glad to know they are here and they care. I'm also overwhelmed by the fact that they care and it gives me hope more people will both care and even understand. I don't know anyone who has so much help they don't need a bit more :) |
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Title: Re: Cluster Headaches Post by Svenn on Oct 13th, 2005, 2:16pm Ditto to what Linda and Helen said Cathi means more to a lot of us then anybody know Svenn modified to add that i`m proud to call Cathi my sister |
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Title: Re: Cluster Headaches Post by Margi on Oct 13th, 2005, 2:34pm Linda you know I love you and always will. Yes, I think Peppermint has done a wonderful job educating herself about clusters and I commend her for stepping up to the plate and running for OUCH. I honestly pray that she doesn't get her heart broken in the process. Absolutely, the more people that know about cluster headaches, the more recognition the affliction gets. It's all good. I would never discourage ANYONE from learning about cluster headaches. My hat's off to Cathi, too, for being a good friend to you. I know you treasure your friendship with her, and we all thank her for being there for you and for being a cheerleader for "the cause". The fact remains though, only someone that LIVES with a clusterhead really knows what it means to be a supporter. It's more than just being a reliable friend to a sufferer. It's a lifestyle that is unique. Plans get cancelled at the last minute, feelings get hurt, sleep is lost, meals get thrown in the garbage, finances get diminished from buying all the meds, and most of all (the rest of these pale in comparison) - MOST OF ALL, hearts get broken. The helplessness is devastating and life consumptive. A clusterhead's friend can complete a telephone conversation by hanging up or shutting off the computer. A supporter doesn't have that option. Yes, some supporters do leave. It isn't a lifestyle that's survivable by just anyone. It takes a special personality to put up with all that it entails. I'm sorry, I know this isn't a popular opinion here. But not one of you sufferers or clusterhead friends knows what it's like to be a Jackie. Or a Ree. Or a Firebrix. Or a Sassy_Lady. Or a Cootie. Or a Monique. Or a BonnieW. Or a Buddy. Or a Deveny. Or a LeLimey (especially a LeLimey, to be a mum to a clusterhead must just be devastating). Thomas, Gena, Dennis and Georgia are supporters of a different breed even. At least they've felt each other's pain. Now, granted, that probably makes it worse for them. But they are in a different category, nonetheless. I guess these four have a leg-up on the rest of us. So, who f-in cares, Linda? I do. I know it's just semantics and most likely will, yet again, be perceived to be bitchy of me, but there are some things that really rub me the wrong way and this is one of them. The word "supporter" is just a word to most of you. But to some of us, it's a badge of honour that's earned after years of living the life, and trust me on this one - it's not a badge that any one of us want to wear, ok? Maybe we spouses and mums of clusterheads need a new name or something. I dunno. To me, the word "supporter" has lost its meaning around here. |
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Title: Re: Cluster Headaches Post by Peppermint on Oct 13th, 2005, 2:59pm on 10/13/05 at 14:34:35, Margi wrote:
How would I be getting my heart broken? |
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Title: Re: Cluster Headaches Post by Margi on Oct 13th, 2005, 3:03pm Just the politics of it all, Patty. It's hard work being an OUCH officer/BoD - you end up putting up with a lotta poo poo. That's all I meant by my comment. |
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Title: Re: Cluster Headaches Post by BikerBob on Oct 13th, 2005, 3:04pm Margi, you and all the supporters here aren't just "supporters" You're angels http://bestsmileys.com/religous/5.gif BB |
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Title: Re: Cluster Headaches Post by Linda_Howell on Oct 13th, 2005, 3:06pm You are absolutely correct. Cathi, nor anyone else here, has EVER had to cancel their plans, lost sleep, nor gone into financial ruin because of me. Most of my 18 years with the beast, I have done it alone. I do not want anyone to ever think that you, Ree, Jackie, Leesa or the others who DO go through this......on a daily basis.....will ever take me wrong. You have all well deserved your badge of honour. It has certainly NOT lost it's meaning with me.!!!!!!!!!!! The walk you choose to take with us is extraordinary! All I meant is that, for the sake of a lack of a better word...their help is also freely given and very much needed. Especially to those of us who have no one. In my opinion they have a right to a voice. Linda, your TS |
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Title: Re: Cluster Headaches Post by Peppermint on Oct 13th, 2005, 3:06pm on 10/13/05 at 15:03:01, Margi wrote:
Oh. Well, gee, that's expected. On all counts. Modified to add: Bikerbob, that's on the money. Margi, to rehash what has been said in the past no one, is taking anything away from the spouses or live-in folks who do experience/live with clusters on a daily basis. Its just not possible. Do you realize that? No one can type away the tears, sweat and blood you have all experienced from dealing with clusters and your clusterheads. No one is claiming your badge or courage or your right to say that you really "Know". You have earned it, in a most unfortunate circumstance, and through love you've continued on. That is something to be admired, but honestly, its not something I aspire to, for the very nature of the beast. I don't know if I could handle it in the extreme if you'd like to know. Maybe I should say "Not I" instead of "no one". But I haven't seen anyone do that here. And if I have missed it, then I've missed it. You have every right to stake your claim to being a supporter. The only time I have been called a "supporter" has been by a clusterhead. And that's the truth. When I see things like this, it makes me feel bad that you feel that you have been robbed of something. I hope you understand what I'm saying here. You should not feel that way, and that's why I decided to post this. If I can be of help to the people here that I've come to know and YES love, then I'll do what's within my abilities to do so. ANd Margi, that means you too. ...Because from what I have learned and seen, its hard living with clusters. No need to slither Margi, I see where you're coming from. Patty |
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Title: Re: Cluster Headaches Post by Margi on Oct 13th, 2005, 3:07pm Thanks, Bob and my littlest TS. I'll slither down off my soapbox now. Damnit, I forgot Leesa. I know I missed a lot of others too. My apologies. |
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Title: Re: Cluster Headaches Post by Cathi04 on Oct 13th, 2005, 3:15pm Noone would EVER diminish the role of a supporter who lives with CH 24/7....never have I intentionally done so, but when you have people who CARE,even though they dont live with CH daily, why use every opportunity to throw them under the bus? Do you think, after being here 4 yrs, I am going to walk away? I'm not. Do I have something to offer here? I think so. Do I have an ulterior motive for being here? No, I dont. It would, in many cases, be much easier not to participate, rather than get the barbed comments and snide remarks, but I am not here for the people who send these posts. I am here for the friends I have met, who see SOME value in my comfort. Many of these people have no direct supporter-who are they to turn to? I hate what a sufferer goes through. I hate what a direct supporter suffers through as well! Jackie, I think the WORLD of you! You are always one who knows when a shoulder is needed, and you give of yourself freely. I have never seen a snide remark, or thinly veiled insult from you. You are the warm blanket so many can wrap themselves in. I'll never measure up, but that's ok. Brikki, you're a doll! Such spirit! So much energy! I love catching you online, you are a burst of energy, and soo caring! Jean....a sufferer who seems confused..LOL..she does as much supporting as she does suffering! I SOOO admire these loving, caring women. If I hadnt landed here, I never would've known them! I also think, if there is SOMEONE who cares enough to learn about and speak of CH in their daily lives, make a phone call, take a phone call, meet, hug or gather with MORE sufferers and supporters, there is SOME value. Linda, I love you. Chuck, Svenn, Virginia,Edna, Nani, Echo, Kirk, Charlie, Jeepie, and soo many who, embarrassingly, slip my mind for now, how could I posssibly live without you in my life? Please, dont ever call me a supporter. It rankles some around here. I'd like it a LOT, though, if you'd think of me as your friend. Cathi |
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Title: Re: Cluster Headaches Post by LadyElaine on Oct 13th, 2005, 3:32pm In defence of Patty, I have gotten to know her well over the years. This lady may not live with a clusterhead, but she knows what the pain is. At one time I didn't think it possiable for someone to support me that didn't have a clue. Patty has done her home work, and thats is one of the things OUCH is about. Helping people who do not have a clue about clusters understand. We need not only Doctors to understand but peole we work with , People we hang with, our Bosses. Pattie has proven to me that she cares and she understands. I think Patty will be just fine. Don Kiss my Grits ;;D |
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Title: Re: Cluster Headaches Post by Margi on Oct 13th, 2005, 3:33pm aw, back the hell up, Cathi. >:( The ONLY time I referred to you by name was to compliment you, if you'll read back here. FYI, there are a few misdiagnosed people here. How do you know I wasn't referring to them when I took my shot at Don (which is really all it was, a shot at Don - I take great delight in doing that!) I didn't name names in that post. Some of those misdiagnosed people posted to this thread. Yeah, sure - I may have made a "cliquey", bitchy remark, but it wasn't directed at any one single person. It was spawned after a barrage of PM's I got and I was feeling rather brave and PMSy that day. So shoot me. ::) The only time I referred to you by name was when Linda mentioned you and, in doing so, brought up a whole other issue. As I said in my post to Linda, I commend you for the cheerleading and friendship you offer to many here. Talking about throwing someone under the bus at every friggin opportunity and throwing out the snide remarks. You're pretty quick to do the same whenever I bring up this issue, lady. Why not just retract your claws for once, Cathi - I am no threat to you and I am not suggesting that you (or anyone else) leave. Linda hit on a pet peeve of mine and I responded. Your post just illustrates that you didn't get my point. And that's completely fine - I didn't expect you to. And, before you try to rip into me again, I don't mean that as an insult. You and I lead very different lives and our styles are completely different. There's room for both of us here. |
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Title: Re: Cluster Headaches Post by Jonny on Oct 13th, 2005, 3:41pm Somebody pass the popcorn.....no no no, I have plenty of beer, thanks! ;;D |
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Title: Re: Cluster Headaches Post by Margi on Oct 13th, 2005, 3:44pm oh, shuddup, you. I'm on a roll here. :-* |
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Title: Re: Cluster Headaches Post by Cathi04 on Oct 13th, 2005, 3:51pm Margi, My long post was something I should have said long ago. When I mentioned, with affection, a few of the people I have bonded with here, I forgot to mention Den and Georgia........"take what you need and leave the rest"......it is with claws retracted, and great joy that I wrote that post. My only regret is that I forgot some people.......... Woobiegirl, Ramon, The Elusive Miss Fluffyknickers, KOP, Grant, Dan......... I have great admiration for you, Margi, and all the good you have done. Cathi |
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Title: Re: Cluster Headaches Post by deltadarlin on Oct 13th, 2005, 3:59pm I don't usually get up in the middle of posts like this, but as a *supporter* (who by the way did it for 22 years WITHOUT any support myself), my hat goes off to those who choose to be involved with a clusterhead. Being married to a clusterhead, I took it that part of my vows seriously, you know, the part about, "through sickness and health"? BUT, with patty and the rest who have chosen to be supporters, my hat is off to you. You made a choice that, yes, has provided you with some rather unique perspectives on life, but you also made a choice that you knew could bring you a lot of heartache. Just my [smiley=twocents.gif] 'darlin |
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Title: Re: Cluster Headaches Post by Linda_Howell on Oct 13th, 2005, 4:05pm Quote:
ROTFLMAO!!!!!!! Margi, if I hit on a pet peeve of yours I am sorry. I assume my comment of "no she does not have CH...so F-in what" was what you objected to. now about Jonny? should we pop his corn for him Margi? [smiley=smartass.gif] Linda |
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Title: Re: Cluster Headaches Post by Margi on Oct 13th, 2005, 4:06pm Good point, Delta. I agree with you. I often think that most "direct" supporters (thank you, Cathi, for that term) knew that our spouses were clusterheads when we married them (even if we didn't know the term yet, we knew it was something brutal and life altering). You bring up a very good point, though, that there are some cases where cluster doesn't hit until later into the relationship, when it's kinda too late to run screaming for the hills. (Yes, I did also get your point about folks who want to help sufferers when they aren't bound by any relationship ties, too - they are to be commended as well.) Thank you, Cathi, for your post. Peace. I also forgot Woobie and Cathy in my list earlier, too. I sure do miss all those memory cells I killed in the 70's. |
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Title: Re: Cluster Headaches Post by Margi on Oct 13th, 2005, 4:07pm on 10/13/05 at 16:05:00, Linda_Howell wrote:
oh man. All I can say to THAT little gem is.... :-X ROFLMAO oh, so many possible responses to that, yet so little time... |
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Title: Re: Cluster Headaches Post by Jonny on Oct 13th, 2005, 4:11pm Oh god!, its turned into a soap opera.....Im going back to the thong thread, nobody talks back to me there ;;D |
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Title: Re: Cluster Headaches Post by Margi on Oct 13th, 2005, 4:16pm Hey, Linda - did you catch that? I think Jonny's skeered of us. I always said he was a smart boy. ;) |
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Title: Re: Cluster Headaches Post by Cathi04 on Oct 13th, 2005, 4:16pm Peace Cathi |
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Title: Re: Cluster Headaches Post by Jeepgun on Oct 13th, 2005, 4:23pm Aw, shit man.... Group hugs and snuggles and stuff... ;;D Get back here, Jonny! [smiley=laugh.gif] Can't we all just get a bong? [smiley=smokin.gif] [smiley=laugh.gif] |
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Title: Re: Cluster Headaches Post by Linda_Howell on Oct 13th, 2005, 4:23pm Quote:
I not only caught it.... but it has been duly noted in what is left of my mind. ;) J? when there are women involved, you have no where to run. No where to hide our "inked" friend. Linda |
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Title: Re: Cluster Headaches Post by Jeepgun on Oct 13th, 2005, 4:52pm on 10/13/05 at 15:15:07, Cathi04 wrote:
Supporter, friend, sister, pal... [smiley=hug.gif] Thank you for your kind and generous heart, Cathi. I think the world of you and I'm glad you're around. I'm also honored to be counted among your friends. :) -FranknJeep |
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Title: Re: Cluster Headaches Post by Jill on Oct 13th, 2005, 5:13pm I have been debating on posting this since everyone seems to agree that all supporters are great but I want to add one last thought... First of all, all those that support clusterheads are great and I cannot imagine being in my supporters shoes. But there is a clear difference in the kind of supporters here. For just about three years my supporter has supported me through thick and thin, the good days and bad days. He moved across country with me so that I would not be left alone in a bad time and with these headaches. And no matter how bad things have gotten, no matter how cranky I can get or how many times I get hit or how depressed I become - he is right there by my side through it all. He could have walked away from this, said that he didnt or couldnt deal with it anymore but he never did... just mustered up courage and picked me up again and again. Maybe part of this is because he is also a clusterhead or maybe because he is just such a great person, I dont know. That being said, it is great to have others there to listen and to tell you that it will be okay even when you dont feel it. These are also supporters but on a different level - that understanding of what the pain is like or even just the understanding of seeing you get hit hour after hour, day after day isnt there. For those that live with us, there is no chance to walk away or take a break or live a 'normal' life. Margi is right, those that live with us live their life revolved around CH - it alters plans, makes living that day to day so called normal life impossible. Life is more stressful - on top of dealing with a loved on with CH you have also the troubles of finances, working around doctor appointments, getting medications and even doing basic chores when us sufferers fail to do so because sometimes we cant. I am rambling now but I hope that this makes sense. It is great that people like Cathi and Peppermint are around to support some people but, in my thoughts, they are more friends. They can hang up the phone and go one with life - like it or not, that is how it is. Clusterheads need all the help, guidance and shoulders to cry on that we can get but we also need to know that that person can be counted on to stand the test of this - to stick it out with us no matter what. Okay, I am sure that some will read this and not like what I have to say and for you, I am sorry as I mean no wrong. My point is that my true supporter is one who has been with me through it all even when family wont - thick and thin, day in and day out, standing by my side as I fight each attack, as I battle through depression and anger, offering that shoulder to cry on as well as the kick in that ass when needed - I can count on him no matter what. That makes a supporter. Jill |
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Title: Re: Cluster Headaches Post by unsolved1 on Oct 13th, 2005, 5:32pm I think I lost weight reading this thread. Jeep pass the bong! I mean, can't we get along ? UNsolved |
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Title: Re: Cluster Headaches Post by Jeepgun on Oct 13th, 2005, 6:24pm You've got it, Unsolved. :) Seriously, aside from Jill's final little barb, I hope that the air has been cleared a little. We're all in this, together. Peppermint and Cathi are appreciated even moreso because although they could certainly walk away anytime they choose, (and after some of the comments I've heard from people about the two of them, I wouldn't blame them a bit if they DID!) they have chosen to stick around, research this condition, support, listen, and most of all, to care and have compassion. I admire their dedication and kindness, and I am grateful to both of them. At NashCon AND at DalCon, I saw Patty go charging off to get oxygen for people on countless occasions, retrieve ice for people, sit with people, and comfort people. Those efforts and that service should be applauded -- Not denigrated. If you see it differently, or choose to see these two ladies differently, so be it. It's ugly when it's dragged out onto the board, though. Why not keep that ugliness to yourselves? (And this goes for a lot of arbitrary meanness that seems to happen around here periodically, by the way.) The gossip, the factions, the cliques, the in-fighting... Enough is enough. We are all in this together. On one level or another, we all hurt. We all would love to see a cure. Until that day, we all support each other. Isn't this what it's all about? /donning asbestos undies. Flame away.... *shrug* |
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Title: Re: Cluster Headaches Post by Jill on Oct 13th, 2005, 6:27pm I agree with both of you... I didnt mean anything harmful by what I was saying.. My point was just that there are different types of supporters - I guess it comes down to what we see in a supporter and what each of us needs. But you are right, no matter what we are all in pain and lean on each other and our loved ones to get us through. Guess that is what makes this a family - the good, the bad and the not so pretty. Jill |
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Title: Re: Cluster Headaches Post by AussieBrian on Oct 13th, 2005, 6:37pm on 10/13/05 at 14:34:35, Margi wrote:
Genealogically speaking you'd be CHeads once removed, people like Cathi and Peps CHeads twice removed. Either way it means we're all related and I dips me lid to the lot of you. |
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Title: Re: Cluster Headaches Post by vig on Oct 13th, 2005, 6:40pm on 10/13/05 at 18:37:42, AussieBrian wrote:
d.. d.. d.. ditto ;;D |
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Title: Re: Cluster Headaches Post by don on Oct 13th, 2005, 7:05pm Quote:
I might be agreeable to that if I could just figure out what part of the female anatomy that is. Who am I shittin. It dont matter. I'm puckered and ready. |
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Title: Re: Cluster Headaches Post by maffumatt on Oct 13th, 2005, 7:48pm Peppermint and Cathi are alright in my book......we need more people like them. Hell all you guys are alright in my book. To bad my books all fucked up............. |
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Title: Re: Cluster Headaches Post by KingOfPain on Oct 13th, 2005, 9:41pm Cathi and Peppermint have always been there for me, as have numerous friends I couldn't possibly begin to list. Thank you Cathi, Pepper, and all others that have done what you could in whatever form that took. In my opinion, someone that doesn't deal with this on a daily basis is the ultimate supporter. They could be anywhere else, doing something else. And still, through all the grief, they stay. Amazing. :o I for one, appreciate you. :) |
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Title: Re: Cluster Headaches Post by cootie on Oct 13th, 2005, 11:45pm Ech.......I think I found the culprit thread ? Anyhow.....this is one reason I stay out of alot of topic areas.....I don't feel I have the rank to "speak" for a ch'r about meds.....feelings and pain levels. After all.......I am on the outside looking IN Pam But I am only here cuz I like ya's...........if that matters to all.............. |
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Title: Re: Cluster Headaches Post by ghost62 on Oct 14th, 2005, 8:30am Ok I have stayed quiet through this for the most part, mainly because I was under the impression that there was a few miss statements. I my be wrong in my assumption but here it goes any way. I feel relitavely certian that we ALL have said and done things we wish could just dissapear, but it never does. I also am pretty certian we ALL whether CHer or Supporter come here for the comarodary and compassion, Yea we bicker some and poke at each other a bit but would it be fair to say that most FAMILIES do? I for 1 see us as just that, a Family. There will be some dissagreements and some arguing and a lot of compasion even when we dont ask for it. I know I have offended some in the past and will probably do it again in the future, but that doesnt mean I quit caring about everyone here it just means I am human. (well sort of) I have alot of trouble beliving anyone here (except the TROLLS) would really want to intentially hurt anyone else here but, it does happen. When it does happen usually someone will pm and let you know. There have been the occasion where it seems everyone takes sides and start jumping at each other and some get hurt in the process. I know most of what is said here is a way to vent through the frustration of the BS pain and some a way to vent about other stuff, I personally vent in a different way than some through HUMOR, that is me though. I will never try to hold everyone else to the same standards I hold myself to. I do however would like to remind everyone we are here for each other and not just ourselves. I very seldom take things personally, but it has happened. When it does I try to step back and remember I need to try to help as much as I need help. I care deeply about everyone here and it hurts to see some fight like this. Pleas try to remember we are all here for a reason, it may not be the same reason but it is still important to us. Well I gues I have said more than enough. Now everyone GROPE HUGS!!!!! :o :o :o ;;D ;) |
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Title: Re: Cluster Headaches Post by ClusterChuck on Oct 14th, 2005, 9:19am Ok, enough of the B.S. ... Let's get to the basics of this thread .... Don, You SUCK! (And very well, I might add ...) Chuck |
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Title: Re: Cluster Headaches Post by Chillrmn1 on Oct 14th, 2005, 6:04pm on 10/14/05 at 08:30:37, ghost62 wrote:
That's the way I see it also ghost. |
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